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Superbowl 50
During Superbowl I Icewoman was in labor and I was in the father's waiting room. How well do each of you remember Superbowl I? 1. How many years ago was Superbowl I? 49, 50 or 51 2. How many Kidney's did I have at the time? two, too or to 3. The highest price ticket for the game was? $6, $12 or $24 4. The cost of a loaf of…
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Lump
hi all! i was diagnosed with rcc in July 2015. I had a laparoscopic nephotomy in November 2015. I know it's only been three month but I still have numbness from the top of my thigh all the way up to my chest. i am over weight but since my surgery I have the dreaded lump that I have read others have since their surgery.…
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Treatments
Ok, the Dr. who origninally diagnosed my daughter is suggesting TORISEL? and XGEVA. We are heading to Cleveland Clinic later today, so we will see what they have to say. Prayers please! Thanks
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PET results, now we have a plan
Seems like months since I have been here, but it has only been about 2 weeks! Amazing. This is such an up and down process I really value everyone's comments, it has really helped get a grip on this "thing". My PET results were surprising. The growth on the pancreas turned out to be false...nothing there, apparently…
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New wrinkle
Sorry I have been out for a bit I was feeling pretty ill for several days, I even had to go to the hospital that sucked. So I do like my new port, if anyone is considering it do it, the port is so much better for accessing veins. When I did my Opdivo on Monday I found out I am mild to moderatly anemic now. I was wondering…
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Surgery Done
sitting in my hospital room, had my 2fer gallbladder removal and right partial neph. the universe is a jokester yesterday my home heater died and it was 18 degrees outside in Utah. So I spent the day dealing with that. In hindsight that was probably a good thing because it kept my mind off of today. When I had my pre…
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Stage 4 Renal
New here. My 33 year old normally very healthy daughter was just diagnosed stage 4. It has spread to her bones... We are just getting started. She had her biopsy yesterday, and we are awaiting a phone call from a Dr. who specializes in this. Any help would be greatly apppreciated, as all of the information on the internet…
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Confused
Hello all, I am brand new to this group as I am brand new to the idea of having a very large tumor on each kidney as well. Just last week after seeing a urologist for blood in my urine he prescribed medicine to stop the bleeding and ordered an ultra-sound. This revealed the growths that are 60x60x60 cm and the other…
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Sleep Problems and Kidney Cancer/CKD
I've been having sleep problems for years. I have sleep apnea and have been using a CPAP for many years. The past week I've been having a terrible time with my sleep. Allergies or a cold/sinus infection always makes it difficult for me with my apnea. Anything that blocks my nose makes it hard for the CPAP to work. A friend…
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New member
Hi Everyone, About 4 months ago I was diagnosed with stage IV kidney cancer. Unfortunately for me it has spread to lung and lymph nodes thus it being catorgorized stage IV. I had my left kidney/tumor removed on November 19th, 2015 and just finished my first round of HDIL2 treatment. I will now wait two months then have…
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New patient with additional concerns of dvt, pe, and IVC filter
Hi! I'm a newly diagnosed patient scheduled for surgery 2/9/16. Not sure yet if it will be open or robotic it will depend on bleeding/ clotting issues. I have been on anti coagulant therapy for 9 yrs with no known cause for dvt and pe. I came off recently because it was thought I did not need them and developed a dvt…
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Funny bonz by Garym
http://csn.cancer.org/node/250632 .I think that should bring you to some of gary's jokes. There are people there that I miss.
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3 Months Post-Op Questions
Hello, I am very happy to have found this board. I have questions that I am afraid to contact my doctor about, and am hoping someone has experienced the same as I and can offer some advice. So, here goes. I am 48. I was diagnosed Stage 1 RCC (4cm tumor) in May 2015. I had a lap robotic assist partial nephrectomy in July.…
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Three year anniversary from date of surgery
It was three years ago today that I slept through the removal of my kidney, adrenal gland and 15 to 20 lymph nodes. Oh, and the removal of a sizeable tumor. I understood the surgeon to classify it as stage 4. He did not leave my wife and I with a cheerful prognosis. It's three years later, and I'm still here. In fact, with…
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PET scan vs CT scan
I have recently become covered by Medicare (I also carry a supplemental policy). Today, I learned that Medicare apparently puts a lifetime limit upon the number of PET scans which one can receive in connection with any single cancer. That is, I can be dealing with RCC for years and be limited by Medicare to 3 or 4 PET…
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anyone help explain what a frozen section is?
Hi all, I have tried to research this, but thought I would see what you guys know too. On my paperwork for my upcoming surgery on 2/16, it says "frozen section". I seen on internet its done during surgery? What exactly are they doing it for? Pathology? Sorry, I am still on a learning curve. Appreciate any input. Kim
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CT game changer
Hi everyone, thank you so much for your initial comments and great advice in my initial intro to the "group. Unfortunately things have become more complex for me. The CT revealed , besides the mass on my kidney we knew about, a small (19mm) lesion on the tail of my pancreas, as well as multiple nodules up to 1cm on my lung…
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4 months and 2 CTs on Votrient....results inside
Results of my 2nd monitoring scan. Stage IV Grade IV Kidney removed 9/1/15 Began votreient Sept 23 Last scan Jan 27 Continuing shrinkage/stabilization of major tumors. Lower Right Lobe 2x1.9cm Sept 15 1.8x1.6cm Nov 15 1.5x1.5cm Jan 16 Left Center Lobe 1x1cm Stable Center Right Lobe 1x1 cm Sept 15 .8x.8cm Nov 15 .5x.5cm Jan…
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Cancer found at Bingo
Did you hear about the old lady that found out about having cancer when playing Bingo? The good news is it was B-9.
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Real good news, and even better news
So, the Oncology visit and scan results were on Thursday. Sutent is working, the tumors are smaller. that is my really good news. The even better news is I am moving on to Opvido infusions next week. I finally made my ultimatium that since the Sutent is obviously working, I wanted the medical marijuana card, because I have…
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Have a date!
I finally got a call for the date of the surgery 2/16.. I am scared but cant wait to get the buggar out!! Still worried about the prognosis because of the location and difficulty of removal, but one step at a time. KIM
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Lung cancer in right hilar
Just had PEt scan and showed a mass in the right hilar of my lung. Having biopsy Thursday. Has anyone had this tpe of cancer spread from renal cancer and did any kind of treatment work
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Retired and living in Florida
As most of you are aware Icewoman, myself and Piper have moved to Florida. One thing we can not escape is the monkey business going around in our retirement communities. Here is what I am talking about. A couple, both age 78, went to a sex therapist's office. The doctor asked, "What can I do for you?" The man said, "Will…
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Same old couple
After leaving the doctors office, the old couple go to Mcdonalds. A biker is sitting down with his lunch and watches as the husband orders their food. The old gent sits across from his wife. Opens the bag, removes a napkin, tears it down the middle, puts half in front of his wife and half in front of himself. He then cuts…
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UPDATE: Open Partial Nepherectomy
Just wanted to do an update. Surgery was on 1/18/2016 and it was a partial only!! Confirmed that is CC Renal Carcinoma, stage 1. Thankful it was caught so early! Still waiting to see the surgical and pathology reports. They stated I had to go through medical records to obtain the copies. I just was released yesterday from…
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Woo hoo!!
I just want to share with you that next Saturday my husband and I are going away for vacation together. A real vacation! We are leaving next Saturday for Punta Cana, Dominican Republic. We haven't been away on a vacation like this in 5 years. I am so looking forward to the palm trees, beautiful beach and ocean, cocktails…
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Six years on CSN
Tomorrow marks 6 years that I have been on CSN trying to make a positive difference in the lives of our club members. For those of you interested in my periodic prognostications, just type in the keyword "Icemantoo" above to search my various posts. What I need now as I will be 73 years young this year is for others to…
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"Surgical Material" noted in findings of a recent CT Scan 2 1/2 years after partial nephrectomy
I had robotic partial nephrectomy of the right kidney in 7/2013.. So I had an unrelated abdominal CT scan a couple of weeks ago (gastro ordered) that showed surgical material at the nephrectomy site. I was just wondering if anybody else has had this on a scan? It has been 2 and a half years since my surgery. I have had on…
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RCC metastasized to opposite adrenal
Eight years after having my left kidney and adrenal gland removed due to rcc, I now have a tumor on my right adrenal gland. The doctors are recommending that I have the adrenal gland removed which will leave me without any adrenal glands. Has anyone else had this happen?
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Officially a member now
Hi All, I just got back from urologist appt and was informed that the mass will come out. When I asked what the chance was that it was cancer he said 75% or more. Its still small 2.5 cm. So, out it comes. I want it gone!! I did not want to go with the wait and see. I couldn't live with wondering all the time. Really liked…