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Kidney Cancer

3 Months Post-Op Questions
Hello, I am very happy to have found this board. I have questions that I am afraid to contact my doctor about, and am hoping someone has experienced the same as I and can offer some advice. So, here goes. I am 48. I was diagnosed Stage 1 RCC (4cm tumor) in May 2015. I had a lap robotic assist partial nephrectomy in July.…
Three year anniversary from date of surgery
It was three years ago today that I slept through the removal of my kidney, adrenal gland and 15 to 20 lymph nodes. Oh, and the removal of a sizeable tumor. I understood the surgeon to classify it as stage 4. He did not leave my wife and I with a cheerful prognosis. It's three years later, and I'm still here. In fact, with…
PET scan vs CT scan
I have recently become covered by Medicare (I also carry a supplemental policy). Today, I learned that Medicare apparently puts a lifetime limit upon the number of PET scans which one can receive in connection with any single cancer. That is, I can be dealing with RCC for years and be limited by Medicare to 3 or 4 PET…
anyone help explain what a frozen section is?
Hi all, I have tried to research this, but thought I would see what you guys know too. On my paperwork for my upcoming surgery on 2/16, it says "frozen section". I seen on internet its done during surgery? What exactly are they doing it for? Pathology? Sorry, I am still on a learning curve. Appreciate any input. Kim
CT game changer
Hi everyone, thank you so much for your initial comments and great advice in my initial intro to the "group. Unfortunately things have become more complex for me. The CT revealed , besides the mass on my kidney we knew about, a small (19mm) lesion on the tail of my pancreas, as well as multiple nodules up to 1cm on my lung…
4 months and 2 CTs on Votrient....results inside
Results of my 2nd monitoring scan. Stage IV Grade IV Kidney removed 9/1/15 Began votreient Sept 23 Last scan Jan 27 Continuing shrinkage/stabilization of major tumors. Lower Right Lobe 2x1.9cm Sept 15 1.8x1.6cm Nov 15 1.5x1.5cm Jan 16 Left Center Lobe 1x1cm Stable Center Right Lobe 1x1 cm Sept 15 .8x.8cm Nov 15 .5x.5cm Jan…
Cancer found at Bingo
Did you hear about the old lady that found out about having cancer when playing Bingo? The good news is it was B-9.
Real good news, and even better news
So, the Oncology visit and scan results were on Thursday. Sutent is working, the tumors are smaller. that is my really good news. The even better news is I am moving on to Opvido infusions next week. I finally made my ultimatium that since the Sutent is obviously working, I wanted the medical marijuana card, because I have…
Have a date!
I finally got a call for the date of the surgery 2/16.. I am scared but cant wait to get the buggar out!! Still worried about the prognosis because of the location and difficulty of removal, but one step at a time. KIM
Lung cancer in right hilar
Just had PEt scan and showed a mass in the right hilar of my lung. Having biopsy Thursday. Has anyone had this tpe of cancer spread from renal cancer and did any kind of treatment work
Retired and living in Florida
As most of you are aware Icewoman, myself and Piper have moved to Florida. One thing we can not escape is the monkey business going around in our retirement communities. Here is what I am talking about. A couple, both age 78, went to a sex therapist's office. The doctor asked, "What can I do for you?" The man said, "Will…
Same old couple
After leaving the doctors office, the old couple go to Mcdonalds. A biker is sitting down with his lunch and watches as the husband orders their food. The old gent sits across from his wife. Opens the bag, removes a napkin, tears it down the middle, puts half in front of his wife and half in front of himself. He then cuts…
UPDATE: Open Partial Nepherectomy
Just wanted to do an update. Surgery was on 1/18/2016 and it was a partial only!! Confirmed that is CC Renal Carcinoma, stage 1. Thankful it was caught so early! Still waiting to see the surgical and pathology reports. They stated I had to go through medical records to obtain the copies. I just was released yesterday from…
Woo hoo!!
I just want to share with you that next Saturday my husband and I are going away for vacation together. A real vacation! We are leaving next Saturday for Punta Cana, Dominican Republic. We haven't been away on a vacation like this in 5 years. I am so looking forward to the palm trees, beautiful beach and ocean, cocktails…
Six years on CSN
Tomorrow marks 6 years that I have been on CSN trying to make a positive difference in the lives of our club members. For those of you interested in my periodic prognostications, just type in the keyword "Icemantoo" above to search my various posts. What I need now as I will be 73 years young this year is for others to…
"Surgical Material" noted in findings of a recent CT Scan 2 1/2 years after partial nephrectomy
I had robotic partial nephrectomy of the right kidney in 7/2013.. So I had an unrelated abdominal CT scan a couple of weeks ago (gastro ordered) that showed surgical material at the nephrectomy site. I was just wondering if anybody else has had this on a scan? It has been 2 and a half years since my surgery. I have had on…
RCC metastasized to opposite adrenal
Eight years after having my left kidney and adrenal gland removed due to rcc, I now have a tumor on my right adrenal gland. The doctors are recommending that I have the adrenal gland removed which will leave me without any adrenal glands. Has anyone else had this happen?
Officially a member now
Hi All, I just got back from urologist appt and was informed that the mass will come out. When I asked what the chance was that it was cancer he said 75% or more. Its still small 2.5 cm. So, out it comes. I want it gone!! I did not want to go with the wait and see. I couldn't live with wondering all the time. Really liked…
Friday Birthday Party Special Guest
Had not realized that the day I was scheduled to get my 1.5 year scan results was my wife's birthday. We made a day of it, taking the ferry into NYC and I took her to lunch and we did a little shopping. The day was capped off with a special guest--NED! I was a little concerned since I have had a very dull, non-steady pain…
My 1.5 year free of cancer news
Hi all, I had my 18 month abdomen,pelvic,lung C.T scan and recieved the report today. Uncle Ned did me a favoure and came to a cosy cofee shop where my hubby and I were celebrating my 1.5 year free of cancer. Uncle ordered a big slice of chocolate creamy cake but did not have enough time to stay and have it so I had to…
Hi all
let me say hi, just starting this journey on Christmas Day 2015. Scheduled for lap partial on right kidney on Feb 3. 2.5cm Bosinak 4 cyst on top of right kidney. Also having gallbladder out so a 2fer. On my CT the cyst looks like a jelly fish so I'm swimming with the jellies.
got mri report any help would be appreciated
I had US last week said everything was fine. I had urq pain. Then dr had me do ct this is what it said... CT----heterogeneous enhanced lesion on right kidney 2.0x1.8 in midpole right kidney Impression 1. Indeterminate 2.0x1.8 cm lesion in the right kidney,. This could represent renal cell carinonma. Further evaluation is…
Test Day
Today, starting this afternoon, will be my three month testing. Blood work, lung CT scan, brain MRI, chest/abdomen MRI and pelvis MRI. Not looking forward to being in the MRI machine for so long. I wanted to address the questions I have seen arise regarding MRI vs CT scan. Each patient has to be managed according to their…
Hi!
Hey folks, New here...just introducing myself. My husband (well almost...) was diagnosed with kidney cancer on January 15.He'd had blood in his urine just before Christmas...i forced him to go to emerge, did a ct scan while there, was told it sounded like kidney stones, but they hadnt found any, we figured he must've…
Open Partial Nephrectomy
I am scheduled for a partial open nephrectomy on 1/26 for a 4.1 cm mass on my left kidney. I'm curious about others experience with recovery after the open procedure. I'm a single mom to a preschooler, and I need to figure out how long I will need to have help caring for her. Thanks in advance for your insight!
When do the Votrient side effects start?
I saw my Oncologist on Friday for my first visit since starting Votrient approximately 2.5 weeks ago. I would like to ask others who are on Votrient when their side effects started? My Oncologist was surprised that I have not experienced anything yet, however, I have read it can take up to 18 weeks before they start. Also,…
1st Opdivo dose
My Mom (age 73) will soon receive her first dose of Opdivo after taking Inlyta for more than a year (previously Afinitor and Votrient). Her initial diagnois was in 2010, with lung mets in 2011. She may be receiving this every two weeks, so I'm wondering if we should ask the oncologist about a port? Any pros/cons to…
Any one have much success with radiation
My pulmonary doctor wants to start radiation on the mets butting up against my trachea. I talked to my ONC about it and he said he would like to wait a couple of months to see if the Opdivo works for me first. He also said radiation does not always work with RCC and so I was wondering if anyone else has tried radation and…
location of tumor?
Just curious since this is new to me and you guys all seem to be very educated on the subject :) Does prognosis/stage change if the tumor is located in upper, middle or lower pole of the kidney? Or is stage just size of the mass? Also, anyone just opt to have the whole thing taken out even with a small tumor to avoid…
Scan Day
Hi All, I can't believe it has been six months since my partial. I have done my best to live normally and try not to think of cancer too much. Some days are fine and other days it is still a mental struggle. I go in today at 11 am for my MRI. I get the results on the 25th. in the doc office. I had a question for you all. I…

Kidney Cancer

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