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Scanxiety and questions
my husband is getting CT scans of chest and abdomen later today and the anxiety is here; it has been 11 months since the last ones. he has been having MRIs of the spine; last one showed a spot that had been on his baseline but only now lit up. He is scheduled for radiation. he has not had mets anywhere other than spine (up…
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First scan after starting Votrient
Pet scan result: Stable for now. The lymph node has shrunk from 2.3 cm x 3 cm to 1.8 cm x 2.1 cm, however SUV uptake went from 4.8 to 5.5. The 9 mm node on my right lung has disappeared. The 4 mm node on the left lung has grown to 1.1 but shows minimal SUV uptake (could be inflammatory). There is still lingular infiltrate…
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New Member
Hello, New and just thought to check in. Found out three weeks ago that I have an 11cm mass on my right kidney. They are going to remove it next month, but have to get my left kidney spiffied up and going 100 percent first. Just had Laser Lithotripsy done to remove rather large stone last Thurs. and will get the stent…
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NED, sort of... An update
Sorry, I haven't been here for a while. Some crazy things were happening - I had to do a biopsy for a worrysome skin lesion, little Alice has been so sick with kidney inflammation that we were in hospital with her for a week. She is back home now, but she caught mild bronchitis while in hospital. Husband and I are sick too…
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Another day another drug
Goodbye Avastin, Hello Nivomalab. Good luck and may the force be with you. Take down Darth Tumour.
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Tomorrow is the big day
I have to be at the hospital at 5;30 am tomorrow morning for hopefully a partial that may turn into a radical because of the location. I'm getting very nervous, which I am sure all of you know about. This is going to be my "new normal". I just need to learn to go with it. Do what needs to be done and get on with it like…
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Good morning fellow warriors
I know I'm so new and that these topics have most likely been covered but last night started my second 4 stint with Sutent and then I have scans booked in early April to see if the small tumor I have on my kidney has improved, and then hopefully that will mean that the bone mets I have are being positively impacted as…
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4 losses of family members to cancer in 10 months
Freaking out!! Trying to keep it together but I'm having a difficult time, I feel so emotional. So many losses so close together & life keeps changing so fast. My own bout was over 3 years ago now but recently lost one brother-in-law to leukemia, another to lung cancer, an uncle to oral cancer & now a sister-in-law to…
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Stage 4 renal starting on Sutent
Finally after 6 weeks and 3 biopsies they found that the nodulars on my lungs were from mets of renal cancer. Starting Sutent on Monday and would like to hear from others who started on this chemo and the dose and results. My doctor thinks this is the best one to start with because the nodulars are very small. I am afraid…
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Where to eat lunch in Florida
A group of guys, all age 50 and Kidney Cancer Survivors, discussed where they should meet for lunch. Finally it was agreed that they would meet at Hooters, because the waitresses had big breasts and wore short shorts. Ten years later, at age 60, the friends once again discussed where they should meet for lunch. Finally it…
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Checking in
It has been a couple of weeks since I was on. This anemia and the cancer spreading is dragging me down. I go to work and come home and go to bed about 7 pm and I sleep until 6. I turned in my resignation effective the last day of school, and that hurt I felt like I was giving in to cancer and I was pissed off at the world…
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Impersonating Kidney Cancer
Down here in Florida the big storey on the local news everynight (and now National News) is this 18 year old kid pretending to be Doogie Houser MD. Now according to Doogie himself he has Kidney Cancer. Read for yourself I can not make this stuff up. 5. He Claimed on Facebook That He Has Been Battling Kidney Cancer
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Saying hello for the first time
Hi guys, I've just found all of you this evening and I'm so glad I did, but I am definitely new to this. I'm 47 and was having lots of bone pain in my lower back for the last 6 months and finally in December after an MRI was diagnosed with kidney cancer, very small tumor on my left kidney, but 5 spots of bone mets on my…
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Almost afraid to mention this...
considering what everyone is going through right now. I read the new post from someone who was just told she had a malignant mass on the kidney. That's the situation I was in 9 years, 9 months ago (but who's counting?) Ultimately, the right kidney with a 12.5 x 11.5 x8.5 cm tumor was removed. And going along with it was…
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not sure what to expect, also new member
I'm 51 years old and thought I was in a healthy state. I just had a colonoscopy in November, my yearly GYN in November and blood work for my primary care in December. All of these came back normal. I did have a polyp removed during the colonoscopy. I went to my doctor for psoriatic arthritis two weeks ago and got a good…
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Two cancers
My brother was just diagnosed with kidney cancer and lung cancer. The kidney cancer was diagnosed from a lesion taken out of his brain and the lung cancer was diagnosed from a mass taken from his trachea. Has anyone ever heard of a person being diagnosed with 2 seperate cancers at the same time?
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LYNTA & Dalantercept Clinical Trial
I am starting a new trial with Lynta and Dalantercept and was hoping that someone can give some feedback on the program with regards to succes rates and side effects. Any info that you can pass on is much appreciated. Dancnbear
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Anyone have low GFR before removal of Kidney?
I just read that I am in stage 3 kidney failure. WTH, I am not overweight, not diabetic, don't have high blood pressure. I am currently undergoing tests for blood in urine. I am totall confused. Looking back at my blood tests for the past year my GFR was 57 a year ago and 51 a few months ago with creatine at 1.1 and normal…
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Just Starting the Process and Questions
Hello, A little about me, I'm 60 year old female. I recently thought I had an urinary track infection with all the symptoms of it, however, they didn't find an infection. There was a trace amount of blood in my urinalysis. I have also been experiencing some swelling in my legs. A few days later, I saw blood in my urine and…
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new member - just discovered mass on kidney
So, I just found out that the cyst on my kidney is malignant and I have to get it removed. Anyone know what I can expect now? I've read everything from no worries to horror stories. I go to the urologist next week to discuss treatment. I think it's 3.5cm...at least that's what I was told from an x-ray. Not sure if the CT…
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MRI results
I had an MRI on my liver last week as recommended by the radiologist who found a 3mm focus of low density in the right side lobe near the dome of the liver during my 1-year follow up CT scans in december. The results came back yesterday. The focus measured 2.7mm on the MRI, and did not seem to display signature…
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Anyone besides me assign a name to the little beast?
I have not read of anyone referring to the beast by a name. I refer to mine as "Bob the Blob". Just curious..... Donna~
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Waiting for Friday
I've been reading all your posts and finally decided to officially join the group. To me, this is acceptance of the fact that I have a health problem which is difficult because I have always been very health conscious. Last week I underwent a lap. radical. Discovered by accident, no symptoms, originally told stage 3, but…
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Who says, "You can't always get what you want."
...but if you try sometime, you just might find, you get what you need!!!! Saw my onc today. I will begin nivo next week and get my stereotactic radiation as soon as I get it scheduled. I am thrilled beyond words. No more votrient side effects! No more white hair in the drain. No more nausea or diarrhea. Despite having new…
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Darth Tumour
Avastin is a wonderful anti cancer drug just out over the last couple of years. Taken as an infusion every fortnight it has absolutely no side effects whatsoever, it seems to have one teeny little flaw. Darth Tumour, leader of the Mets, has increased in size by a third. In England this is what the queen would call 'A bit…
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In recovery mode
I had my surgery on 1/26, so I am a little over 2 weeks post-op. Everything went as expected, and my pain has decreased everyday. I have had more pain last night & today with no real explanation as to why, but I am just trying to rest more. Having my 3 year old home with me is trying, and she is with her dad for a few days…
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New Member
Hello, My member name is Baw41 and I am a male age 41. Sometime in August 2015, I started feeling symptoms of a protatitis and went to see my family doctor. One of my symptoms included large amounts of blood in my urine. The doctor provided antibiotics for a few months and nothing seemed to get better. My doctor then…
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Six month CT scan is NED
i am thrilled to find out my six month scan is clear. I am also confused by GFR which is 48 and creatinine which is 1.2. All the info I have read says that is stage 3 chronic kidney disease. Is this correct? If so is there anything I can do to make this better? My GFR was normal before nephrectomy.
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Torisel and Xgeva
Hi everyone, We took my duaghter to Cleveland Clinic yestereday, and they agree that the Torisel and Xgeva are fine to start. We will be doing so closer to home, with the oncologist who first diagnosed her. Hoping to start the first of next week. Has anyone had any experience with either of these? The Dr. at Cleveland…
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Dancnbear Update and Question
Had another round of CT scans and unfortunately it showed the cancer growing and spreading which means no more votrient. That puts me at one clinical trial, sutent, radiation, and votrient over the last 3 years. The good side up to recently was that the total volume of cancer has stayed pretty much the same over this time…