Good News to Share
I got my scan results today and happy to report NED. It's been 14 months since my last tumor was discovered. I definitely felt relieved.
Today I asked my doctor if we could relax the scan schedule. I'm getting a chest/abdomen/pelvic CT every 3 months now. Have been since my last tumor 14 months ago. He said no. I asked him how long he wants me on this 3 months schedule, and he said indefinitely. He told me that he has seens mets as far as 5 years out and he wants to catch it early. He said the earlier we catch it the more options we have. Also, he thought at my age the risk from radiation exposure was not an issue. Well, of course I'm going to do what he says.
The only issue that is worrying me somewhat is my creatinine. For the past 3 years it's hovered around 1.6. However, the past 4 months it has been consistently 1.8. It was 1.8 again this time. I drank what I thought was plenty of water this time, but it didn't help. It makes me worried my kidney function is getting worse. Does anybody know how bad is 1.8?
I'm very grateful and glad to share good news with all of you. I wish you all the best and thank you for your friendship and support over these past 3 years.
Todd
Comments
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Yay, Todd!!
Great news thatYay, Todd!!
Great news that Uncle Ned paid you a visit. It is great that the doctor is watching you closely. Not sure about the creatinine count, either though. I am sure that some knowledgeable members will chime in soon!
Cheers!!
Jojo
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Hey Todd, glad its YOU andJojo61 said:Yay, Todd!!
Great news thatYay, Todd!!
Great news that Uncle Ned paid you a visit. It is great that the doctor is watching you closely. Not sure about the creatinine count, either though. I am sure that some knowledgeable members will chime in soon!
Cheers!!
Jojo
Hey Todd, glad its YOU and you are doing better!
It means a lot to hear good news and that you shared it with us!
Continued healing with hope!
Jan
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Great news
Happy to hear good ole Uncle Ned paid you visit
Your creatinine maybe creeping up because of your age and the fact that you only have the one kidney… 1.8 is not super high, but I think it's something you may want to get on top of. Do you have a nephrologist?
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GREAT news!!medic1971 said:Great news
Happy to hear good ole Uncle Ned paid you visit
Your creatinine maybe creeping up because of your age and the fact that you only have the one kidney… 1.8 is not super high, but I think it's something you may want to get on top of. Do you have a nephrologist?
So happy to hear that! As far as the creatinine level, from what I've learned many things can affect the levels: from cancer to dehydration to certain medications to eating a lot of red meat within 24 hours of being tested. As others have suggested, might want to see a nephrologist if you haven't already.
Thank you for sharing the good news tho.....love reading that!!
Donna~
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Todd, that is awesome. I knowrja3d said:Great news Todd ! Wishing
Great news Todd ! Wishing you continued good health.
Jay
Todd, that is awesome. I know you go to an RCC specialist, correct and you are in California. Can you share your dr name?
Many thanks
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RCC DoctorShecka1121 said:Todd, that is awesome. I know
Todd, that is awesome. I know you go to an RCC specialist, correct and you are in California. Can you share your dr name?
Many thanks
I'm seeing Dr. Pal at City of Hope in Duarte, California.
He trained under Dr. Figlin, also a great RCC doc in Los Angeles. I've heard Dr. Figlin say that a typical oncologist sees 1-2 kidney cancer patients a year and he sees 30 a week. That's the difference between an RCC specialist and a typical oncologist. It gives me a great feeling knowing that at least I'm seeing docs really on top of what's going on with RCC research.
Todd
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Thanks. Nephrologist.medic1971 said:Great news
Happy to hear good ole Uncle Ned paid you visit
Your creatinine maybe creeping up because of your age and the fact that you only have the one kidney… 1.8 is not super high, but I think it's something you may want to get on top of. Do you have a nephrologist?
I see a terrific nephrologist who is a researcher at a medical school near me. I see her every 3 months. I will talk to her about this creatinine "creep". She does a lot of blood tests when I see her, so I think she's on top of things. She does want me to lose weight. It might be my weight...
Todd
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Congratulations on NED!!!todd121 said:RCC Doctor
I'm seeing Dr. Pal at City of Hope in Duarte, California.
He trained under Dr. Figlin, also a great RCC doc in Los Angeles. I've heard Dr. Figlin say that a typical oncologist sees 1-2 kidney cancer patients a year and he sees 30 a week. That's the difference between an RCC specialist and a typical oncologist. It gives me a great feeling knowing that at least I'm seeing docs really on top of what's going on with RCC research.
Todd
Congratulations on NED!!! Very happy for you!
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NED is Awesome!
Congratulations on graduating to the class of NED. - BDS
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Great news, Todd! My mom's
Great news, Todd! My mom's @2.4 kidney function. It was normal until she started taking three blood pressure meds due to Votrient. The doc isn't worried. She said dialisys starts at 20. So yours is still ok. Don't worry too much. Keep on with the NED!
Ange
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Great News Todd!angec said:Great news, Todd! My mom's
Great news, Todd! My mom's @2.4 kidney function. It was normal until she started taking three blood pressure meds due to Votrient. The doc isn't worried. She said dialisys starts at 20. So yours is still ok. Don't worry too much. Keep on with the NED!
Ange
So happy to hear such good news Todd! Clear your mind about the creatinine levels with your doc so you can really relax and enjoy Spring!
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Great News!
Todd, Thats great news on the NED. I too was NED again in January. Our tumors were near same size but I was Stage 1B with grade 3. the first year I had 4 scans then I have had two since. But I did have some without contrast and my creatine which had hit a high of 1.8 is now back to 1.2 and GFR is 58. I think the scans have little impact on kidney function unless its with contrast. Best of luck getting the correct combination.
Jack
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Great news Jack! Loving theSkagway Jack said:Great News!
Todd, Thats great news on the NED. I too was NED again in January. Our tumors were near same size but I was Stage 1B with grade 3. the first year I had 4 scans then I have had two since. But I did have some without contrast and my creatine which had hit a high of 1.8 is now back to 1.2 and GFR is 58. I think the scans have little impact on kidney function unless its with contrast. Best of luck getting the correct combination.
Jack
Great news Jack! Loving the NED reports!
Hugs
Jojo
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