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NED!!!
Hi everybody! I was away by the sea wihout a computer and no wi-fi conexion for about the longest time ever! Only the phone and wifi in some places, not often. It was great! Almost like life in the old days when computers and cell phones were not around! It did me good and took most of the edge of the scanxiety I was…
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Happy Anniversary to me!
Hubby and I have been married 52 years today. As I've said before, divorce-never; murder-maybe. Especially after he brought home 3 flats (that's 36 pints of berries) the other day. But no pectin, jars/lids/rings/ and only 5# of sugar. Four nights later and a couple of shopping trips later, we finished it all. All I had to…
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Feeling anxious
Today I finally have my appointment with my new kidney cancer doc. I had my CT scan in May, but it has taken me a while to actually get my appt scheduled. I did get my results the day after my CT, and very happy to say Uncle NED had visited me. Thank God. My surgeon left the practice and moved to Colorado (from Illinois),…
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Complex Renal Cyst - New Member
Where to begin?? The last few months I've been experiencing bouts of nausea and itchy hands and feet. On December 8th, I started experiencing a lot of pressure in my upper right quadrant. I felt like I had a pillow jammed up under my rib cage. It wasn't painful but it was certainly uncomfortable. The following day, my…
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Drain wound
For anyone that had a drain...how long did it take for the hole to close after they took it out? Thanks for any info :) angie
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A relief to see the same familiar faces after so many months
Hi everyone It has been one year and one week since my surgery and about 8 months since I last visited the Forum. I am so happy to see many of the "old timers" still active on the board - you give me hope. I am also sad to see so many new names and faces. This time last year, I was a wreck and could not see my way to a…
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CT Scan Result show Enlarged Lymph Node
I can't tell if uncle Ned was here or not. It's like I left out milk and cookies for him and got up the next morning and there were some bites taken out of them, but he's nowhere to be seen. Not sure if it was uncle Ned that was here or that damn Ed (evidence of disease). My scan summary noted a mediastinal lymph node that…
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Surgery yesterday, discharged today :)
I can't begin to thank you all for you sweet comments and support. Reading all of your stories was so inspiring to me. I had surgery yesterday at 12 and they were able to save 95% of the kidney. I was originally suppose to stay 2 nights, but was pleasantly surprised I just got released. They removed drain and catheter and…
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On the other side
Hi all if this does make to much sense.p I'm still on morphine.i ended up having a radical of my left kidney and utter. When the doc started the operation he somehow sliced my utterer so,back,it couldnot be saved. So he took both. Preliminary reports it was cancer but not sure on anything else. im in a lot of pain. They…
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Just diagnosed and scared
hi there! I am new to this board. A little background about myself. I was diagnosed with stage 0 breast cancer at 31. I had a double mastectomy and cancer was gone. It had not spread to any lymph nodes. Well fast forward and I'm now 38 and was just diagnosed with kidney cancer. I'm scared out of my mind. I had been having…
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Vietnam Vets
I was diagnosed almost 5 years ago with RCC and lucky for me it was stage 1. It was small enough that a partial nephrectomy was all that needed to be done and so far I am fine aside from the residual medical anxiety, insomnia etc that many of us have. As I look at many of the posts regarding kidney cancer, an alarming…
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tomorrow
Hi all Tomorrow is surgery day. To say I am nervous is an understatement. There's a part of me that wants to run for the hills but I won't. I report to the hospital at 630 am and not exactly sure on surgery time yet. heyker
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Surgery!
Good evening my sweet friends. I just finished my first and hopefully last lyproscoptic renal nephrectomy. the waiting was far worse than the surgery. Since they had to go inside my kidney, I have to stay at the hospital 2 days. Thank you for being my support team.
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Recovery Quesion
I'm a week out now from my surgery and things seem to be going fine. I do have a couple of questions, however, related to two things that I have observed. Just want to see if it's normal or if I should be pulling out the hair I no longer have. 1. Over the course of the week, on three separate occasions, I had a tiny, tiny…
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Drinking....
I just started my magnesium citrate for my surgery tomorrow. This stuff taste terrible. Does everyone have to drink this and why?
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Pathology Report
Got a call from my surgeon today. He said it was chromophobe RCC. I looked that up and it's apparently a rare form of RCC, diagnosed in only 5% of cases. What's strange is that it seems to be hereditary, but neither of my parents, nor any of my four grandparents had (to my knowledge) kidney cancer. Of course, since the…
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Unpredictable...
Unpredictable... (Sung to the tune of "Unforgettable"...) I got my surgery date. Or not. It will be September 6. Or sooner. The surgeon says about 30% of his patients have to change their initial date for surgery because their EKG indicates a referral to a cardiologist is in order first. So their spots become available.…
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Back pain
I had a right partial nephrocomy on 8-1-16. Two years later I still have back pain and freaking out about next screening in a month. I am also a 32 year old father of 3 yr old twin girls so I'm already stressed. what I've read on this board has hepled me a lot thank you everyone for sharing there experiences. Hope to read…
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Margins - do we understand the story about margins and implications?
I have heard alot about clear, negative and positive margins. In my case, I did not have clear margins and yet the doctor professed he got it all and is positive that there is a low level of risk for recurrence. In fact, with stage 1 (localized and less than 4cm), he states that he favours doing nehpron sparing surgery…
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margins
Hi i had surgery 5 weeks ago. when i got my pathology it had questionabl margins. it showed ink at margin, bu My doc said that when he took it out it fragmented a little which caused it to look positive to the pathologist, but it was from ink seepage?? he said he then burned the margin more to give him more of a margin and…
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Surgery July 1st
hi friends! My surgery is scheduled for July 1st and 12:00. Doctor said he believes he can do it laporoscopic. My mass is 2.6 cm and report says a very minimal amount appears to be in renal sinus. He thinks he can save most of the kidney. How long do these type of surgeries normally last? He said I should be in hospital 2…
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New Member
New member here, so I'll tell my background. In December, 2013, I had a routine physical exam that uncovered some microscopic blood in my urine. My primary care doctor referred me for a CT scan, assuming a kidney stone wold be found. What was found instead, was a 1.5cm lesion on my right kidney that was suspected to be a…
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Truth or not
My cancer diagnosis wasn't actually a total surprise when I heard it. I had an ultrasound done for kidney stones, then got called back for another. Callbacks are great when auditioning for a part, not necessarily great when folks are looking at your innards. Ultrasound #2 was only on one side and higher than the first. I…
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Test
I haven't been able to post. My apologies, but I just wanted to see if it would work. I've been trying for 2 days. Keep getting a "sorry" page with an error message to email to support. Todd
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Go to the doctor?
Ok well I've been here before, last year I was worried I had kidney cancer due to microscopic blood in urine bilateral flank pain and pain in the back and stomach. Well after seeing my doctor and getting a ultrasound he said everything is in working order. After being told that the flank pains and what not all seemed to…
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Checking In - Hoping Uncle Ned Has Time for Me
Is this uncle Ned stuff getting old yet? Lol. My quarterly scans coming up on Monday. Won't get a result until the following Monday. Would love uncle Ned to stop by. I'm glad he can be in multiple places at once! Something strange has happened since my last scans and this one. I've actually stopped worrying and obsessing…
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Road trip!
I'm leaving Illinois tomorrow and taking a road trip with my daughter to Calif. I'm picking her up from OHare and we will take the south western route back to her home. I've got my Sutent, wipes, Tylenol, Tomms toothpaste, Magic mouthwash and Immodium! I may have Stage IV RCC but there's a lot left to see and experience!!…
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Failed both Votrient and Opdivo
I am hesitant to post this, because, once I do, it becomes real. Had my three month scan after starting on Opdivo and my cancer has progressed signifcantly - to my liver, to my back deltoid muscles, to the soft tissue in my left flank, extensively in the chest lymph nodes and there is some shadowing in the left temperal…
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Radiation III
So the doctors are postponing IL2 for a week because they feel that the radiation left me a little to week. The doctors feel one more week of rest might be beneficial since IL2 can be so harsh on the body. I think that it is a good idea but I was finally ready mentally for the IL2 on Monday but I can wait I guess. Mark
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Surgery Findings
Hi everyone, This last surgery was very rough. I had to have left upper portion of my lung removed and also had my heart opened up to remove RCC from those body parts (which I am running low on). Doc also removed 5 lymph nodes around the area and 2 tested positive for RCC. Oncologist said we will continue to remove with…