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Still Here
Sorry it has been a while since I have posted, I hope I did not create any un-needed worry. I am a week out of the first cycle of IL2 and FootStomper you are right the staff handling me are incredible. I am still very ill from the IL2 even though I have been home for nearly a week. This has to be the worst thing I have…
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Survivor looking for some positive outside outlooks
Hi, I was diagnosed with stage IV RCC 29 months ago. I had a kidney stone and went to the doctor. He suggested a CT and we discovered a mass the size of a grapefruit on my kidney and both adrenal glands were enlarged. at 46 years old a diagnosis of RCC was a bit of a shock. I had a radical nephrectomy on one side and…
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Hereditary?
I lost my mom to this cancer in Jan 99 she lost her battle the day after 42nd bday after only 4 short months from her Dx. She was a smoker I think that contributed to her getting this. I just turned 41 in Feb and my anxiety about this disease has gotten worse. :-/
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Post-Op Appointment
I had my post-op appointment today, three and a half weeks after my surgery. The nurse practitioner took a look at what is left of the incisions, which isn't much, and said I was making a "remarkable recovery", and released me to do pretty much whatever I want. Don't know what it is about me, but for some reason, I seem to…
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Driving
Just wondering opinions here. My doctor basically said I can start driving when I am ready. I'm still sore and incision is still open. How long did you wait to start driving again? To refresh I had an open nephectmy and complete kidney and uterer removal 6/29. Hey ker
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Hard day
Have you ever been surrounded by people you love and they are here for you but you still just feel alone? Today is just one of those days
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Dancnbear-Update
Dancnbear-Update: It has been a very long time since I have written anything but I do read everyone’s thoughts and suggestions on a daily basis. Much of what you have to say is encouraging and keeps me going through some hard times and so I must thank you all for your support and prayers. It is amazing the things that you…
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pathology report back and incision update
Evening all, Well right now I am cancer free! YES!! I will need every 3 months ct,chest xray, and blood work for the next year. Pathology report Left kidney: Clear cell renal cell carcinoma furnman grade 2 (what does this mean?) 3.1 cm in greatest dimension tumor focally involves the peri-renal fat neg for lymphovascular…
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Should this cyst hurt?
I feel like someone just sucker punched me in the Kidney. It hurts to breath or move or lay still. What the hell is it? Do these things hurt?
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well that was exciting
I finally was scheduled for my scans last thursday to find out how my nivo and radiation have been working out. But during the week I had had a couple of hypotensive episodes with SOB. I tried to ignore it as these scans were important. Aren't they all? Anyway, next thing I know I am in the cardiac recusitation unit in the…
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Drinking and Driving-choosing to take a bus home
I would like to share an experience with you about drinking and driving.As you well know, some of us have been known to have had brushes with the Authorities on our way home from the odd social session over the years.A couple of nights ago, I was out for a few drinks with some friends at the Bonefish Grill and had a few…
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Hippy
I'm off tomorrow to get a new hip. Which shows at least that the Oncologist seems to think I'll live long enough to make it worthwhile. :-)
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MRI Results
Hi Everyone, It seems that I cannot catch a break right now! I had MRI of brain on Saturday, July 2 and Dr. called me on Wednesday July 6 saying I have 4 (3 very small) tumors in my brain! We will be doing Cyberknife Radiation on the biggest one and then discussing treatments. Not sure what they are going to offer, I have…
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Child with Clear Cell Sarcoma of the Kidney
My daughter was diagnosed with Stage 2 Clear Cell Sarcoma of the Kidney at 8 months old. She is now 10 months old, has undergone a radical nephrectomy, radiation and is now in chemotherapy for 6 months. Given that this is such a rare form of cancer with poor prognosis, I was wondering if there was anyone out there that has…
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See ya's
Off camping for 4-5 days. My yearly biker camping event. Except this year I have to drive my truck. Ah, luxury accommodations. And we are expecting purr-fect weather. Beer, bands and bikes. More misbehaving in one weekend than most people experience in a life time. Can't wait. This party is on private property and anything…
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Help!! Please
hi reading my last ct scan report also mentioned that I have more than one . Besides the mass on my upper mid pole left kidney. There is also a faint lesion in the lower pole left renal cortex. There is an additional small hypo dense cortical cyst in the anterior lip mid pole left kidney and a smaller round enhancing mass…
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Constipation after surgery help
I am ready to jump out of my skin. First off I can't have prunes or prune juice due to allergies. I have tried stool softener, milk of magnesia, whi grape juice Apple juice, water lots of it. I have talked to my doc and he wants me to use an enema. I'm 8 days out of surgery.Any suggestions please?? Thank you for any imput…
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Incision question
Hey all They used surgery glue when doing my incision which is about 9 inches. It started as a laporscopic but ended up being a radical nephrectomy. Anyway, the surgical glue is finally starting to come off, surgery was 6/29, and I now have oozing where under the glue is breaking up. It's cleat to pinkish but Im wondering…
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Not sure if I belong here
hi, all. I'm not sure if I belong here, but I am wanting advice on a second opinion. Imaging done for kidney stones 2 years ago revealed a very small 8mm indeterminate lesion. kidney stones and related issues were addressed and I did not follow up on the lesion until recently, as my husband was diagnosed with and…
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jojo
Where is our favorite canadian? Maybe on a tropical beach?
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Pathology report...
I believe I have reason to be happy, but of course still a little nervous. My pathology came back and it is considered T1A clear cell renal cell carcinoma, 2.0 x 1.5 x 1.4 cm, grade 3. Tumor confined to kidney, margins negative, no lymphovascular invasion. Only thing that worries me is the grade 3, but both doctors said…
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Update
So after a new CT scan, and two stress tests this week my oncology team has decided to go ahead with the IL2 starting Tuesday. That was the good news but we had bad news dropped on us too. The CT scan did reveal that the radiation did shrink the big tumor that has been causing so much problems, I know that sounds like good…
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Been a while...
Hi, all. Sorry I *poofed* for so long. Nothing on the sRCC front for a while; scans in March came back looking good, and since then we have been utterly deluged with work, so I haven't had much time to do anything, especially sit and think about what ol' cansah's doing. Anyway, John went for scans last week and we went…
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NED!!!
Hi everybody! I was away by the sea wihout a computer and no wi-fi conexion for about the longest time ever! Only the phone and wifi in some places, not often. It was great! Almost like life in the old days when computers and cell phones were not around! It did me good and took most of the edge of the scanxiety I was…
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Happy Anniversary to me!
Hubby and I have been married 52 years today. As I've said before, divorce-never; murder-maybe. Especially after he brought home 3 flats (that's 36 pints of berries) the other day. But no pectin, jars/lids/rings/ and only 5# of sugar. Four nights later and a couple of shopping trips later, we finished it all. All I had to…
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Feeling anxious
Today I finally have my appointment with my new kidney cancer doc. I had my CT scan in May, but it has taken me a while to actually get my appt scheduled. I did get my results the day after my CT, and very happy to say Uncle NED had visited me. Thank God. My surgeon left the practice and moved to Colorado (from Illinois),…
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Complex Renal Cyst - New Member
Where to begin?? The last few months I've been experiencing bouts of nausea and itchy hands and feet. On December 8th, I started experiencing a lot of pressure in my upper right quadrant. I felt like I had a pillow jammed up under my rib cage. It wasn't painful but it was certainly uncomfortable. The following day, my…
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Drain wound
For anyone that had a drain...how long did it take for the hole to close after they took it out? Thanks for any info :) angie
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A relief to see the same familiar faces after so many months
Hi everyone It has been one year and one week since my surgery and about 8 months since I last visited the Forum. I am so happy to see many of the "old timers" still active on the board - you give me hope. I am also sad to see so many new names and faces. This time last year, I was a wreck and could not see my way to a…
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CT Scan Result show Enlarged Lymph Node
I can't tell if uncle Ned was here or not. It's like I left out milk and cookies for him and got up the next morning and there were some bites taken out of them, but he's nowhere to be seen. Not sure if it was uncle Ned that was here or that damn Ed (evidence of disease). My scan summary noted a mediastinal lymph node that…