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Gallstones
Just got back from the ER with gastric reflux issues (I have had this for years). A CT w/o contrast showed gallstones but not inflamed. I have noticed over the years that more than a few members have had gallbladder issues with their RCC. I am going to follow up with my gastrointerologist on the reflux issues. Should I be…
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Latest results
Just thought I would share some good news! I just got my latest results back from my CT scan and I show no growth for the last 6 months. In fact, the radiologist looked back at past scans and my single remaining tumor is still the same size as it was when it was originally detected. To me at least this is great news…
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Update IL 2 Again
Sorry it has been a while it has been crazy around here lately. Patrice and I are awaiting the results of my CT scan from last week but it does not look good. I say this because the same day I had the scan afterwards when I got home I reached for a cup of water and I heard a loud crack and then I had extreme pain in my…
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sodium bicarbonate
is sodium bicarbonate effective in treating ckd?
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Pathology Report is in--input?
Hello everybody. I've been waiting anxiously for this report and I need your help interpretting this. I'm worried about the positive margins. Any and all input is welcomed and appreciated. Stub DIAGNOSIS: A. Kidney, right, partial nephrectomy: Chromophobe renal cell carcinoma (5.3 cm in greatest dimension). The renal…
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Diagnosed Complex Kidney Cyst Stage II
Yesterday I saw my doctor for the results of my recent CTScan. He said I have a cyst in each kidney. They are both under 2cm. and both are calcified a small degree. About 10 months ago, I had nothing on either kidney. My doctor wants me to wait 6 months to do another CTScan. He says when it gets worse, they will do…
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The dreaded Diarrhea
Hi All..! Well not a fun topic, but one worth getting input. I am on Votrient, but decided this is to much a broader concern so I started a new post, Vs adding to the Votrient thread. So, I have been taking Imodium daily and it had been a big help. But in the last week, the Diarrhea is worse than ever, I have now increased…
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Looking for support, prayers, thoughts and vibes - please
Looking for support, prayers, thoughts and vibes - please its been a awhile. Hope to update my profile. 38male clearcellrcc stage 4. Sutent didn't work and on opdivo. got scans today. side effects are rough. need the posiitive thoughts for this scan.
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*profiles and posts * alert
That was catchy huh? I just want to remind people to keep your profiles updated. Brief health history. It is frustrating to read a post and have quick background check reveal nothing. Those without updates may be missing out from proper feedback. I know that I see so many new people I can't keep everyones concerns in…
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sodium bicarbonate for CKD
sodium bicarbonate for CKD. is it effective in slowing CKD? if it is what dose daily do you take?
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NED!
Hello everyone! I'm happy to report that uncle NED is visiting the shores of Baltic Sea now :-) My husband got all clear today on ultrasound. He won't get chest x-ray this time (had it about 5 months ago). And still to get blood analysis, but I guess it will be good, no worries about that. So we relax for next 6 months :-)…
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Insight from a Radiologist
Hi All, I've wondered many times, as I know lots of you have, why CT scans vs Ultrasounds for follow-ups and is it worth the exposure? Well, a great friend of mine posed the question to a radiologist that she works closely with and the following is his response: There is a greater certainty with CT's that the test is…
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Champions tour
in golf they have the champions tour. It is for pro golfers over 50. It used to be called the senior tour but instead of revealing old guys golfing they promote "Champions". I say my issues don't interest stage 1 newbies but stage 3-4 people with several years experience are more my contemporaries. Quantity and quality of…
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Lower Back Pain- Help
According to my family the center of my lower back-dead center- has a discolorization and indentation. It is also tendor to the touch. Left Kideny and Renal Gland already removed. right side is still in place chugging along. Stomach feels extremely bloated and I have thumping and burning pain down my legs. When I stand for…
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Still kicking
Ya know, after the fear wears off, so many of us drift away from these foums. Numerous reasons, but one that holds true for me is that I am reluctant to think about it so much. I fear that perhaps this tendancy leads new members to new fears - where are the older members? I know I used to think that when I was a newbie...…
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Trials and choices....1 year after diagnosis
After a dissapointing last 6 mos of std therapies I am moving on to clinical trials. Today is my 1 year anniversary since my diagnosis. Opdivo showed mixed results in my Pulminary nodules and shrinkage in my liver, but my lymphnodes exploded in the last 3 months, with most gowing 3-4cm in 2 mos. Initally I showed good…
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Any advice on taking Lenvatinib in combination with Everolimus?
Any thoughts out there on the best time to take these drugs? Pharmacist said at night before bed to minimize side effects. I'm new to this pill stuff Torisel and Opdivo were infusion... Any insight would be great! PK
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Robotic Partial surgery update
I reported for surgery at 6:00 am on Friday morning. They took me to a waiting area where my wife and I talked with a nurse and reviewed my information. By 7:00 a doctor came to get me and walked me to the pre-surgery area filled with other patients getting ready for surgery. While there I visited with several nurses, one…
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You could have knocked me over with a feather...
Well, you still can. Went to my pre-op yesterday, for surgery scheduled right after Labor Day. The surgeon said he'd been studying my CTs from almost 4 months ago and -- in spite of the radiologist and the nephrologist identifying it as a (solid) tumor -- the mass perched on top of my kidney appears to be a fluid-filled…
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Depressed. Nothing working, progression marches on
I havent been or posted in a long while now. I was pulled off opdivo after 2 mos because of signifigant progression, including 3cm tumors in my thyroid lymphnodes, additional lung mets, liver etc. I had progressed on votrient after only 6 mos. I have been to the molecular tumor boards where they sample the tumor DNA for…
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2016 Kidney Cancer Treatments
The following link is to the "NCCN Clinical Practice Guidelines in Oncology" version 2.2016, including "Cabozantinib" and "Nivolumab" as options: http://www.easysurgeon.cn/nccn/KidneyCancer_NCCN_2016.V2.pdf
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Can you relate to this fight?
I saw this breast cancer post on a friend's facebook page and had to share as it's a pretty good description of cancer and the fight. I wish I could credit the author, but it was uncredited. "What’s it like to go through cancer treatment? It’s something like this: One day, you’re minding your own business, you open the…
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Moved to lungs :(
At age 43 on Feb 2013 my right kidney was removed. It held a 9cm, grade 4 tumor but was thought to be contained in the kidney. There were two very tiny spots - one on each lung that was also present at the original CT scan that found the kidney mass (actually I found the mass by feeling my waistline after 6 months of…
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Radiation
Looks like I am going to need to have a growth on my sternum and a second growth on the inside of my left arm radiated. Not sure how many sessions I will need I just know that they have grown to a large enough size that they are easily viserable by the naked eye and have now become painful. I did have my right arm radiated…
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Community Member Spotlight
Hey icemantoo and APny, when I logged in today, you two were featured in the "Community Member Spotlight". Congrats!
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Hello
Hello everyone, I have come here for support from people who have the same illness as I do. Family and friends really do not understand what we go through. Are we to ask people to join us as friends on our personal account? If so I could use some friends and support and I offer my support in any way I can to anyone who…
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Newly Diagnosed and Scared...
Hello all, newly diagnosed with renal cancer and will be having a bone scan and chest ct to see if it has spread into my bones as my blood work was concerning to doctor in one area. My kidney function is good and I will be having open partial nephrectomy surgery within next few weeks. Anyone on here have open partial…
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I made it!
Hey all, We made it to the beach!!! It was brief but I got to put my feet in the ocean! I just let myself cry. All the stress of the last 4.5 months was there. The ocean has always been therapeutic for me, this time was no exception. I need to catch on reading. Kerry
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Treatment Options
I need your help! My husband has RCC and it moved to his lungs and brain. He had radiation on the 2 lesions that were found on his brain. He had his left kidney removed July 25. It was 9.5 cm. And now we have to start treatment on his lungs. At the last scan there was 3 spots on each lung the largest on the left side. The…
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Two years passed
Thursday was the second anniversary of a surgery which I consider as my second birthday. So, happy birthday to healthy me! My hubby surprised me by a bouquet of flowers and two tickets to my favorite singer's concert for the same evening.I had such a wonderful evening out with the sweetest msn in the world thinking how…