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sodium bicarbonate for CKD
sodium bicarbonate for CKD. is it effective in slowing CKD? if it is what dose daily do you take?
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NED!
Hello everyone! I'm happy to report that uncle NED is visiting the shores of Baltic Sea now :-) My husband got all clear today on ultrasound. He won't get chest x-ray this time (had it about 5 months ago). And still to get blood analysis, but I guess it will be good, no worries about that. So we relax for next 6 months :-)…
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Insight from a Radiologist
Hi All, I've wondered many times, as I know lots of you have, why CT scans vs Ultrasounds for follow-ups and is it worth the exposure? Well, a great friend of mine posed the question to a radiologist that she works closely with and the following is his response: There is a greater certainty with CT's that the test is…
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Champions tour
in golf they have the champions tour. It is for pro golfers over 50. It used to be called the senior tour but instead of revealing old guys golfing they promote "Champions". I say my issues don't interest stage 1 newbies but stage 3-4 people with several years experience are more my contemporaries. Quantity and quality of…
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Lower Back Pain- Help
According to my family the center of my lower back-dead center- has a discolorization and indentation. It is also tendor to the touch. Left Kideny and Renal Gland already removed. right side is still in place chugging along. Stomach feels extremely bloated and I have thumping and burning pain down my legs. When I stand for…
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Still kicking
Ya know, after the fear wears off, so many of us drift away from these foums. Numerous reasons, but one that holds true for me is that I am reluctant to think about it so much. I fear that perhaps this tendancy leads new members to new fears - where are the older members? I know I used to think that when I was a newbie...…
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Trials and choices....1 year after diagnosis
After a dissapointing last 6 mos of std therapies I am moving on to clinical trials. Today is my 1 year anniversary since my diagnosis. Opdivo showed mixed results in my Pulminary nodules and shrinkage in my liver, but my lymphnodes exploded in the last 3 months, with most gowing 3-4cm in 2 mos. Initally I showed good…
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Any advice on taking Lenvatinib in combination with Everolimus?
Any thoughts out there on the best time to take these drugs? Pharmacist said at night before bed to minimize side effects. I'm new to this pill stuff Torisel and Opdivo were infusion... Any insight would be great! PK
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Robotic Partial surgery update
I reported for surgery at 6:00 am on Friday morning. They took me to a waiting area where my wife and I talked with a nurse and reviewed my information. By 7:00 a doctor came to get me and walked me to the pre-surgery area filled with other patients getting ready for surgery. While there I visited with several nurses, one…
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You could have knocked me over with a feather...
Well, you still can. Went to my pre-op yesterday, for surgery scheduled right after Labor Day. The surgeon said he'd been studying my CTs from almost 4 months ago and -- in spite of the radiologist and the nephrologist identifying it as a (solid) tumor -- the mass perched on top of my kidney appears to be a fluid-filled…
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Depressed. Nothing working, progression marches on
I havent been or posted in a long while now. I was pulled off opdivo after 2 mos because of signifigant progression, including 3cm tumors in my thyroid lymphnodes, additional lung mets, liver etc. I had progressed on votrient after only 6 mos. I have been to the molecular tumor boards where they sample the tumor DNA for…
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2016 Kidney Cancer Treatments
The following link is to the "NCCN Clinical Practice Guidelines in Oncology" version 2.2016, including "Cabozantinib" and "Nivolumab" as options: http://www.easysurgeon.cn/nccn/KidneyCancer_NCCN_2016.V2.pdf
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Can you relate to this fight?
I saw this breast cancer post on a friend's facebook page and had to share as it's a pretty good description of cancer and the fight. I wish I could credit the author, but it was uncredited. "What’s it like to go through cancer treatment? It’s something like this: One day, you’re minding your own business, you open the…
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Moved to lungs :(
At age 43 on Feb 2013 my right kidney was removed. It held a 9cm, grade 4 tumor but was thought to be contained in the kidney. There were two very tiny spots - one on each lung that was also present at the original CT scan that found the kidney mass (actually I found the mass by feeling my waistline after 6 months of…
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Radiation
Looks like I am going to need to have a growth on my sternum and a second growth on the inside of my left arm radiated. Not sure how many sessions I will need I just know that they have grown to a large enough size that they are easily viserable by the naked eye and have now become painful. I did have my right arm radiated…
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Community Member Spotlight
Hey icemantoo and APny, when I logged in today, you two were featured in the "Community Member Spotlight". Congrats!
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Hello
Hello everyone, I have come here for support from people who have the same illness as I do. Family and friends really do not understand what we go through. Are we to ask people to join us as friends on our personal account? If so I could use some friends and support and I offer my support in any way I can to anyone who…
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Newly Diagnosed and Scared...
Hello all, newly diagnosed with renal cancer and will be having a bone scan and chest ct to see if it has spread into my bones as my blood work was concerning to doctor in one area. My kidney function is good and I will be having open partial nephrectomy surgery within next few weeks. Anyone on here have open partial…
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I made it!
Hey all, We made it to the beach!!! It was brief but I got to put my feet in the ocean! I just let myself cry. All the stress of the last 4.5 months was there. The ocean has always been therapeutic for me, this time was no exception. I need to catch on reading. Kerry
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Treatment Options
I need your help! My husband has RCC and it moved to his lungs and brain. He had radiation on the 2 lesions that were found on his brain. He had his left kidney removed July 25. It was 9.5 cm. And now we have to start treatment on his lungs. At the last scan there was 3 spots on each lung the largest on the left side. The…
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Two years passed
Thursday was the second anniversary of a surgery which I consider as my second birthday. So, happy birthday to healthy me! My hubby surprised me by a bouquet of flowers and two tickets to my favorite singer's concert for the same evening.I had such a wonderful evening out with the sweetest msn in the world thinking how…
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Another Wednesday, another scan...
I've been on Nivomulab since January. Love it! No side effects worth talking about (aint I lucky?). Last time they looked, in March the tumours had reduced in size. I'm getting superstitious. No side effects and tumour reduction sounds too good to be true. Not that I'd be complaining or anything. Best thing is, after doing…
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One Week Out
I'm one week out from my surgery at the Mayo Clinic in Rochester. At this point they believe they can do a robotic assisted partial. The nodule/mass is coming out the bottom of the kidney which is a good position for a partial. Based on the images they took, they believe it is still within the kidney so they believe it is…
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Three years and NED!
Folks, Just wanted to pass on the NED torch while the Olympics is still rolling. I had my three year scans this last week and all is well. They did a MRI with contrast this time, vice the CT last year, but it all looks good according to the report. I hope I can pass on the NED torch to the next up for scans. Good luck one…
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A Good Talk About Treating Kidney Cancer
I came across this video on YouTube. Interestingly enough, the doctor making the presentation was my surgeon. https://www.youtube.com/watch?v=NfxcDLBTQkQ
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Questions about follow up
I had my first 6 month followup for stage one grade 2, partial nephrectomy. Had mri and chest xray. Ned! Question is my neXT appt in Feb he wants a ct scan, I thought OK. He said abdomen and chest because xray not as good for chest. OK. I go to check out and get the papers. I'm having a ct w/wo of chest, abdomen and…
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not sure about anything
My husband had a small mass on kidney that they believed to be cancer, stage 1. It was found on a trip to ER for gastritis. Had a robitic partial nephrectomy done about a week ago where they removed about 1/3 of his kidney. Received call tonight that they did not find any cancer. He has appt tomorrow. i am at a loss as to…
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Just venting
I've been on Votrient and NED for a two and half years. During that time I've secured my dream job with NASA and have been enjoying life. My PET/CT scan last month showed some activity in a lymph node in my chest. Now I've got tender auxililary lymph nodes under my arms. Every new ache and pain gives me question. I can…
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39 with renal cancer?
A couple of months ago an ultrasound was done on my gallbladder and a 3.7 cm mass was found on my kidney. Last week I had a CT scan and was told it was a solid mass and most likely cancer. I've had past ultrasounds that were fine. I have seen two Urologists. One wants to schedule surgery and one wants to do a MRI followed…
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Liver biopsy
I'm scheduled for a liver biopsy in a m. A 5x5x7 cm liver mass was found on latest CT scan done in ER. Have a lot of questions I hope will be answered tomorrow. Thanks for being here! No one understands these surprises better than each of you. Will keep you updated.