-
Just Diagnosed
hi ! I am a 36 years old female with a lovely husband and three beautiful litt girls. I went on Father's Day to the ER because a horrible pain in my upper middle stomach that would go through my back. After a ultrasound and ct scan they found out that I have gallbladder stones and my gallbladder needs to be removed but…
-
clothing for after surgery
Hi all Trying to get things settled before my surgery on 6/29. I'm wondering what type of clothing you found most comfortable after the surgery? It will definitely be hot and humid here. I 'm thinking tshirt dresses maybe the easiest? tshirt and shorts? Any advice would greatly be appreciated. Update: I am having a…
-
Anyone else?
Anyone else think we stand, stumble or sit on the edge of a whole new world of cancer treatment and prognoses. I dont know about you, but I'm feeling incredibly lucky.
-
Radical Nephrectomy - I'm Trying To Stay Optimistic
Hello from Vancouver, BC! I've been following many of your discussions, challenges, victories, and the community at this site is amazing. A 5cm tumour was recently discovered on left kidney a few months ago. After a follow-up test, the urologist concluded that it's growing and a radical nephrectomy to remove the entire…
-
Fourteen year Ultrasound
Had my 14 year Ultrasound today. Get official results next Monday. For what its worth the tech said the small "cyst" they have been following on my other kidney for the past 13 years is a "nothing". Plan to barbequet a Filet Mignon next Monday in case Uncle Ned stops by. Maybe add a beer for refreshment (I don't drink…
-
Happy Fathers Day
To all you dads out there. Hope you have a very special day! Donna~
-
Radiation II
I finished radiation on Monday with no idea if it worked or not. My radiation doctor said they can't scan for one month because the radiation can work for several weeks beyond the treatment. My esophogous was injured and my chest feels like I have a ball in stuck in there. The doctors say this is temporary and will stop…
-
Pain
During labor the pain is so great that a woman can almost imagine what a man feels like......... When he has a cold. Icewoman
-
Hi, I was here last summer with questions...
Hi. I was here last summer after finding out I had two complex cysts on my left kidney and a simple on the right. I'm a 35 year old female. They were found incidentally when getting a CT scan due to ovarian cysts. My first urologist was a jerk and said don't worry. I got a second opinion. My current docotr is amazing. We…
-
New Diagnosis ChRCC
Hi everybody! I have been reading these boards for over a month now, and your posts and encouragement have really been the only way I have made it through.... I am a 44 y/o active female with no known health issues except migraines. On May 9th I was told that I had a mass on my right kidney 1.3 cm, and that it needed to be…
-
Looking for info
I want to first say that I have not been diagnosed with kidney kr any other type of cancer. I had an ultrasound last week for my gallstones. The images get posted to my radiology account so I can view them and I saw that I have a spot on my kidney that measurements were taken of. Now I know this could be a cyst. I would…
-
Updating Bio Information
I'd like to make a plug for keeping your bio information up-to-date. Please take a moment and do this. It can save all of us a lot of time. You, when posting, you don't have to repeat all your history. The rest of us can go read about your condition and history without asking lots of questions. It's just an all-around good…
-
Scaring myself or something I should have checked?
Hi all, I had left neph last July, stage 1. I Have noticed on some FB pages that a few people were DX with a pulled muscle that later was found to be RCC mets. I was DX with a pulled muscle in my back, it was extremely painful until I stopped excersizing, used a hot water bottle, and took muscle relaxers for a few days. It…
-
New to CSN on (Kidney) Collecting Duct Carcinoma
I have seen several of the same people on both the Cancer Survivors Network and Kidney Cancer Association blogs. I'm throwing myself in concerning my husband. He was diagnosed with kidney cancer in November 2015. After a kidney biopsy it was more specifically determined to be a collecting duct carcinoma with metastases to…
-
CT results
Appt went well!! Scan showed decrease in lower lung left lobe tumor from 1.2 cm to .7cm with Sutent. . Oncologist brought up surgery to remove it. All blood work was great! Any thoughts on this surgery from those who have gone through it?? All prayers, positive thoughts and good wishes were so appreciated!
-
Full Nephrectomy vs Partial Nephrectomy on a 1.3 cm tumor
Has anyone have any opinions on if having a full Nephrectomy vs a partial lessens the risk of recurrance of a non aggressive 1.3 cm tumor? Also, have been told that the smaller the size of tumor, the risk of recurrance is even lower.
-
Not enough Platelets
89, need 100 (I think these are thousands). How do I get them up? All suggestions welcome
-
Opdivo Ct Results
Hi Everyone good results on Opdivo after 5 years NED. I have being on Opdivo for 6 months. "There is no evidence of recurrence or metastases''. I have an infusion every 2 weeks ( no side effect to mention). I live in Tasmania (Australia) A brief history. 2011 August right nephrectory tumour 1) 110x70x85 tumour 2)…
-
Getting fond of Uncle Ned
Hello Friends, I had my 6 month check yesterday - and Uncle Ned came to visit! Very happy news. Unfortunately, my liver is twice its normal size, so another appointment with a hepatology doctor is in line for me. Not too happy about that, but it is certainly something I can work with. Hoping all is well with everyone! Been…
-
So far so good
So, the 16 week scans show stability. Both lung mets that they follow are exactly the same... 11mm and 19mm. Opvido is holding. I agree with Footstomper, because there are no side effects, it seems so unusual to feel this good, and be stable too. We escaped the Sacramento valley heat, and are at Winchester Bay on the…
-
18 months scans
Just received my 18 month scans results, NED, no changes from last scans 6 month ago. The lungs nodules did not grow. Liver to watch cause it's a little fatty! I love the good news! Cheers to all of you! Dave
-
New here
Hi my name is Kerry. I'm a 47 year old female. I'm recently diagnosed as of a month ago. I have a 3-4 cm mass on the back center of my left kidney partially sticking out. I am still in shock. I have been in a funk since I found out. We found it while during a ct for my appendix the beginning of April. MRI confirmed the…
-
Scanxiety!!!!!
Ive been on 3 rounds of Sutent and anxious to see if it's helped with tumors in lungs. I have CT scan Friday. This is my first experience with this. I'm not doing so well... Thoughts of gloom and doom have crept in. I'm lucky to have appt Monday to get results so won't have to wait long. Trying to put on that positive face…
-
Blood in urine >a week after partial nephrectomy
Hello everyone - You have all been so great as emotional support, and I can't tell you how much I have appreciated it! Now I need to tap into your medical knowledge/experiences. By all accounts, my partial nephrectomy (May 23rd) went well, and I just had my staples taken out yesterday. Everything seems to be healing well,…
-
Fingers crossed
Getting a scan on Friday to see if this new Optiva stuff Ive been taking is doing its job. Trying to approach the CT scan with an modicum of equanimity.
-
A Concise Guide for Sutent User Newbies (new users)
A Concise Guide for Sutent User Newbies (new users) * Sutent does not "work" for everyone, but it does work for a LOT of people. No one knows for how long it can work because it has only been on the market for a few years. * I have stage 4 RCC with a lot of small mets in my lungs. I am one of the people for whom Sutent…
-
Sutent Side Effects
Hi guys Sorry to trouble you but Nick is finding that he feels really queazy and sick first thing in the morning. Because he has been told to have a 2 hour no eating window before taking the tablet and a 1 hour window afterwards, he takes the Sutent at 8am in the morning and then waits an hour or so to have breakfast. But…
-
Radical nephrectomy and total hysterectomy with incision done together
My surgery date was 5/11/2016. Still having pain and itching/ burning around and under incisions. Kidney was worse than hysterectomy! This was my first surgery ever, at 53. I feel like I should be able to get around better than I do,but I get tired and start hurting even if I'm up moving around for just a little while.…
-
Moved but not gone.
Hey Folks, Just checking in from the land of sun and fun in Florida. I havent checked in a while as I have been moving and starting a new job, but I have been lurking and keeping tabs on folks. The missus and I just moved from Nuevo Mexico to Florida and are now settling in. Beautiful area, but i have not had much time for…
-
Creatinine levels with partials
Just wondering what your creatinine levels are like with partial nefs. Mine is up seven points since right after my partiaI which was this past February. Still not out of range but wondering if creeping up some is normal with partials. Going to surgeon on June 1 for follow up. I will ask him then. Also, wondering if the…