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Lifestyle changes
I got a letter from the urology clinic. They have reviewed my case and will give me an appointment. They will contact me six weeks before the appointment date. I don't have money to see a urologist privately so I will just have to wait. Actually I don't really mind (as long as it IS a slow growing thing) since it gives me…
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Wisdom galore, Fox and others
I had to post a message about how people on this board have helped me and many others. Case in point, my 32 year old daughter had colonoscopy for bowel issues. 2 medium sized sessIle polyps were found incidently. Dr called them pre cancerous and that it was great she had this colonoscopy. She will have another in one year.…
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What to expect from robotic partial nephrectomy
Hi All. New here, but not to cancer. I've had lympoma for a few years. Regular chemo cocktail of rituxan. But the Bosniak 4 cyst on my kidney is new. Getting partial nephrectomy (robotic) in 4 weeks (need to wait for rituxan to get out of me). Ironic that I can't get cancer surgery sooner because I have cancer. Anyway,…
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Recovery from surgery
Hi, I am new here, reading all of your posts has helped me a lot, just knowing that there are others goin through similar experiences helps a lot. I had surgery on August 30th to remove my left kidney which contined Hubert the Evil Mass (4 lb!!). So glad it is outta there! I am back at work and slowly getting better. I…
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Thinking about food
I've been thinking about food a lot lately. I have a recurring daydream about making some pies. The first is an apple pie. I won't say much about that because it is pretty basic. When I was a kid my mother and grandmothers made great apple pies. Apple pies and slices from local bakery shops were also quite good. But these…
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Needing advice
I am a 45 year old female who has a 1.6 cm complex cyst on the upper pole of my left kidney. It was discovered incidentally on a ct scan in 2010. My doc at the time told me nothing and never bothered to tell me I needed to have it followed. Anyway, started seeing a urologist for a completely different issue and he did a…
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PPI
Just curious if anyone here has got kidney cancer from years of PPI use (proton pump inhibitors for reflux)?
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Post op Day 3
Good evening all! I was recently diagnosed with RCC and had a partial nephrectomy-laparoscopic hand assist on 10/27. My surgeon removed the 3cm tumor along with part of my kidney. My margins were clear and the pathology confirmed the Malignancy. I am 37 and have no family history of renal cancer. I was told this is quite…
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How Careful to Be While Around Votrient Patient
My husband is currently taking Votrient for RCC. I was wondering how careful everyone is while being around their loved one. For instance, it has been suggested to wash his clothes separately and to wear gloves when handling his sheets etc. I want to handle this situation in the most loving way posssible but am also…
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Well stalling and denial did not work...who wants to help me prep for a full nephrectomy?
I've spent the last few months in denial about the mass growing on my left kidney. Since it's grown over a CM in less than 6 months it has to go. Unfortunately Herbert the kidney mass is too close to the main blood supply to the kidney and there are too many risks associated with a partial. Anyone want to help me prepare…
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Experimental drug outperforms standard first-line therapy for advanced kidney cancer patients
Cabo!! https://www.yahoo.com/news/m/0eac887d-f361-3dcb-bb93-df5014d3129c/ss_experimental-drug-outperforms.html
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There oughta be a law...
There oughta be a law against members of one's medical care team leaving messages on a Friday such as, "I'm calling to let you know about your [name of test / scan]. I'll call back later today. Or if not today, then Monday. Thank you!" and then they don't call back. I should know that there's no point in sitting by the…
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Scanxiety
I'm feeling a little guilty that I haven't popped in for awhile and now it's scan time so my cancer is really on my mind (even though I don't want it to be). I had my scans on Wednesday. Funny. They've changed the procedure on the CT scans. They used to do 3 scans: one for chest, one for abdomen, and one for pelvis. It…
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Cabo users
(Please forgive the crudeness of this post) Yesterday evening my wife came into the bathroom and she saw a toilet full of blood, and blood on the seat etc.,she freaked out. She asked me how long has this been going on. I actually had to stop and think about it and then it dawned on me about a week after I started taking…
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Is there any connection between RCC and auto immune diseases?
My turn to ask a question. My ENT sent me for bloodwork on Thyroid and Auto Immune markers after taking my history. One of the Auto Immune tests came back positive and I am scheduled for an evalation by a Rhumetologist. My other history includes Gout, Dry mouth (negative for Sjorgens disease) , Rhinitis, Gerd, Reflux and…
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Zometa
Wow. Had my first Zometa treatment yesterday. I'm not sure what the dose was; it was about a 20 minute IV drip. I woke up about half an hour ago with some fairly intense pain in my knee areas. If feel it most on the inner portion of my thighs right above the knees. I've been doing a lot of physical therapy exercises, so…
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To ALL the Veteran's out there
Happy Veteran's Day!! And thank you for your service. Donna~
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Can't stop crying tonight....
I just came home ffrom visiting my brother. He is currently in a rehab hospital after spine surgery to alleviate pain from a T-11 spinal met and to stabilize his spine for radiation. Tonight he felt ike the excruciating pain in his back and side beforevthe surgery was back. He was so down and heartbroken tonight it took…
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2 Week Post Op. Help
Good Morning Friends! So it has been 2 weeks today since my right partial nephrectomy and everything aside from my pneumonia setback has been great. I was finally getting my pep back in my step didn't need any pain meds and really felt great overall. I still got tired throughout the day but I knew that was par for the…
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supplemental cancer policy
I met with my Company's Benefits Service Coordinator about 2 years ago to discuss the supplemental cancer policy. My husband had already been diagnosed with cancer and I was wondering if it would be beneficial to purchase it. She said that because he has already been diagnosed, we can purchase it and then there is a 2…
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I should have never googled.....help? I'm new.
In April I was seen in the ER for left side flank pain. I was worried as I often get infections or stones and never know until somethings gone really wrong. I can't feel them for some reason. Well the doctor did a CT scan to check for stones and I did not have any. Not any passing that is. But I did have a large cyst.…
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Cabo scans
After taking Cabometyx for 3 months I am very happy to say my lung, and adrenal tumors have shrunk. Still have something in my liver they have been watching. Liver enzymes have come down again. My hernia is back after surgery for it last May. Hopefully it will not require surgery this time. All in all I am feeling pretty…
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Bad Timing....or is it good timing?
I am trying to figure out if this is a good thing or a bad thing. Like much of america (on both sides of the isle), I am deeply concerned about the outcome of the election. Almost obsessed with it. The funny thing is I am not worried about my 6 month scans, which are scheduled for election day. I did not think about them…
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Heart palpitations
I just started on 800 mg of votrient 3 days ago, and about 1-2 hours after taking it, I have heart palpitations that go away after a couple more hours. I am contacting my doctor about this, but I was wondering if any one else has experienced this. I hope it doesn't mean that I can't take it.
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Flank bulge after back surgery fusion and repair of flank bulge then reappeared
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If you are new please do your best to fill out your "About Me/Bio"
Hi Everyone, Just a friendly reminder that it is easier for us to provide help and support when we can "click on you" and get information. Some suggestions include: Cancer type, size, stage, treatments, do you like long walks on the beach, your astrological sign, etc. (just kidding, save those last two for social media,…
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Ct scan found 1.4cm solid enhancing renal mass
i have been suffering from pancreatitis and having pseudocysts. After numerous ct scans they found this mass on my left kidney. I'm terrified to say the least especially after just having 4 surgeries on my pancreas. I'm waiting for a referral to the kidney dr but I don't even know what kinda questions to ask. Please help!
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No Longer in Limbo
I've hijacked a few threads of other people in the past couple of weeks since I've joined the site. Finally got to talk to a medical oncologist today and have a path forward, so I'll start my own thread with my own story. My left kidney tumor was discovered, by ultrasound, on Sept. 1st. It measured 14cm. It wasn't until…
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what do you think?
Last scans August 2016 came back clean, next scans Nov 21st, results on Nov 23rd. Im going to be in Tampa for a couple of weeks in early Dec, my wife thinks I should make a appt. at Moffit to get a 2nd opinion since we are going to be in Tampa for other reasons. It wont cost me anything since Ive already met my out of…
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Off topic - World Series Anyone?
Personally, we're flyin the W. Needless to say, hoping for a win here in Chicago. It's only been 108 years!! So many of my relatives that have passed on were die-hard Cubs fans and can legitimately say it's a family tradition. Unfortunately, with tickets costing $1900 for standing room only at the "friendly confines",…