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Kidney Cancer

1st Follow up scan
Finally, I have completed my first Ultrasound scan and chest X-Ray (no blood work for some reason...). Can't believe it has been three months already. I finally understand what is scanxiety when the radiologist starts making measurement of my kidney and from different angles. I keep wondering what he was measuring and what…
Pain
I was just wondering if you all still get pain on occasion? Nothing major but little pinches and stabs briefly here and there? I am ten months out from partial nephrectomy. I just had my CT and got the all clear a little over a month ago.
Urine, Faeces, blood and embarassment
Please dont apologize for talking about such things. Often this is the only place we can. We've all been through it. Waking up and peeing blood. Sitting in a room with everything covered in our own faeces. Many of us have been through it and all of us understand. This is a horrible disease. We have all had a taste of its…
Collecting Duct Carcinoma
Hi there. I wish I had properly learned how to use this network when my husband was sick. He was diagnosed with kidney cancer in April 2015. Stage IV. It was very, very bad. After his nephrectomy he was told "Oops. We were wrong. Its not kidney cancer, its actually Collecting Duct Carcinoma, which is worse." At that moment…
CDC-Collecting Duct Carcinoma - HLRCC
I have a 26-year-old son that was diagnosed with CDC this past April. Looking back at some of the symptoms my son has had, chances are very good that he had this cancer in January of this year. Is been on chemotherapy for almost 5 months given to them every Friday three different types of chemo. He has had radiation…
Sutent and Medicare
I go on Medicare next August and with supplemental I am still on the hook for 33% of Sutent cost Because it is a type 5 drug Can anyone tell me what the Medicare contracted rate is? Anyone else experience this?
New Here...Kind of...
Hello, I would like to say "thank you" to everyone on this forum for helping me through my cancer diagnoses and incisional hernia repair. I have been reading this forum since August 2015 when I was incidentally diagnosed with 9.5 cm tumor on my left kidney at the age of 45. I had a partial left neph on September 22, 2015…
Distractions...
Fortunately, I am a -- "SQUIRREL!" -- easily distracted sort, on a good day. Add a kidney mass, seven months, and -- well, I'm sure you get the idea, both from personal experience and from watching me run to and fro, wanting to know, "Are you SURE it was a squirrel?!" and "Where? WHERE?!" So, I have been distracting myself…
Thankful
Today my country is celebrating Thanksgiving. Today, among all of the usual things I am thankful for are all of you. Your messages, even though I didn't post until afterwards, were one of the biggest things that helped me maintain some sense of calm through my surgery in February. I'm thankful, as of now and hopefully…
Small Kidney Tumor
I am a retired firefighter and because firefighters have a 2 to 3 times higher chance of being diagnosed with cancer I insisted on a chest scan with my GP. The chest came back good, thankfully. They barely caught part of my kidney on the CT images and noted that a closer look at the kidneys needed to be done. Did a full…
1st scans
Most of you have been through this, but for some this is new. In less than a week I will have my first set of scans. Blood work, abdominal, and chest CT are scheduled in the morning and a meeting with my doctor in the early afternoon. The intitial shock of my cancer diagnosis is fresh in my memory and still brings a shiver…
Well this is awful!!! Help!
Im not even 12 hours post op,still in the hospital and in the most awful pain. Is there a concoction that works!?!?!
Healthy diet
I need to start a new lifestyle thread. I would be very interested in everyone's idea of a healthy diet for cancerv(and life generally). I will do some reading about it but I'm sure some of you have already studied this in detail. Steve.
A decision to make re Stage 4 Treatment
Hi All, I'll preface this by saying I'm based in Sydney, Australia. My father was diagnosed with Stage 4 RCC in December 2014. We've been on a roller coaster ride since then! He had surgery just before Christmas to remove his right kidney. The surgery itself was a success - the tumour itself was very large (I don't have…
the fly in the opdivo ointment
everything posted about the benefits of opdivo is true, remarkable effect, few side effects. but it comes with a BUT. this varies by individual but effects of opdivo can wear off. in my case after only 6 or 8 months.
Elevated PSA following RCC?
greetings! Wondered if any of you gentlemen have experienced elevated PSA (prostate) level following RCC surgery? Mine jumped a whole point to 4.9 from last year. I had open partial neph in January 2016 and clear CT scan in August. appreciate any feedback before i head to the urologist again. Thanks Jay
Always superstitious about scans....surprised me...
Had my scans on election day. I am a bit superstitious about the scans (and only the scans). Fortunately, Uncle Ned was re-elected.
Rbc in urine...
Good morning friends! so I had stage 1 kidney cancer and had surgery July 1. Doc said they got it all, it was like 2.7. I have felt great since then. The last couple of days I have felt kind of run down, stomach hurting and back hurting. I was scheduled for blood work friday and all was good except my urinalysis. Shows…
Imaging followups...how often?
I've been reading this forum for awhile but this is my first post. It seems like everyone here (who is a RCC survivor) is having CT-Scans no less frequent than annually. The first 3 years after my RCC diagnosis and total nephectomy I've had CT-scan and chest x-rays annually. But upon the 3rd year my urologist said come…
Total Melt Down Today
I went for a walk today and I had a total meltdown, it is a beautiful day in the Portland area and I realized as I was walking how much I will miss this next I started thinking about my family and that is when I just lost it I started crying uncontrolablly and I began to curse this disease. By the time I got back to my…
Scan results are in
Atrophic Pancreas might be a good name for a band, but not, I think a reassuring description of an organ in ones body. The Abscopal Effect (another great band name,), which should have left my body cancer free, hasn’t. My main met, ‘Luke’ (Offspring of my original 10cm Tumour, Darth) has reduced in size from 6.5 to 5.1cm.…
Lifestyle changes
I got a letter from the urology clinic. They have reviewed my case and will give me an appointment. They will contact me six weeks before the appointment date. I don't have money to see a urologist privately so I will just have to wait. Actually I don't really mind (as long as it IS a slow growing thing) since it gives me…
Wisdom galore, Fox and others
I had to post a message about how people on this board have helped me and many others. Case in point, my 32 year old daughter had colonoscopy for bowel issues. 2 medium sized sessIle polyps were found incidently. Dr called them pre cancerous and that it was great she had this colonoscopy. She will have another in one year.…
What to expect from robotic partial nephrectomy
Hi All. New here, but not to cancer. I've had lympoma for a few years. Regular chemo cocktail of rituxan. But the Bosniak 4 cyst on my kidney is new. Getting partial nephrectomy (robotic) in 4 weeks (need to wait for rituxan to get out of me). Ironic that I can't get cancer surgery sooner because I have cancer. Anyway,…
Recovery from surgery
Hi, I am new here, reading all of your posts has helped me a lot, just knowing that there are others goin through similar experiences helps a lot. I had surgery on August 30th to remove my left kidney which contined Hubert the Evil Mass (4 lb!!). So glad it is outta there! I am back at work and slowly getting better. I…
Thinking about food
I've been thinking about food a lot lately. I have a recurring daydream about making some pies. The first is an apple pie. I won't say much about that because it is pretty basic. When I was a kid my mother and grandmothers made great apple pies. Apple pies and slices from local bakery shops were also quite good. But these…
Needing advice
I am a 45 year old female who has a 1.6 cm complex cyst on the upper pole of my left kidney. It was discovered incidentally on a ct scan in 2010. My doc at the time told me nothing and never bothered to tell me I needed to have it followed. Anyway, started seeing a urologist for a completely different issue and he did a…
PPI
Just curious if anyone here has got kidney cancer from years of PPI use (proton pump inhibitors for reflux)?
Post op Day 3
Good evening all! I was recently diagnosed with RCC and had a partial nephrectomy-laparoscopic hand assist on 10/27. My surgeon removed the 3cm tumor along with part of my kidney. My margins were clear and the pathology confirmed the Malignancy. I am 37 and have no family history of renal cancer. I was told this is quite…
How Careful to Be While Around Votrient Patient
My husband is currently taking Votrient for RCC. I was wondering how careful everyone is while being around their loved one. For instance, it has been suggested to wash his clothes separately and to wear gloves when handling his sheets etc. I want to handle this situation in the most loving way posssible but am also…

Kidney Cancer

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