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2nd set of scans
The waiting on the results is awful. NEVER EVER have scans on a Friday and have to go through an entire weekend without word. Uggh! My bonescans were good, NED! Kidney function - good. Now waiting on CT results. Trusting and believing in God for good results. I will come back and update.
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Scanxiety
Follow-up CT and appointment with urologist on Wednesday. MAJOR scan anxiety setting in!
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New Normal
Hi everyone - so grateful to have found this site. Have been reading and learning and trying to adjust to new normal. Diagnosed on July 16th - radical nephrectomy on August 4th. Stage 3 / Grade 3 RCC. Surgery went really well - surgeons feel they got all of the cancer. I am grateful to be back to work, exercising, living.…
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heart surgery and cancer
My husband has had a checkup one month ago and they found out that he had a severe heart condition, he was rushed for an angioplasty and they placed 2 stents. two weeks later when getting back to the doctor, as the results from the checkup came out, we found out he had a mass in his left kidney. We were sent to have a scan…
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Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?
Hi all, I am new here and I have read a lot of papers claiming Cystic Renal Cell Carcinomas (CRCC) has better prognosis, have we seen anyone recurr/met with CRCC? <a href="http://www.ajronline.org/doi/pdf/10.2214/AJR.12.9414">Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?</a> Also, I have seem quite a…
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Useful Videos from Kidney Cancer Canada
Hi all, I have found that these videos from Kidney Cancer Canada are very useful and informative for new patients and veteran fighters :) The Q&A sections with the well known Uro-Oncologists answered a lot of my questions which I didn't have a chance to ask my urologist (Because I don't even know I should ask). Hope you…
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Sutent 50mg vs 37.5mg
I'm doing a 2 weeks on/1 week off of 50mg of sutent from 4 weeks on/2 weeks off dosing but still I am experiencing extreme fatigue that I feel like dying of too much exaustion....If I switch down to 37.5mg will it affect the efficacy of the drug? Does anyone have experience on this? Pls help....Thanks....
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Node behind ear
Hi, i had my 2 years CT scan last week, did'nt receive the results, but it should looks good since nobody called yet. Scheduled for a meeting to review it with urologist in early november. The problem i have now, is that i have a lump behind my left year that appeared 4 days ago. It is 1/2" and don't seem to grow more. I…
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is anyone on votrient and an antidepressant?
Is anyone using Votrient and on an antidepressant? My husband had to go off of his Lexapro due to some interactions with his antinausea meds. I have tried googling it today and all the antidepressants I tried have dangerous interactions with his med list. Of course he will be seeing his family doc to get something…
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3 week post op - question about incisional hematoma
It’s been almost three weeks since my laparascopic radical nephrectomy. The first few days, and even the first week at home were certainly “challenging” in terms of pain, mobility, general discomfort, etc, but there’s been slow but steady progress since, About a week ago (the two week mark), I just happened to look down,…
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Opioid addiction
Serious topic isn't it? So anyway read my latest report. Great results. However, even at what I consider low dose opioid use, I have felt like crap for a week. A bit anxious. Maybe. More like too much coffee man. Unable to eat. Weight loss. My pre-cancer bod of 200# muscle is now about 143# of marshmellow. Could sleep all…
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Diet Sodas
Periodically I read posts that mention the need for RCC patients to cut out diet sodas and caffeine from their diets. I've been a 4 to 5 can/day soda drinker for many years. I drink soda like other people drink coffee. Last week I was out with some friends and the diet drink issue came up. They were adamant about how bad…
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After all you can kill cancer
http://www.collective-evolution.com/2016/10/09/so-it-turns-out-you-can-kill-cancer-after-all/
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Another CT Scan?
Hi All, I haven't been around for a while. Got some wonderful support here at the time of my radical nephrectomy. Have been back a few times, in part to try and "give back" a little, but I confess life has gotten busy with other things and I haven't been back as much as I intended to. I'm looking for some advice. I had a…
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Little off topic, liver biopsy
I have to have one done because i have one gene for hemachromatosis. A genetic blood thing, people with two of the genes have it. I am questionable so between gi, gp and hematologist drs I'm getting biopsy done to look for it. Also have non alcholic fatty liver seen on all the imaging I have had done with rcc. Anyone have…
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Stable
Hi everyone, It looks like the scan for my body is good with no mets, and the three tumors in my head are stable. I will not go back for CT Scans of the body for 6 months and head MRI in three months. It looks like the Cyber knife did shrink the tumors some and they were showing no signs of new growth. Hopefully I will…
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Typing Hurts
I have been neglecting my messages because quite honestly it hurts to type since I broke my shoulder. I am not seeing any real side effects of the CABO so I am afraid it may not be working. I just finished radiation on my shoulders yesterday, the doctors are holding off on radiating more bones for a while at this time, we…
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7cm Cyst on right kidney
I've been diagnosed with a 7cm cyst on my right kidney. Based on 2 ct-scans and a few ultrasounds over the years it does not appear to be cancer but cancer cannot be ruled out either. I will be talking to a urologist oncologist who specializes in robotic arthroscopic surgery on Monday to determine if I have the option of…
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Game changer?
From the BBC http://www.bbc.com/news/health-37601508 The link at the bottom is worth following too
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Scheduled for Surgery
Hello all, After a three weeks of CT scans, and a Colonocopy (no issues), I have been scheduled for Surgery on 10/12/16. I decided on staying with my Urologist after speaking to my doctors who all spoke highly of him. I also feel comfortable with my current health care group and hospital, so I am good. It was gonna take…
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Cancer Fatigue
Hello everybody. This is probably a silly question, but one I want to ask. I'm a little over one week out of my second surgery in a month (chRCC removal end of August and Thyroid cancer removal last week). As I recover my body is starting to feel better than it has in years. As you know, one of the symptoms of cancer is…
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need advice
Well, this is my short story. I was diagnosed 25 months ago, 10 cm confined to kidney tumor. Had follow ups and am considered to be NED. My hubby and I were thinking of having our first baby before the diagnosis but the diagnosis, surgery,follow ups, depression, stress, hopelessness made me make the decision of not wanting…
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Scan Results
I got the test results back today the IL2 did not work as suspected and the cancer has spread into more areas. Doctors are recommending a new drug therapy to slow the roll of the cancer but at this point there is no longer a cure the IL2 was the only drug that could possibly, although improbable, stop or slow growth. The…
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Four year checkup tomorrow
Well, my wife is going in for her four year checkup tomorrow after a full nephrectomy on her right kidney in 2012. She is at annual checkups at this time and has been clear everytime. We still pray for everyone on this board. You guys really helped us out when she was first diagnosed. God bless. Tom and Holly
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Finally, my story briefly
I'll post on my "about me" page but I figured it was about time I posted a bit about my story. It's a bit convoluted so I'll keep it at a minimum. I'm a college professor that teaches in medical imaging (this includes CT, x-ray, and ultrasound) and I've actively worked in the hospital patient care setting for well over a…
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life is good
I get so confused re: time. Literally living from appointment to appointment. October is tomorrow. So I have to take a moment to look back to the start of this year. It has been busy. Don't be surprised if I make mistakes about treatments, met growth and response to treatments. At 5 and a half years it is becomming a…
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Just diagnosed
I went in for a 6 month routine checkup with bloodwork. My liver enzymes were out of this world. So I had an ultrasound & it showed possible liver disease. It also detected in my R kidney a large mass "probably malignant" with a blood supply. The waiting is killing me! Nobody is in a hurry for anything. Two weeks after…
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I'm New ...
Hi All, I write from Overseas, Italy to be exact. My dad was diagnosed with RCC in 2014 (the same week my mom died from another cancer), at 61 years of age. His cancer was 10cm in the left kidney. He underwent radical nephrectomy in April 2014 and the cancer came back as clear cell Stage IIIa with no lymphnode affected,…
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Reoccurence of cough and fever after three months of removing kidney
Hi guys my father was detected with kidney cancer stage 4 6 months back with symptoms if continous fever and cough. Then he got his kidney removed and having sutent since then. He was ok for four months but after four months cough Nd fever started reoccurring. Does anyone facing same issue
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IL2
HELLO, does anyone know of a hospital in Colorado that administers the IL2 treatment, and is experienced in protocal regarding side effects?. I have seen many posts however not one particular place mentioned in the rockies. Much appreciated. Elaine