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3 week post op - question about incisional hematoma
It’s been almost three weeks since my laparascopic radical nephrectomy. The first few days, and even the first week at home were certainly “challenging” in terms of pain, mobility, general discomfort, etc, but there’s been slow but steady progress since, About a week ago (the two week mark), I just happened to look down,…
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Opioid addiction
Serious topic isn't it? So anyway read my latest report. Great results. However, even at what I consider low dose opioid use, I have felt like crap for a week. A bit anxious. Maybe. More like too much coffee man. Unable to eat. Weight loss. My pre-cancer bod of 200# muscle is now about 143# of marshmellow. Could sleep all…
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Diet Sodas
Periodically I read posts that mention the need for RCC patients to cut out diet sodas and caffeine from their diets. I've been a 4 to 5 can/day soda drinker for many years. I drink soda like other people drink coffee. Last week I was out with some friends and the diet drink issue came up. They were adamant about how bad…
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After all you can kill cancer
http://www.collective-evolution.com/2016/10/09/so-it-turns-out-you-can-kill-cancer-after-all/
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Another CT Scan?
Hi All, I haven't been around for a while. Got some wonderful support here at the time of my radical nephrectomy. Have been back a few times, in part to try and "give back" a little, but I confess life has gotten busy with other things and I haven't been back as much as I intended to. I'm looking for some advice. I had a…
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Little off topic, liver biopsy
I have to have one done because i have one gene for hemachromatosis. A genetic blood thing, people with two of the genes have it. I am questionable so between gi, gp and hematologist drs I'm getting biopsy done to look for it. Also have non alcholic fatty liver seen on all the imaging I have had done with rcc. Anyone have…
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Stable
Hi everyone, It looks like the scan for my body is good with no mets, and the three tumors in my head are stable. I will not go back for CT Scans of the body for 6 months and head MRI in three months. It looks like the Cyber knife did shrink the tumors some and they were showing no signs of new growth. Hopefully I will…
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Typing Hurts
I have been neglecting my messages because quite honestly it hurts to type since I broke my shoulder. I am not seeing any real side effects of the CABO so I am afraid it may not be working. I just finished radiation on my shoulders yesterday, the doctors are holding off on radiating more bones for a while at this time, we…
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7cm Cyst on right kidney
I've been diagnosed with a 7cm cyst on my right kidney. Based on 2 ct-scans and a few ultrasounds over the years it does not appear to be cancer but cancer cannot be ruled out either. I will be talking to a urologist oncologist who specializes in robotic arthroscopic surgery on Monday to determine if I have the option of…
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Game changer?
From the BBC http://www.bbc.com/news/health-37601508 The link at the bottom is worth following too
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Scheduled for Surgery
Hello all, After a three weeks of CT scans, and a Colonocopy (no issues), I have been scheduled for Surgery on 10/12/16. I decided on staying with my Urologist after speaking to my doctors who all spoke highly of him. I also feel comfortable with my current health care group and hospital, so I am good. It was gonna take…
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Cancer Fatigue
Hello everybody. This is probably a silly question, but one I want to ask. I'm a little over one week out of my second surgery in a month (chRCC removal end of August and Thyroid cancer removal last week). As I recover my body is starting to feel better than it has in years. As you know, one of the symptoms of cancer is…
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need advice
Well, this is my short story. I was diagnosed 25 months ago, 10 cm confined to kidney tumor. Had follow ups and am considered to be NED. My hubby and I were thinking of having our first baby before the diagnosis but the diagnosis, surgery,follow ups, depression, stress, hopelessness made me make the decision of not wanting…
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Scan Results
I got the test results back today the IL2 did not work as suspected and the cancer has spread into more areas. Doctors are recommending a new drug therapy to slow the roll of the cancer but at this point there is no longer a cure the IL2 was the only drug that could possibly, although improbable, stop or slow growth. The…
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Four year checkup tomorrow
Well, my wife is going in for her four year checkup tomorrow after a full nephrectomy on her right kidney in 2012. She is at annual checkups at this time and has been clear everytime. We still pray for everyone on this board. You guys really helped us out when she was first diagnosed. God bless. Tom and Holly
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Finally, my story briefly
I'll post on my "about me" page but I figured it was about time I posted a bit about my story. It's a bit convoluted so I'll keep it at a minimum. I'm a college professor that teaches in medical imaging (this includes CT, x-ray, and ultrasound) and I've actively worked in the hospital patient care setting for well over a…
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life is good
I get so confused re: time. Literally living from appointment to appointment. October is tomorrow. So I have to take a moment to look back to the start of this year. It has been busy. Don't be surprised if I make mistakes about treatments, met growth and response to treatments. At 5 and a half years it is becomming a…
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Just diagnosed
I went in for a 6 month routine checkup with bloodwork. My liver enzymes were out of this world. So I had an ultrasound & it showed possible liver disease. It also detected in my R kidney a large mass "probably malignant" with a blood supply. The waiting is killing me! Nobody is in a hurry for anything. Two weeks after…
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I'm New ...
Hi All, I write from Overseas, Italy to be exact. My dad was diagnosed with RCC in 2014 (the same week my mom died from another cancer), at 61 years of age. His cancer was 10cm in the left kidney. He underwent radical nephrectomy in April 2014 and the cancer came back as clear cell Stage IIIa with no lymphnode affected,…
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Reoccurence of cough and fever after three months of removing kidney
Hi guys my father was detected with kidney cancer stage 4 6 months back with symptoms if continous fever and cough. Then he got his kidney removed and having sutent since then. He was ok for four months but after four months cough Nd fever started reoccurring. Does anyone facing same issue
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IL2
HELLO, does anyone know of a hospital in Colorado that administers the IL2 treatment, and is experienced in protocal regarding side effects?. I have seen many posts however not one particular place mentioned in the rockies. Much appreciated. Elaine
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I'm back...
Hey all I am back from a few days at the beach. This is appt week so I have all the blood work, X-ray and mri on Mon and Tues. My appt is Thursday. Trying to do one day at a time with some meds thrown in for my MRI since I react to everything. I'll post more. I have updated my profile but I put my story in the blog…
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Well.....i guess I'm in the club (41 year old male/11cm)
Seems like some very supportive people in here. It is appreciated more than you will ever probably know. Got diagnosed 2 weeks ago (Aug 24 2016) with a 11CM mass on/in my right kidney. The last 2 weeks have been a whirldwind. Contrast CT does not show any signs of anything anywhere else. I am being told that the doc wont…
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1st meeting with Urogolist
Hello all, I met with my Urologist yesterday. He told me the tumor was 6cm, a little bigger than my Oncologist said. Still, it is what it is. He also told me my tumor is on the top of the Kidney in a bad place, and he recommends taking it out. He believes it may be Stage one, maybe two; but as I learned on this site, they…
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Update and looking for advise and some serious hope
Hi all, Sorry that I haven't been around for a while - life has gotten a little busy! So a quick catch up on what has been happening before I get to the sticky stuff. I have made the move from Singapore back to Australia, have given up my job as an English teacher (and my identity?), found an new oncology and palliative…
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Hi All..Nice to meet you....
Hi....I'm new to this site, in regards to posting anyway, but I've spent many days reading all the posts and I feel as though I know you all..... So...here's a little bit about me. My name is Angie...I'm 53 and on July 11th I went in for a CT scan w/wo contrast as prep. for an upcoming total hysterectomy. Long story…
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New guy Just dianosed
Hello All, I just found this site after a long day and am glad I found it. The stories and information here have given me a little hope after seeing my Oncologist. I have a 5.5 centimeter (hope I spelled that right) mass on my right kidney. It was found after an untrasound ordered by my GP after I complained of stomach…
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CT or ultrasound
There was a discussion recently if ultrasounds are good enough for follow up. My husband is getting ultrasounds every 6 months. But after his latest NED the doc performing ultrasounds suggested to have a CT once in a while (like, once in 2-3 years or so). Just in case... Or better MRI for younger people to avoid radiation.…
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Worried Newbie
Just found this discussion board and hope to share some of my worries. It all started with a back pain and was scheduled for US in June and found a 3cm mass and CT with contrast in Aug and mass was 3.8cm with measurement 2.6x3.2x3.4cm at right kidney upper pole. Wondering why the difference in measurement between US and…
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New to the Club - post op information
My internist ordered a Heart Scan for me, and when I called to make the appointment the woman doing the scheduling suggested that I "upgrade" and have a full body scan for an extra $500. I scheduled the full scan. Ironically, upon arrival at the facility, the young man doing the scans tried and tried to talk me out of it.…