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Scheduled for Surgery
Hello all, After a three weeks of CT scans, and a Colonocopy (no issues), I have been scheduled for Surgery on 10/12/16. I decided on staying with my Urologist after speaking to my doctors who all spoke highly of him. I also feel comfortable with my current health care group and hospital, so I am good. It was gonna take…
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Cancer Fatigue
Hello everybody. This is probably a silly question, but one I want to ask. I'm a little over one week out of my second surgery in a month (chRCC removal end of August and Thyroid cancer removal last week). As I recover my body is starting to feel better than it has in years. As you know, one of the symptoms of cancer is…
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need advice
Well, this is my short story. I was diagnosed 25 months ago, 10 cm confined to kidney tumor. Had follow ups and am considered to be NED. My hubby and I were thinking of having our first baby before the diagnosis but the diagnosis, surgery,follow ups, depression, stress, hopelessness made me make the decision of not wanting…
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Scan Results
I got the test results back today the IL2 did not work as suspected and the cancer has spread into more areas. Doctors are recommending a new drug therapy to slow the roll of the cancer but at this point there is no longer a cure the IL2 was the only drug that could possibly, although improbable, stop or slow growth. The…
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Four year checkup tomorrow
Well, my wife is going in for her four year checkup tomorrow after a full nephrectomy on her right kidney in 2012. She is at annual checkups at this time and has been clear everytime. We still pray for everyone on this board. You guys really helped us out when she was first diagnosed. God bless. Tom and Holly
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Finally, my story briefly
I'll post on my "about me" page but I figured it was about time I posted a bit about my story. It's a bit convoluted so I'll keep it at a minimum. I'm a college professor that teaches in medical imaging (this includes CT, x-ray, and ultrasound) and I've actively worked in the hospital patient care setting for well over a…
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life is good
I get so confused re: time. Literally living from appointment to appointment. October is tomorrow. So I have to take a moment to look back to the start of this year. It has been busy. Don't be surprised if I make mistakes about treatments, met growth and response to treatments. At 5 and a half years it is becomming a…
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Just diagnosed
I went in for a 6 month routine checkup with bloodwork. My liver enzymes were out of this world. So I had an ultrasound & it showed possible liver disease. It also detected in my R kidney a large mass "probably malignant" with a blood supply. The waiting is killing me! Nobody is in a hurry for anything. Two weeks after…
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I'm New ...
Hi All, I write from Overseas, Italy to be exact. My dad was diagnosed with RCC in 2014 (the same week my mom died from another cancer), at 61 years of age. His cancer was 10cm in the left kidney. He underwent radical nephrectomy in April 2014 and the cancer came back as clear cell Stage IIIa with no lymphnode affected,…
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Reoccurence of cough and fever after three months of removing kidney
Hi guys my father was detected with kidney cancer stage 4 6 months back with symptoms if continous fever and cough. Then he got his kidney removed and having sutent since then. He was ok for four months but after four months cough Nd fever started reoccurring. Does anyone facing same issue
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IL2
HELLO, does anyone know of a hospital in Colorado that administers the IL2 treatment, and is experienced in protocal regarding side effects?. I have seen many posts however not one particular place mentioned in the rockies. Much appreciated. Elaine
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I'm back...
Hey all I am back from a few days at the beach. This is appt week so I have all the blood work, X-ray and mri on Mon and Tues. My appt is Thursday. Trying to do one day at a time with some meds thrown in for my MRI since I react to everything. I'll post more. I have updated my profile but I put my story in the blog…
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Well.....i guess I'm in the club (41 year old male/11cm)
Seems like some very supportive people in here. It is appreciated more than you will ever probably know. Got diagnosed 2 weeks ago (Aug 24 2016) with a 11CM mass on/in my right kidney. The last 2 weeks have been a whirldwind. Contrast CT does not show any signs of anything anywhere else. I am being told that the doc wont…
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1st meeting with Urogolist
Hello all, I met with my Urologist yesterday. He told me the tumor was 6cm, a little bigger than my Oncologist said. Still, it is what it is. He also told me my tumor is on the top of the Kidney in a bad place, and he recommends taking it out. He believes it may be Stage one, maybe two; but as I learned on this site, they…
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Update and looking for advise and some serious hope
Hi all, Sorry that I haven't been around for a while - life has gotten a little busy! So a quick catch up on what has been happening before I get to the sticky stuff. I have made the move from Singapore back to Australia, have given up my job as an English teacher (and my identity?), found an new oncology and palliative…
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Hi All..Nice to meet you....
Hi....I'm new to this site, in regards to posting anyway, but I've spent many days reading all the posts and I feel as though I know you all..... So...here's a little bit about me. My name is Angie...I'm 53 and on July 11th I went in for a CT scan w/wo contrast as prep. for an upcoming total hysterectomy. Long story…
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New guy Just dianosed
Hello All, I just found this site after a long day and am glad I found it. The stories and information here have given me a little hope after seeing my Oncologist. I have a 5.5 centimeter (hope I spelled that right) mass on my right kidney. It was found after an untrasound ordered by my GP after I complained of stomach…
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CT or ultrasound
There was a discussion recently if ultrasounds are good enough for follow up. My husband is getting ultrasounds every 6 months. But after his latest NED the doc performing ultrasounds suggested to have a CT once in a while (like, once in 2-3 years or so). Just in case... Or better MRI for younger people to avoid radiation.…
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Worried Newbie
Just found this discussion board and hope to share some of my worries. It all started with a back pain and was scheduled for US in June and found a 3cm mass and CT with contrast in Aug and mass was 3.8cm with measurement 2.6x3.2x3.4cm at right kidney upper pole. Wondering why the difference in measurement between US and…
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New to the Club - post op information
My internist ordered a Heart Scan for me, and when I called to make the appointment the woman doing the scheduling suggested that I "upgrade" and have a full body scan for an extra $500. I scheduled the full scan. Ironically, upon arrival at the facility, the young man doing the scans tried and tried to talk me out of it.…
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Surgery...again
Here is an update on my continuing saga with cancer. Going through my initial scans for RCC, prior to setting a surgery date, the chest scan reveled a thyroid nodule on my lower left lobe with a couple nodes involved. Initially, I was pretty scared that my kidney cancer had traveled, but that was put to rest soon after…
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A (Boring) Update for You All
Been awhile but i've been thinking about you all just the same. Had my baseline CT with/without contrast in August, 7 mos after right partial (open) nephrectomy involving 4cm RCC tumor, T1a N0 M0, Furhman grade 3. My jack of all trades urologist said 'no worrisome results' which i'm going to claim as a visit from Uncle NED…
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Second opinion stuff...
I'm ready to get the second opinion, I think. Tomorrow morning is another CT, then a review with my primary physician, then... Another specialist (yup, RCC kinda specialist). Don't know the time frame yet, except it'll be soon that I follow up with my primary. In the meantime, I'm repacking my scanxiety survival kit -- *…
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I'm ready to join..
The NED club! Everything came back normal. Im cancer free. It was so surreal, not exactly what I thought. Not sure what I expected. Anyway,he is now recommending waiitng 6 months until the next round of tests and whatnot. I feel good and anxious at the same time. For now one day at a time. Kerry
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I'm still alive
hi...don't know how many of you will recognize me anymore, but wanted to let you know I'm still alive and kicking. Two weeks ago tomorrow, I underwent surgery to have the upper lobe of my left lung removed, along with a new primary cancer (adenocarcinoma of the lung) at Moffitt Cancer Center in Tampa, FL. I finally ditched…
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Sutent Statistics
Greetings all, Can anyone direct me to life expactancy statisitics (ie avg time till death) of sutent vs staight up paliative measures (ie morphine)? Thanks! Louis
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3 years is coming up: Trepidation of moving to annual scans
Hi everyone, I've been reading carefully all the posts, I just have trouble on my phone these days so can't post much. In an effort to work less at home and spend more time with the family (I'm a teacher so we work a lot at home) I leave my laptop at work. Sooo, long story short while I read everything, I'm not posting…
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MRI Results
Hi Everyone, I have received my MRI results for my brain tumors, the cyber knife radiation did help reduce the size (3 tumors in brain) but did not make them go away. I will see the Drs. on Monday to discuss other options and also get my results for my CT scan of the chest, stomach and pelvic area. I will let you know what…
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Pathology Report
I wanted to once again thank you all for the support over the last month. Every day I seem to learn a little bit more, and yesterday I had my meeting with the doc to review my pathology. Here are the details.... Procedure: Radical nephrectomy Tumor Size: Greatest Dimension= 10.6 cm Additional Dimension= 9.8 cm Macroscopic…
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Question: Re Breathing
A little history first. Left Kidney and Adrenal Gland have been removed. Right Adrenal Gland does not work. Have several small nodlues on right lung and have a sub cutaneous knot on my sternum. Lympnodes in region are also involved with spread of cancer. Cancer has spread to other areas of the body but not mentioning it…