-
NED, NED, NED!!
I just got back from my oncologist....Uncle NED decided to stay for a while. Woo hoo! I just saw Todd's post of NED too! Yay, Todd! I am having my thyroid out on the 27th...my oncologist has been concerned about my thyroid since I have had some issues with my multinodular goiter for a while, and even though it is rare for…
-
Hi. I'm new here, I'm scared and I need support.
Hello. The past few months have been one hell of a roller coaster for me. I'm ready to get off the ride but it doesn't seem to ever end! In the begining of September of this year, I was diagnosed with Kidney Cancer. The Urologist told me I had a large tumor on my right kidney, and that it, and the kidney, would have to be…
-
Lowering IGF-1 levels
Interesting article & video: What’s the Best Way to Lower Levels of IGF-1, the Cancer-Promoting Growth Hormone? https://www.forksoverknives.com/whats-best-way-lower-levels-igf-1the-cancer-promoting-growth-hormone/
-
You can't do that! Or can you...?
One of the advantages to ending pain meds three days after surgery, my body is definitely more that willing to let me know if I shouldn't be doing something. I've attempted a very brief very simplified Tai Chi practice a few times since surgery. Nice. Yesterday, my brain and all of my body was really getting into the…
-
Is this normal?
Hi guys, sorry but this is another complainy post. But I need to know if what I am going through is normal, or if I should go see my doctor. I am now 25 days post surgery. I returned to work after 11 days, and that has been fine, as I work from home and I would be sitting in front of the TV anyway, so sitting in front of a…
-
Breathlessness and extreme dizziness
I am 73 years old and I had my left kidney and a 7-centimeter tumour removed just four weeks ago. The tumour was found by accident in an ultra-sound scan on my prostate, so the whole thing was a major shock. To make matters worse, my heart level plunged through the floor as the surgeon was about to start the operation and…
-
NED
I had a scan 2-3 weeks ago. Just wanted to pop in and say it was NED. I'm feeling pretty good about it. This is the first scan I've had in 4 years that I experienced very little scanxiety. When I had my followup, the oncologist didn't even see me this time. He had the PA see me. I'm not sure if I like that, but I decided…
-
Another lung surgery..........
Tuesday Jan 3rd going in again to have two more RCC lung mets removed, a 5mm and 6mm in the upper left lobe left lung this time (wedge resections again), traditional lateral thoracotmy. It seems my surgeon likes to get his hands dirty and feel the lung while he has it deflated outside the rib cage and make sure there are…
-
They don't know until...
From the blog herecomesthesun927.com Dear every cancer patient I ever took care of, I’m sorry. I didn’t get it. Posted on November 14, 2016by herecomesthesun927 Dear every cancer patient I ever took care of, I’m sorry. I didn’t get it. This thought has been weighing heavy on my heart since my diagnosis. I’ve worked in…
-
Update
I reached out to you guys on Friday and I have new information. My husband's details are as follows: Tumor is 9.4 cm Mets to lungs (too numerous to count Is there hope?
-
Needle Biopsy results in
Well, after finding evidence of "possible metastatic disease" on a routine MRI and then "multiple bone lesions consistent with metastatic disease" on a MRI Thoracic Spine Scan, and "findings concerning metastatic bone disease" by a Bone Scan, today I got back the results of the Needle Biopsy which show "no malignancy…
-
Feeling grateful
All week so far. Huge improvement for me, as I was so unhappy and feeling so much anger and self pity before. Anyway, today I am extremely grateful for the insurance plan my company provides my family. When we were on hubby's insurance, our deductible was 10,000 per person and then 10,000 co-insurance! And it cost us a…
-
Recovering from the surgery!
Hello everyone. I'm new here, so please be patient with me as I learn how to navigate around a site that is is new and unfamiliar. I had an open flank surgery for kidney cancer a year ago -- and while the surgery is/was considered a "big success" -- recovering from such an invasive procedure has been a nightmare. Last…
-
Surgery and Subcutaneous Nodules
Surgery and Subcutaneous Nodules Unfortunately my Kidney Cancer continues to spread regardless to what I do. The good part, if it is good, with the exception of the subcutaneous nodules, it is not spreading fast. My question is has anyone been diagnosed with subcutaneous nodules that needed to be surgically removed. I have…
-
17 days post sugery
And I guess I am getting my sense of humor back!! I was discussing my hospital stay with my sister and husband and although I vaguely remember, I had totally forgotten. Apparently after surgery I was asking every doctor, nurse, maid and food service employee that walked into my room to, "PLEASE euthanize me, put me out of…
-
Update
We saw the urologist/oncologist today. He gave us the news that it has not spread but removal is necessary. my husband is scheduled for surgery next week and we are busy getting pre ops etc. thanks to everyone that shared their story with me, everyone who prayed, and all the reassurance. I'm thankful that I found this site…
-
Update on John
From 12/28: On 12/23 he had a new set of CT scans and then met with his ONC on Christmas Eve. After six or so infusions of Opdivo the news wasn't what we had hoped for. There are new lymph node mets in the paratracheal area and in the mid-chest near the aorta. Apparently this is a fairly common met site for RCC. Also the…
-
NED!
December was a busy month CT scan CXR came back clear , then I had to do the routine colonoscopy which came back clear that's all took place between the 20th and the 30th long 10 days next test on June 2017.....wish you all happy new year....!!!
-
Y90 Theresphere out there?
Has anyone had this to treat the tumors in the liver from RCC? HAving it done January12 and a little nervouse
-
RCC
God bless all of you, Michael
-
Stupid question
What is NED? Thanks
-
How to see posts by user
Trying to figure out how to see past posts by a user that may have similar situation or drug my husband is on. Suggestions? I click on user name and can see their bio but not a list of past posts? Thanks in advance.
-
My husband was diagnosed this morning
my husband was just diagnosed this morning and I'm a mess. The mass is on his fight kidney and is 9 cm. We now have to wait until Tuesday to speak with a specialist. Super scared. He's 41 and is typically super healthy. I'm not sure what to expect and go through moments of crying and then back to diligently searching for…
-
Happy New Year Everyone!!
Here's hoping that we all are blessed with a happy, productive, loving year and never left wanting for anything other than a visit from NED. For those wondering: NED = No Evidence of Disease Cheers! Donna~
-
Happy New Year
Hello all, I wanted to wish everyone a Happy New Year and say thank you for being here for me during a scary time in my life. I appreciated all your experiences and advice which helped me get through my diagnosis and surgery. It has been 2 1/2 months since my right kidney was removed and I am getting stronger and getting…
-
Merry Chrismas, Happy Chanuka and a Happy Ned Year
To all, May each of you have the best for the holidays two of which start tonight and the third we hope will continue throuhout the year. Icemantoo
-
RCC mets to Liver - Y90 thersphere procedure information
Morning, my name is Michael and I have been on Sutent 50 mg 14 on 7 off. Tumors in lungs and liver have been controlled for going on two years. Now liver tumor is growing and more in same quadrant. I am a candidate for Y90 thersphere after mapping last week. Going for actual procedure January 12. Can anyone tall me of…
-
New to the group
Hello all, Im new to this group, I was diagnosed in July 2016 after removing a large tumor 17 cm and my right kidney. My markers were T3N0M0. My furman was grade 4 and necrosis was 50%. I am think about taking the drug Sutent (Sunitinib) but have read some disturbing things about it. Anyone taking this drug? Can you give…
-
Sarcomatoid
Had my following up with oncologist yesterday. I do not qualify for any trials,because they were for clear cell cancers only. Mine is Sarcomatoid. He said this is an agressive cancer. We will keep a close eye on it. My first scan will be next month followed by another in 4 months then go to 6 months. There is a 50/50…
-
Son-in-law with sRCC
Hello everyone: I thought I'd join the forum on behalf of my son-in-law who just had a total nephrectomy about two weeks ago to remove a 13 cm tumor that had taken his left kidney. It seemed to the surgeon to be fully contained with no evidence of mets to nearby lymph nodes. The pathology is T2b, N0, M0, grade 4, with 60%…