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Kidney Cancer

How to see posts by user
Trying to figure out how to see past posts by a user that may have similar situation or drug my husband is on. Suggestions? I click on user name and can see their bio but not a list of past posts? Thanks in advance.
My husband was diagnosed this morning
my husband was just diagnosed this morning and I'm a mess. The mass is on his fight kidney and is 9 cm. We now have to wait until Tuesday to speak with a specialist. Super scared. He's 41 and is typically super healthy. I'm not sure what to expect and go through moments of crying and then back to diligently searching for…
Happy New Year Everyone!!
Here's hoping that we all are blessed with a happy, productive, loving year and never left wanting for anything other than a visit from NED. For those wondering: NED = No Evidence of Disease Cheers! Donna~
Happy New Year
Hello all, I wanted to wish everyone a Happy New Year and say thank you for being here for me during a scary time in my life. I appreciated all your experiences and advice which helped me get through my diagnosis and surgery. It has been 2 1/2 months since my right kidney was removed and I am getting stronger and getting…
Merry Chrismas, Happy Chanuka and a Happy Ned Year
To all, May each of you have the best for the holidays two of which start tonight and the third we hope will continue throuhout the year. Icemantoo
RCC mets to Liver - Y90 thersphere procedure information
Morning, my name is Michael and I have been on Sutent 50 mg 14 on 7 off. Tumors in lungs and liver have been controlled for going on two years. Now liver tumor is growing and more in same quadrant. I am a candidate for Y90 thersphere after mapping last week. Going for actual procedure January 12. Can anyone tall me of…
New to the group
Hello all, Im new to this group, I was diagnosed in July 2016 after removing a large tumor 17 cm and my right kidney. My markers were T3N0M0. My furman was grade 4 and necrosis was 50%. I am think about taking the drug Sutent (Sunitinib) but have read some disturbing things about it. Anyone taking this drug? Can you give…
Sarcomatoid
Had my following up with oncologist yesterday. I do not qualify for any trials,because they were for clear cell cancers only. Mine is Sarcomatoid. He said this is an agressive cancer. We will keep a close eye on it. My first scan will be next month followed by another in 4 months then go to 6 months. There is a 50/50…
Son-in-law with sRCC
Hello everyone: I thought I'd join the forum on behalf of my son-in-law who just had a total nephrectomy about two weeks ago to remove a 13 cm tumor that had taken his left kidney. It seemed to the surgeon to be fully contained with no evidence of mets to nearby lymph nodes. The pathology is T2b, N0, M0, grade 4, with 60%…
Musculoskeletal Pain from Votrient- remedy
Hi everyone, my husband had incredible pain with Votrient which he has been on for 6 months. He was taking up to 30 mg of morphine a day. a friend of mine told me to have him take Claritin. something about histamines being released when you are on chemo. He has been taking it for two weeks now and HAS NO PAIN anymore. I am…
New to the Site
Hi everyone. My name is Scott and I am not new to cancer but am new to this site. I wanted to introduce myself and say hello to everyone who this disease has touched and wish you all well. I have had RCC for 2 1/2 years now and am stage IV after having my kidney removed and in a second surgery having 17 surrounding lymph…
calcium in artery found same time as Kidney tumor
hi all - first, best to all this holiday season...so many here are dealing with a tough hand... me, I am NED for almost 2.5 years after a full nephrectomy on the right side...when they did the scans to find the tumor, one surgeon noted significant calcium in my left descending artery (referrred to as LAD) ...follow up…
My husbands story
My husband ended up in ER to ensure the pain that he was having was indeed gastritis. It was in fact gastritis but when they did the CT scan they found a small tumor on his kidney. We did not do a biopsy because they are only 80% accurate. We elected to have a partial nephrectomy. Surgeon made it sound simple cut it out…
Terrified
Hello - My husband noticed urine in his blood last week. He saw his primary care doctor this week, who prescribed him antibiotics and advised him to get a CT Scan. He had the CT Scan today @ 1:30. At 2:20, the doctor called to say he had kidney cancer. The technician saw a large mass on his kidney and let the doctor know…
Uncle NED is spending Christmas with us this year.
Just found out Uncle NED is paying us a visit after yesterdays Ct scan. As we are going to yearly scans we are inviting him for next Christmas too. Really hope all of you get a visit from him soon too. Merry Christmas Melissa xox
CABO?????
I am being pulled off of CABO again, I wound up in the hospital emergency room last week with severe chest pains and breathing issues. The doctors pulled the numbrs on my heart blood work, ekg, x ray etc. My heart turned out to be fine and in great shape so the ER doctor sent me home. They pain in my chest continued and…
Laughter the best medicine
Hi Everyone, I just wanted to share a book that has helped me tremendously through this cancer journey...it is called "Cancer on 5 $ a Day" by Robert Schimmel. He is a comedian and he fought lymphoma stage 3 I believe. Warning or trigger alert, he is a very "blue" comedian so be ready for lots of sex jokes and some…
I'd Like to Give a Big Shout Out to Everyone and Say THANK YOU!
A couple of days ago when I wrote my first post, I was terrified by this barrage of information I was receiving from my doctors about my newly mestastized Kidney Cancer, at least that's how it seemed to me. I really didn't have anyone else to talk to - my friends aren't good at handling bad news, and I'm not that close…
Breathalyzer Can Detect 17 Diseases, Including Kidney Cancer
Well, THIS would have been helpful a few years ago... Link to story (you may have to cut and paste...the "insert link" function doesn't appear to be working)
Tuesday Group 2.0
So, I see quite a few of us were getting results today (Tuesday). I guess I missed being in the club by a week. Got my first scan this Friday and the BIG REVEAL will be Tuesday (a week from today). I have to admit, the anxiety is slowly but surley starting to build. You guys have all been helpful and supportive, but for…
Milestones....
I had a moderately big milestone yesterday. And I ignored it. (I had forgotten it; facebook reminded me). Your years ago yesterday, they found a metastisis to my cancer. Because of the agressive nature of my primary tumor, etc, I was told that the odds of disease free survival was low -- 3 years, was 25%. 5 Years, about…
What should we wear?
What did you wear when you went for your MRI? What about your going-home from the hospital post-surgery? Then there's the lounge-at-home and early-ventures-into-public outfits. What's worked for you? Here's my report from last week of my wore-it-home from the hospital outfit -- Fashion Report: My apres-surgery ensemble…
New here
Hi I stumbled upon this forum trying to do research about what to expect over the next few months. I just had a laproscopic radical right nephrectomy on December 14, 2016. I was sent home from the hospital on the 16th. I had a mass in the right kidney that was originally noted when the ER doctor found a tumor blocking 95%…
Hello
This is my first time ever posting anything like this anywhere. I found this website and this board last night in the middle of a mini melt down when my husband suggested I find people to talk to who may understand what I am going through right now. I am kind of depserate for someone to talk to who does understand, so here…
28 months passed and I'm NED
Friends, my 28 month scans' report is NED. Thank you all for being best cheerleaders and supporters. May everyone gets good news especially my other Tuesday group member, Jersygrrl, my happiness is completed once you send us good news too. Footstomper I'm really happy for your boring report. Forough
keeping copies of reports.
One of the most common recommendations is to get copies of all your scans and reports for future need. Believe me it's true. After 5 years I have put them into good use. They have all been rolled into logs and fed into the wood stove. It may be 9 degrees outdoors but it is 75 in my house! Actually with computer access to…
New here; surgery on Tuesday
Hello. My husband (57yo) will be undergoing a radical nephrectomy of his right kidney this Tuesday. This is all happening quite rapidly, and I would love any advice that you all could provide to help us prepare for the surgery. After about 3 or 4 months of constant weight loss, lack of energy, sleeping all of the time,…
2006 HAD KIDNEY REMOVED-IT'S BACK
Okay, I'm new here, but not to kidney cancer. In March 2006 mine was left kidney. I had it removed and it was 12cm. I was 54 at the time. After 5 years on the program, I thought I had clear sailing ahead. May 2015 I received a call from my doctor and something showed on my right lung in my annual CT scan. It was RCC and…
Well ! Not what we expected...
Met my new Oncologist... Dr. Primo "Lucky" Lara.... now the Acting Director Comprehensive Cancer Center here at UC Davis in Sacramento. Seems to be a busy man around here.... Since all my scans since Feb. 2014 have shown stable or small growth... and the Opvido scans since starting Opvido this past Feb. (have had 21…
2 year anniversary
Hello everyone, today is a second anniversary of surgery which saved my husband's life! He was Stage 1, Grade 1 and is currently NED! I remember this time 2 years ago - pregnant, with husband just diagnosed with Hep C and couple of weeks later - with kidney cancer.... Hell of a time for me. This place was the only thing…

Kidney Cancer

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