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I'm back...
Hey all I am back from a few days at the beach. This is appt week so I have all the blood work, X-ray and mri on Mon and Tues. My appt is Thursday. Trying to do one day at a time with some meds thrown in for my MRI since I react to everything. I'll post more. I have updated my profile but I put my story in the blog…
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Well.....i guess I'm in the club (41 year old male/11cm)
Seems like some very supportive people in here. It is appreciated more than you will ever probably know. Got diagnosed 2 weeks ago (Aug 24 2016) with a 11CM mass on/in my right kidney. The last 2 weeks have been a whirldwind. Contrast CT does not show any signs of anything anywhere else. I am being told that the doc wont…
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1st meeting with Urogolist
Hello all, I met with my Urologist yesterday. He told me the tumor was 6cm, a little bigger than my Oncologist said. Still, it is what it is. He also told me my tumor is on the top of the Kidney in a bad place, and he recommends taking it out. He believes it may be Stage one, maybe two; but as I learned on this site, they…
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Update and looking for advise and some serious hope
Hi all, Sorry that I haven't been around for a while - life has gotten a little busy! So a quick catch up on what has been happening before I get to the sticky stuff. I have made the move from Singapore back to Australia, have given up my job as an English teacher (and my identity?), found an new oncology and palliative…
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Hi All..Nice to meet you....
Hi....I'm new to this site, in regards to posting anyway, but I've spent many days reading all the posts and I feel as though I know you all..... So...here's a little bit about me. My name is Angie...I'm 53 and on July 11th I went in for a CT scan w/wo contrast as prep. for an upcoming total hysterectomy. Long story…
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New guy Just dianosed
Hello All, I just found this site after a long day and am glad I found it. The stories and information here have given me a little hope after seeing my Oncologist. I have a 5.5 centimeter (hope I spelled that right) mass on my right kidney. It was found after an untrasound ordered by my GP after I complained of stomach…
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CT or ultrasound
There was a discussion recently if ultrasounds are good enough for follow up. My husband is getting ultrasounds every 6 months. But after his latest NED the doc performing ultrasounds suggested to have a CT once in a while (like, once in 2-3 years or so). Just in case... Or better MRI for younger people to avoid radiation.…
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Worried Newbie
Just found this discussion board and hope to share some of my worries. It all started with a back pain and was scheduled for US in June and found a 3cm mass and CT with contrast in Aug and mass was 3.8cm with measurement 2.6x3.2x3.4cm at right kidney upper pole. Wondering why the difference in measurement between US and…
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New to the Club - post op information
My internist ordered a Heart Scan for me, and when I called to make the appointment the woman doing the scheduling suggested that I "upgrade" and have a full body scan for an extra $500. I scheduled the full scan. Ironically, upon arrival at the facility, the young man doing the scans tried and tried to talk me out of it.…
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Surgery...again
Here is an update on my continuing saga with cancer. Going through my initial scans for RCC, prior to setting a surgery date, the chest scan reveled a thyroid nodule on my lower left lobe with a couple nodes involved. Initially, I was pretty scared that my kidney cancer had traveled, but that was put to rest soon after…
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A (Boring) Update for You All
Been awhile but i've been thinking about you all just the same. Had my baseline CT with/without contrast in August, 7 mos after right partial (open) nephrectomy involving 4cm RCC tumor, T1a N0 M0, Furhman grade 3. My jack of all trades urologist said 'no worrisome results' which i'm going to claim as a visit from Uncle NED…
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Second opinion stuff...
I'm ready to get the second opinion, I think. Tomorrow morning is another CT, then a review with my primary physician, then... Another specialist (yup, RCC kinda specialist). Don't know the time frame yet, except it'll be soon that I follow up with my primary. In the meantime, I'm repacking my scanxiety survival kit -- *…
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I'm ready to join..
The NED club! Everything came back normal. Im cancer free. It was so surreal, not exactly what I thought. Not sure what I expected. Anyway,he is now recommending waiitng 6 months until the next round of tests and whatnot. I feel good and anxious at the same time. For now one day at a time. Kerry
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I'm still alive
hi...don't know how many of you will recognize me anymore, but wanted to let you know I'm still alive and kicking. Two weeks ago tomorrow, I underwent surgery to have the upper lobe of my left lung removed, along with a new primary cancer (adenocarcinoma of the lung) at Moffitt Cancer Center in Tampa, FL. I finally ditched…
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Sutent Statistics
Greetings all, Can anyone direct me to life expactancy statisitics (ie avg time till death) of sutent vs staight up paliative measures (ie morphine)? Thanks! Louis
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3 years is coming up: Trepidation of moving to annual scans
Hi everyone, I've been reading carefully all the posts, I just have trouble on my phone these days so can't post much. In an effort to work less at home and spend more time with the family (I'm a teacher so we work a lot at home) I leave my laptop at work. Sooo, long story short while I read everything, I'm not posting…
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MRI Results
Hi Everyone, I have received my MRI results for my brain tumors, the cyber knife radiation did help reduce the size (3 tumors in brain) but did not make them go away. I will see the Drs. on Monday to discuss other options and also get my results for my CT scan of the chest, stomach and pelvic area. I will let you know what…
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Pathology Report
I wanted to once again thank you all for the support over the last month. Every day I seem to learn a little bit more, and yesterday I had my meeting with the doc to review my pathology. Here are the details.... Procedure: Radical nephrectomy Tumor Size: Greatest Dimension= 10.6 cm Additional Dimension= 9.8 cm Macroscopic…
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Question: Re Breathing
A little history first. Left Kidney and Adrenal Gland have been removed. Right Adrenal Gland does not work. Have several small nodlues on right lung and have a sub cutaneous knot on my sternum. Lympnodes in region are also involved with spread of cancer. Cancer has spread to other areas of the body but not mentioning it…
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Learning to deal with tests
At this point, you almost hesitate to say much. There is a bit of survivor's guilt when one comes on here and says everything is OK. But then you think, "what the H..., I've earned it." For all of you who haven't always had great results, are on meds, more tests, etc., I can truthfully say, "I've been there." Earning my…
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How do you....
Hi all! I've scheduled my first 3 month post op for the end of this month. I'm already in knots. How do you handle the emotional side of having checkups every 3 months? I'm doing OK physically but emotionally I'm afraid to plan anything long term. Kerry
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Cyst
I just had my (4) year scan; diagnosed & surgery July '12 RCC 5.5, Stage 1, Grade 1 - right full neph done. I've had a very small cyst that has been about the same size. In the past year it grew a very small amount ( I think 2-3mm to 18x15 ) so they've ordered an ultrasound to make sure. The report said, 'still consisitent…
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Question on new med -Votrient
Hello, Im new to this so Im hoping to get some information on some new medicine Im taking. I was diagnosed with Stage IV/Grade III kidney cancer in 2008. After 8 years it metastized to my lung which they watched over a 1-2 yr period and decided to have it removed. That was in April. Had a CT in late July and there is an…
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Where to start???
I haven't been around much. We ended not ever making it to MDA because, being self-employed, we were too busy to even consider leaving the area. Which is the strangest thing because we haven't been busy around that time of year for about 15 years. It's just a slow time every year in the business. So we ended up with a…
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RCC Chromophobe
Has anyone on this board been diagnosed with this type of RCC? I am curious if surgery cured it and if it came back? Thanks!
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Discomfort from lymph nodes...removal?
Unfortunately my cancer has been extremely aggressive on my lymph nodes. I am beginning to have discomfort from several lymphnodes in my neck that have tumors (4cm). Has anybody had them removed? I see my onc next week when I check in after being on cabo a week. I know new issues can be be caused by thier removal,…
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SUTENT User
Hi Friends I'm new at this, I am on day 26 of cycle 1 with SUTENT, my left kidney was removed for 6 months with metastases in the lung and now I hope this medicine will result .... I have 53 years and considered myself very healthy until the beginning of this year ... so far the side effects were high blood pressure that…
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Sticking my neck out, and saying hello...
Been a turtle for awhile up here on the Oregon Coast.... figured I better check in, and catch up on everyone on the board. I just finished my 15th infusion of Nivo, and scan results from August are in.... No evidence of cancer in my brain MRI... my oncologist did not say disease.. he said cancer... so does that mean I am…
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Surgery scheduled
i had my biopsy and it came back stage 1, grade 1 RCC. Mixed feelings. I know it's best case scenario for cancer but it's still cancer. Surgery is scheduled for October 3.
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Humor strikes in the weirdest locations
I was at my latest doctors appointment and my oncologist was reviewing the scans and the radiologists notes when he starts to get this really annoyed look on his face. Naturally, i am a bit concerned so I ask what the issue is. The doctor says that the radiologist has written the report in a really strange way and that I…