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Kidney Cancer

Breathalyzer Can Detect 17 Diseases, Including Kidney Cancer
Well, THIS would have been helpful a few years ago... Link to story (you may have to cut and paste...the "insert link" function doesn't appear to be working)
Tuesday Group 2.0
So, I see quite a few of us were getting results today (Tuesday). I guess I missed being in the club by a week. Got my first scan this Friday and the BIG REVEAL will be Tuesday (a week from today). I have to admit, the anxiety is slowly but surley starting to build. You guys have all been helpful and supportive, but for…
Milestones....
I had a moderately big milestone yesterday. And I ignored it. (I had forgotten it; facebook reminded me). Your years ago yesterday, they found a metastisis to my cancer. Because of the agressive nature of my primary tumor, etc, I was told that the odds of disease free survival was low -- 3 years, was 25%. 5 Years, about…
What should we wear?
What did you wear when you went for your MRI? What about your going-home from the hospital post-surgery? Then there's the lounge-at-home and early-ventures-into-public outfits. What's worked for you? Here's my report from last week of my wore-it-home from the hospital outfit -- Fashion Report: My apres-surgery ensemble…
New here
Hi I stumbled upon this forum trying to do research about what to expect over the next few months. I just had a laproscopic radical right nephrectomy on December 14, 2016. I was sent home from the hospital on the 16th. I had a mass in the right kidney that was originally noted when the ER doctor found a tumor blocking 95%…
Hello
This is my first time ever posting anything like this anywhere. I found this website and this board last night in the middle of a mini melt down when my husband suggested I find people to talk to who may understand what I am going through right now. I am kind of depserate for someone to talk to who does understand, so here…
28 months passed and I'm NED
Friends, my 28 month scans' report is NED. Thank you all for being best cheerleaders and supporters. May everyone gets good news especially my other Tuesday group member, Jersygrrl, my happiness is completed once you send us good news too. Footstomper I'm really happy for your boring report. Forough
keeping copies of reports.
One of the most common recommendations is to get copies of all your scans and reports for future need. Believe me it's true. After 5 years I have put them into good use. They have all been rolled into logs and fed into the wood stove. It may be 9 degrees outdoors but it is 75 in my house! Actually with computer access to…
New here; surgery on Tuesday
Hello. My husband (57yo) will be undergoing a radical nephrectomy of his right kidney this Tuesday. This is all happening quite rapidly, and I would love any advice that you all could provide to help us prepare for the surgery. After about 3 or 4 months of constant weight loss, lack of energy, sleeping all of the time,…
2006 HAD KIDNEY REMOVED-IT'S BACK
Okay, I'm new here, but not to kidney cancer. In March 2006 mine was left kidney. I had it removed and it was 12cm. I was 54 at the time. After 5 years on the program, I thought I had clear sailing ahead. May 2015 I received a call from my doctor and something showed on my right lung in my annual CT scan. It was RCC and…
Well ! Not what we expected...
Met my new Oncologist... Dr. Primo "Lucky" Lara.... now the Acting Director Comprehensive Cancer Center here at UC Davis in Sacramento. Seems to be a busy man around here.... Since all my scans since Feb. 2014 have shown stable or small growth... and the Opvido scans since starting Opvido this past Feb. (have had 21…
2 year anniversary
Hello everyone, today is a second anniversary of surgery which saved my husband's life! He was Stage 1, Grade 1 and is currently NED! I remember this time 2 years ago - pregnant, with husband just diagnosed with Hep C and couple of weeks later - with kidney cancer.... Hell of a time for me. This place was the only thing…
The Universe (or at least Tylenol)
Dang! What did I just say about the Universe having a better imagination than I have? Tonight I was (re)introduced to the reason I haven't taken Tylenol for over 30 years. After I'm on it for a few days, I get headaches, chills, sweats, feel feverish. I haven't gotten joint pain or a sore throat, but those would be…
Back Home / Post Op
The surgery was uneventful, aside from the events that needed to take place. It really does get better each day. I got home yesterday. They kept me over an extra day, because I kept dozing off while sitting on the side of the bed, waiting to go for a walk. Such a class act. The first day, the night after sugery, I felt as…
Scanxiety til Tuesday
So on tuesday we will find out if my lung mets have really increased in size, or if they were merely swollen by my immune systems production of T cells on the road to the abscopal effect and remission. Ah, experimental science, dontcha love it!
Stage IV DNR form
Has any of the stage IV people filled out their DNR form (Do Not Resuscitate) yet. My doctor told me last week that even though I had good news it was time to get that filled out. I filled it out today and took it in to the office to get signed and it was so surreal. I have always known what the end results of this are…
Panicking!
Hoping you guys can reassure me a bit. A bit if backstory, for the last 20 or more years I have had migraine headaches. These haven't changed and I would even say are a bit better now than in years prior. Additionally, I have something called Meniere's which is a balance disorder that can cause vertigo. I was diagnosed…
husband had 4cm lesion waiting to see specialist
Hi, new here and first post. My husband had an MRI for other reasons and they found a 4.1 x 2.5 x 4.2 lesion on his rght kidney and other small lesions they didnt measure. The Dr referred him to a Urologic Onchologist - that alone freaked us out, then because the first availalble appt is not until January I have called…
I need advice....
Hello, Ive come one here from time to time. My brother was diagnosed with Stage IV RCC (clear cell) in September of this year with mets to the lungs and spine. After nephrecgtomy, spinal surgery, rehab and radiaition to spine, he was readmitted to the hospital with low blood pressure, heart rate and pleural effusion It…
Anyone had cryoablation of lung mets?
I had my Dec. CT scans w and w/o contrast and a bone scan that came back clear everywhere except my left lung, which now has two small mets (5mm and 6mm) in the upper left lobe, had a 2nd opinion and the concensous is get them out asap, with the preffered options being 1. surgery, 2. cryoablation or 3. sbrt. Im scheduled…
Oncolgist has ordered a new CT....
I recently had my annual CT with & w/o contrast [ chest, pelvis, abdomen ] [ I'm at a little over 4 years from Stage 1/ Grade 1 - 5.0cm RCC ] in SEPT '16 and was given the all clear- NED. I then had a Coronary Calcium Heart CT [ no contrast ] in October '16, and there was a footnote: ** " 11x9 pericardial nodule may be…
I like it
Some guy suggested that I swallow a bag of popcorn kernals right before I die. Then when I'm creamated I can go out with a bang. If only I could pull it off.....hmmmm..
What to give doctor and staff for Christmas?
My oncologist and her staff at the county hospital are GREAT! They are so friendly and caring--I look forward to every visit. Any ideas what I could/should give them for Christmas? -- Bruce
First meeting with urlogist
I had my first meeting with the urlogist on Wednesday (7th Dec.) I'll be getting a bone scan and a 'telescope' inserted to check my ureter and another meeting with the urologist in about a month. That's when the big decisions are made, I guess. Though I also guess that the big decisions are made for me, more or less. The…
My first NED
I just wanted to share that my first set of scans turned out to be uneventful (my doctor called them pretty boring:). I'll take boring over anything else! They classify me as low risk so they are moving scans to every 6 months for the next three years. Thanks for your continued support. Blessings Stub
CT scan and CABO
After along and disturbing conversation about the cancer and what it is doing to me last week and what would happen if I went off of chemo (the chemo has been making me very sick) we finally got some good news today. The chemo that is making me sick is working my latest CT scan shows all tumors in my lungs, lymph nodes,…
Cabo?
No one talks about cabo or cometriq. Not recently anyway. It is promising when many other kidney cancer drugs have failed. With it comes the SE's of diarrhea, etc. The bigger question is why would I be asking?
Complex Renal Cyst...Questions
I had a CT w/ contrast preformed about six months ago, which showed what they called a complex renal cyst in the upper portion of what remains of my left kidney. It showed several septations and calcifications, and measured around 4.6 cm. I got a call from the nurse, following the CT, stating that my urologist wanted to…
Bleeding Update
My Onc/Med team have decided to take me off of the Cabo for a couple of weeks, in part because I have oral surgery on Tuesday, and because they are concerned with all of the bleeding. I have been very ill since switching to Cabo even more so then when I was on Votrient. I have been considering discontinuing all chemo and…
Urethra cancer
This may not be the place to post thisbut I don't see abetter place. My wife was diagnosed with low level cancer in the urethra from the kidney to the bladder. She is scheduled for surgery Nov. 18. They don't think there is cancer in the kidney or bladder but they expect to take the kidney. She is 83 yrs. old. Anyone that…

Kidney Cancer

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