Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Well ! Not what we expected...
Met my new Oncologist... Dr. Primo "Lucky" Lara.... now the Acting Director Comprehensive Cancer Center here at UC Davis in Sacramento. Seems to be a busy man around here.... Since all my scans since Feb. 2014 have shown stable or small growth... and the Opvido scans since starting Opvido this past Feb. (have had 21…
2 year anniversary
Hello everyone, today is a second anniversary of surgery which saved my husband's life! He was Stage 1, Grade 1 and is currently NED! I remember this time 2 years ago - pregnant, with husband just diagnosed with Hep C and couple of weeks later - with kidney cancer.... Hell of a time for me. This place was the only thing…
The Universe (or at least Tylenol)
Dang! What did I just say about the Universe having a better imagination than I have? Tonight I was (re)introduced to the reason I haven't taken Tylenol for over 30 years. After I'm on it for a few days, I get headaches, chills, sweats, feel feverish. I haven't gotten joint pain or a sore throat, but those would be…
Back Home / Post Op
The surgery was uneventful, aside from the events that needed to take place. It really does get better each day. I got home yesterday. They kept me over an extra day, because I kept dozing off while sitting on the side of the bed, waiting to go for a walk. Such a class act. The first day, the night after sugery, I felt as…
Scanxiety til Tuesday
So on tuesday we will find out if my lung mets have really increased in size, or if they were merely swollen by my immune systems production of T cells on the road to the abscopal effect and remission. Ah, experimental science, dontcha love it!
Stage IV DNR form
Has any of the stage IV people filled out their DNR form (Do Not Resuscitate) yet. My doctor told me last week that even though I had good news it was time to get that filled out. I filled it out today and took it in to the office to get signed and it was so surreal. I have always known what the end results of this are…
Panicking!
Hoping you guys can reassure me a bit. A bit if backstory, for the last 20 or more years I have had migraine headaches. These haven't changed and I would even say are a bit better now than in years prior. Additionally, I have something called Meniere's which is a balance disorder that can cause vertigo. I was diagnosed…
husband had 4cm lesion waiting to see specialist
Hi, new here and first post. My husband had an MRI for other reasons and they found a 4.1 x 2.5 x 4.2 lesion on his rght kidney and other small lesions they didnt measure. The Dr referred him to a Urologic Onchologist - that alone freaked us out, then because the first availalble appt is not until January I have called…
I need advice....
Hello, Ive come one here from time to time. My brother was diagnosed with Stage IV RCC (clear cell) in September of this year with mets to the lungs and spine. After nephrecgtomy, spinal surgery, rehab and radiaition to spine, he was readmitted to the hospital with low blood pressure, heart rate and pleural effusion It…
Anyone had cryoablation of lung mets?
I had my Dec. CT scans w and w/o contrast and a bone scan that came back clear everywhere except my left lung, which now has two small mets (5mm and 6mm) in the upper left lobe, had a 2nd opinion and the concensous is get them out asap, with the preffered options being 1. surgery, 2. cryoablation or 3. sbrt. Im scheduled…
Oncolgist has ordered a new CT....
I recently had my annual CT with & w/o contrast [ chest, pelvis, abdomen ] [ I'm at a little over 4 years from Stage 1/ Grade 1 - 5.0cm RCC ] in SEPT '16 and was given the all clear- NED. I then had a Coronary Calcium Heart CT [ no contrast ] in October '16, and there was a footnote: ** " 11x9 pericardial nodule may be…
I like it
Some guy suggested that I swallow a bag of popcorn kernals right before I die. Then when I'm creamated I can go out with a bang. If only I could pull it off.....hmmmm..
What to give doctor and staff for Christmas?
My oncologist and her staff at the county hospital are GREAT! They are so friendly and caring--I look forward to every visit. Any ideas what I could/should give them for Christmas? -- Bruce
First meeting with urlogist
I had my first meeting with the urlogist on Wednesday (7th Dec.) I'll be getting a bone scan and a 'telescope' inserted to check my ureter and another meeting with the urologist in about a month. That's when the big decisions are made, I guess. Though I also guess that the big decisions are made for me, more or less. The…
My first NED
I just wanted to share that my first set of scans turned out to be uneventful (my doctor called them pretty boring:). I'll take boring over anything else! They classify me as low risk so they are moving scans to every 6 months for the next three years. Thanks for your continued support. Blessings Stub
CT scan and CABO
After along and disturbing conversation about the cancer and what it is doing to me last week and what would happen if I went off of chemo (the chemo has been making me very sick) we finally got some good news today. The chemo that is making me sick is working my latest CT scan shows all tumors in my lungs, lymph nodes,…
Cabo?
No one talks about cabo or cometriq. Not recently anyway. It is promising when many other kidney cancer drugs have failed. With it comes the SE's of diarrhea, etc. The bigger question is why would I be asking?
Complex Renal Cyst...Questions
I had a CT w/ contrast preformed about six months ago, which showed what they called a complex renal cyst in the upper portion of what remains of my left kidney. It showed several septations and calcifications, and measured around 4.6 cm. I got a call from the nurse, following the CT, stating that my urologist wanted to…
Bleeding Update
My Onc/Med team have decided to take me off of the Cabo for a couple of weeks, in part because I have oral surgery on Tuesday, and because they are concerned with all of the bleeding. I have been very ill since switching to Cabo even more so then when I was on Votrient. I have been considering discontinuing all chemo and…
Urethra cancer
This may not be the place to post thisbut I don't see abetter place. My wife was diagnosed with low level cancer in the urethra from the kidney to the bladder. She is scheduled for surgery Nov. 18. They don't think there is cancer in the kidney or bladder but they expect to take the kidney. She is 83 yrs. old. Anyone that…
1st Follow up scan
Finally, I have completed my first Ultrasound scan and chest X-Ray (no blood work for some reason...). Can't believe it has been three months already. I finally understand what is scanxiety when the radiologist starts making measurement of my kidney and from different angles. I keep wondering what he was measuring and what…
Pain
I was just wondering if you all still get pain on occasion? Nothing major but little pinches and stabs briefly here and there? I am ten months out from partial nephrectomy. I just had my CT and got the all clear a little over a month ago.
Urine, Faeces, blood and embarassment
Please dont apologize for talking about such things. Often this is the only place we can. We've all been through it. Waking up and peeing blood. Sitting in a room with everything covered in our own faeces. Many of us have been through it and all of us understand. This is a horrible disease. We have all had a taste of its…
Collecting Duct Carcinoma
Hi there. I wish I had properly learned how to use this network when my husband was sick. He was diagnosed with kidney cancer in April 2015. Stage IV. It was very, very bad. After his nephrectomy he was told "Oops. We were wrong. Its not kidney cancer, its actually Collecting Duct Carcinoma, which is worse." At that moment…
CDC-Collecting Duct Carcinoma - HLRCC
I have a 26-year-old son that was diagnosed with CDC this past April. Looking back at some of the symptoms my son has had, chances are very good that he had this cancer in January of this year. Is been on chemotherapy for almost 5 months given to them every Friday three different types of chemo. He has had radiation…
Sutent and Medicare
I go on Medicare next August and with supplemental I am still on the hook for 33% of Sutent cost Because it is a type 5 drug Can anyone tell me what the Medicare contracted rate is? Anyone else experience this?
New Here...Kind of...
Hello, I would like to say "thank you" to everyone on this forum for helping me through my cancer diagnoses and incisional hernia repair. I have been reading this forum since August 2015 when I was incidentally diagnosed with 9.5 cm tumor on my left kidney at the age of 45. I had a partial left neph on September 22, 2015…
Distractions...
Fortunately, I am a -- "SQUIRREL!" -- easily distracted sort, on a good day. Add a kidney mass, seven months, and -- well, I'm sure you get the idea, both from personal experience and from watching me run to and fro, wanting to know, "Are you SURE it was a squirrel?!" and "Where? WHERE?!" So, I have been distracting myself…
Thankful
Today my country is celebrating Thanksgiving. Today, among all of the usual things I am thankful for are all of you. Your messages, even though I didn't post until afterwards, were one of the biggest things that helped me maintain some sense of calm through my surgery in February. I'm thankful, as of now and hopefully…
Small Kidney Tumor
I am a retired firefighter and because firefighters have a 2 to 3 times higher chance of being diagnosed with cancer I insisted on a chest scan with my GP. The chest came back good, thankfully. They barely caught part of my kidney on the CT images and noted that a closer look at the kidneys needed to be done. Did a full…

Kidney Cancer

Discussion List

Discussion Boards