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Well stalling and denial did not work...who wants to help me prep for a full nephrectomy?
I've spent the last few months in denial about the mass growing on my left kidney. Since it's grown over a CM in less than 6 months it has to go. Unfortunately Herbert the kidney mass is too close to the main blood supply to the kidney and there are too many risks associated with a partial. Anyone want to help me prepare…
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Experimental drug outperforms standard first-line therapy for advanced kidney cancer patients
Cabo!! https://www.yahoo.com/news/m/0eac887d-f361-3dcb-bb93-df5014d3129c/ss_experimental-drug-outperforms.html
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There oughta be a law...
There oughta be a law against members of one's medical care team leaving messages on a Friday such as, "I'm calling to let you know about your [name of test / scan]. I'll call back later today. Or if not today, then Monday. Thank you!" and then they don't call back. I should know that there's no point in sitting by the…
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Scanxiety
I'm feeling a little guilty that I haven't popped in for awhile and now it's scan time so my cancer is really on my mind (even though I don't want it to be). I had my scans on Wednesday. Funny. They've changed the procedure on the CT scans. They used to do 3 scans: one for chest, one for abdomen, and one for pelvis. It…
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Cabo users
(Please forgive the crudeness of this post) Yesterday evening my wife came into the bathroom and she saw a toilet full of blood, and blood on the seat etc.,she freaked out. She asked me how long has this been going on. I actually had to stop and think about it and then it dawned on me about a week after I started taking…
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Is there any connection between RCC and auto immune diseases?
My turn to ask a question. My ENT sent me for bloodwork on Thyroid and Auto Immune markers after taking my history. One of the Auto Immune tests came back positive and I am scheduled for an evalation by a Rhumetologist. My other history includes Gout, Dry mouth (negative for Sjorgens disease) , Rhinitis, Gerd, Reflux and…
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Zometa
Wow. Had my first Zometa treatment yesterday. I'm not sure what the dose was; it was about a 20 minute IV drip. I woke up about half an hour ago with some fairly intense pain in my knee areas. If feel it most on the inner portion of my thighs right above the knees. I've been doing a lot of physical therapy exercises, so…
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To ALL the Veteran's out there
Happy Veteran's Day!! And thank you for your service. Donna~
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Can't stop crying tonight....
I just came home ffrom visiting my brother. He is currently in a rehab hospital after spine surgery to alleviate pain from a T-11 spinal met and to stabilize his spine for radiation. Tonight he felt ike the excruciating pain in his back and side beforevthe surgery was back. He was so down and heartbroken tonight it took…
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2 Week Post Op. Help
Good Morning Friends! So it has been 2 weeks today since my right partial nephrectomy and everything aside from my pneumonia setback has been great. I was finally getting my pep back in my step didn't need any pain meds and really felt great overall. I still got tired throughout the day but I knew that was par for the…
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supplemental cancer policy
I met with my Company's Benefits Service Coordinator about 2 years ago to discuss the supplemental cancer policy. My husband had already been diagnosed with cancer and I was wondering if it would be beneficial to purchase it. She said that because he has already been diagnosed, we can purchase it and then there is a 2…
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I should have never googled.....help? I'm new.
In April I was seen in the ER for left side flank pain. I was worried as I often get infections or stones and never know until somethings gone really wrong. I can't feel them for some reason. Well the doctor did a CT scan to check for stones and I did not have any. Not any passing that is. But I did have a large cyst.…
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Cabo scans
After taking Cabometyx for 3 months I am very happy to say my lung, and adrenal tumors have shrunk. Still have something in my liver they have been watching. Liver enzymes have come down again. My hernia is back after surgery for it last May. Hopefully it will not require surgery this time. All in all I am feeling pretty…
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Bad Timing....or is it good timing?
I am trying to figure out if this is a good thing or a bad thing. Like much of america (on both sides of the isle), I am deeply concerned about the outcome of the election. Almost obsessed with it. The funny thing is I am not worried about my 6 month scans, which are scheduled for election day. I did not think about them…
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Heart palpitations
I just started on 800 mg of votrient 3 days ago, and about 1-2 hours after taking it, I have heart palpitations that go away after a couple more hours. I am contacting my doctor about this, but I was wondering if any one else has experienced this. I hope it doesn't mean that I can't take it.
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Flank bulge after back surgery fusion and repair of flank bulge then reappeared
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If you are new please do your best to fill out your "About Me/Bio"
Hi Everyone, Just a friendly reminder that it is easier for us to provide help and support when we can "click on you" and get information. Some suggestions include: Cancer type, size, stage, treatments, do you like long walks on the beach, your astrological sign, etc. (just kidding, save those last two for social media,…
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Ct scan found 1.4cm solid enhancing renal mass
i have been suffering from pancreatitis and having pseudocysts. After numerous ct scans they found this mass on my left kidney. I'm terrified to say the least especially after just having 4 surgeries on my pancreas. I'm waiting for a referral to the kidney dr but I don't even know what kinda questions to ask. Please help!
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No Longer in Limbo
I've hijacked a few threads of other people in the past couple of weeks since I've joined the site. Finally got to talk to a medical oncologist today and have a path forward, so I'll start my own thread with my own story. My left kidney tumor was discovered, by ultrasound, on Sept. 1st. It measured 14cm. It wasn't until…
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what do you think?
Last scans August 2016 came back clean, next scans Nov 21st, results on Nov 23rd. Im going to be in Tampa for a couple of weeks in early Dec, my wife thinks I should make a appt. at Moffit to get a 2nd opinion since we are going to be in Tampa for other reasons. It wont cost me anything since Ive already met my out of…
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Off topic - World Series Anyone?
Personally, we're flyin the W. Needless to say, hoping for a win here in Chicago. It's only been 108 years!! So many of my relatives that have passed on were die-hard Cubs fans and can legitimately say it's a family tradition. Unfortunately, with tickets costing $1900 for standing room only at the "friendly confines",…
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clear cell renal carcinoma - chance for no-recurrence
Hi, My mom was diagnosed with clear cell renal cancer over a year ago. (6,3 cm at greatest dimension), classified as T1bG2 (it's almost T2). It was fully contained within the kidney. Have you heard of people who with more or less this tumor size and aggressiveness have had no recurrence or only a late recurrence? When I…
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It's Official...
2 YEARS CANCER FREE!! I now go down to a scan cycle every year... the best part was that my urologist actually said that he's "amazed" at how well my one kidney is keeping up with things. He's used to seeing at least a small dip in kidney function, but he said everything looks completely normal. That's some good stuff,…
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Not Diagnosed but have questionsf
I am a 52 year old woman, very active, very healthy. First had blood in my urine 2 years ago (August 2014) - went to doctor and they gave me antibiotics. April 2015 had blood in urine but only saw it one time. August 2015 started peeing blood clots one night - gone by next morning. Saw urologist 2 days later, he put me on…
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Gallbladder: Insight on post (or pre) nephrectomy issues
So while my husband is "no evidence of malignancy" on his CT scans, his gall bladder wall is "thickening." He also has gallstones. Of course, we don't see the oncologist until December, but I was wondering for those of you who had your gall bladder scanned, know anything about this. I looked it up, of course, and found a…
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3 years, still surviving!!! I think Uncle Ned is joining us for dinner
The impression of my husband's report was NED but of course I'll need to review it myself for it to be true, LOL!!! We were a little concerned with the non-specific finding of increased bone density (not sure which bone, lol!!!) but I"m sure it's nothing. I think we move to yearly scans, to be determined. Still in shock. 3…
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Cyst around impacted wisdom teeth
Tooth pain drove me to see the dentist. Both remaining wisdom teeth on lower jaw have medium size cysts surrounding them. Referred to oral surgeon and gave a copy of the xray at my oncologists office Friday, waiting to hear from her regarding next steps. Assume I will stop Afinitor in order to have oral surgery with a…
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1st Ultrasound since initial finding....
Hi all.... I haven't posted the last few months but I do come on here everyday to read your posts and wanted to update you on things and say hi. So, yesterday I had my 3 month ultrasound appt. since they found the 9mm lesion on my left kidney back in July during a CT scan for unrelated issues. Well, after over 1/2 hr.…
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Any Updates on Chromophobe rcc treatment?
My wife is having Chromophobe rcc... And need to know if opdivo has effect on it? ... And what are the possible drugs that might work out with it Does anybody has a clue on how to join clinical trial for Chromophobe Rcc Hisham
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Should have listened
I should have listened to the advice from each of you. I had a laparoscopic partial nephrectomy on August 26 and recovery was uneventful---my wife made sure that I took it easy. The doctor recommended 6 weeks without lifting and running. Well, at exactly six weeks (a week ago Saturday)I laced up my running shoes and went…