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Advice
Does anyone know of a good RCC specialist in Pittsburgh,Pennsylvania? Thank you,
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Newly diagnosed
Hi all... Actually i have not yet been diagnosed... I only have a radiologists's report and a referral to a urologist. I will make an appointment tomorrow (Monday) morning. 10 days ago I had urine like red wine and on Wednesday I had a delayed phase contrast CT scan. I have a 5cm mass at the bottom my right kidney which is…
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Um.....
Hey, all, Had my Ultrasound, X-ray and blood work done this morning. But now I just received a call from the imaging department and they want me to come back tomorrow morning so the doctor can get a "live look" at something.... obviously this has me concerned. They wouldn't really say where or what but she did tell me not…
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I have to share my good news
But I do it with mixed feelings. There are so many of you dealing with so much pain and misery with this horrible disease that I have really conflicting feelings about saying how happy I am that I had a visit from Uncle Ned and I don’t have to go for tests every six months anymore. I can now go to once a year. Which makes…
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I don't mean to put pressure on you guys
Hi! I know very well we need no pressure and should do as we please or feel comfortable with, but... we are here to give support and to learn from our disease. Looking for info in the web is frustrating, scary at times and "paint by numbers" by wich I mean stastistics, numbers, studies, old stuff and just very clinical. It…
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stroke during cancer treatment
i would like to hear the experiences from anyone who had a stroke during stage 4 rcc treatment. thanks
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margins after tumor removal
After visiting my surgeon he told me the cancer was a stage 2, and not to worry. He did not get clean margins since it was actually lying of the renal artery and there was no way to get them. But he did get it all. Has anyone heard of this. Gosh I was hoping for better news and I know this sounds selfish, but since June…
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Open Partial Nephrectomy on a Cystic Renal Cell Carcinoma
Hi all, just want to share my story with everyone here. I was diagnosed with a complex renal cyst on my left kidney with the size of 3.2 by 3.6 cm during an unrelated ultrasound. Later CT confirmed that it is a 3.4 cm Bosniak Category III cyst, my family doctor referred me to the specialist. My urologist/Surgeon said based…
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Winter of Fox? Really?
Ok, Results are in. It still just blows my mind that the nivo didn't work. Anyway radiation and cabozantinib on the other hand work real good. I think that I mentioned that I am currently painless. Radiation needs to not scare people so much. Lately the radiation has whippped me out. Almost like a milder IL-2. But it has…
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Scan Results - No Worries
Just an update. Got my PET/CT scan results recently -- no change: nothing shrank, nothing grew. Four months ago a PET/CT shows some activity in the lungs, so we upped the Votrient from 400mg to 600mg. Seems to be working. So, will stick it out with current 600mg Votrient regiment. Another scan in three months. An aside.…
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2 Years Ago...
Hey, all, Apologies for not being able to post to this group as often as I'd like. I started a new job back in June (went from 20 years at McDonald's to WAWA- LOVE it so far) and Jacob is quickly approaching his first birthday on November 2nd. Lot happening right now but I wouldn't trade it for anything. I realize my 2…
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Looks great!
My urologist said everything looks great and he will see me in 6 months. At that point, assuming all looks good, we move to yearly scans! Thanks for all the well wishes and good thoughts!
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Hiatus
Hi Chaps If you dont know me and want to see my full story from when I was diagnosed May 1st 2013, check my about me page The Problem Ive been on Nivomulab (Optivo)since February of this year. No side effects, cancer (all metastatic tumours in my lungs) reduced by about 1/3 Right hip replacement to replace necrotic joint…
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Second opinion Tuesday
Tomorrow is the day I go for my second opinion. Funny, this is the first appointment I've been nervous about. I'm driving there with a friend this evening because the appointment is: (1) Far away; and (2) Very early. I think the nervousness is due to the distance and not being familiar with the area, the university medical…
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Pathology Report in for Iggy
Hello All, I finally saw my Urologist who went over the pathology report with me. I had Stage One RCC that was confined to my kidney only. The size was 5.5cm, not 6cm as believed. Also, nothing had gone into the lymp nodes. I am meeting with my Oncologist this week to follow up. In the meantime, I am recovering from sugery…
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Mononephrite Club
There's a fellow at church who, like me, had a radical nephrectomy. We call ourselves the Mononephrites.
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2 Years Ago...
Hello, all, Sorry to say that it's been a little while since I've posted... I've been busy with my son and a new job that I'm loving. (Left McDonald's for Wawa) But today is the 2-year anny of my surgery... Can't "officially" say I'm 2 years cancer free because my scans are next week and I see my doctor on the 31st to go…
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I am Now Officially a Lab Rat
I know I have not posted much lately but this is “what has come down the pike” for me. I have been accepted into a PD-1 Clinical Trail at the Hospital at the University of Pennsylvania (HUP) (ClinicialTrials.Gov – NCT02178722). The trial involves infusions of Keytruda (Pembrolizumab - MK-3475) every three weeks along with…
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help please.....
Hi everyone. My husband has stage IV kidney cancer...had his left kidney removed 5 years ago and was "cured" ....then it popped up in his lungs and on his scalp by his five year check. We did high dose IL II....horrible treatment and didn't do a thing. In fact, he now has three lesions on his liver, one on his thyroid, one…
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Incidental finding of Renal Cell Carcimnoma
What started off as a pain in my knee and leg, led to the discovery that I had renal cell carcinoma. I am now starting week 4 after having had cryoablation of a tumor that was about 3.5 cm, Furman Nuclear Grade 2. Am doing great now, just still getting naps in the afternoon. Follow-up CT scan in Jan. In November I will get…
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Post Surgery/It's Out
Hello All, I had surgery on October 12. and am now at home recovering. They took out my right kidney and the tumor. It was a hell of a thing to go through, but I did it. I am now at home suffering from bloating and constipation (they gave me Norco for pain which has constipated me). I am not feeling a lot of pain and will…
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2nd set of scans
The waiting on the results is awful. NEVER EVER have scans on a Friday and have to go through an entire weekend without word. Uggh! My bonescans were good, NED! Kidney function - good. Now waiting on CT results. Trusting and believing in God for good results. I will come back and update.
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Scanxiety
Follow-up CT and appointment with urologist on Wednesday. MAJOR scan anxiety setting in!
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New Normal
Hi everyone - so grateful to have found this site. Have been reading and learning and trying to adjust to new normal. Diagnosed on July 16th - radical nephrectomy on August 4th. Stage 3 / Grade 3 RCC. Surgery went really well - surgeons feel they got all of the cancer. I am grateful to be back to work, exercising, living.…
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heart surgery and cancer
My husband has had a checkup one month ago and they found out that he had a severe heart condition, he was rushed for an angioplasty and they placed 2 stents. two weeks later when getting back to the doctor, as the results from the checkup came out, we found out he had a mass in his left kidney. We were sent to have a scan…
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Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?
Hi all, I am new here and I have read a lot of papers claiming Cystic Renal Cell Carcinomas (CRCC) has better prognosis, have we seen anyone recurr/met with CRCC? <a href="http://www.ajronline.org/doi/pdf/10.2214/AJR.12.9414">Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?</a> Also, I have seem quite a…
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Useful Videos from Kidney Cancer Canada
Hi all, I have found that these videos from Kidney Cancer Canada are very useful and informative for new patients and veteran fighters :) The Q&A sections with the well known Uro-Oncologists answered a lot of my questions which I didn't have a chance to ask my urologist (Because I don't even know I should ask). Hope you…
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Sutent 50mg vs 37.5mg
I'm doing a 2 weeks on/1 week off of 50mg of sutent from 4 weeks on/2 weeks off dosing but still I am experiencing extreme fatigue that I feel like dying of too much exaustion....If I switch down to 37.5mg will it affect the efficacy of the drug? Does anyone have experience on this? Pls help....Thanks....
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Node behind ear
Hi, i had my 2 years CT scan last week, did'nt receive the results, but it should looks good since nobody called yet. Scheduled for a meeting to review it with urologist in early november. The problem i have now, is that i have a lump behind my left year that appeared 4 days ago. It is 1/2" and don't seem to grow more. I…
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is anyone on votrient and an antidepressant?
Is anyone using Votrient and on an antidepressant? My husband had to go off of his Lexapro due to some interactions with his antinausea meds. I have tried googling it today and all the antidepressants I tried have dangerous interactions with his med list. Of course he will be seeing his family doc to get something…