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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…
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From the American Head & Neck Society - May is Skin Cancer Awareness Month
Hello, friends and fellow H&N folks. I have come across this reminder video that May is skin cancer month. Skin cancer mostly affects the head and neck because of the common exposure. Also recently I found something I had not known before and that is melanoma, a skin cancer that can invade the underlying body. I read a…
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Three Weeks Behind Us
Hi everyone, My husband and I just returned home from his radiation #15 out of 35 so almost halfway there. It's been a bit of a roller coaster, but overall, tolerable so far. As a reminder, he has cancer at the base of his tongue, p16+, T1N2bM0, and began a protocol of 7 weeks with cisplatin chemo each Monday and radiation…
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Advice to Newly Diagnosed Head and Neck Cancer Patients
Christy, Bill, and Terry, who are all survivors living with head and neck cancer, and caregiver Jean share helpful advice to the newly diagnosed. For more information on head and neck cancer, visit https://www.cancersupportcommunity.or.... Take care, God Bless Russ
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AHNS: HPV Related Oropharyngeal Cancer: Epidemiology, Diagnosis & Staging, Treatment and Prevention
From the Cancer Prevention Service of the American Head & Neck Society, a 4-part webinar presentation examining Human Papilloma Virus (HPV) Related Oropharyngeal Cancer discussing 1) epidemiology, 2) diagnosis & staging, 3) treatment, and 4) Prevention. Take Care, God Bless Russ
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The American Head and Neck Society (AHNS)
For whom I may help I have encountered another website you may want to check out and maybe even bookmark, your choice. But I am posting this because I believe people from our H&N community can possibly find something of benefit on there. The American Head and Neck Society (AHNS) https://www.ahns.info/ Society Background On…
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Personal Patient Interview And Review Of His Cancer Experience And Treatment
This is a personal interview with a patient who went through an operation to remove lymph nodes and cancer of the saliva gland with follow-up radiation and chemo. The one lymph node was not encapsulated and starting to spread which to me means it is good they caught it when they did. This all started though with Melanoma…
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NavDX A Case-Based Discussion On The Utility Of NavDX AHNS H&N Conference
This is a discussion of the use of NavDX and covers real-life cases. 1 Hour Video Detection of HPV-Driven OPSCC: Clinical Evidence of an Innovative Blood Test - A Case-based Discussion of the Clinical Role of NavDx in Managing OPSCC Faculty: Dr. Chris Holsinger, Professor of Otolaryngology, Stanford University School of…
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Loss of muscle mass
after the cisplatin chemo, I lost considerable muscle mass. Anyone experienced this? If so, will it ever come back?
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Mike Linn Cancer Victory Story
This is a short video of Mike Linn and how he beat terminal stage 4 Melanoma and then had a recurrence which manifested itself in the lymph nodes in his neck and also in his tongue. Check out his other videos while you are there. Mike Linn says... I'm going to continue to keep making content to help myself and other cancer…
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How Long Do Chemotherapy Side Effects Last? All You Need to Know
I think this video is noteworthy enough to post. Although it is from a breast cancer presenter I believe it applies generally to chemotherapy effects which are much the same as H&N people get. It is well presented. How Long Do Chemotherapy Side Effects Last? Take Care, God Bless Russ
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Recommendations for Dentists with Head & Neck Cancer experience
Hi, I’m looking for a good Dentist with Head & Neck Cancer experience in the Houston, TX area. I was diagnosed with Squamous Cell Carcinoma of the oral tongue in 2012. I received a left partial glossectomy and bilateral neck dissections with left forearm free flap reconstruction and Radiation therapy. I was doing well…
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Food and fluid residue coming out of the nose
Hello all, Four months later, I was two years old when I had a total laryngectomy, and swallowing food during this period went through some fluctuating stages. But these days I have noticed a new condition, which is that when I swallow food (soft food with liquids), I feel it rising into the nasal cavity. For example,…
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Oral Cancer
Hello everyone. I first would like to wish all of you good luck with your treatments and such. August 31st I found out I had a tumor between my lower jaw and inner cheek. After the dentist, the oral surgeon and all my scans I found out I had stage 3 because it spread to the lymph node right under the jaw and the tumor is…
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Feeding Tubes for Head and Neck Cancer (Short Video)
Hopefully, this may help someone now or later... Christy, Jean, Bill, and Terry shares their stories with getting feeding tubes while getting treatment for head and neck cancer. They also share advice on weaning off a feeding tube. Visit https://www.cancersupportcommunity.or... for more information on feeding tubes and…
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Christy's Story of Living with Head and Neck Cancer (Short Video)
Sharing to help others...maybe you can relate or find help or comfort through it... Christy, a survivor living with head and neck cancer, shares her cancer story. For more information on head and neck cancer, visit https://www.cancersupportcommunity.or.... Take care, God Bless Russ
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Fluid edema after radiotherapy
Welcome I finished radiation therapy 5 months ago to the left part of the neck, and the result of the last MRI examination was negative, but it showed the presence of liquid edema near the esophagus and extending to the left part of the tongue. Doctors told me that it might disappear with time, but now it is pressing on…
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Cuestión
Good morning, does anyone know where they raise funds to help us with expenses, thank you
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Ahead of Cancer | Advances in Head and Neck Cancer | AHN Informative Video
May 1, 2023, Warren Swegal, MD, head and neck surgeon for the AHN Cancer Institute, discusses the latest advancements, the importance of cancer prevention, the signs of head and neck cancer, and the latest treatment options. Wishing You All the Best Take care, God Bless Russ
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PET scan for thyroid cancer before surgery
Hi, Is there a recommended guideline for utilizing PET scans in identifying cancerous thyroid nodules and possible metastasis to the neck lymph nodes? I recognize that ultrasound (US), computed tomography (CT), and ultimately fine-needle aspiration (FNA) are preferred methods. However, if these techniques fail to provide a…
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How would I know what is the best option for me? Total- or hemi-thyroidectomy or RFA?
Hi, Just diagnosed with PTC. A 1.4cm malignant nodule on the left lobe, and one 1.5cm indeterminate on the right lobe. There is a suspicious lymph node on the left side as well but came back non-cancerous after 2 separate FNAs. I do not want to let the fear of cancer lead me to a decision or procedure that is more…
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Survivorship Today: Cancer Survivorship Q&A: Impact on Friendships
This is a short video, 2:27 min. and I am hoping there is a tidbit in there for you somewhere...Take care, God Bless-Russ
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What Precautions Should You Take During Chemotherapy Treatment?
I found this and thought it might be helpful to those in treatment. It is some recommendations of things to do and not do during Chemotherapy treatment from Healthline... Take care, God Bless Russ What Precautions Should You Take During Chemotherapy Treatment? Things to avoid Things to do Resources and support Bottom line…
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My mother's doctor told me that she doesn't have much time, I'm not ready to lose her.
My mother has been dealing with head and neck SCC cancer for a year and a half, she was treated in the first series, and the disease returned after three months (recurrence), and now she has not responded to chemotherapy, immunotherapy, and re-irradiation therapy. (Due to the problem of kidney failure, she could not try…
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De-intensification Clinical Trial
Hello everyone! Thank you all for posting your journey lessons, insights, experiences, etc. I feel like I've read them all since I joined you as a cancer patient. I begin treatment after surgery in a couple of days as part of a clinical study. Your posts have been so meaningful to us that I hope that by doing the same I…
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Survivorship Today What It’s Like to Live with Cancer
Hello, everyone, I came across a related video that led me to this site which I am posting a link to. The website is Bristol Myers Squibb Survivorship Today... There is a section on there called "Survivorship Today What it's Like To Live With Cancer" and there are many videos on there in this section of people giving…
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Valentine’s Dinner - Big Increase in Taste
Hi All, Tonight my husband and I went out for dinner to celebrate Valentine’s Day at our favorite steakhouse. We have not been there since May 2023 prior to his diagnosis of SCC BOT HPV +16 last July followed by 33 rad and 7 weekly Cisplatin finished 10/24/23. He had been at around 60% taste bud return up until recently…
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2 weeks remaining. So far, so good. Well, more good than not…
First I want to thank everyone here for sharing their stories and experiences with treatment. It was extremely helpful helping me to prepare the best I could for my husbands newest adventure (Squamous Cell Carcinoma with lymph node involvement). He has his final cisplatin chemotherapy treatment this next week and 10 days…
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First PET/CT After Husband's BOT/Lymph Node SCC HPV+ 16 Journey
Hi All, I've written before about my husband's cancer journey, diagnosed with Stage I, base of tongue (left side) and 2 left lymph nodes as SCC HPV+ 16 in late July 2023. You can search my screen name Swoosh13 as I detailed my husband's journey through treatment, which started September 5 and ended on October 24, 2023. He…
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Just a note to say thanks to this group
Hubby has 2 more Rad treatments this week, and finished his 6th and final chemo last week...being able to read what others have experienced and what has helped them through this has been very insightful. I hope to be able to contribute in some fashion as well down the road as we get through these next recovery weeks. Have…