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Nausea and throwing up 3 months out! Help!
My husband will be 11 weeks post chemo/radiation (5/37) on Friday, and he is still having terrible nausea. He throws up at least twice a week. He is still only taking in liquids as his throat and tongue are still very painful. He does not have a PEG tube, and is down 80 pounds. He takes zofran 3x day for nausea... Just…
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The will to live
Everyone that belongs to the Cancer Survivors Network either are currently in treatment, a caregiver, or a survivor that wants nothing more than to live. I am new in the survivor role. My wife on the other hand is a 12 year survivor of oral cancer and a 11 year survivor of breast cancer. We both have faught to live! Last…
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Saliva mysteries - what does this mean
I'm nine weeks post 35/7 rad & chemo treatment. I can be painfully bone dry, put in a piece of sugarfree gum, and be well moistened in under a minute. Does this mean my glands are still mostly functional, just taking their time to recover? Xylimelts have no effect, the sprays help for a while, but a piece of gum and I'm…
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Officially 'Cured'
Hello Good People of CSN - I hope you are all fighting the good fight and winning! Just to introduce myself as I haven't been on all that often for a while, I was originally diagnosed with mucoepidermoid carcinoma with unknown primary in March 2012 (not sure how they stage it when its in a lymph node but no primary and…
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6 month pet scan tomorrow- been very ill- terrified
squamous cell carcinoma bot, 40 rounds radiation ended sept 28, 2014. I have no one in my life, I've had cancer symptoms, night sweats, throats pain never stopped, migraines, bleeding from mouth and cough, taste buds getting worse. constant mouth sores. I have absolute dread that tomorrow they will tell me C is back. I…
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Feeding tube /Pathology report
Well continuing on my road to recovery I am due for my first post op appointment on March 8th to see how it is healing. I had tonsillar cancer that also had started to go onto the base of my tongue. So consuming calories has become my full time job to hopefully avoid a feeding tube. Anything that has dairy in it produces…
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Just saying thanks!
I don't always comment in here but I do read quite a bit. For me it's reassuring to see a group of people who are dealing with issues like I have. I've yet to meet anyone in "real life" who has had the type of cancer that I had so coming to read these boards makes me feel less alone in this struggle and the aftermath. Some…
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Bleeding after Surgery
On day 8 post op I have some bleeding and when I clear the mucous I have fresh blood and clots. They mentioned when I left the hospital there might be some but if it was substantial go to the hospital. What is substantial. Very frustrated by the early aftercare on what to expect, frequently asked questions, what to do if…
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Ear and jaw pain NORMAL?
My husband is 2 months post radiation for a tumor on his tongue, and has started getting a clogged ear and a lot of pain in his jaw (on the side of his radiation) from his ear down along his jaw. Has anyone experienced this? I don't know if I should make him an appointment to see the dr. I feel like the time between being…
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Struggling...
Really could use some advice. My dad went through treatment and radiation in 2013... He's still really struggling with mucous. I notice him wheezing a lot when he talks. Sounds winded. I get scared because I saw him come on mucous and it took him a few moments for it to pass. Every time he eats he chokes. He had a swallow…
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New Here: My Mom has Laryngeal Cancer (she is my world)
Hello Everyone, I am new here. I am 21 years old and my Mom was diagnosed with Stage III Laryngeal cancer in November 2016. It is HPV positive and only one small nearby lymph node is involved. She has a good prognosis (about 75%-80%) and an 80% chance of getting her voice back completely. Even though all of those numbers…
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High calorie food
Like several others here, I struggled with getting down enough calories during treatment. While hunting around on Amazon I just came across yet another nutritional shake, this one very high calorie. It is by Nestle, and it's in their Boost line, but it is Very High Calorie Boost. 530 cals for a 8 oz box. Not cheap, $37 for…
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6 days out of surgery- Advice needed
On Feb 21st I had robotic surgery for tonsillar cancer that went down to the base of my tongue. They did a radical neck node disecction and it is HPV positive. (good thing I understand). Four days in hospital and then released. I have been only on tylenol suppositories every four hours for pain. I am a pill gagger and…
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Water coming out the nose while swallowing???
Just curious, now that we are getting the swallowing down pat here after tx, he is noticing whatever he swallows sometimes comes out of his nose. Is this normal? How do you prevent this from happening. Also he says it seems to create more mucus/phlem afterwards.
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XyliMelts - opinions please
I'm am in dry mouth phase, and looking for options. I tried the Biotene dry mouth paste and it mostly just accumulated mucus. My rad oncol pushes XyliMelts, but they don't seem to do much. I am on day two of that experiment, so they might yet produce, but so far, nada. I'm applying two at a time, upper outside jaw. I'm…
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Hearing Loss
Hello everyone, I am back from completing my second round of rads with chemo. Held up well, eating still and back to work the next day. Much better than the first time around. However, I had 6 weekly, low dose infusions of Cisplatin, and as you know, it can cause hearing loss. My right ear was in the field of radiation and…
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Time does fly
Today, June 2,2012 marks 7 months since the De Vinci robot and my wonderful surgeon and his team, removed the cancerous mass from my epiglottis...I'm feeling great, some minor complaints, but all in all, wonderful. It took 4 months for my taste buds to recover, limited on foods I can eat because of the epiglottis removal,…
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Cancer of the epiglottis
I was diagnosed with cancer of the epiglottis with one lymph node involved a little over five years ago. I was treated with in-hospital stays for chemo then with heavy radiation. I had a stomach tube for 6 months. I am posting this message for two reasons. One is to let you know, if you have this cancer, that you can…
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phlegm and eating
I am only 3 days out of tx, which went well, tumor is gone lymph nodes are back to normal. My problem is the phlegm and ropey saliva is making getting proper nutrition hard. After eating or drinking something I usually spend the next 10-15 mins. coughing up phlegm like crazy. I have tried all the typical suggestions, salt…
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First Time Caller.
Hey all, this is great! I am 3 months out from 7 weeks of Cisplastin/35 Rad tx. I stumbled upon this by accident and read so many stories that sound all far to familar. I was/am Stage 3/4, T1N3 HPV Tonsilar. Just wanted to hop on hear and say Hello to some of the strongest people I never met!
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Appetite Post Radiation
Hi everyone, My husband is 3 1/2 weeks post radiation. His sores are gone and dry mouth isn't terrible. However, he has near zero appetite and taste buds. He is barely eating any solids and still relying almost exclusively on liquid nutrition thru shakes and smoothies. He does not have a tube. When might his appetite pick…
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Tongue & Throat Cancer
Hi Everyone My boyfriend was just diagnosed with cancer of the tongue, stage IV tumor and cancer of the throat. Still in the early stages of everything. He has seen the radiologist, had his CAT and PET scans. Will see the oncologist and will see the nutrionist all this week. Don't have a set date to start treament yet. I…
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My son just diagnosed with stage 4 SCC HPV related cancer
First, I am driving myself crazy reading the medical websites on this type of cancer. My son is 33, in great physical shape, positive and happy person. He starts radiation Jan 16th of 2017. The cancer has spread to his lymph nodes and his tonsils. They are removing a saliva gland. He lives in another province so it is…
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14 month Oncology NED
They never offered any insight before but today said typically the first approximately 18 months iswhen they most often see relapses and they are counting time from date of diagnosis for some reason instead of end of treatment date. So their count is almost 17 months now. Maybe just trying to make me feel better because it…
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Start of return of taste
I got done with tonsil cancer treatment 3 weeks ago, and think I MAY have some taste returning. Is it common for everything to taste salty? I also think I can taste real banana (in a smoothie), but am not sure whether the taste is real or I'm imagining it The salt taste tho, is strong, and constant. is this the start?
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Sorry I haven't been checking in much
I'm sorry I haven't been checking in much. December 28,2016 my 30 year old daughter passed away from a brain aneurysm. She had a headache for 2 weeks, had an appointment with a neurologist Dec 30. She got up for work Dec 28. Her father and I thought we heard the shower running too long...we went up and she was laying in…
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Sleeping with Picc line and Pump...HELP!
Hello, everyone! I really hope someone can help me, and I'm really hoping I'm doing all this correctly. long story short (long version is in the "check in" thread) I have stage 4b cancer of the oral cavity being treated at the moment with 3 courses of 3 chemotherapy drugs: Cisplatin & Taxotere administered at Fox Chase and…
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Squamous cel cancer of nasal septum
I have had a scab on my septum that bleeds when removed for about five years. I never mentioned to my family physician till yesterday and he immediately referred me to an ENT,(soonest appt. April 23.17) and suggested it may be cancer without furthur discussion. I will be 91 female in April, very healthy but very overweight…
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disrupted sleep-cycle
A month out from last rad treatment and I find I still have trouble sleeping. I know I am getting some because I notice when I wake up, but I also am laying awake for long periods. I am pretty much off all meds except for a blood-thinner, and my mucusites is much reduced so I'm not gagging on phlegm anymore. At this point…
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Six months HPV Oropharyngeal Cancer free, NOW has HPV nasal warts?! And my advice.
My husband is six months HPV Oropharyngeal Cancer free! Now has HPV nasal warts. Anyone else have the virus after Cancer treatment? I know this is a different strain. I just thought it would be gone after such invasive treatment. My advice to anyone going through this now. Get Orgain protein meal powder for the feeding…