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Head and Neck Cancer

Appetite Post Radiation
Hi everyone, My husband is 3 1/2 weeks post radiation. His sores are gone and dry mouth isn't terrible. However, he has near zero appetite and taste buds. He is barely eating any solids and still relying almost exclusively on liquid nutrition thru shakes and smoothies. He does not have a tube. When might his appetite pick…
Tongue & Throat Cancer
Hi Everyone My boyfriend was just diagnosed with cancer of the tongue, stage IV tumor and cancer of the throat. Still in the early stages of everything. He has seen the radiologist, had his CAT and PET scans. Will see the oncologist and will see the nutrionist all this week. Don't have a set date to start treament yet. I…
My son just diagnosed with stage 4 SCC HPV related cancer
First, I am driving myself crazy reading the medical websites on this type of cancer. My son is 33, in great physical shape, positive and happy person. He starts radiation Jan 16th of 2017. The cancer has spread to his lymph nodes and his tonsils. They are removing a saliva gland. He lives in another province so it is…
14 month Oncology NED
They never offered any insight before but today said typically the first approximately 18 months iswhen they most often see relapses and they are counting time from date of diagnosis for some reason instead of end of treatment date. So their count is almost 17 months now. Maybe just trying to make me feel better because it…
Start of return of taste
I got done with tonsil cancer treatment 3 weeks ago, and think I MAY have some taste returning. Is it common for everything to taste salty? I also think I can taste real banana (in a smoothie), but am not sure whether the taste is real or I'm imagining it The salt taste tho, is strong, and constant. is this the start?
Sorry I haven't been checking in much
I'm sorry I haven't been checking in much. December 28,2016 my 30 year old daughter passed away from a brain aneurysm. She had a headache for 2 weeks, had an appointment with a neurologist Dec 30. She got up for work Dec 28. Her father and I thought we heard the shower running too long...we went up and she was laying in…
Sleeping with Picc line and Pump...HELP!
Hello, everyone! I really hope someone can help me, and I'm really hoping I'm doing all this correctly. long story short (long version is in the "check in" thread) I have stage 4b cancer of the oral cavity being treated at the moment with 3 courses of 3 chemotherapy drugs: Cisplatin & Taxotere administered at Fox Chase and…
Squamous cel cancer of nasal septum
I have had a scab on my septum that bleeds when removed for about five years. I never mentioned to my family physician till yesterday and he immediately referred me to an ENT,(soonest appt. April 23.17) and suggested it may be cancer without furthur discussion. I will be 91 female in April, very healthy but very overweight…
disrupted sleep-cycle
A month out from last rad treatment and I find I still have trouble sleeping. I know I am getting some because I notice when I wake up, but I also am laying awake for long periods. I am pretty much off all meds except for a blood-thinner, and my mucusites is much reduced so I'm not gagging on phlegm anymore. At this point…
Six months HPV Oropharyngeal Cancer free, NOW has HPV nasal warts?! And my advice.
My husband is six months HPV Oropharyngeal Cancer free! Now has HPV nasal warts. Anyone else have the virus after Cancer treatment? I know this is a different strain. I just thought it would be gone after such invasive treatment. My advice to anyone going through this now. Get Orgain protein meal powder for the feeding…
Me again - one year out
I just passed my one year mark from chemo/radiation/surgery for supraglottal carcinoma. Every oncology and ENT thus far have been NED, thankfully. They had to slice my nodes out on the left side last January and now my neck is beginning to feel all stiff and tight again like it did right after my surgery. Can't really say…
post-radiation repercussions and side effects
My husband had chemo and radiation to treat an HPV-related cancer that started in his tonsils and moved to his lymph nodes. His treatment stopped almost four years ago but he's just now starting to have some strange - to us - side effects. Has anyone else had this treatment, and has anyone found afterwards that there are…
Angry snow Gods
I have previous posts in this forum and so appreciate all responses I've received! I have been waiting for almost 7 weeks to see an ENT for suspected nasal cancer. I am 2 days away finally but just found out there is a major Nor'Easter headed my way Sun throughout Monday! I live in a rural area aprox. 18 mi. or so from the…
Throat ulcers
hello all finished my RT eleven months back and all seemed pretty good, well as good as my Onc said it would be. recently though I habe ulcers on the back of my throat and nasty so and sos they are too been there three months now. odd thing is no medical cure apparently, cancer yes ulcers nope! wondering if anyone else has…
Diagnosed with Stage 3 SCC HPV positive
Diagnosed with Stage 3 SCC HPV positive. My oncologist confirmed this diagnosis today. Although he is having me see an ENT specialist, he feels strongly that since my cancer is only in one tonsil and one lymph node that no surgery is necessar. He is recommend 6 weeks of radiation 5 days a week with Cisplatin added the 1st,…
Recurring throat and gum pain
Hello everyone. I am new here. I was diagnosed with squamish cell cancer on the top of my vocal cords. I jad 32 radiation treatments. I was very lucky. I caught it early. Stage 1 and no lymph noded. I had quite a bit of throat pain for awhile but started getting better within about 4 months. I was able to eat mor…
First post here:Extraction site not healing; Scared & Confused
My husband is a tonsil cancer survivor. His diagnosis was in 2005 and has been cancer free since his 05-06 treatment. But the last several years he has had complications from the treatment (swalling, speech, dental issues). He had to have two molar pulled 4 weeks ago and he was told he was at risk for osteonecrosis. But…
Dad's results
I left work early today so I could go with dad and mom to dad's appointment with the oncologist. He said my dad has multiple myeloma, which is a cancer of the bone. Bones affected are; front skull, back skull, one vertebrae, sternum, left hip, right arm, and his wrists. The doctor was very optimistic and seems to think…
Lumps and bumps along scar line...
I have a couple pretty good lumps/bumps right under the scar from my neck dissection. I had a scan in December in whih they felt it was radiation damage because the uptake was so diffuse. They also stated that the only way to know for absolute sure would be a PET scan. My oncologist decided that a PET wasn't needed because…
PBS special on Immunotherapy
Just a shout out about a special I saw tonight on PBS. Melinda Welsh who had head and neck cancer and was told she would die within a year. She is on treatment in Ca. (UC Davis I think) genetic material pIL-12 electroporation and it has pretty much eradicated the tumors and she is in remission! Her Doctor is Alain Algazi.…
Is there anyone who has had nasal cancer?
I am anxiously waiting for an ENT visit scheduled Feb. 13th! 2 yrs ago I was diagnosed with a dysfunctional turbinate. CT scan "without" contrast came back clear just stated slight deviated septum. Fast forward 2 yrs. and here we go again. Only this time, I still have some blockage of left nostril, sore in upper left…
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
My Surgeons Theory
Yesterday was my appointment with the surgeon who removed my base of tongue tumor and did a radical neck dissection back in '11 and early 2012. I told him that my Oral Surgeon pulled a back molar and my mouth healed properly. He was very interested in that and this is the reason for this post. One of the things he did…
Alternate options of treatmens besides radiation and chemo
I've been diagnosed with Squamous Cell Carcinoma, it was on my tonsils and lymph nodes. First I want to say I don't health or dental insurance. It all started in the spring, so I went to the local community college that was offering a free teeth cleaning, and since I haven't had a cleaning in quite some time, I thought I'd…
Thank you to so many of you
I just want to take a moment to thank so many of you for your timeless support and guidance for those of us caretakers trying to find our way. At times I have posted questions and received many helpful suggestions and have not had the time to get back on line to respond. This form has been my light in a very dark…
Occult primary metastic scc head & neck
I am new to this forum. Has anyone gone through this? Can you share your story with me? I really would appreciate it. I was diagnosed 05/16.
PEG feeding options such as juicing
What type of nutritional products do people here use with their PEG system? Does anyone supplement with juicing or blendin? What type of nutrition/food has helped you the most? This seems to be the part of my stage 3 SCC HPV Treatment that has me worried way what the radiation and cisplatin will do.
THRUSH AGAIN!
Welp, it's back, that thing my docs didnt tell me about, Thrush. Just a heads up for you guys and gals out there, there is a chance with your radiation treatments damage, that you will contract thrush. For those who dont know what that is, it is a yeast infection in your mouth, and man is it painful. The first time I got…
It's back.....
I haven't been on this site for a long time, my husband had scc unknown primary, 1 lymph node back in 2013. He was going on 4 yrs when his ENT felt something suspicious in his throat. Had biopsies and was found to have Base of Tongue cancer, 4 cm tumor. This was removed last week surgically by robot (Divinci) and he did…
Getting nervous
Have an appointment with my old ENT guy on Monday, having some problems that need to be addressed. Over the past three or four weeks have had on and off sore throat, also ear was giving me some pain, last Tuesday I was in the emergency room at my local hospital for heart palpitations, that cleared up and the doctor said it…

Head and Neck Cancer

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