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Base of Tongue Cancer
Hi all....newly diagnosed with SCC cancer at the tongue base. As I'm sure all of you know, it's almost overwhelming to hear that you've been confirmed as having cancer, but after locating this site and discussion board, I am heartened by the support, information and helpful suggestions that other "cancer folks" offer here.…
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Mucoepidermoid carcinoma
Hi Everyone! I found out last week that I have mucoepidermoid carcinoma and I can't find that much information on this type of cancer. I'm 29 and felt that I was quite young to be diagnosed with this type of cancer as I don't drink or smoke, but from the reading I've done so far, it seems to affect a variety of people. I'm…
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PEG tube to Mickey Button
Woke up this morning to a plugged PEG tube. Was able to get right in to the Hospital's Feeding Tube Specialist who suggested I make the switch to the Mickey button. She assured me there would be no difficult transition period and explained that many patients prefer them because of their small size. I opted to swap out for…
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Anyone have success using "Thick & Easy" or "Thick-it" ?
I want to travel (flying) but eating without access to a kitchen is a big problem. Anyone have success using "Thick & Easy" or with "Thick-it"? I can not figure out a way to use these products. I have tried both products. Everything turns nasty. Nasty to look at andnasty to drink. It is hard to disolve. I've tried warming…
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Septal squamous cell carcinoma
Hi I am Marijan and my husband was diagnosed squamous cell carcinoma on his septum last october 2015, and last march 2016, he had a surgery and had his septum removed. in his last ct scan last month, theres another growing on the flooring of his nose. anyone here has the same case?
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Base of Tongue/Throat
The panic initially began after having three wisdom teeth removed in late October 2016. Prior to that, another minor panic after finding a small lump in the soft pallet, roof of mouth, which turned out to be a tooth cell that had grown of its own accord. The maxillofacial surgeon who removed the lump sent it for pathology…
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burns on shoulders and neck from radiation
Is there a topical ointment which can be applied to mitigate the open, supparating burns from therapy? Thanks Randy
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New here an looking for help
I have had 5 surgeries on my parotid gland. The last 2 dealing with ex pleomorphic adenoma. I was told with the 4th surgery the turmor would be removed an radiation would take care of any "spillage". 6 months later thr turmor returned, thus time around the facial nerve. This happened in 2015 oct [radiation], and 2016…
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Suspicious red spot in mouth
I am closing in on 4 years NED, and suddenly I have been having bad tongue reactions to certain foods, then last week I starting having real bad post nasal drip and sore throat. This morning I see a dark red spot in side my mouth, on my back right cheek, it wasn't there yesterday. I have a doctor's appoinment in 2 days,…
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Fatigue in jaw and neck long after TX...
Coming up on 3 years since the chemos and 35 rads for stage 4 base of tongue cancer and metastasis to the right lymph nodes. Obviously my jaw and neck took the brunt of all the rads and now in the last month or so my jaw and neck muscles are feeling quite different. They feel very fatigued, tired and weak. Now numerous…
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Radiation burned up taste buds
Is there anything that stimulates the taste buds on the tongue to get them working again?
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Clear for going on 7 years, but I'm back...
First a little history: In April of 2010 I was diagnosed with SCC unknown primary with golf ball sized tumor on right neck. i had surgery to include tonsillectomy and 40 or so lymph nodes removed. Pathology showed one tumor with clean margins. Decision was made to not radiate or use chemo, but instead wait and see for the…
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Things I didnt expect
I didn't expect to go "downhill" so fast I didn't expect to be totally dependent on my son I didn't expect to not be able to spell(???) you may see perfect spelling, but I have a program, gotta love programs I didn't expect to have to drink gallons a day or eat non-stop I didn't expect to be so shaky or so weak (should…
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Update on clinical trial
I had HPV+ SCC in my left tonsil and soft palate in 2012, which never returned after chemo-radiation. I ended up with lung cancer in 2015, though, also HPV+ SCC, and I was again treated with chemo-radiation. At the 6-month PET scan, the cancer was blooming again in my right pleura, several lymph nodes, and even just…
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NED
My thanks to the providers of the vast wealth of knowledge reflected on this site. You have certainly made the trip thru recovery much more sane than the treatment phase.
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Tonsillectomy question
anyone out there have an "occult primary" detected after tonsillectomy? If so was additional, more invasive surgury performed afterwards In the area? Thanks for the input any feedback greatly appreciate.
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Hyperbaric chamber
My Husband is 3 months out and still is experiencing the same pain as day one... (He had SSC on base of tongue... 35 radiation and 5 chemo-cisplatin) Went to the dr. on Thurs, and he believes my husband has "consequential tissue injury" which means his body hasn't healed well and did not keep up with the radiation. (He is…
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Step-daughter of NPC Patient
Hello everyone- my name is Reagen and I'm new. I'm new to this site, but more than that, I'm new to the world of cancer. My-step father was diagnosed with Nasopharyngeal carcinoma yesterday. He goes in for a PET scan Monday to find out what stage it is. I'll update this post when we find out. I'm unsure of what to expect…
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TEP Information
I had a TEP installed Wednesday and I'm having a bit of trouble. I'm producing a lot of mucus, and I have to clean the TEP about once an hour or I can't speak. I'm hoping this is temporary, but I would appreciate any estimates on how long I can expect this to last. I know from reading this site that everyone has a…
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major sweats/fatigue post 8 weeks
My husband is 8 weeks post treatment, (7 weeks Rad and Chemo) and suffering greatly, he has been in bed more than not, severe pain in jaw, neck, and sinus. The last three days his bed is so wet you would think a pitcher of water was poured on him. His fatigue is so severe he can barely lift his head to talk to me, anyone…
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How long does it take for the Erbitux rash to go away?
Hi All, I'm 5 weeks out from my last Erbitux infusion and completed my last Proton radiation 3 weeks ago. My face is still very red from the Erbitux, the acne part of it cleared up easily but my face is so red. If i stay in a completely dark room and stay out of any sunlight it fades a little, but as soon as i go into a…
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Consultation on Friday... questions
Hi Everyone, My husband has his first consultation with the medical and radiation oncologists on Friday. What are some questions we should be asking? We have a notebook and have written a few things down. He wants to avoid cisplatin if possible due to the risk of hearing loss and neuropathy. As a musician the hearing loss…
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Partial Glossectomy?
New to the site. Wondering if anyone can give me any info on what to expect with a partial glossectomy & removal of lymph nodes. My husband was diagnosed with base of the tongue cancer in January 2012. He had 40 radiation treatments and 8 rounds of chemo (erbitux). They thought they had gotten the cancer, but it has…
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Husband diagnosed with SCC head and neck
i just read a comment and it's true: the club no one wants to join. Lol! My husband is 55, healthy, non smoker, runner of 5k's was diagnosed with stage IV SCC in one lymph node. Needless to say we were in shock. He found the enlarged lymph node by accident while shaving. We are thankful to God for that miracle otherwise we…
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Mother newly Diag. SCC - Base of Tongue, Input please!!
Hello! My perfect mother was diagnosed with Squamous Cell Carc last week after complaints of throat pain for 2 months and a subsequent CT scan and Biopsy. "They" say it's very early and we are awaiting the PET scan. Everyone seems to be SUPER cheery about her prognosis and as if it is no big deal - which is GREAT. Given my…
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Partial Glossectomy (1/2 tongue replacement) and Dentures
For those that have been following along. I finally got my teeth......it was not insurance that covered although I will continue to fight them. I ended up taking out a loan. Is there any one who had a partial glossectomy and dentures? Wondering how you're able to eat. I am having a hard time. First with the dentures…
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Chemo help
Mar 26, 2017 - 5:22 pm Hey All. any help would be Hey All. any help would be appreciated. Tomorrow my husband goes back to the clinic to see if he can receive the second dose of Cisplatin. This was supposed to happen last week. I know I've mentioned severa times that his kidneys are really taking a beating from the chemo.…
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And so it begins..
I have found the waiting around to be the worst part, waiting for appointments, waiting for results, waiting, always waiting. Back in December, I had, what I thought, was an ear ache with some pretty damn sore lymph nodes. So with my insurance, I have teledoc, handy for the stuff you don't want to trek to the Drs office…
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Ringing in Ears
I did a search and it did not find anything on this topic so thought I would ask. I am 3 months out from chemo and last week I stated to get ringing in my left ear. I went to the ENT and an audiologist said I have hearing loss in high frequency in left ear which is where I have the ringing. But since I do not have any…
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Submandicular glands
Hello all, April 1 will be my one year anniversary of my first surgery for tongue cancer. I'm doing well and have my first post-second treatment PET scan in 2 weeks. I had both glands removed with each of my 2 neck dissections. For those who got their saliva back, did you have one or both glands removed? I can't see how…