The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Acinic cell in parotid: what has been experience over time?

krandall50
krandall50 CSN Member Posts: 1

Hello,

I am 1 year post removal of a small acinic cell cancer tumor in my parotid that was also wrapped around a facial nerve.  The surgery also took out multiple lymph nodes, which were all clear, and clipped the nerve.  That resulted in a droopy lip and seems to be healing slowly.  Now there is a band of numbness from my ear to my chin.  I feel fortunate, no other treatment needed thus far. 

I appreciate reading of other experiences with acinic cell here and see the last posts on this rare cancer were a few years ago.  If any of you are still visiting the site, could you add an update?  How are you doing over time? 

Thank you.