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Me again - one year out
I just passed my one year mark from chemo/radiation/surgery for supraglottal carcinoma. Every oncology and ENT thus far have been NED, thankfully. They had to slice my nodes out on the left side last January and now my neck is beginning to feel all stiff and tight again like it did right after my surgery. Can't really say…
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post-radiation repercussions and side effects
My husband had chemo and radiation to treat an HPV-related cancer that started in his tonsils and moved to his lymph nodes. His treatment stopped almost four years ago but he's just now starting to have some strange - to us - side effects. Has anyone else had this treatment, and has anyone found afterwards that there are…
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Angry snow Gods
I have previous posts in this forum and so appreciate all responses I've received! I have been waiting for almost 7 weeks to see an ENT for suspected nasal cancer. I am 2 days away finally but just found out there is a major Nor'Easter headed my way Sun throughout Monday! I live in a rural area aprox. 18 mi. or so from the…
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Throat ulcers
hello all finished my RT eleven months back and all seemed pretty good, well as good as my Onc said it would be. recently though I habe ulcers on the back of my throat and nasty so and sos they are too been there three months now. odd thing is no medical cure apparently, cancer yes ulcers nope! wondering if anyone else has…
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Diagnosed with Stage 3 SCC HPV positive
Diagnosed with Stage 3 SCC HPV positive. My oncologist confirmed this diagnosis today. Although he is having me see an ENT specialist, he feels strongly that since my cancer is only in one tonsil and one lymph node that no surgery is necessar. He is recommend 6 weeks of radiation 5 days a week with Cisplatin added the 1st,…
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Recurring throat and gum pain
Hello everyone. I am new here. I was diagnosed with squamish cell cancer on the top of my vocal cords. I jad 32 radiation treatments. I was very lucky. I caught it early. Stage 1 and no lymph noded. I had quite a bit of throat pain for awhile but started getting better within about 4 months. I was able to eat mor…
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First post here:Extraction site not healing; Scared & Confused
My husband is a tonsil cancer survivor. His diagnosis was in 2005 and has been cancer free since his 05-06 treatment. But the last several years he has had complications from the treatment (swalling, speech, dental issues). He had to have two molar pulled 4 weeks ago and he was told he was at risk for osteonecrosis. But…
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Dad's results
I left work early today so I could go with dad and mom to dad's appointment with the oncologist. He said my dad has multiple myeloma, which is a cancer of the bone. Bones affected are; front skull, back skull, one vertebrae, sternum, left hip, right arm, and his wrists. The doctor was very optimistic and seems to think…
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Lumps and bumps along scar line...
I have a couple pretty good lumps/bumps right under the scar from my neck dissection. I had a scan in December in whih they felt it was radiation damage because the uptake was so diffuse. They also stated that the only way to know for absolute sure would be a PET scan. My oncologist decided that a PET wasn't needed because…
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PBS special on Immunotherapy
Just a shout out about a special I saw tonight on PBS. Melinda Welsh who had head and neck cancer and was told she would die within a year. She is on treatment in Ca. (UC Davis I think) genetic material pIL-12 electroporation and it has pretty much eradicated the tumors and she is in remission! Her Doctor is Alain Algazi.…
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Is there anyone who has had nasal cancer?
I am anxiously waiting for an ENT visit scheduled Feb. 13th! 2 yrs ago I was diagnosed with a dysfunctional turbinate. CT scan "without" contrast came back clear just stated slight deviated septum. Fast forward 2 yrs. and here we go again. Only this time, I still have some blockage of left nostril, sore in upper left…
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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My Surgeons Theory
Yesterday was my appointment with the surgeon who removed my base of tongue tumor and did a radical neck dissection back in '11 and early 2012. I told him that my Oral Surgeon pulled a back molar and my mouth healed properly. He was very interested in that and this is the reason for this post. One of the things he did…
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Alternate options of treatmens besides radiation and chemo
I've been diagnosed with Squamous Cell Carcinoma, it was on my tonsils and lymph nodes. First I want to say I don't health or dental insurance. It all started in the spring, so I went to the local community college that was offering a free teeth cleaning, and since I haven't had a cleaning in quite some time, I thought I'd…
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Thank you to so many of you
I just want to take a moment to thank so many of you for your timeless support and guidance for those of us caretakers trying to find our way. At times I have posted questions and received many helpful suggestions and have not had the time to get back on line to respond. This form has been my light in a very dark…
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Occult primary metastic scc head & neck
I am new to this forum. Has anyone gone through this? Can you share your story with me? I really would appreciate it. I was diagnosed 05/16.
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PEG feeding options such as juicing
What type of nutritional products do people here use with their PEG system? Does anyone supplement with juicing or blendin? What type of nutrition/food has helped you the most? This seems to be the part of my stage 3 SCC HPV Treatment that has me worried way what the radiation and cisplatin will do.
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THRUSH AGAIN!
Welp, it's back, that thing my docs didnt tell me about, Thrush. Just a heads up for you guys and gals out there, there is a chance with your radiation treatments damage, that you will contract thrush. For those who dont know what that is, it is a yeast infection in your mouth, and man is it painful. The first time I got…
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It's back.....
I haven't been on this site for a long time, my husband had scc unknown primary, 1 lymph node back in 2013. He was going on 4 yrs when his ENT felt something suspicious in his throat. Had biopsies and was found to have Base of Tongue cancer, 4 cm tumor. This was removed last week surgically by robot (Divinci) and he did…
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Getting nervous
Have an appointment with my old ENT guy on Monday, having some problems that need to be addressed. Over the past three or four weeks have had on and off sore throat, also ear was giving me some pain, last Tuesday I was in the emergency room at my local hospital for heart palpitations, that cleared up and the doctor said it…
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Help - Neck Dissection & Forearm Free Flap
Greetings Warriors, My husband had surgery last year to remove cancer that had invaded his upper jaw bone. This left a hole between the roof of his mouth and sinus cavity. He has an obturator device to plug the hole. His major problem is severe trismus where he can barely open his mouth and eating is out of the question.…
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Got Booted (Well sorta)
I've been booted out of places before rudly and politely but it never felt so good as it did Thursday. I went for my yearly check up with my surgeon and he told me again I was cured and because it is 7 years there is no need to come back anymore unless of coarse something developes. For those fighting or in the recovery…
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biopsy question
I'm pretty nervous for my dad. As posted previously, he was found to have a tumor on forehead went through the skull and is on top of both hemispheres of the brain, but not in the brain. I'm terrified for him and wondered is anyone knew what kind of biopsy they would do? Like, how would they do that? The doctor did not…
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Nasopharyngeal Carcinoma
Help! My 14 year old son wa diagnosed 3/19 with Nasopharyngeal Carcinoma. He has had his first round of chemo ( Cisplatin and 5fu). His treatment plan consists of a total of 5 chemos and 7 weeks radiation. THere will be 3 rounds of chemo every 3 weeks. The last two rounds of chemo will be combined with the radiation. I…
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Chemo and Cardiomyopathy
my husband has been cancer free for 3 years. He had tonsil cancer . He had a major heart attack 4 months after treatment. He recovered well. His ejection factor was 55%. Several months ago He has diagnosed with heart failure With ejection factor 35%. Doc is puzzled by this progression and is leaning toward chemo damage as…
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Erbitux vs Cisplatin help please
Have a friend about to start treatments. His chemo will be weekly Erbitux. I had Cisplatin and do not know anything about Erbitux. Can someone please give us a brief comparison? Side effects? Hair loss? Etc? Thanks. JK
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Anyone out there in HNC land that is bilingual Spanish?
I am Spanish bilingual and was recently asked to offer support to a Mexican American in Tucson who has a recent diagnosis of HNC SCC and is about to start treatments. It would be helpful if there were others "que puede hablar en espanol". Let me know JK
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What tastes good? Bad?
Hello fellow warriors! I completed the normal 35 rads and 6 cisplatin chemo rounds. Treatments complete on November 16, 2016. The recovery is going well. I thought I would share a few foods that tasted good sooner and some that didn't. Some of the foods that don't taste good used to. So good: KFC original recipe dark meat,…
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Coughed up Blood
My husband had bot surgery with removal of lymph nodes on Dec 23. We are having a pet scan today and see the oncology drs on Tuesday. He says he still has a sore throat on the side of the surgery and yesterday he coughed up blood. He is only eating through a peg tube as he was in the hospital due to nausea and constant…
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ROLLCALL 2016 - UPDATED DECEMBER 10, 2016 CLOSED
ROLL CALL 2016 Updated December 10, 2016 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll…