-
Introducing Myself
Hello, Everone, I've been lurking for a few weeks now hoping I would not have a reason to join. However, tonight we got the phone call confirming that my husband has SCC HPV+ with an unknown primary. It's been around two months since my husband found a lump on his neck while shaving. (Seems that a lot of these cancers are…
-
NED!
Next month April 24th will be my 4 year anniversary of completing treatment for Stage IVa Head and Neck cancer. As of today, I'm NED! (no evidence of disease). There are some physiological issues with swallowing that are side effects of the surgery and treatment but all is well. It just means I have to keep on doing the…
-
Recurrent SCC with brain met
Hello everyone!! My husband's story started last August when he had, what looked like, a small canker sore under his tongue. We saw his first ENT in September, by then, the tumor had grown to about an inch in size. It had become very painful for him to eat anything but very soft food. The ENT did a biopsy which came back…
-
Has anyone done 25 sessions at 50 gy (or close to it)? Just RT, no chemo.
Trying to mentally prepare for how this treatment will go. Any insight is appreciated. Thank you.
-
Good News NED
It has been a long time since I have been on. I went for my 5 year CT scan and Lung Xray and all is good. I am now 5 years without any return of the cancer. Feeling blessed and miss not having spoken with any or you for so long.
-
Need info on thyroid problems and "cures" after radiation/chemo
I'm 2 1/2 years out and generally doing well. But others in my support group report what sounds like hypothyroidism after reaching about 4 years out. Has anyone found ways to strengthen the thyroid before the problem develops? Thanks and good health to all!
-
VIETNAM VETS AND ESOPHAGEAL CANCER
LOOKING FOR VIETNAM VETS WHO HAD/HAVE ESOPHAGEAL CANCER. MY HUSBAND PASSED AWAY ON MAY 30-06 FROM EC. WAS DENIED COMPENSATION FROM THE VA AS AGENT ORANGE RELATED. I HAVE APPEALED. VETS, WE NEED TO GET EC ON THE PRESUMPTIVE LIST!! ACCORDING TO THE STUDIES, EC WAS NEVER EVEN CONSIDERED. SOME CASES HAVE BEEN APPROVED, WHY NOT…
-
Chemo or not to chemo
Anyone here not elect to have chemo with their radiation with stage iV HPV neck/throat cancer? Or elect to have reduced chemo?
-
Dental Problems
I am having major dental problems three years post treatment for throat cancer. Already had several crowns and several fillings. Is it true that you have to have hyperbaric oxygen treatment before having teeth removed. Any dental help I can get will be appreciated. My teeth were not very good at beginning of radiation,…
-
Osteoradionecrosis - trouble with area around extracted teeth.
In 2003 I had Stage 4 Tonsil Cancer and went through both chemotherapy and radiation. The side effects were the usual dry mouth and thyroid problems but since 2014 I have had to have several teeth removed. I underwent the Hyperbaric Oxygen Therapy before the first teeth were removed. In January I had another tooth removed…
-
Started as salivary gland stage lV.. can someone please dumb these results down for me.. my dads res
-
Acinic cell in parotid: what has been experience over time?
Hello, I am 1 year post removal of a small acinic cell cancer tumor in my parotid that was also wrapped around a facial nerve. The surgery also took out multiple lymph nodes, which were all clear, and clipped the nerve. That resulted in a droopy lip and seems to be healing slowly. Now there is a band of numbness from my…
-
Salivary gland cancer stage 4
Hi, my dad was diagnosed with stage 4 salivary gland cancer he had an 11 hour surgery at UCLA to remove the tumor. He had 7 weeks of Monday - Friday radiation... he had been cancer free for almost a year, we just found out a few weeks ago that his cancer spread it's near his eye on the bone and also back of his skull, they…
-
Late side effects after H&N chemoradiation (eating, mucous, etc)
Hullo There First up, to address the elephant in the room - I'm clearly not American, but an intruder from overseas (I mention, as I've found some good info in these forums and for the most part the community seems to be State-side - GO USA!) We have an Aussie cancer support site, but the community involves three people…
-
Post ENT appt
I had my follow up appt. with ENT this week! He said CT scan was clear for sinuses! I have slightly deviated septum and swollen turbinate on left (problem) side! He feels the nosebleeds are being caused by the turbulence when air passes through! Btw, I was never scoped! Of course I'm elated that the scan came out clear…
-
Tomorrow is the big day!
I had my first set of CT scans last Friday since completing treatment to see if the cancer (squmous cell carcinoma on the base of my tongue and lymph node) is gone. I'm meeting with my doctor tomorrow to go over the results of the scan. Of course I'm nervous as hell and that is all I've thought about 24/7 since Friday. I…
-
ROLL CALL 2017 - UPDATED FEBRUARY 21, 2017 CLOSED
ROLL CALL 2017 2nd Updated February 21, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
-
Recovery- Sore Throat Worse
Finished rads 8 weeks ago. Was feeling gradually better until Wed. Had a dental cleaning Wednesday and two days later throat hurt much worse. Is it normal in recovery period to have throat pain get worse? Two steps forward 3 steps back? Still not able to eat anything other than pudding and milk shakes.
-
Dentures
I am curious if anyone has gotten regular dentures and figured out how to deal with a partial tongue, dry mouth and migraines in learning to use them. I have the top ones glued in right now, but after a while, I have to take them out. When I have migraines, they aggrevate the headache. The bottom ones are the real problem.…
-
Neck cancer longterm effects
I had my radiation and chemo done in 2006 but last year 2016 I started having problems swallowing. I have salivia that continus to come out. If i eat i spend the next 20mins coughing up phlegm. I also have a pain that feels like it starts from one ear to the other through the eyes and in my head. Is there anyone who has…
-
ROLL CALL 2017 - CLOSED
ROLL CALL 2017 First Updated January 30, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
-
No Saliva? - No Problem - The Answer: okra water
Your new best friend: Okra. You are going to make okra water. Simmer cut okra in a covered pot of water for approx. 10 minutes. 2 cups of okra to 4-5 cups of water. Your end result is ‘okra water’. Drain the okra and place in a container. Fill that container with more water, cover, and pop in fridge to sit. This will yield…
-
Post radiation throat pain
My husband is 5 weeks out of treatment consisting of 35 rads and 3 megadoses of cisplatin. ( for T3 scc in his glottis) His throat swallowing pain has not gone down at all. 2 wks post treatment actually pain went slightly up, and then slightly down but it is still very high and is same as what it was at the end of…
-
sliva glands
Hi.everyone.Have a question about the slivia glands.Mine haven't been to bad and didn't seem to to much of dry mouth as I was always sipping something.But now I was just fitted for dentures that were made for for my mouth.And the problem seems to be that my slivia glands are running like a nose in the middle of a cold.Has…
-
Nausea and throwing up 3 months out! Help!
My husband will be 11 weeks post chemo/radiation (5/37) on Friday, and he is still having terrible nausea. He throws up at least twice a week. He is still only taking in liquids as his throat and tongue are still very painful. He does not have a PEG tube, and is down 80 pounds. He takes zofran 3x day for nausea... Just…
-
The will to live
Everyone that belongs to the Cancer Survivors Network either are currently in treatment, a caregiver, or a survivor that wants nothing more than to live. I am new in the survivor role. My wife on the other hand is a 12 year survivor of oral cancer and a 11 year survivor of breast cancer. We both have faught to live! Last…
-
Saliva mysteries - what does this mean
I'm nine weeks post 35/7 rad & chemo treatment. I can be painfully bone dry, put in a piece of sugarfree gum, and be well moistened in under a minute. Does this mean my glands are still mostly functional, just taking their time to recover? Xylimelts have no effect, the sprays help for a while, but a piece of gum and I'm…
-
Officially 'Cured'
Hello Good People of CSN - I hope you are all fighting the good fight and winning! Just to introduce myself as I haven't been on all that often for a while, I was originally diagnosed with mucoepidermoid carcinoma with unknown primary in March 2012 (not sure how they stage it when its in a lymph node but no primary and…
-
6 month pet scan tomorrow- been very ill- terrified
squamous cell carcinoma bot, 40 rounds radiation ended sept 28, 2014. I have no one in my life, I've had cancer symptoms, night sweats, throats pain never stopped, migraines, bleeding from mouth and cough, taste buds getting worse. constant mouth sores. I have absolute dread that tomorrow they will tell me C is back. I…
-
Feeding tube /Pathology report
Well continuing on my road to recovery I am due for my first post op appointment on March 8th to see how it is healing. I had tonsillar cancer that also had started to go onto the base of my tongue. So consuming calories has become my full time job to hopefully avoid a feeding tube. Anything that has dairy in it produces…