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Frank's Story - There is #lifeAhead After Your Cancer Diagnosis
Here is an uplifting inspiring story to say there is hope beyond the diagnosis. Listen to Frank Marcovitz tell his story of how he was first diagnosed with Oral, Head and Neck Cancer (OHNC), and overcame his journey by continuing to fulfill his passions and dreams. Frank's Story - There is #lifeAhead After Your Cancer…
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Is this normal in my mouth or?
Hi all so I’ve noticed I’ve had a sore area in mouth for ages with my tounge it feels like a raised cut and is sore to touch - this is the little red marks seen in the photo and i took a video and caught this so I have a few red marks and the lighter patches in my mouth? I was wondering if this warrants any concern People…
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About Facial Prosthetics for Head and Neck Cancer Patients
Sometimes a cancer event takes more than we imagined but there is help. About Facial Prosthetics for Head and Neck Cancer Patients Take Care, God Bless Russ For more information about Facial Prosthetics and Head and Neck Cancer, visit www.headandneckcancer.org.au. Head and Neck Cancer is an Australian charity dedicated to…
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Jen's Tongue Cancer Story Video
I am sure there are those on this forum that can relate to this lady's story. To commemorate Head and Neck Cancer Awareness Month we'd like to share the story of one of our community members, Jen Mackay. Jen had never heard of Tongue Cancer when she was diagnosed with Stage 3 in 2022 after an ulcer appeared on her tongue.…
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What is HPV-Related Head And Neck Cancer? Explained!
Video 1 of the “Role of HPV in Head and Neck Cancer” Webinar series—Recently Dr. Bhisham S. Chera joined GRACE to discuss the role of HPV in head and neck cancers. Bhisham Chera, MD, is a UNC Lineberger Comprehensive Cancer Center member and Assistant Professor in the Department of Radiation Oncology in the Clinical…
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The Optimistic Gardener - My Journey Through Throat Cancer Recovery
Last September I was handed the biggest shock of my life after the results of a biopsy revealed that I had throat cancer. To help other people, who may be at the start of of this scary and uncertain journey I thought I would describe my journey; the feelings I felt, the pain and for want of a better phrase, the process.…
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"Uncover the Secret to Beating Cancer: 5 Tips You Need to Know!"
In this video, I'm sharing my story of how I beat cancer. I'll tell you everything I learned about cancer, how I overcame it, and how you can too! If you're struggling with cancer or have had it, then this video is for you. I'll share my story, my tips for cancer recovery, and how you can beat cancer too! I hope that by…
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HPV+SCC after Multiple Myeloma treatment
I was recently diagnosed with HPV+SCC and am having surgery next week. No mention of chemo or radiation yet because doc feels we caught it early and want to see tumor margins and lymph node involvement before we decide. I was also diagnosed with Multiple Myeloma in 2020 and received chemotherapy for about six months before…
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Head and Neck Cancers of the Unknown Primary
A conversation with Dr. Ron J. Karni, an Otolaryngologist with the Department of Ear, Nose, and Throat Head and Neck Surgery of UTPhysicians, affiliated with Memorial Hermann-Texas Medical Center in Houston. Head and Neck Cancers of the Unknown Primary Take Care, God Bless Russ
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Head & Neck Cancer Treatment Decisions: What’s Right for You?
When considering treatment options for head and neck cancer, what helps determine the best approach for YOU? Dr. Ari Rosenberg discusses key factors that impact head and neck cancer treatment decisions, emerging research, and tips for partnering with your healthcare team. Dr. Ari Rosenberg is a medical oncologist and…
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Late Effects of Cancer Treatment - Head and Neck Cancer Focus with Emma Hallam
'Late Effects of Cancer Treatment' workshop series with Emma Hallam, Macmillan Consultant Radiographer in Post Treatment and Late Effects. The focus of this workshop is Head and Neck Cancer. The session covers: - What a late effect is - The late effects of head and neck cancer specifically - Top tips on how to manage late…
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Tongue cancer
I read that it's really rare (5 percent of people get it) but I had a tongue surgery at Memorial Sloan Kettering two and a half years ago. They sliced off the side of my tongue. Now a pre cancer has appeared in the same and another spot. I'm scared. There are things I'd like to be able to do again including voiceovers and…
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Neck Lymph Nodes Location And Detailed Explanation And Display Of H&N Area.
I think some of you folks will find this interesting I know I did. I always wondered what and where lymph nodes were in the H&N area, now I know. The lymph nodes of the body are very important to us and can be very important clinically. There are quite a few lymph nodes in the neck, and they're described as anatomical…
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2 years post treatment - 52 yo - quitting flouride, embracing flossing
I had left tonsil excision as well as a lymphectomy plus 33 rounds of max 70Gy radiation treatments coupled with 6 rounds of chemo, half cisplatin until my hearing suffered and then half carboplatin and taxol. The cisplatin roasted the main veinous pathway in my right arm. I returned to competitive master swimming last…
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Recent Japan Data Released Increases In Mortality Rates of all Cancer & Head & Neck Cancer
Hello everyone, there is a new report out from Japan about increased cancer rates of all cancers and specifically some head & neck cancers, released on 4/8/24. Statistically significant increases in age-adjusted mortality rates of all cancer and some specific types of cancer, namely, ovarian cancer, leukemia, prostate,…
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New Urine Test Spots Head-and-Neck Cancers Earlier
Interesting but still in testing stage . . . https://www.newsmax.com/health/health-news/at-home-urine-test-cancer-head-and-neck/2024/04/18/id/1161498/
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Post treatment PET scan turns up new cancer cells in my lungs
I went in today for my 90 day Post treatment PET scan and it tured up new cancer cells in my lungs. I’m 64 years old and prior to this episode had never spent the night in the hospital. My original diagnosis was likely tonsil cancer, HPV related, that spread to the lymph nodes on the right side of my neck. I completed the…
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"Total Metabolic Response to Treatment" :: but questions about recurrence
I'm a guy who likes to know the numbers, although I do completely understand the opposite mindset. 9 months ago I was diagnosed with a late stage SCC (P16+) advanced to local lymph nodes. They gave me 6 months to live. Last week I was given the all clear, completely clear PET scan with a report indicating "total metabolic…
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Cancer Survivor Interview: Oropharyngeal Cancer, Treated With Robotic Surgery
Direct interview with a cancer survivor and his story of treatment and recovery… Cancer Survivor Interview: Oropharyngeal Cancer, treated with Robotic Surgery Take Care God Bless Russ
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Dr Itzhak Brook Keynote Address. “ Back to Life” After Laryngectomy
This is a short video of Dr Itzhak Brook giving the keynote address. He is a Head and Neck cancer survivor who goes over the many aspects of H&N cancer including things like your diagnosis and thoughts that go through your mind like suddenly you are in a major crisis, it shatters your invincibility, and you are suddenly…
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Tonsil cancer stage 4
Hi everyone just wanted to share today that my husband is cancer free for 13 years! Am not saying it’s not been hard but he is alive and with me. Keep the faith Linda
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Happy Birthday, if I may...
Today is my beloved husband's 61st birthday. After spending a "relaxing" 8 hours in chemo, our family went to dinner and celebrated him. As some of you on this board know, he is being treated for metastatic head and neck cancer...now in his lungs. His ct scan on the 3rd of July showed SO MUCH improvement. It was a…
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Hot spots on follow up PET scan
My husband has been fighting cancer since January. Tumor on base of tongue and cancer spread to lymph nodes on both sides. After concurrent chemo/radiation treatments ending this past March, he had the follow up PET scan last Thursday. We were called into office for Friday and told that the cancer in his tongue and lymph…
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How to move on post head and neck cancer
Hi Everyone, Hoping for some advice for my husband. He had mouth and tonsil cancer the end of 2021, he was 43 at the time. He had surgery to remove 1/3 of his tongue, the tissue on floor of his mouth, all his teeth and 4 lymph nodes. This surgery included skin graphs from his arm and thigh to replace the tissue in the…
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neck swelling after radiation
I had HPV-tonsil cancer in 2016 and had 35 rounds of radiation and 7 chemo treatments with cisplatin. I finished the radiation treatments in October of 2016. I have the lingering effects of no taste and no slaiva but deal with that. My neck started swelling in the past few weeks and I went to my ENT doctor and they…
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This April marks Oral, Head, and Neck Cancer Awareness Month
There are many support groups and some are having special activities. Check out some of the groups you may find something helpful in one of them. Support for People with Oral and Head and Neck Cancer (SPOHNC) pronounced "Spunk" is a nonprofit organization involved in the development of programs of support. As such it can…
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Treatment Complete - Let the Healing Begin
Hi everyone. My husband completed his last of 7 chemos last Monday and his last of 35 radiation treatments on Friday. It was a very emotional week as it was as taxing as everyone describes. know that this first week after treatment can be the worst and it is shaping up to be so. We were lucky in that he did not have any…
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Cancer Survivorship – Patient Education on Post-Treatment Care
Hello everyone. Survivorship is not always easy but we persevere. There is help out there in many places these days. Here is something I found on the American Head and Neck Society (AHNS). It is a long list of post-treatment issues you can click on and it takes you to a page covering that subject, explaining how to…
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Loss of swallowing after radiation therapy
Welcome, I hope you are fine, Ask about the veterans who lost swallowing after IMRT, and how long did the problem last? What are the solutions before us? My father, after 5 months of IMRT, completely lost his ability to swallow and fluids began to come out of his nose. And now we are very disappointed Loss of swallowing…
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Update on throat cancer journey.
I posted some info about my throat cancer journey and the potential for neuropathy in my hands. I play several instruments and I was very worried. Luck was with me and I had no neuropathy at all. I did use cold therapy every time I had chemo. I don't know if that is what helped but it's how I dealt with it. I did have an…