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Don't know what to do now.
Hi everyone. Had surgery 3/16 to remove scc tumor from my tongue and 42 lymph nodes. I had the original surgery at Yale in CT and moved to New Hampshire and am receiving follow ups at Dartmouth. At my last appointment with my original doctor I showed him my tongue and how extremely uncomfortable it was and inflamed as…
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SQUAMOUS CELL CARCINOMA, HYPOPHARYNX
Hello everyone, I've just joined and trying to feel out this org. Anyone with the above cancer? Just wanted to see if there were any members with the SCCH so that I maybe able to pick their non-cancerous brain. I'm just selfish that way. This is like a test post to see if it gets posted. So anyone with SCCH? Tak
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Clinical trial of diagnostic potential
https://www.theguardian.com/society/2017/apr/26/dna-based-test-can-spot-cancer-recurrence-a-year-before-conventional-scans I offer no opinion, merely thought the story was relevant.
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How to "crush" thrush?
My husband is 14 weeks post radiation and chemo for SCC and continues to battle with terrible thrush. He uses Nystatin 3 times a day, brushes his tongue, and yet the thrush is winning... I read one member on here purchased over 100 toothbrushes as the thrush can breed on your toothbrush. I also read that others use coconut…
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Neck dissection, dental extractions, and tongue excision coming up..what to expect?
Hello everyone! First I'll start with some basic information about my situation. I'm a29 year old female married with 3 wonderful kids ages 10,2, and 6 weeks. I did smoke and rarely drank. IN September 2016 I was diagnosed with squamous cell carcinoma which presented as a sore on the left side of my tongue. I was 4 months…
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Black Salve
Hi all, I have been doing quite a lot of research into Black Salve in recent months. This stuff was also called Cansema by one manufacturer in the USA who was subsequently shut down and I think jailed with the help of the F & D A. The stuff has a very colorful history. He now does his thing from Equador. All that aside, I…
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Happy Days star Erin Moran died April 22 from throat cancer
I just came across this article which appears on MSN.com today. “Happy Days star Erin Moran died April 22 from throat cancer that had spread to other parts of her body. A few days after her death, her widower Steven Fleischmann shared an open letter detailing Moran’s diagnosis and battle with cancer, Variety reported.…
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Tumor shrinking?
Phew! I've posted a lot lately. But I'm full of questions. My big one is this; does the tumor go away completely? That may sound dumb but I'm slightly worried. My husband had his right lymph node involved and i can still feel it. It's clearly not as sizable as it was at the beginning. I have to push in to feel it. Some…
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What is the cure rate for tonsil cancer hpv
I was just wondering does anyone know how curable tonsil cancer hpv is. I have not heard of anyone having a recurrence with tonsil cancer hpv, I told my husband not to worry, there is no way this cancer can come back 4 months post treatment, am I right? He is just scared after having his first pet scan today. Thanks Linda
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Coconut Oil - an absolute godsend !!!!
Hi there, It's been a very long time since I was here last. This is my 3rd year since treatment for base of tongue cancer. I had 7 weeks radiation and 6 weeks chemo. I have found that the last 6 months or so I have been waking in the middle of the night with my mouth absolutely bone dry, having water by my bed, drinking it…
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5 YEARS AND COUNTING
NED >> CURED >> No Cancer >> whatever you want to call it…. I reached this proverbial (post cancer treatment) milestone and I am happy to still be kicking, after my official ENT visit. Life is certainly different (now); I have a host of new H&N friends and reminders of what has happened to me, some good, and some bad. I…
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Questions regarding neck dissection and dental extractions
Hello everyone, hope all is well! Anyways quick question, I'm having a bi lateral modified radical neck dissection and will need 15 teeth extracted prior to rads/chemo that are following the neck surgery. The surgery scheduler called me the other day and told me my surgery date was going to be on the 17th. I just realized…
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Questions
Had my appt with Chemo Dr today, where she told me I'm not getting enough nutrition, AND, my kidneys couldn't handle another round of Chemo. I'm sorry but I am head over heels elated that I don't get to be poisoned a 3rd time, its been brutal, One week of speeded up feeling like crap, One week of total crap, and One week…
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trying to find the good in the "bad"
Hello Friends, I hope everyone had a good weekend and a good Monday. We are in our first week, day 2 of recovery. So far, it sucks. Not gonna lie or sugar coat it. It just stinks. The euphoria of the last days has wore off and it wore off quickly. The thick mucous is ever present, the choking and gagging is at an all time…
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Has anyone had to get a feeding tube after treat ended?
My husband will finish his treatments on Monday. He was doing pretty good all things considered with eating until this week. The last Cisplatin has kicked his butt and he's having trouble keeping Boost down. He's starting to panic about the possibility of needing a feeding tube. He was able to eat some chicken noodle soup…
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sinus problems question
My husband had stage 4 tonsil cancer back in 2011. he completed chemo and radiation and has been ned since. Recently he has been geeting stuffed up and his sinuses have been draining. He chalked it up to allergies. I finally talked him into going to his ENT. Well the ENT put him on antibiotics - aid his sinuses were really…
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New and looking for some insight.
Hello everyone, My name is Michael, 32 years old and somewhat diagnosed in January of his year. I say somewhat diagnosed because of my "occult primary" presentation. Left cervical lymph nodes so far seem to be all thats been able to be found. I had a direct laryngocscopy from the initial ENT working me up. Fortunately Im…
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Growth behind tonsil
hi all, Im new and haven't been diagnosed. 6 months ago I noticed an oval growth behind my tonsil. I didn't think much of it. My tonsils are always enlarged and I get frequent tonsil stones. I noticed last night it's still there and appears a bit larger. I called the ENT but I can't get in until July 10. I'm so worried.…
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Consider not getting the peg
I just wanted to let people know that my husband Stage 2 base of tongue and tonsil, went through his treatment without the peg after being encouraged to do so by the radiation nurse. This is a good option in you are overweight and can afford to lose 40 -50 lbs. When you rely on the peg it saves you from the discomfort of…
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Small knot on thyroid pain to touch
Has anyone else experienced a knot on the thyroid with pain to touch? I've visited my doctor for an exam and the response was much of the same "nothing to worry about. It's all art of the healing process." I worry with the slightest change constantly wonder what's next. Any suggestions or comments? I have had radiation…
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Solicitation for opinions on probiotics
I am in the middle of a war with my Thrush/Candida on my tongue, and right now I think the Thrush is winning. I am using liquid Nystatin four times daily, applied with religous discipline, and that seems to move it around but not finish it off. I have used 48 of my 144 disposable toothbrushes, and am fanatical on limiting…
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PEG tube Problems
I am having all kinds of problems with my PEG tube which I do have to use now. Pain, drainage, bleeding (surface, not deep). The doc who put it in can't fix it so he sent me to another who promptly nicked it. Now it drains, bleeds, causes pain, and leaks. The doc is talking about replacing it. Anyone have that done…
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Help Interpreting Surgical Pathology Report
Hello All, last week, I had a small mucoepidermoid Carcinoma excised from the left soft palate area. It was described as intermediate grade. The pathologist report came, and now I'm told even though surgical outcome was as clean as i could have hoped for, I'll need radiation. Here is what the surgical pathologists report…
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Last day!! Now what?
Friends, This is a HUGE day for us. My husband's last day of rads is today! At 4 p.m. he will officially be done with the 7 weeks of intense treatment. And I have no idea what to feel. Of course, I feel relief and joy. But... now what? He begins to heal and hopefully he can taste food soon... I know this sounds weird but I…
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Pre Existing condition...how fast do SCC tumors grow
HI I was diagnosd in Dec 2011 with SCC tonsil cancer HPV+ left tonsil and 2 left lymph nodes. I have had 6 weeks of Chemo and am doing really well. I will start radiation Feb 13. Anyway, i have been paid short term disability and the long term disability (which I started in Jan 2011) should start to pay in Mar 2012. I had…
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Anyone heard of John (Skiffin16)?
Last online was on November 07 2016.
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Fever
My husband has completed his first week of treatment. For the past two nights he has had a fever 99.4-100.2. He is doing well with fluid intake and eating. Is this common for the NPC patient to run a low grade fever during treatment? I know I need to be certain he is hydrated properly during the fever. Any other things I…
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Looks like the torch has been passed
I have not been on CSN for several months, after being a regular reader and poster for about 5 years. I signed in today, only to read about Hondo's passing--he was one of our best "citizens" and supporters for many years and will be missed. After that, my first impression was how few names I recognized, but did come across…
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The Mask and Weight Loss
Hello Everyone, My husband will be going in for his mask fitting on the 18th. We are both curious about the mask and weight loss. My husband has put on a lot of weight in the past few weeks since he has been eating anything and everything while he can. Doctor's (and wife's) orders. ;-) However, we are wondering what…
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Mmdowns, how is the hubby
Just checking in. How is he holding up since his last chemo? Oh and isn't today the LAST radiation? ? Hope all is well. Just remember, even as you celebrate the joy of finishing treatments, be prepared for there to still be rocky days ahead. It does get better but it's slow going. That said, still whoop and holler, hug and…