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Growth behind tonsil
hi all, Im new and haven't been diagnosed. 6 months ago I noticed an oval growth behind my tonsil. I didn't think much of it. My tonsils are always enlarged and I get frequent tonsil stones. I noticed last night it's still there and appears a bit larger. I called the ENT but I can't get in until July 10. I'm so worried.…
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Consider not getting the peg
I just wanted to let people know that my husband Stage 2 base of tongue and tonsil, went through his treatment without the peg after being encouraged to do so by the radiation nurse. This is a good option in you are overweight and can afford to lose 40 -50 lbs. When you rely on the peg it saves you from the discomfort of…
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Small knot on thyroid pain to touch
Has anyone else experienced a knot on the thyroid with pain to touch? I've visited my doctor for an exam and the response was much of the same "nothing to worry about. It's all art of the healing process." I worry with the slightest change constantly wonder what's next. Any suggestions or comments? I have had radiation…
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Solicitation for opinions on probiotics
I am in the middle of a war with my Thrush/Candida on my tongue, and right now I think the Thrush is winning. I am using liquid Nystatin four times daily, applied with religous discipline, and that seems to move it around but not finish it off. I have used 48 of my 144 disposable toothbrushes, and am fanatical on limiting…
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PEG tube Problems
I am having all kinds of problems with my PEG tube which I do have to use now. Pain, drainage, bleeding (surface, not deep). The doc who put it in can't fix it so he sent me to another who promptly nicked it. Now it drains, bleeds, causes pain, and leaks. The doc is talking about replacing it. Anyone have that done…
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Help Interpreting Surgical Pathology Report
Hello All, last week, I had a small mucoepidermoid Carcinoma excised from the left soft palate area. It was described as intermediate grade. The pathologist report came, and now I'm told even though surgical outcome was as clean as i could have hoped for, I'll need radiation. Here is what the surgical pathologists report…
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Last day!! Now what?
Friends, This is a HUGE day for us. My husband's last day of rads is today! At 4 p.m. he will officially be done with the 7 weeks of intense treatment. And I have no idea what to feel. Of course, I feel relief and joy. But... now what? He begins to heal and hopefully he can taste food soon... I know this sounds weird but I…
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Pre Existing condition...how fast do SCC tumors grow
HI I was diagnosd in Dec 2011 with SCC tonsil cancer HPV+ left tonsil and 2 left lymph nodes. I have had 6 weeks of Chemo and am doing really well. I will start radiation Feb 13. Anyway, i have been paid short term disability and the long term disability (which I started in Jan 2011) should start to pay in Mar 2012. I had…
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Anyone heard of John (Skiffin16)?
Last online was on November 07 2016.
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Fever
My husband has completed his first week of treatment. For the past two nights he has had a fever 99.4-100.2. He is doing well with fluid intake and eating. Is this common for the NPC patient to run a low grade fever during treatment? I know I need to be certain he is hydrated properly during the fever. Any other things I…
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Looks like the torch has been passed
I have not been on CSN for several months, after being a regular reader and poster for about 5 years. I signed in today, only to read about Hondo's passing--he was one of our best "citizens" and supporters for many years and will be missed. After that, my first impression was how few names I recognized, but did come across…
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The Mask and Weight Loss
Hello Everyone, My husband will be going in for his mask fitting on the 18th. We are both curious about the mask and weight loss. My husband has put on a lot of weight in the past few weeks since he has been eating anything and everything while he can. Doctor's (and wife's) orders. ;-) However, we are wondering what…
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Mmdowns, how is the hubby
Just checking in. How is he holding up since his last chemo? Oh and isn't today the LAST radiation? ? Hope all is well. Just remember, even as you celebrate the joy of finishing treatments, be prepared for there to still be rocky days ahead. It does get better but it's slow going. That said, still whoop and holler, hug and…
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Xylimelts - when they work, what do they do?
I'm experimenting with ways to deal with dry mouth. My rad oncol is very stuck on xylimelts, but when I try them they seem to not do much. If they work for you, what do they do?
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Scary choking
So my husband has started this new lovely form of choking. I know it's from the rads and the mucous. But it's scary. And it hits him out of the Blue. He's been drinking water but honestly it seems like the water makes it worse sometimes. Today he was so bad that he threw up. He can't help it. He says it usually happens at…
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Bad Weekend
So on Sunday I declared to whover could hear (son and dog) that this thing wasn't keeping me prisoner, and that I was going to Lowes, for a few brackets, hanging baskets, and flowers. Go to Lowes, saw my friend, started feeling a bit rough, then rougher, I'm not sure think I passed out on the patio furniture a few times...…
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Neck dissection shows mucoepidermoid carcinoma cells - had tumor removed 20 years ago
Hello. 20 years ago I had low grade mucoepidermoid carcinoma, I had maxillectomy and no radio or chemo and have been disease free since then. I had an elective surgery recently to reconstruct the maxillectomy since I was disease free for over 20 years. As part of this elective surgery, the doctor had to do a bit of…
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Cancer Pain after treatment
Hey There Having gone through the chemo radiation for HPV+ tonsil cancer, I'm now in that 'limbo time' ... But not the funny dance under the stick ... The time where you are pensively waiting for your PET scan and hopefully NED outcome. (I already had my 3 month scan but it was inconclusive due to too much damage,…
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When reality hits
So, as I'm sitting here waiting while my husband gets his mask made, I saw the radiation machine and reality smacked my in the face and almost knocked me over. It's becoming more real. Watching it on TV or reading other people's stories is not the same. "This is stuff that happens to other people. This stuff doesn't happen…
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Last chemo day!!
My husband had his last chemo today!! We were still on the fence this morning And honestly, so was our oncologist but we went with an even lower dosage and fluids eveeyday for two weeks. He rang the bell today and it was more emotional than I thought. He only has 3 treatments left. we are so ready to be done!
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Thrush, steroids, and acid
Hi all, So this weekend we were blessed with another new symtpom. My husband had another dose of Dexamethasone on Friday via IV along with fluids to make sure we get through the weekend. He also took the pills on Sat. and Sun. During the infusion he was fine and even after he seemed OK. A couple of hours later he began…
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NPC Treatment
Hello to all of you in this extremely inspirational group. My Husband will begin Chemo and Radiation tomorrow morning. I have found help and courage from all of you within this forum. We are fighting this "stuff" and your insight is priceless to me.
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Lymph node and Tonsil swelling
Hey all, I've read a few dated posts and everyone seems very supportive and informative on this subject so I thought I'd start a thread. I'm 24/M and feeling anxious about a few swollen glands under my jaw which have been there for close to 6 months now and my tonsils have just swollen, just enough to feel them when I…
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Something in my nasal-paranasal area
Hi you all I'm 16 y guy. I have been more or less sick almost a year now. I've had many right side sinusitis (not radiographed, but clinically diagnosted..) and I've had ten antibiotic courses from may 2016. On may 2016 the doctor lavated sinus because of the symptoms, but there was no pus. Sinus was only "narrow" or…
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Potassium level dropped
We get to spend at least 5 hours at the hospital tomorrow. Hubby's potassium and magnesium have bottomed out. He is getting depressed now too. I guess 12 straight days of being hooked up to an IV will do that to a person.
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esophageal cancer survivor
Hello, My husband was diagnosed stage 4 metasised on 6/30. He could not have surgery. On 11/09/02 he had a completely clear PET scan. Please contact me for details. God Bless
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Gone, gone, gone..
I was telling my brothers, "I still have my hair" next day.... all fall down. Still have my taste buds, now, what's a taste bud? Still, have an appetite... except it's gone... I'm just over halfway, but this round of chemo has been really rough. I can't say "not sure how much more I can take" cos I have to go all the way.…
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Everything Has Changed
Hi Everyone, I have piped in & you guys helped Me soooooo much. Unfortunately, I felt luck at the beginning of Recovery. My Chemo Dr treated Me like a "Test Rat". I was having an amazing recovery, unlike others. During treatment had every side effect. My mouth inside was so burned, so filled with sores, I could not even…
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First post second treatment NED
So far so good. I've had 5 scans in a year and my latest is NED. Staying cautiously optimistic, though and getting better every day. Cheers!
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Prayers and positive vibes needed!
Hi all, This isn't totally cancer related but since joining I have felt nothing less than the utmost support and caring from all of you. Today is a big day for my husband. I have mentioned in some of my other posts that we were hit pretty hard with 2 big blows. My husband was not offered a teaching contract for the new…