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Hair Loss
I am a 74 year old female, 4 months finished with low dose radiation around neck for HPV-OPC, no chemo or surgery. Pet scan showed no further cancer. For about the last month my scalp has become very itchy and my hair, normally quite thick, is falling out. I went to my dermatologist who said she could see no cause for…
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I'm on cloud 9 today
I've had hypopharyngeal SCC and been NED for about a month, rad and kemo applied. I don't know why but today I feel like I'm on cloud 9 in a long time, about 6 mo. No pain, no discomfort. My depression is gone, feel happy and want to do things. Have full of energy, hungry and want to eat the world. I want to socialize.…
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NED
Good evening everyone. I just dropped in to say that I just had my first NED (no evidence of disease) PET scan! This was my second PET and I am 6 months out of treatment. What a weight has been lifted. God is great. Those word from my great MD, Your scan is Crystal Clear was a pretty overwhelming moment. As only the folks…
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mskitty137 how is everyone?
mskitty137, just checking in to see how you and the hubby are doing?
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Newbies an introduction
Hello, My husband was diagnosed with keratinizing squamous cell carcinoma (hpv negativ) about 6 weeks ago. At the moment, he has unknown primary and to is having a tonsilectomy and neck dissection tomorrow at Vanderbilt. His radiologist does not want to "carpet bomb" his head if they can't find the primary and then will…
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The hits keep coming
So i had my pet scan done on Wednesday. The staff was wondeful and i thoroughly enjoyed my nap in the quiet room. I left feeling super positive about what the results would be. Today i got a call from my dr and it showed nodes on the right affected so now he will do surgery on both sides. On a positive note it hasn't…
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Don't know what to do now.
Hi everyone. Had surgery 3/16 to remove scc tumor from my tongue and 42 lymph nodes. I had the original surgery at Yale in CT and moved to New Hampshire and am receiving follow ups at Dartmouth. At my last appointment with my original doctor I showed him my tongue and how extremely uncomfortable it was and inflamed as…
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SQUAMOUS CELL CARCINOMA, HYPOPHARYNX
Hello everyone, I've just joined and trying to feel out this org. Anyone with the above cancer? Just wanted to see if there were any members with the SCCH so that I maybe able to pick their non-cancerous brain. I'm just selfish that way. This is like a test post to see if it gets posted. So anyone with SCCH? Tak
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Clinical trial of diagnostic potential
https://www.theguardian.com/society/2017/apr/26/dna-based-test-can-spot-cancer-recurrence-a-year-before-conventional-scans I offer no opinion, merely thought the story was relevant.
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How to "crush" thrush?
My husband is 14 weeks post radiation and chemo for SCC and continues to battle with terrible thrush. He uses Nystatin 3 times a day, brushes his tongue, and yet the thrush is winning... I read one member on here purchased over 100 toothbrushes as the thrush can breed on your toothbrush. I also read that others use coconut…
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Neck dissection, dental extractions, and tongue excision coming up..what to expect?
Hello everyone! First I'll start with some basic information about my situation. I'm a29 year old female married with 3 wonderful kids ages 10,2, and 6 weeks. I did smoke and rarely drank. IN September 2016 I was diagnosed with squamous cell carcinoma which presented as a sore on the left side of my tongue. I was 4 months…
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Black Salve
Hi all, I have been doing quite a lot of research into Black Salve in recent months. This stuff was also called Cansema by one manufacturer in the USA who was subsequently shut down and I think jailed with the help of the F & D A. The stuff has a very colorful history. He now does his thing from Equador. All that aside, I…
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Happy Days star Erin Moran died April 22 from throat cancer
I just came across this article which appears on MSN.com today. “Happy Days star Erin Moran died April 22 from throat cancer that had spread to other parts of her body. A few days after her death, her widower Steven Fleischmann shared an open letter detailing Moran’s diagnosis and battle with cancer, Variety reported.…
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Tumor shrinking?
Phew! I've posted a lot lately. But I'm full of questions. My big one is this; does the tumor go away completely? That may sound dumb but I'm slightly worried. My husband had his right lymph node involved and i can still feel it. It's clearly not as sizable as it was at the beginning. I have to push in to feel it. Some…
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What is the cure rate for tonsil cancer hpv
I was just wondering does anyone know how curable tonsil cancer hpv is. I have not heard of anyone having a recurrence with tonsil cancer hpv, I told my husband not to worry, there is no way this cancer can come back 4 months post treatment, am I right? He is just scared after having his first pet scan today. Thanks Linda
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Coconut Oil - an absolute godsend !!!!
Hi there, It's been a very long time since I was here last. This is my 3rd year since treatment for base of tongue cancer. I had 7 weeks radiation and 6 weeks chemo. I have found that the last 6 months or so I have been waking in the middle of the night with my mouth absolutely bone dry, having water by my bed, drinking it…
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5 YEARS AND COUNTING
NED >> CURED >> No Cancer >> whatever you want to call it…. I reached this proverbial (post cancer treatment) milestone and I am happy to still be kicking, after my official ENT visit. Life is certainly different (now); I have a host of new H&N friends and reminders of what has happened to me, some good, and some bad. I…
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Questions regarding neck dissection and dental extractions
Hello everyone, hope all is well! Anyways quick question, I'm having a bi lateral modified radical neck dissection and will need 15 teeth extracted prior to rads/chemo that are following the neck surgery. The surgery scheduler called me the other day and told me my surgery date was going to be on the 17th. I just realized…
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Questions
Had my appt with Chemo Dr today, where she told me I'm not getting enough nutrition, AND, my kidneys couldn't handle another round of Chemo. I'm sorry but I am head over heels elated that I don't get to be poisoned a 3rd time, its been brutal, One week of speeded up feeling like crap, One week of total crap, and One week…
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trying to find the good in the "bad"
Hello Friends, I hope everyone had a good weekend and a good Monday. We are in our first week, day 2 of recovery. So far, it sucks. Not gonna lie or sugar coat it. It just stinks. The euphoria of the last days has wore off and it wore off quickly. The thick mucous is ever present, the choking and gagging is at an all time…
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Has anyone had to get a feeding tube after treat ended?
My husband will finish his treatments on Monday. He was doing pretty good all things considered with eating until this week. The last Cisplatin has kicked his butt and he's having trouble keeping Boost down. He's starting to panic about the possibility of needing a feeding tube. He was able to eat some chicken noodle soup…
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sinus problems question
My husband had stage 4 tonsil cancer back in 2011. he completed chemo and radiation and has been ned since. Recently he has been geeting stuffed up and his sinuses have been draining. He chalked it up to allergies. I finally talked him into going to his ENT. Well the ENT put him on antibiotics - aid his sinuses were really…
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New and looking for some insight.
Hello everyone, My name is Michael, 32 years old and somewhat diagnosed in January of his year. I say somewhat diagnosed because of my "occult primary" presentation. Left cervical lymph nodes so far seem to be all thats been able to be found. I had a direct laryngocscopy from the initial ENT working me up. Fortunately Im…
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Growth behind tonsil
hi all, Im new and haven't been diagnosed. 6 months ago I noticed an oval growth behind my tonsil. I didn't think much of it. My tonsils are always enlarged and I get frequent tonsil stones. I noticed last night it's still there and appears a bit larger. I called the ENT but I can't get in until July 10. I'm so worried.…
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Consider not getting the peg
I just wanted to let people know that my husband Stage 2 base of tongue and tonsil, went through his treatment without the peg after being encouraged to do so by the radiation nurse. This is a good option in you are overweight and can afford to lose 40 -50 lbs. When you rely on the peg it saves you from the discomfort of…
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Small knot on thyroid pain to touch
Has anyone else experienced a knot on the thyroid with pain to touch? I've visited my doctor for an exam and the response was much of the same "nothing to worry about. It's all art of the healing process." I worry with the slightest change constantly wonder what's next. Any suggestions or comments? I have had radiation…
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Solicitation for opinions on probiotics
I am in the middle of a war with my Thrush/Candida on my tongue, and right now I think the Thrush is winning. I am using liquid Nystatin four times daily, applied with religous discipline, and that seems to move it around but not finish it off. I have used 48 of my 144 disposable toothbrushes, and am fanatical on limiting…
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PEG tube Problems
I am having all kinds of problems with my PEG tube which I do have to use now. Pain, drainage, bleeding (surface, not deep). The doc who put it in can't fix it so he sent me to another who promptly nicked it. Now it drains, bleeds, causes pain, and leaks. The doc is talking about replacing it. Anyone have that done…
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Help Interpreting Surgical Pathology Report
Hello All, last week, I had a small mucoepidermoid Carcinoma excised from the left soft palate area. It was described as intermediate grade. The pathologist report came, and now I'm told even though surgical outcome was as clean as i could have hoped for, I'll need radiation. Here is what the surgical pathologists report…
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Last day!! Now what?
Friends, This is a HUGE day for us. My husband's last day of rads is today! At 4 p.m. he will officially be done with the 7 weeks of intense treatment. And I have no idea what to feel. Of course, I feel relief and joy. But... now what? He begins to heal and hopefully he can taste food soon... I know this sounds weird but I…