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Wierd Neck Feelings
Radical Neck Dissection in July of 16. 12 lymph nodes removed, one cancerous (2014 found one lymph node cancerous and it was removed with 2 lymph nodes but the cancer (squamous cell carcinoma) grew back). Was supposed to do 6 weeks, five days a week of radiation but found that I could not tolerate the side effects (for…
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Sticky saliva...what the what?
Hello friends, I hope that everyone is well, feeling good, and getting ready for the summer. We are doing well. We really are. The hubby is back to teaching full time and I am forever impressed and proud of this man. We are in our third week of recovery and some side effects have disappeared and then there are new ones.…
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PEG Removal
Well today I hit the fifth week post treatment (35 rads/Cisplatin). After a rough first couple of weeks, I now haven't used my tube in over a week. I am scheduled to have the PEG removed Tuesday. Hard to imagine as dependent as I was on it, even a few weeks ago. I still drink Ensure as needed, but am getting most calories…
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Dental Problems and Persistent Lynph Nodes
Hey all, I'm glad I found a site where I can ask people who know what they are talking about. Anyways, I just turned 26 years old and I have had a few broken teeth (wisdom and molars) for a number of years. This may be unrelated, but I've had a blocked ear for about 7 months... sometimes it unpops for a few minutes but…
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any very long term survivors here of Nasopharyngeal cancer?
Hi I was wondering if there were any long term survivors here. I am 16 years post nasopharngeal cancer treatment chemo and rads from the UK. I have had countless problems from the treatment in the form of late onset comlicationsand seem to go through cyles of them appearing. I am currently ulcerating at the old tumour…
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Obstructive Sleep Apnia
Has anyone suffered from OSA because of cancer related growths impeded air flow?
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Peg tube hole.
How long is it supposed to take to fully close? Mine isn't healed yet and it's two weeks out, today. It's definitely smaller and looks like it's healing. Doesn't look like anything is wrong. When she pulled it out she said it would close up in a couple days. I do have some of that granulation tissue and I asked about that…
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And so it begins...
well, it has officially begun. Hubby is currently getting his first radiation treatment. One down and 35 to go. Tomorrow is the first of seven chemo treatments. Not sure how I am feeling at the moment ...
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esophagus dialation (throat stretching)
Hi everyone, I am almost 4 months post treatment and still losing weight. Most solid food is rough to get down, I rely on liquid by mouth and small quantities of soft food for nourishment.I dropped from 180# down to 138# and can't seem to gain any. My ENT suggested throat stretching,has anyone had any experience with this…
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Alcohol
Hi all, just wondering what discussions if any you have had with your Doctors regarding having any kind of alcoholic drinks. I am 4 months post treatment and other than some champagne on New Years have not had even a beer since way back in May of last year. I know to avoid any mouthwash containing alcohol but am not sure…
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First step down
Hello everyone! I hope everyone is doing well. So had my surgery Friday and things are going good. It took 9 hours to do my teeth, tongue, and bilateral neck dissection but im feeling much better than I thought I would and will probably go home today! Some good news, what they tested in the operating room from my tongue…
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Swollen tongue 15 weeks post
My husband woke me up at 5:00 AM to tell me the left side of his tongue is swollen. It is on the side where he received the radiation. Wow, just when we thought things were heading in the right direction... So, because it is a Saturday, I called the emergency oncologist on call. He asked a million questions like: new meds?…
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Breakthru on the Thrusian front
My infestation of tongue Thrush/Candida is finally in retreat. This offensive began with a 3 week application of Nystatin only, and then 10 days ago Diflucan (fluconazole) was deployed to reenforce the Nystatin. The Nystatin-only approach did not produce the desired results (no Thrush), but did seem to limit its advance.…
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Hair Loss
I am a 74 year old female, 4 months finished with low dose radiation around neck for HPV-OPC, no chemo or surgery. Pet scan showed no further cancer. For about the last month my scalp has become very itchy and my hair, normally quite thick, is falling out. I went to my dermatologist who said she could see no cause for…
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I'm on cloud 9 today
I've had hypopharyngeal SCC and been NED for about a month, rad and kemo applied. I don't know why but today I feel like I'm on cloud 9 in a long time, about 6 mo. No pain, no discomfort. My depression is gone, feel happy and want to do things. Have full of energy, hungry and want to eat the world. I want to socialize.…
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NED
Good evening everyone. I just dropped in to say that I just had my first NED (no evidence of disease) PET scan! This was my second PET and I am 6 months out of treatment. What a weight has been lifted. God is great. Those word from my great MD, Your scan is Crystal Clear was a pretty overwhelming moment. As only the folks…
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mskitty137 how is everyone?
mskitty137, just checking in to see how you and the hubby are doing?
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Newbies an introduction
Hello, My husband was diagnosed with keratinizing squamous cell carcinoma (hpv negativ) about 6 weeks ago. At the moment, he has unknown primary and to is having a tonsilectomy and neck dissection tomorrow at Vanderbilt. His radiologist does not want to "carpet bomb" his head if they can't find the primary and then will…
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The hits keep coming
So i had my pet scan done on Wednesday. The staff was wondeful and i thoroughly enjoyed my nap in the quiet room. I left feeling super positive about what the results would be. Today i got a call from my dr and it showed nodes on the right affected so now he will do surgery on both sides. On a positive note it hasn't…
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Don't know what to do now.
Hi everyone. Had surgery 3/16 to remove scc tumor from my tongue and 42 lymph nodes. I had the original surgery at Yale in CT and moved to New Hampshire and am receiving follow ups at Dartmouth. At my last appointment with my original doctor I showed him my tongue and how extremely uncomfortable it was and inflamed as…
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SQUAMOUS CELL CARCINOMA, HYPOPHARYNX
Hello everyone, I've just joined and trying to feel out this org. Anyone with the above cancer? Just wanted to see if there were any members with the SCCH so that I maybe able to pick their non-cancerous brain. I'm just selfish that way. This is like a test post to see if it gets posted. So anyone with SCCH? Tak
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Clinical trial of diagnostic potential
https://www.theguardian.com/society/2017/apr/26/dna-based-test-can-spot-cancer-recurrence-a-year-before-conventional-scans I offer no opinion, merely thought the story was relevant.
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How to "crush" thrush?
My husband is 14 weeks post radiation and chemo for SCC and continues to battle with terrible thrush. He uses Nystatin 3 times a day, brushes his tongue, and yet the thrush is winning... I read one member on here purchased over 100 toothbrushes as the thrush can breed on your toothbrush. I also read that others use coconut…
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Neck dissection, dental extractions, and tongue excision coming up..what to expect?
Hello everyone! First I'll start with some basic information about my situation. I'm a29 year old female married with 3 wonderful kids ages 10,2, and 6 weeks. I did smoke and rarely drank. IN September 2016 I was diagnosed with squamous cell carcinoma which presented as a sore on the left side of my tongue. I was 4 months…
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Black Salve
Hi all, I have been doing quite a lot of research into Black Salve in recent months. This stuff was also called Cansema by one manufacturer in the USA who was subsequently shut down and I think jailed with the help of the F & D A. The stuff has a very colorful history. He now does his thing from Equador. All that aside, I…
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Happy Days star Erin Moran died April 22 from throat cancer
I just came across this article which appears on MSN.com today. “Happy Days star Erin Moran died April 22 from throat cancer that had spread to other parts of her body. A few days after her death, her widower Steven Fleischmann shared an open letter detailing Moran’s diagnosis and battle with cancer, Variety reported.…
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Tumor shrinking?
Phew! I've posted a lot lately. But I'm full of questions. My big one is this; does the tumor go away completely? That may sound dumb but I'm slightly worried. My husband had his right lymph node involved and i can still feel it. It's clearly not as sizable as it was at the beginning. I have to push in to feel it. Some…
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What is the cure rate for tonsil cancer hpv
I was just wondering does anyone know how curable tonsil cancer hpv is. I have not heard of anyone having a recurrence with tonsil cancer hpv, I told my husband not to worry, there is no way this cancer can come back 4 months post treatment, am I right? He is just scared after having his first pet scan today. Thanks Linda
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Coconut Oil - an absolute godsend !!!!
Hi there, It's been a very long time since I was here last. This is my 3rd year since treatment for base of tongue cancer. I had 7 weeks radiation and 6 weeks chemo. I have found that the last 6 months or so I have been waking in the middle of the night with my mouth absolutely bone dry, having water by my bed, drinking it…
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5 YEARS AND COUNTING
NED >> CURED >> No Cancer >> whatever you want to call it…. I reached this proverbial (post cancer treatment) milestone and I am happy to still be kicking, after my official ENT visit. Life is certainly different (now); I have a host of new H&N friends and reminders of what has happened to me, some good, and some bad. I…