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Rads away from home
For those of you who had your treatment away from your home base, what did you do about follow up once you were home and needed help with side effects?
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Gall bladder removed
Finished my cancer treatments last August and had my peg pulled on Nov. 2016. Have been clean but about 7 weeks ago had what turned out to be a gall bladder attack and then another 4 weeks later. After an ultrasound and HIBA scan, turns out my gall bladder was toast. Has it removed laproscopically 2 weeks ago and surgeon…
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High creatinine and calcium levels
Davids CT scan results back and no obstruction. What thy did find is very high calcium level 15.0 (normal 8-10) and very high creatinine levels. They seem very worried and are moving him to the Markey Cancer Center. The want to know why the levels are up and have to get them down. They seem a lot more concerned then when…
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Clear PET, but new issue
My husband fought the battle and in mid April was told he is all clear. BUT yesterday his throat became sore which was alarming. He can now swallow only very soft items. No pills will go down. Has anyone else had a similar experience? I'm not sure if he has an old fashioned sore throat or if things are changing due to…
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I WISH...
I have been coming here since my husband was diagnosed with SCC on the base of his tongue back in October. I got wonderful advice, and feel like I have made so many friends along the way, yet don't know anyone personally. I WISH we had a huge home on the water so that we could invite everyone on here to come and spend some…
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Week 6 post radiation. Tried solid food today.
First up a small meat ball. Then at teatime a carrot and sausage with gravy. Hoping this is the beginning of a return to some kind of normalcy.
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A little concerned
Im 3 weeks from finishing treatment, and about 9 before PET scan, and i have a lumpy, temder lymph nodeon the left side, in the same place. Im so scared it hasnt gone away, what do I do?
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ROLL CALL 2017 - UPDATED APRIL 21, 2017 CLOSED
ROLL CALL 2017 3rd Updated April 21, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
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Bone Pain post treatment
CSN members having NPC. Do any of you have a reucrring numbing bone pain post treatment and supported by NED? this is driving me crazy and making me a little anxious. i am a SII NPC with 35 rounds rads and cisplatin. about 1.5 years out. A few months ago I started having a dull bone pain. PET scan shows NED. However, I can…
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Cold / Allergy Symptoms
Hi Everyone, my husband is just starting his third week of treatment. He's been doing really well, but a couple days ago we both came down with terrible allergy / cold symptom. When he said something to the doctor, they said it was all side effects of radiation. I have a hard time believing this since I have the same…
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Port or no?
Hi everyone! Just curious what your thoughts are about having a port versus not having one? Needles don't bother me at all but from what I've read on here they are worth it and my Dr would like me to get one also but its my choice. Also, feeding tube thoughts? Dr says if I lose 10% of body weight its mandatory and they…
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EGD...success or fails
Ive had 11 procedures and still cannot swallow much...mainly scrambled eggs,soups,Mac and cheese,ice cream and mashed sweet potatoes. Has anyone had better results?
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Early in Treatment, symptoms are starting to creep in.
I have now completed 8 of 35 rads and 2 of 7 cisplatin treatments. I am starting to feel a few side effects like a slightly sore throat, fatigue, mouth is starting to dry and taste is starting to fade a little bit. None of those are not managable as of yet. So far so good there. One side effect of concern is all of a…
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hpv tonsillar cancer
So a couple questions Would any one recc that i just get the needle biopsy and or other non invasive test to see if my left tonsillar redness swelling and feeling of a pea size area in the base of my left tonsil is hpv related ssc ? i did get a ct scan and yes they see maybe perhaps they say a 1.8 x 1.6 cm size possible…
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FOUND A LUMP ON MY NECK
On the morning of February 3rd 2017, after brushing my teeth, I looked up in the mirror and saw a lump on the left side of my neck. Immediately felt that this was serious and not just a swollen gland. Just a gut feeling but very scary. Naturally, it was the weekend so had to wait till Monday February 6th to made an…
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36 Rads
Just an observation... seems the standard is 35 rads. I wonder why they are having my husband do 36 . I don't know how many GYs.
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24 years old Nose Cancer
Hi guys, I'm currently 24 and is diagnosed with Stage 3 NasoPharyngeal Carcinoma. I'm at my 25th radiotherapy and 5th chemo session. The doctors expect me to finish 33 radio sessions with chemo once a week for 7 weeks and then a one month break. Currently im on Cisplatin. After one month, im due to go for 8 more chemo…
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Ultrasound
Did anyone have an ultrasound as part of the monitoring of a residual note post chemo/radiation?
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Skin Post Radiation
My husband is 5 weeks post chemo radiation for SCC BOT cancer. On his chin he has recently developed some small blister/acne type lesions. No oozing yet but at least one of them seems to be developing what looks like a pocket of fluid or swelling under it. Did this happen to anyone? We don't see our medical team for a few…
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Feeling Scared and Hopeless
Hello, I need to begin by saying that I have not yet been diagnosed with any form of H&N cancer. I have been reading this board for several weeks, and I am amazed and deeply moved by the truly inspiring and heartbreaking stories I have read on here. You have all been through so much and are an inspiration to everyone who…
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Strange success in killing off Thrush
I am now in month two of a war on my mouth Thrush/Candida infestation. I have consulted experts, used many prescriptions, read many blogs, tried a bunch of folk remedies, conducted basic research in organic chemistry. I was making no better than minimal progress until I semi-randomly turned up a reference to this product:…
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To work or not?
I had my surgery on 5/5 and feel great. Im back to doing everything I was before and I was wondering if you guys thought it would be unwise to return to work. I'm stage 4 SCC and will be doing rads and chemo soon but I would only be working 2 days a wise. I'm a manager at a hotel and will only be checking behind…
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It's me...AGAIN!! Food for thought? But, really...I need ideas
So we are ending the 4th week of recovery and all is well. Terry is starting to look like himself again, his voice is almost back to normal and the gross, thick mucous is all but gone! The best part is some of his taste is already coming back. Salty foods have a taste, sweet; not so much. He still has his PEG in and I am…
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Mom's 3 month Scan and Recovery Questions
Hello Everyone, I posted a while back about my Mom's journey. She is currently 3 months out and doing okay. She got her first pet scan this week and the results came back positive, still some inflammation from the radiation but her original laryngeal cancner (T3N1M0 HPV+) is gone as well as the lymph node that was…
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1st follow up appt with ENT tomorrow
My hubby has his first post treatment ENT follow up appointment Thursday. Supposedly he will be scoped. What will the doctor be looking for exactly? For some reason, I'm very nervous about the appointment. Think it will be a xanax kind of morning.
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CAT scan? Is that typical?
Hello H&N friends, I hope everyone had a good weekend and got through Monday! I am back with another question; shocking, I know :) My husband is scheduled for a CAT scan on Thursday. He rememembers the rads oncologist telling us that he would do one after treatments but honestly it was our very first meeting with him and I…
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sweet and spicy foods
It has been 8 years since I had chemo and rads for my throat cancer. Side effects from the start were neuropathy in my feet and tinnitus, little dry mouth but not much. As of the past few weeks my mouth has gotten a lot dryer but manageable. Tried some spicy wings a couple of weeks ago and it immediately burned the soft…
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What is Physiologic uptake in the neck?
I just had a PET scan and my reults says "Physiologic uptake in the neck". What is this?
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My First Treatment Yesterday
Ok, I had my first of 35 radiation treatments and first of 7 weekly cisplatin treatments for SCC unknown primary. The radiation went well and the mask was tolerable, so far. When I finished the Cisplatin I felt good. I started getting nauseous last night about five hours after I got home. I took my compazine as prescribed.…
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Stage 2 SCC of tongue with mets to lymph node
Met with Oncologist Dr. McGaw today for the results of the PET scan. He said that I would only need to be treated with Radiation and no Chemotherapy. I asked what stage I was in and he looked through his notes and said Stage 2. I questioned why only Radiation and he replied that he was surprised at that determination as…