-
Stage 2 SCC of tongue with mets to lymph node
Met with Oncologist Dr. McGaw today for the results of the PET scan. He said that I would only need to be treated with Radiation and no Chemotherapy. I asked what stage I was in and he looked through his notes and said Stage 2. I questioned why only Radiation and he replied that he was surprised at that determination as…
-
Job Training - Dive in or Sit Back
My DH was just dx with SCC at the BOT - he's scheduled for surgery on Friday. The good news is that the ENT says the area is small, so we are (hopefully) not looking at losing any or much of the tongue itself. If recovery from surgery goes well, he would be starting rad around 6-8 weeks from now. If the surgery doesn't go…
-
bladder cancer
i had a high grade malignant tumor removed from my bladder 2 weeks ago it was superficial i have another TURB in 2 weeks then start chemo for the cancer i know these tumors come back does this mean i will never be cancer free and have worry all the time if its growing back and spreading doctor said i would have to have it…
-
Allergy Sufferers
I am six weeks post treatment and my seasonal allergies are starting to kick in. I am finding that the post nasal drip, stuffiness, and congestion are compounding my treatment side effects. My throat seems more swollen which is making eating a little more challenging. Have any of you found yourselves in the same boat, and…
-
Another newbie joining the club.
Hi everyone, Keith here. 48 1/2 year old male. Not a club I wanted to join, but here I am. Back in early April I was DX with base of tougue stage 4 SCC, HPV+ T3N2CM0. I have been lurking here reading a lot and learning a lot. The last few weeks have been a mental and physical rollercoaster. CT scans, PET scan, MRI, Dental…
-
Buffets
Why do so many of you like buffets? If you can't eat much, you don't get your money's worth.
-
Proton vs Tomo
We are fortunate enough to live somewhat close to facilities that offer both types of radiation. Any thoughts on which is better?
-
For amusement value only.. (Mothers Day tale)
.. as I said, amusement value only, as in say, a Mothers Day gift from me to you :) In 2009, Kyle and I lost our German Shepherd, Wildfyre, to something called Dengenerative Mylopathy, basically DM, isthe canine verson of MS for Dogs. It wasn't pretty. I took her to the vets for pain meds, and didnt come home with her. We…
-
SCC of lymph node, unknown primary -- need RAD experience, and advice on recurrence
I'll try to keep this somewhat short, but don't know how successful I will be. My Dad was recently diagnosed with SCC when a lymph node became inflamed in a matter of weeks. Had neck dissection about 4 weeks ago -- about 50 surrounding lymph nodes, left tonsil and BOT came back negative (HPV/P16 negative as well). Tumor…
-
Questions to ask before meeting treatment doctors
Hello everyone! Hope everybody is doing well and enjoyex a good Mothers day. I had my surgery on 5/5 and everything went great. Im meeting with all my doctors soon and i was wondering what questions i should ask or anything i should request to do pre treatment. Already done hearind test, bloodwork, and dental Thanks!
-
newbie
Hello everyone, My name is Jim and was diagnosed with squamous cell carcinoma of my right tonsil on January 6 after experiencing a Mini stroke. When checking my carotid arteries after the mini stroke they found a mass on a lymph node on right side of neck. I had a neck dissection on February 28 to remove 30 lymphnodes and…
-
Hypoglossal nerve damage. Any experience with regeneration/healing?
Hi, I underwent a radical neck dissection on February 9, 2107. During the surgery it was discovered that my primary tumor was spreading an off-colored liquid onto the submandibular gland (which had taken on the color of the liquid) - so my submandibular gland was removed immediately. I now have the symptoms of hypoglossal…
-
Neck swelling/knots in morning on side I sleep on.
Hi all and Happy Mother's Day to all the Mom's. I'm about a year out of Chemo/Rad for Stage 3 NPC. Had shingles on right side upper chest and front/back shoulder in January, since Ive had 1 not smallish feeling hard lymph node on that side. But...also now when I wake up my neck is swollen in the mornings depending on which…
-
Well, thats it (for now)
Finished Radiation Thursday 4 th, May, saw ENT on Friday 5th. I was told I'll keep cooking for another 2 to 3 weeks, and I'll be in PAIN. than, I'll start to feel better, day at a time. I'll see ENT every month, at 3 months, I'll get a repeat PET scan, thenif there is anything left, it'll be sliced and diced. (if my…
-
Wierd Neck Feelings
Radical Neck Dissection in July of 16. 12 lymph nodes removed, one cancerous (2014 found one lymph node cancerous and it was removed with 2 lymph nodes but the cancer (squamous cell carcinoma) grew back). Was supposed to do 6 weeks, five days a week of radiation but found that I could not tolerate the side effects (for…
-
Sticky saliva...what the what?
Hello friends, I hope that everyone is well, feeling good, and getting ready for the summer. We are doing well. We really are. The hubby is back to teaching full time and I am forever impressed and proud of this man. We are in our third week of recovery and some side effects have disappeared and then there are new ones.…
-
PEG Removal
Well today I hit the fifth week post treatment (35 rads/Cisplatin). After a rough first couple of weeks, I now haven't used my tube in over a week. I am scheduled to have the PEG removed Tuesday. Hard to imagine as dependent as I was on it, even a few weeks ago. I still drink Ensure as needed, but am getting most calories…
-
Dental Problems and Persistent Lynph Nodes
Hey all, I'm glad I found a site where I can ask people who know what they are talking about. Anyways, I just turned 26 years old and I have had a few broken teeth (wisdom and molars) for a number of years. This may be unrelated, but I've had a blocked ear for about 7 months... sometimes it unpops for a few minutes but…
-
any very long term survivors here of Nasopharyngeal cancer?
Hi I was wondering if there were any long term survivors here. I am 16 years post nasopharngeal cancer treatment chemo and rads from the UK. I have had countless problems from the treatment in the form of late onset comlicationsand seem to go through cyles of them appearing. I am currently ulcerating at the old tumour…
-
Obstructive Sleep Apnia
Has anyone suffered from OSA because of cancer related growths impeded air flow?
-
Peg tube hole.
How long is it supposed to take to fully close? Mine isn't healed yet and it's two weeks out, today. It's definitely smaller and looks like it's healing. Doesn't look like anything is wrong. When she pulled it out she said it would close up in a couple days. I do have some of that granulation tissue and I asked about that…
-
And so it begins...
well, it has officially begun. Hubby is currently getting his first radiation treatment. One down and 35 to go. Tomorrow is the first of seven chemo treatments. Not sure how I am feeling at the moment ...
-
esophagus dialation (throat stretching)
Hi everyone, I am almost 4 months post treatment and still losing weight. Most solid food is rough to get down, I rely on liquid by mouth and small quantities of soft food for nourishment.I dropped from 180# down to 138# and can't seem to gain any. My ENT suggested throat stretching,has anyone had any experience with this…
-
Alcohol
Hi all, just wondering what discussions if any you have had with your Doctors regarding having any kind of alcoholic drinks. I am 4 months post treatment and other than some champagne on New Years have not had even a beer since way back in May of last year. I know to avoid any mouthwash containing alcohol but am not sure…
-
First step down
Hello everyone! I hope everyone is doing well. So had my surgery Friday and things are going good. It took 9 hours to do my teeth, tongue, and bilateral neck dissection but im feeling much better than I thought I would and will probably go home today! Some good news, what they tested in the operating room from my tongue…
-
Swollen tongue 15 weeks post
My husband woke me up at 5:00 AM to tell me the left side of his tongue is swollen. It is on the side where he received the radiation. Wow, just when we thought things were heading in the right direction... So, because it is a Saturday, I called the emergency oncologist on call. He asked a million questions like: new meds?…
-
Breakthru on the Thrusian front
My infestation of tongue Thrush/Candida is finally in retreat. This offensive began with a 3 week application of Nystatin only, and then 10 days ago Diflucan (fluconazole) was deployed to reenforce the Nystatin. The Nystatin-only approach did not produce the desired results (no Thrush), but did seem to limit its advance.…
-
Hair Loss
I am a 74 year old female, 4 months finished with low dose radiation around neck for HPV-OPC, no chemo or surgery. Pet scan showed no further cancer. For about the last month my scalp has become very itchy and my hair, normally quite thick, is falling out. I went to my dermatologist who said she could see no cause for…
-
I'm on cloud 9 today
I've had hypopharyngeal SCC and been NED for about a month, rad and kemo applied. I don't know why but today I feel like I'm on cloud 9 in a long time, about 6 mo. No pain, no discomfort. My depression is gone, feel happy and want to do things. Have full of energy, hungry and want to eat the world. I want to socialize.…
-
NED
Good evening everyone. I just dropped in to say that I just had my first NED (no evidence of disease) PET scan! This was my second PET and I am 6 months out of treatment. What a weight has been lifted. God is great. Those word from my great MD, Your scan is Crystal Clear was a pretty overwhelming moment. As only the folks…