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Feeling Scared and Hopeless
Hello, I need to begin by saying that I have not yet been diagnosed with any form of H&N cancer. I have been reading this board for several weeks, and I am amazed and deeply moved by the truly inspiring and heartbreaking stories I have read on here. You have all been through so much and are an inspiration to everyone who…
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Strange success in killing off Thrush
I am now in month two of a war on my mouth Thrush/Candida infestation. I have consulted experts, used many prescriptions, read many blogs, tried a bunch of folk remedies, conducted basic research in organic chemistry. I was making no better than minimal progress until I semi-randomly turned up a reference to this product:…
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To work or not?
I had my surgery on 5/5 and feel great. Im back to doing everything I was before and I was wondering if you guys thought it would be unwise to return to work. I'm stage 4 SCC and will be doing rads and chemo soon but I would only be working 2 days a wise. I'm a manager at a hotel and will only be checking behind…
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It's me...AGAIN!! Food for thought? But, really...I need ideas
So we are ending the 4th week of recovery and all is well. Terry is starting to look like himself again, his voice is almost back to normal and the gross, thick mucous is all but gone! The best part is some of his taste is already coming back. Salty foods have a taste, sweet; not so much. He still has his PEG in and I am…
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Mom's 3 month Scan and Recovery Questions
Hello Everyone, I posted a while back about my Mom's journey. She is currently 3 months out and doing okay. She got her first pet scan this week and the results came back positive, still some inflammation from the radiation but her original laryngeal cancner (T3N1M0 HPV+) is gone as well as the lymph node that was…
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1st follow up appt with ENT tomorrow
My hubby has his first post treatment ENT follow up appointment Thursday. Supposedly he will be scoped. What will the doctor be looking for exactly? For some reason, I'm very nervous about the appointment. Think it will be a xanax kind of morning.
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CAT scan? Is that typical?
Hello H&N friends, I hope everyone had a good weekend and got through Monday! I am back with another question; shocking, I know :) My husband is scheduled for a CAT scan on Thursday. He rememembers the rads oncologist telling us that he would do one after treatments but honestly it was our very first meeting with him and I…
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sweet and spicy foods
It has been 8 years since I had chemo and rads for my throat cancer. Side effects from the start were neuropathy in my feet and tinnitus, little dry mouth but not much. As of the past few weeks my mouth has gotten a lot dryer but manageable. Tried some spicy wings a couple of weeks ago and it immediately burned the soft…
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What is Physiologic uptake in the neck?
I just had a PET scan and my reults says "Physiologic uptake in the neck". What is this?
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My First Treatment Yesterday
Ok, I had my first of 35 radiation treatments and first of 7 weekly cisplatin treatments for SCC unknown primary. The radiation went well and the mask was tolerable, so far. When I finished the Cisplatin I felt good. I started getting nauseous last night about five hours after I got home. I took my compazine as prescribed.…
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Stage 2 SCC of tongue with mets to lymph node
Met with Oncologist Dr. McGaw today for the results of the PET scan. He said that I would only need to be treated with Radiation and no Chemotherapy. I asked what stage I was in and he looked through his notes and said Stage 2. I questioned why only Radiation and he replied that he was surprised at that determination as…
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Job Training - Dive in or Sit Back
My DH was just dx with SCC at the BOT - he's scheduled for surgery on Friday. The good news is that the ENT says the area is small, so we are (hopefully) not looking at losing any or much of the tongue itself. If recovery from surgery goes well, he would be starting rad around 6-8 weeks from now. If the surgery doesn't go…
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bladder cancer
i had a high grade malignant tumor removed from my bladder 2 weeks ago it was superficial i have another TURB in 2 weeks then start chemo for the cancer i know these tumors come back does this mean i will never be cancer free and have worry all the time if its growing back and spreading doctor said i would have to have it…
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Allergy Sufferers
I am six weeks post treatment and my seasonal allergies are starting to kick in. I am finding that the post nasal drip, stuffiness, and congestion are compounding my treatment side effects. My throat seems more swollen which is making eating a little more challenging. Have any of you found yourselves in the same boat, and…
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Another newbie joining the club.
Hi everyone, Keith here. 48 1/2 year old male. Not a club I wanted to join, but here I am. Back in early April I was DX with base of tougue stage 4 SCC, HPV+ T3N2CM0. I have been lurking here reading a lot and learning a lot. The last few weeks have been a mental and physical rollercoaster. CT scans, PET scan, MRI, Dental…
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Buffets
Why do so many of you like buffets? If you can't eat much, you don't get your money's worth.
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Proton vs Tomo
We are fortunate enough to live somewhat close to facilities that offer both types of radiation. Any thoughts on which is better?
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For amusement value only.. (Mothers Day tale)
.. as I said, amusement value only, as in say, a Mothers Day gift from me to you :) In 2009, Kyle and I lost our German Shepherd, Wildfyre, to something called Dengenerative Mylopathy, basically DM, isthe canine verson of MS for Dogs. It wasn't pretty. I took her to the vets for pain meds, and didnt come home with her. We…
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SCC of lymph node, unknown primary -- need RAD experience, and advice on recurrence
I'll try to keep this somewhat short, but don't know how successful I will be. My Dad was recently diagnosed with SCC when a lymph node became inflamed in a matter of weeks. Had neck dissection about 4 weeks ago -- about 50 surrounding lymph nodes, left tonsil and BOT came back negative (HPV/P16 negative as well). Tumor…
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Questions to ask before meeting treatment doctors
Hello everyone! Hope everybody is doing well and enjoyex a good Mothers day. I had my surgery on 5/5 and everything went great. Im meeting with all my doctors soon and i was wondering what questions i should ask or anything i should request to do pre treatment. Already done hearind test, bloodwork, and dental Thanks!
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newbie
Hello everyone, My name is Jim and was diagnosed with squamous cell carcinoma of my right tonsil on January 6 after experiencing a Mini stroke. When checking my carotid arteries after the mini stroke they found a mass on a lymph node on right side of neck. I had a neck dissection on February 28 to remove 30 lymphnodes and…
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Hypoglossal nerve damage. Any experience with regeneration/healing?
Hi, I underwent a radical neck dissection on February 9, 2107. During the surgery it was discovered that my primary tumor was spreading an off-colored liquid onto the submandibular gland (which had taken on the color of the liquid) - so my submandibular gland was removed immediately. I now have the symptoms of hypoglossal…
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Neck swelling/knots in morning on side I sleep on.
Hi all and Happy Mother's Day to all the Mom's. I'm about a year out of Chemo/Rad for Stage 3 NPC. Had shingles on right side upper chest and front/back shoulder in January, since Ive had 1 not smallish feeling hard lymph node on that side. But...also now when I wake up my neck is swollen in the mornings depending on which…
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Well, thats it (for now)
Finished Radiation Thursday 4 th, May, saw ENT on Friday 5th. I was told I'll keep cooking for another 2 to 3 weeks, and I'll be in PAIN. than, I'll start to feel better, day at a time. I'll see ENT every month, at 3 months, I'll get a repeat PET scan, thenif there is anything left, it'll be sliced and diced. (if my…
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Wierd Neck Feelings
Radical Neck Dissection in July of 16. 12 lymph nodes removed, one cancerous (2014 found one lymph node cancerous and it was removed with 2 lymph nodes but the cancer (squamous cell carcinoma) grew back). Was supposed to do 6 weeks, five days a week of radiation but found that I could not tolerate the side effects (for…
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Sticky saliva...what the what?
Hello friends, I hope that everyone is well, feeling good, and getting ready for the summer. We are doing well. We really are. The hubby is back to teaching full time and I am forever impressed and proud of this man. We are in our third week of recovery and some side effects have disappeared and then there are new ones.…
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PEG Removal
Well today I hit the fifth week post treatment (35 rads/Cisplatin). After a rough first couple of weeks, I now haven't used my tube in over a week. I am scheduled to have the PEG removed Tuesday. Hard to imagine as dependent as I was on it, even a few weeks ago. I still drink Ensure as needed, but am getting most calories…
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Dental Problems and Persistent Lynph Nodes
Hey all, I'm glad I found a site where I can ask people who know what they are talking about. Anyways, I just turned 26 years old and I have had a few broken teeth (wisdom and molars) for a number of years. This may be unrelated, but I've had a blocked ear for about 7 months... sometimes it unpops for a few minutes but…
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any very long term survivors here of Nasopharyngeal cancer?
Hi I was wondering if there were any long term survivors here. I am 16 years post nasopharngeal cancer treatment chemo and rads from the UK. I have had countless problems from the treatment in the form of late onset comlicationsand seem to go through cyles of them appearing. I am currently ulcerating at the old tumour…
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Obstructive Sleep Apnia
Has anyone suffered from OSA because of cancer related growths impeded air flow?