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What have you heard from your docs???
My husband was treated at MD Anderson for Nasopharyngeal Cancer. Stage IVC mets to lymph nodes and liver at diagnosis. He has been NED since finishing treatment Feb 2011. He just had Pet and MRI. Per our Dr, from studies done there, with patients at my husbands stage, 5 year survival is 10%., anyone at this stage have…
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Pain control
Hi Everyone, I'm new to the forums and posted about a week ago. My biopsies were inconclusive and the cancer grew in my neck for a year prior to selective neck dissection which basically removed everything but internal carotid. Surgeon said I had high 80 s chance of survival with chemoradiation, but first TORS to remove…
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Diagnosed with squamous today
Diagnosed today with squamous cancer. Growth on my tonsil could be from HPV virus. Will not find out out until I get pet scan done sometime next week. I am so scared but trying to be positive. how do I explain to my 16 yr old daughter?
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Mom- 7 months Post, PET/Biopsy
Hello Everyone, I posted a little while back talking about my Mom. She had Stage III T3N1MO, Laryngeal Cancer, hpv +. She received chemo and radiation for 7 weeks and finished in February 2017. She had her first PET/CT in May 2017, and that came back encouraging, significantly decreased uptake. She had another PET/CT a…
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Mugard
Hi, I am going to start a ten week program of continues 5 fu and 50 doses rad for tonsil cancer. I have read great things about mugard for mouth issues. Has anyone tried it? experiances? Any feedback would be great! Thanks in advance. John
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Mucoepidermoid Carcinoma Low Grade
I was diagnosed with MEC Low Grade on my soft palate. I have now had surgery and have been healing for a month. I have a oral nasal fistula about 5-6mm. I will be visiting a specialized dentist to make me a Palatal obturator. I was curious if this heals on its own with time. Chemo and radiation are not recommended since…
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The whole Natural medicine thing
Every now and then this site gets me thinking about something and I end up going for a dig. Today, why actually is "recovery". First stop - placebos. It sort of plays on the positive mental attitude thing. I'm personally sort of sceptical - wishing away my mucosites didn't have much affect; end of radiation treatment, and…
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Still taking pain meds?
Just wondering how long you all were taking pain meds after treatment finished. My husband had 2 rounds of cisplatin and 30 days of rads for tonsillar ca. He finished about 7 1/2 weeks ago and still has some pain for which he uses liquid norco - about equivalent to a 7.5mg Norco 3-4 times a day. He finished his rx last…
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Yearly scans
Hi, I am a year out from my second surgery for scc on my tongue. The first didn't require anything other than surgery and some nodes removed as my margins were clear. 2 years out from that, i was diagnosed with scc at the base of my tongue which was more involved and included a reconstructed tongue, nodes taken from both…
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Cancer newbie and Wedding newbie
Hello all, My name is Elaine. Glad to be here and to have found this site. I've been looking around and it seems great so far. Loving all the feedback people give. I am 25 with a rare cancer in the parotid gland. The cancer is called Lymphoepithelial carcinoma. I'm also EBV+. We are taking the aggressive approach and hope…
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Hi Everybody....
Thought I'd start a new thread cuz the other one is getting too long.... :) . After my 4th infusion of Keytruda, I went on a week long jaunt with girlfriends to the Oregon Coast....felt great the whole trip! I wish I trusted a drug that doesn't make me suffer....preferably just a little suffering, like tired for 3 days,…
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Nasel biopsy gone wrong need help please
aftee 7 months of sores in my nose finally got a biopsy. The ENT biopsies thewrong ple. About 3 mm off from where the sore was on my septum left side. I don't know what to do. My worst fear came true. It is small but has been crusting over and then getting a white patch on it and then bleeding a little and then starts all…
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Swallowing
Hello! I had part of the back of my tongue removed on July 20. I have started PT/OT for speech/swallowing. I'm very scared I will never be able to eat or drink liquids. Anyone have suggestions. I'm also having issues the the supplement. I've tried Nutren 2.0 and now using osmolite 1.5. Im having trouble maintaining my…
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Hi. I'm new here
Hi. I was just diagnosed with stage IV tonsil cancer. It has not completely sunk in yet. Everything is coming at me so fast. They say I will need both radiation and chemo. Just got appointments to see those doctors. I live 4 hours from university of michigan hospital, where I am planning on getting treatments. I have…
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Your average, run of the mill tongue tumor (longish)
My history is SCC of the tongue, right side, relatively small removed March 2016 along with 42 lymph nodes all clear, clean margins. I had no chemo and no radiation for which I am extremely grateful, but I do have some problems and wonder if there are any others in my situation. I realize that no two surgeries or tumors…
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Famm flap
Famm flap Hi. I am new to this group. I have received a famm flap and am not to happy. I received it January 2017. I am still on a liquid diet. I have seen several dentists to try to get my bottom partial in. None of them could help me because my famm flap has been sewn in the area where a tooth would have resided. In…
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Reoccurrence in lymph node
Does anyone have any experience with occurrence after rads and chemo? My husband had tonsil cancer HPV + and finished treatment in October of last year. There was node involvement so but no distant disease. His 3 month PET was NED but they did find he had a serious pneumonia during that scan that went undetected and he had…
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AND HERE IT IS!
Nodes came back clean, and this afternoon my wonderful, wonderful ENT Dr Chan told me, I am considered cancer free, so go out and live a long and happy life. He tried to shake my hand.. hell no, he saved my life, he got a huge hug! Thank You everyone, I was such a total noobie when I first found these boards, and no one…
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Almost done treatment, BUT
Hi, My dad (72) is in week 7(final week) of his treatment. Last week they decided to stop chemo because his platelets are too low and he was experiencing severe paleness and fatigue. He is missing week 6 and 7 of that. ( i don not know if they plan to give it to him once his blood counts are back up). As for the radiation,…
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Tooth removed today POST radiation
ok... so I went to the superthread! (which is AWESOME!!!) but i couldn't find a link for what I need. My husband is post treatment. He has recieved 20 HBO treatments and will now have a tooth pulled. Then he will receive 10 more HBO treatments. What should I watch for? How will I know if he isn't going to heal? Thanks for…
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Cisplatin with radiation; to do or not to do?
Hi Everyone, I think I know what I will do but am interested in your opinions. Scc bot lateralized to right 2 mm, hpv+, mets to lymph nodes right side- surgeries have removed everything that could be seen, stage III. I start radiation next week. Hpv+ is very sensitive to radiation with higher cure rate. I'm going into this…
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My husband's cancer is back (or never really left) - carbo after cisplatin?
my husband completed his initial treatment of cisplatin with concurrent radiation in August of 2016 and his PET in November was clear (NED). His initial experience was very difficult (severe nausea/hospitalization, PEG tube, pneumonia) but he got through it even though he had to be wheeled down for his final radiation…
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Radiation Fibrosis Syndrome (RFS)
Hey guy’s I am curious if anyone has experienced Radiation Fibrosis Syndrome following RAD treatment. I am five years’ post treatment and everything as far as NED is great. However, I was having a lot of pain right below my clavicle on the right side for about two months. I finally saw my GP and he ordered x-rays and CT…
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Completed radiation and chemo. But still have lump.
Im hoping someone has insight. I completed Chemo and radiation on Sept 1st. I still have lump on side of my neck almost size of an egg. I dont have a PTcan until November. Can anyone tell me if they experience this and lump went away on its own so you didn't need surgery. I am really concerned that after all this treatment…
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Tongue still numb after surgery
I had SCC of the tongue and had surgery (no skin graft though) on May 18th and am about 6 weeks post RADS. Part of my tongue is still numb and I was wondering if other people had numbness that lasted a long time and how long did it take to get back to "normal". Thanks!
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Need help for NPC
A close friend of mine, who is in his early fifites, was recently diagnosed with late stage 2 NPC. He has completed 7 weeks of radiation and concurrent CT which was given two days after the first radiation session; 60 mg of cisplatin for the first three weeks, 50 mg cisplatin for week 4 and 5, 40 mg for week 6 and 7. His…
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Hi everyone, I'm still here woo hoo
Hi all, just a quick check in dx 2009, right tonsil ssc chemo, radio etc all good all tastes and saliva is back, happy as larry. Just wanted to share. Mwah, Good luck to everyone fightiing the big fight, so doable.
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The C: Section Chronicles - 5 months
It's been 5 months since the last day of radiation treatment and I feel great. I still have issues with lack of saliva so I chew gum everyday. Because of the dry mouth and difficulty in swallowing I do not look forward to meal times. Drinking and eating is very slow, but hey... I'm alive and that is one blessing I can be…
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New to site Need Info scheduled for Opdivo
I have stage 4 head and neck cancer then the tell me I also have prostate cancer. I now just had lung biopsy, came back positive right lung. Now they want me to start Opdivo, dont like what I've read about it. Any info would be appreciated. I have been threw chemo and then radiation w/chemo now this WOW... Info please.
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confusion about adjuvant chemothey NPC
My Friend went for his one minth post radiation consultation and he was suppose to get his adjuvant chemo. However after having consultaion with the ent, radiation and chemo Doctors, they had different opinions. The Ent told us there no need for adjuvent chemo since it's stage 2 and the radiation doctor said can chose if…