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New to site Need Info scheduled for Opdivo
I have stage 4 head and neck cancer then the tell me I also have prostate cancer. I now just had lung biopsy, came back positive right lung. Now they want me to start Opdivo, dont like what I've read about it. Any info would be appreciated. I have been threw chemo and then radiation w/chemo now this WOW... Info please.
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confusion about adjuvant chemothey NPC
My Friend went for his one minth post radiation consultation and he was suppose to get his adjuvant chemo. However after having consultaion with the ent, radiation and chemo Doctors, they had different opinions. The Ent told us there no need for adjuvent chemo since it's stage 2 and the radiation doctor said can chose if…
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Chemo didn't work
So we went in today for a repeat scan for my dad. Chemo hasn't helped at all. ☹️ So his oncologist seemed to think since chemo didn't even shrink it that radiation wouldnt help at all and would be way too much to put him through. we actually miss a treatment last week because of how sick he was and he has been hospitalized…
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WHAT CAN I EAT???
I'm 33 days out of treatment from radiation therapy for BOT SCC. I have had a hard time swallowing water but am getting better with that. I don't choke as much anymore. I have started trying different types of food to see if I could swallow as well as handle the metallic taste. Nothing I've tried works. I'm beginning to…
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HPV related throat cancer?
A little background: 5 year ex-smoker {quit Dec 2016} 5 year ex-drinker {same quit time} Possibly HPV positive {haven't been tested, positive for symptoms} Chronically ill Under 30 Hi So, I went to my primary care doctor about a week ago because I have very hard lymph nodes above my right clavicle and the left front and…
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Newly DX - Caregiver
Hello All, My husband, DH, was recently dx with SCC/hpv. He had a biopsy Thursday and results today confirm what the doctor thought. His tumor is large, 4.7cmx4.5cm.4.2cm - about the size of a golf ball they said. There is also one lymph node involved. It is hard for him to swallow and difficult to understand him. He is…
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Gabapentin
What you are about to read is very true, nothing has been added or taken away. Thank you, ever so much. The information I am about to reveal is to help people handle their bout with head and neck cancer. So that no one is confused by my take on all this cancer stuff, I know absolutely nothing about any form of cancer. With…
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The waiting game... Need Help :/
I'm nervous, because I don't know how to stay calm through this process. I'm a new mom, and now I'm looking down the barrel of possible cancer. It started about 2.5 years ago with a swollen lymph node. I saw an ENT and he brought me in a couple times, but never seemed to get anywhere. He sent me to get a lymph node…
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tongue and neck , throat
I am 46 years old and have never smoked a day in my life. But I have Stage IVa Supraglottic Carcinoma (base of tongue, vallecula, and into epiglottis). Also into lymph nodes on both sides of neck. I have had 35 weeks of radiation and am still finishing my 4 months of chemo (4 sessions left). It has been 26 days since my…
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Mouth Sores Post Treatment
I have HPV-16 Tonsil Cancer, which is in my right tonsil (had a tonsillectomy to remove it), base of tongue on the right side, right neck muscle and right lymph nodes. I had 35 radiation treatments and 2 rounds of Cisplatin. I am now 6 weeks post-treatment and still suffer from mouth sores. They were starting to get better…
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newly diagnosed and questions
Had a painless lump pop up on the left side of my neck that needle biopsy confimed was a cancerous lymph node and already had a tonsillectomy yesterday to get the ball rolling. Said chemo and radiation is to follow. UGH. First question, my pain is pretty bad right now from the operation but if I take any of the prescibed…
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Biopsy Results - How accurate?
I started a thread a couple weeks ago about an ulcer on the inside mucosa of my mouth, labial mucosa. This ulcer was painless for the most part and worried me since I have used chewing tobacoo in the past. I also started having tingling sensation on that side of my face and even in my lips. With all that being said, I…
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Anyone in this forum stationed at Camp Lejeune from 1957-1987?
Hello survivors. Just wondering if any of the survivors in this group were based at or lived on the or near Camp Lejeune in NC? In case you do not know the water there was contaminated with toxins like Benzine, PCA's and TCA's. It was caused by a dry cleaner dumping solvents into the water and cleaning solvents used by the…
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Ned!!!!!
had scan on Tuesday and saw doc today.the scan was NED!! It has been tough as heck! But I did it and am very pleased with the results. Yipppeeeee
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Kidney damage
IN 2009 I had chemo and radiotherapy for laryngeal cancer. Towards the end of treatment bloodwork showed that my kidney creatinine numbers were increasing. a week after treatment my kidneys were only working at roughly 56%. The chemo onc said there is no damage and laughed it off. No treatment for the damage was given and…
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Taste/DryMouth
Guys i'm losing hope here, i am approaching 7 weeks post-radiation and am 2 weeks post-chemo. (all done!) Taste buds, will i ever taste food again? So far i can taste the salt in the rinses that ive done yet i tried a french fry and nothing. Theres a taste to a strawberry-banana drink mix but i couldn't tell you it was…
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Cancer and fibromyalgia
I have fibromyalgia and just been diagnosed with tonsil cancer. I am wondering if anyone has had to deal with these together. I am scared of pain level. I already have chronic pain, about a 5 to 7 with lyrica and hydrocodone. A lot of my pain is in arms and shoulders. Any advice is appreciated.
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Peg tube and trachea device
Hello all: A couple of weeks ago I was admitted to cooper with a laryngosc and couple biopsys. I was sent home with some still swelling of mouth and throats while on steroids and amoxacillin. Still had trouble breathing. My last radiation treatment was march 31st of this year. Two weeks ago I had trouble breathing and was…
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Side effects of half head rads
anyone just have one side of head done? My husband is scheduled for it but at age 70 he now feels he wants to do nothing and just have a better quality of life for his remains years. I'd like to be able to share others experiences. Hopefully with just one side effected the long term side effects have been tolerable.
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Throat pain again!!!!
Can somebody help? I was diagnosed with stage 1 throat cancer in June 2016. My last of 32 radiation treatments was in August. By december i was healing well. I started eating most anything all though i still had trouble with bread and dry products. I was on the road to recovery. The week after new years i started having…
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1 month post treatment SCC
SO, I am right at 1 month out of treatment (35 radiation with Urbitux - 6 times). What I would really like to hear from others of this same situation is about when did you receive some taste and saliva back. I have no feeding tube and can get down booste shakes. Taking the Boost Very High Calorie (530) to maintain and gain…
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Legislative Alert on Agent Orange and Throat Cancer
Consideration is now being given to moving throat cancer into the Agent Orange presumptive categories by the Senate Veterans Affairs Committee. Your immediate support is needed. My husband, a Nam vet who was disabled by surgeries and treatments for tonsil cancer 9 years ago, and I have been contacting Iowa Senators Harkin,…
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Port and PEG procedures on same day?
Hey, this is my first post here. You guys have no idea how happy I was to find this site! SO much information! Thank you!! My husband is diagnosed with Stage IVa base of tongue SCC. He has 2 nodes (level 2 nodes, I think) on the same side of his neck that have spots too. T2N2MO. Anyway, he starts with weekly Erbitux on…
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Squamous Cell in the left Tonsil(P-16 Positive) and left Lymph Node
Hello everyone, As the title says, just diagnosed with cancer and they are getting ready to treat me at OHSU and the Portland Oregon VA. I've been told I will receive thirty five radiation treatments and three chemo treatments. Side effects include loss of saliva gland on left side of mouth, potential loss of some or all…
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Will there ever be quality life again?
Hi All, I finally had surgery for right neck node caused by scc, tors to find primary tomorrow. It's been recommended to have 33 radiation treatments and Cisplatin. I had neck dissection on July 25/17 ( the node's been there since July 2016, inconclusive biopsies, now stage III HPV). Left me with swallowing difficulties.…
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Post treatment checkups
All appears different in Ireland post treatment I’m 12 weeks out of treatment tomorrow and going for C&T scans that my ENT consultant says are just for a base line and not looking for spread. I saw my ENT consultant last week 11 weeks after treatment and will see her every 8 weeks for the first year. All good last week…
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neck recession
whose had one, I have some questions!
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Flouride gels
I quit using the Colgate gel for my trays because my teeth darkened a lot! my dentist at home told me to try OralB NeutraCare. Has anyone tried this gel? I am looking for one that doesn't stain teeth and that my insurance would cover.
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Mucous 3 years on
has anyone suffered with mucous and cough three years after treatment. I'm so used to coughing and mucous it's become routine and I think nothing of it. That's, I did, until a ct scan showed a shadow on the top of my lung. I went for a bowel scan but they did chest abdomen and bowel. I had bowel cancer two years ago, the…
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Suggestions to get through with no PEG tube
My husband just finished his 4th cisplatin & 15th radiation, half way there. He doesn't have a PEG tube. His throat hurts, he has no appetite and everything tastes horrible. But we are going to try to get through without the tube. Does anyone have any diet suggestions? Or other suggestions....