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Swallowing
Hello! I had part of the back of my tongue removed on July 20. I have started PT/OT for speech/swallowing. I'm very scared I will never be able to eat or drink liquids. Anyone have suggestions. I'm also having issues the the supplement. I've tried Nutren 2.0 and now using osmolite 1.5. Im having trouble maintaining my…
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Hi. I'm new here
Hi. I was just diagnosed with stage IV tonsil cancer. It has not completely sunk in yet. Everything is coming at me so fast. They say I will need both radiation and chemo. Just got appointments to see those doctors. I live 4 hours from university of michigan hospital, where I am planning on getting treatments. I have…
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Your average, run of the mill tongue tumor (longish)
My history is SCC of the tongue, right side, relatively small removed March 2016 along with 42 lymph nodes all clear, clean margins. I had no chemo and no radiation for which I am extremely grateful, but I do have some problems and wonder if there are any others in my situation. I realize that no two surgeries or tumors…
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Famm flap
Famm flap Hi. I am new to this group. I have received a famm flap and am not to happy. I received it January 2017. I am still on a liquid diet. I have seen several dentists to try to get my bottom partial in. None of them could help me because my famm flap has been sewn in the area where a tooth would have resided. In…
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Reoccurrence in lymph node
Does anyone have any experience with occurrence after rads and chemo? My husband had tonsil cancer HPV + and finished treatment in October of last year. There was node involvement so but no distant disease. His 3 month PET was NED but they did find he had a serious pneumonia during that scan that went undetected and he had…
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AND HERE IT IS!
Nodes came back clean, and this afternoon my wonderful, wonderful ENT Dr Chan told me, I am considered cancer free, so go out and live a long and happy life. He tried to shake my hand.. hell no, he saved my life, he got a huge hug! Thank You everyone, I was such a total noobie when I first found these boards, and no one…
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Almost done treatment, BUT
Hi, My dad (72) is in week 7(final week) of his treatment. Last week they decided to stop chemo because his platelets are too low and he was experiencing severe paleness and fatigue. He is missing week 6 and 7 of that. ( i don not know if they plan to give it to him once his blood counts are back up). As for the radiation,…
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Tooth removed today POST radiation
ok... so I went to the superthread! (which is AWESOME!!!) but i couldn't find a link for what I need. My husband is post treatment. He has recieved 20 HBO treatments and will now have a tooth pulled. Then he will receive 10 more HBO treatments. What should I watch for? How will I know if he isn't going to heal? Thanks for…
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Cisplatin with radiation; to do or not to do?
Hi Everyone, I think I know what I will do but am interested in your opinions. Scc bot lateralized to right 2 mm, hpv+, mets to lymph nodes right side- surgeries have removed everything that could be seen, stage III. I start radiation next week. Hpv+ is very sensitive to radiation with higher cure rate. I'm going into this…
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My husband's cancer is back (or never really left) - carbo after cisplatin?
my husband completed his initial treatment of cisplatin with concurrent radiation in August of 2016 and his PET in November was clear (NED). His initial experience was very difficult (severe nausea/hospitalization, PEG tube, pneumonia) but he got through it even though he had to be wheeled down for his final radiation…
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Radiation Fibrosis Syndrome (RFS)
Hey guy’s I am curious if anyone has experienced Radiation Fibrosis Syndrome following RAD treatment. I am five years’ post treatment and everything as far as NED is great. However, I was having a lot of pain right below my clavicle on the right side for about two months. I finally saw my GP and he ordered x-rays and CT…
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Completed radiation and chemo. But still have lump.
Im hoping someone has insight. I completed Chemo and radiation on Sept 1st. I still have lump on side of my neck almost size of an egg. I dont have a PTcan until November. Can anyone tell me if they experience this and lump went away on its own so you didn't need surgery. I am really concerned that after all this treatment…
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Tongue still numb after surgery
I had SCC of the tongue and had surgery (no skin graft though) on May 18th and am about 6 weeks post RADS. Part of my tongue is still numb and I was wondering if other people had numbness that lasted a long time and how long did it take to get back to "normal". Thanks!
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Need help for NPC
A close friend of mine, who is in his early fifites, was recently diagnosed with late stage 2 NPC. He has completed 7 weeks of radiation and concurrent CT which was given two days after the first radiation session; 60 mg of cisplatin for the first three weeks, 50 mg cisplatin for week 4 and 5, 40 mg for week 6 and 7. His…
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Hi everyone, I'm still here woo hoo
Hi all, just a quick check in dx 2009, right tonsil ssc chemo, radio etc all good all tastes and saliva is back, happy as larry. Just wanted to share. Mwah, Good luck to everyone fightiing the big fight, so doable.
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The C: Section Chronicles - 5 months
It's been 5 months since the last day of radiation treatment and I feel great. I still have issues with lack of saliva so I chew gum everyday. Because of the dry mouth and difficulty in swallowing I do not look forward to meal times. Drinking and eating is very slow, but hey... I'm alive and that is one blessing I can be…
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New to site Need Info scheduled for Opdivo
I have stage 4 head and neck cancer then the tell me I also have prostate cancer. I now just had lung biopsy, came back positive right lung. Now they want me to start Opdivo, dont like what I've read about it. Any info would be appreciated. I have been threw chemo and then radiation w/chemo now this WOW... Info please.
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confusion about adjuvant chemothey NPC
My Friend went for his one minth post radiation consultation and he was suppose to get his adjuvant chemo. However after having consultaion with the ent, radiation and chemo Doctors, they had different opinions. The Ent told us there no need for adjuvent chemo since it's stage 2 and the radiation doctor said can chose if…
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Chemo didn't work
So we went in today for a repeat scan for my dad. Chemo hasn't helped at all. ☹️ So his oncologist seemed to think since chemo didn't even shrink it that radiation wouldnt help at all and would be way too much to put him through. we actually miss a treatment last week because of how sick he was and he has been hospitalized…
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WHAT CAN I EAT???
I'm 33 days out of treatment from radiation therapy for BOT SCC. I have had a hard time swallowing water but am getting better with that. I don't choke as much anymore. I have started trying different types of food to see if I could swallow as well as handle the metallic taste. Nothing I've tried works. I'm beginning to…
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HPV related throat cancer?
A little background: 5 year ex-smoker {quit Dec 2016} 5 year ex-drinker {same quit time} Possibly HPV positive {haven't been tested, positive for symptoms} Chronically ill Under 30 Hi So, I went to my primary care doctor about a week ago because I have very hard lymph nodes above my right clavicle and the left front and…
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Newly DX - Caregiver
Hello All, My husband, DH, was recently dx with SCC/hpv. He had a biopsy Thursday and results today confirm what the doctor thought. His tumor is large, 4.7cmx4.5cm.4.2cm - about the size of a golf ball they said. There is also one lymph node involved. It is hard for him to swallow and difficult to understand him. He is…
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Gabapentin
What you are about to read is very true, nothing has been added or taken away. Thank you, ever so much. The information I am about to reveal is to help people handle their bout with head and neck cancer. So that no one is confused by my take on all this cancer stuff, I know absolutely nothing about any form of cancer. With…
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The waiting game... Need Help :/
I'm nervous, because I don't know how to stay calm through this process. I'm a new mom, and now I'm looking down the barrel of possible cancer. It started about 2.5 years ago with a swollen lymph node. I saw an ENT and he brought me in a couple times, but never seemed to get anywhere. He sent me to get a lymph node…
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tongue and neck , throat
I am 46 years old and have never smoked a day in my life. But I have Stage IVa Supraglottic Carcinoma (base of tongue, vallecula, and into epiglottis). Also into lymph nodes on both sides of neck. I have had 35 weeks of radiation and am still finishing my 4 months of chemo (4 sessions left). It has been 26 days since my…
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Mouth Sores Post Treatment
I have HPV-16 Tonsil Cancer, which is in my right tonsil (had a tonsillectomy to remove it), base of tongue on the right side, right neck muscle and right lymph nodes. I had 35 radiation treatments and 2 rounds of Cisplatin. I am now 6 weeks post-treatment and still suffer from mouth sores. They were starting to get better…
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newly diagnosed and questions
Had a painless lump pop up on the left side of my neck that needle biopsy confimed was a cancerous lymph node and already had a tonsillectomy yesterday to get the ball rolling. Said chemo and radiation is to follow. UGH. First question, my pain is pretty bad right now from the operation but if I take any of the prescibed…
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Biopsy Results - How accurate?
I started a thread a couple weeks ago about an ulcer on the inside mucosa of my mouth, labial mucosa. This ulcer was painless for the most part and worried me since I have used chewing tobacoo in the past. I also started having tingling sensation on that side of my face and even in my lips. With all that being said, I…
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Anyone in this forum stationed at Camp Lejeune from 1957-1987?
Hello survivors. Just wondering if any of the survivors in this group were based at or lived on the or near Camp Lejeune in NC? In case you do not know the water there was contaminated with toxins like Benzine, PCA's and TCA's. It was caused by a dry cleaner dumping solvents into the water and cleaning solvents used by the…
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Ned!!!!!
had scan on Tuesday and saw doc today.the scan was NED!! It has been tough as heck! But I did it and am very pleased with the results. Yipppeeeee