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Kidney damage
IN 2009 I had chemo and radiotherapy for laryngeal cancer. Towards the end of treatment bloodwork showed that my kidney creatinine numbers were increasing. a week after treatment my kidneys were only working at roughly 56%. The chemo onc said there is no damage and laughed it off. No treatment for the damage was given and…
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Taste/DryMouth
Guys i'm losing hope here, i am approaching 7 weeks post-radiation and am 2 weeks post-chemo. (all done!) Taste buds, will i ever taste food again? So far i can taste the salt in the rinses that ive done yet i tried a french fry and nothing. Theres a taste to a strawberry-banana drink mix but i couldn't tell you it was…
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Cancer and fibromyalgia
I have fibromyalgia and just been diagnosed with tonsil cancer. I am wondering if anyone has had to deal with these together. I am scared of pain level. I already have chronic pain, about a 5 to 7 with lyrica and hydrocodone. A lot of my pain is in arms and shoulders. Any advice is appreciated.
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Peg tube and trachea device
Hello all: A couple of weeks ago I was admitted to cooper with a laryngosc and couple biopsys. I was sent home with some still swelling of mouth and throats while on steroids and amoxacillin. Still had trouble breathing. My last radiation treatment was march 31st of this year. Two weeks ago I had trouble breathing and was…
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Side effects of half head rads
anyone just have one side of head done? My husband is scheduled for it but at age 70 he now feels he wants to do nothing and just have a better quality of life for his remains years. I'd like to be able to share others experiences. Hopefully with just one side effected the long term side effects have been tolerable.
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Throat pain again!!!!
Can somebody help? I was diagnosed with stage 1 throat cancer in June 2016. My last of 32 radiation treatments was in August. By december i was healing well. I started eating most anything all though i still had trouble with bread and dry products. I was on the road to recovery. The week after new years i started having…
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1 month post treatment SCC
SO, I am right at 1 month out of treatment (35 radiation with Urbitux - 6 times). What I would really like to hear from others of this same situation is about when did you receive some taste and saliva back. I have no feeding tube and can get down booste shakes. Taking the Boost Very High Calorie (530) to maintain and gain…
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Legislative Alert on Agent Orange and Throat Cancer
Consideration is now being given to moving throat cancer into the Agent Orange presumptive categories by the Senate Veterans Affairs Committee. Your immediate support is needed. My husband, a Nam vet who was disabled by surgeries and treatments for tonsil cancer 9 years ago, and I have been contacting Iowa Senators Harkin,…
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Port and PEG procedures on same day?
Hey, this is my first post here. You guys have no idea how happy I was to find this site! SO much information! Thank you!! My husband is diagnosed with Stage IVa base of tongue SCC. He has 2 nodes (level 2 nodes, I think) on the same side of his neck that have spots too. T2N2MO. Anyway, he starts with weekly Erbitux on…
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Squamous Cell in the left Tonsil(P-16 Positive) and left Lymph Node
Hello everyone, As the title says, just diagnosed with cancer and they are getting ready to treat me at OHSU and the Portland Oregon VA. I've been told I will receive thirty five radiation treatments and three chemo treatments. Side effects include loss of saliva gland on left side of mouth, potential loss of some or all…
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Will there ever be quality life again?
Hi All, I finally had surgery for right neck node caused by scc, tors to find primary tomorrow. It's been recommended to have 33 radiation treatments and Cisplatin. I had neck dissection on July 25/17 ( the node's been there since July 2016, inconclusive biopsies, now stage III HPV). Left me with swallowing difficulties.…
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Post treatment checkups
All appears different in Ireland post treatment I’m 12 weeks out of treatment tomorrow and going for C&T scans that my ENT consultant says are just for a base line and not looking for spread. I saw my ENT consultant last week 11 weeks after treatment and will see her every 8 weeks for the first year. All good last week…
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neck recession
whose had one, I have some questions!
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Flouride gels
I quit using the Colgate gel for my trays because my teeth darkened a lot! my dentist at home told me to try OralB NeutraCare. Has anyone tried this gel? I am looking for one that doesn't stain teeth and that my insurance would cover.
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Mucous 3 years on
has anyone suffered with mucous and cough three years after treatment. I'm so used to coughing and mucous it's become routine and I think nothing of it. That's, I did, until a ct scan showed a shadow on the top of my lung. I went for a bowel scan but they did chest abdomen and bowel. I had bowel cancer two years ago, the…
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Suggestions to get through with no PEG tube
My husband just finished his 4th cisplatin & 15th radiation, half way there. He doesn't have a PEG tube. His throat hurts, he has no appetite and everything tastes horrible. But we are going to try to get through without the tube. Does anyone have any diet suggestions? Or other suggestions....
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IS IT REALLY GONE?
Had appointment with ENT doctor today. He did a scope down my throat and I could barely wait to hear what he saw. At first he didn't say anything. So I asked if there was any change in size of the cancer at the base of my tongue. Then he said the tumor wasn't there and he didn't see anything. At first, I felt nothing. Not…
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Late radiation complication -slow healing mouth ulcers
I was diagnosed with T2N2M0 SCC of tonsil. After the radiotherapy, I has mucositis aa expected. But after about month after the treatment,I had big and deep ulcers where the areas that received the highest doses of radiation.They healed very slowly (more than a year), with alot of scar tissue. I have still mouth sores. I…
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What would you have wanted to know
I'm volunteeering in a support group for H&N cancer patients at my HMO. One of the things we are looking at doing is developing some sort of booklet giving people in, or headed in to, treatment a guide book for how to cope, what to expect. I have my own experience to draw on, but there are a significant number here that…
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10 weeks out of treatment
Had my first appointment with my ENT Consultant today 10 weeks out of treatment scope shows no tumour. Re tested hearing and the Cisplatin has caused some hearing loss. I will be getting checked every 8 weeks for the first year and they want a baseline scan in a few weeks but other than that Im done I think.
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Third time around the block....BUT --- Update...
I start Keytruda treatments next Monday....Got my baseline scan last Thrusday...the nodule in my lung has shrunk by half....hmmm...guessing that the antibiotic they gave me after they biopsied the node in the middle of my chest has something to do with that. Anyway, I'm excited and nervous....nerves only because I want…
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Water coming out the nose while swallowing
Can it be fixes? What ever I drink comes out my nose while trying to swallow again after throat cancer. Will this also happen with food?
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On the flip side
Surgery was Thursday, came home friday. Not much pain, sore really is all (Tylenol) I look like something out of a slasher movie... AGHH.. lets cut her head off! 2 - 3 weeks on Pathology report. So fingers crossed!
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And the results are in ...
Everything looks great! Scan was good ... all lymph nodes shrunk back down and the one that was the biggest is now only 1cm. The doctors can't even feel it. They said it's likely scar tissue. So, we got the "see you in three months for a scope and six months for a scan" ... they didn't actually say the words "NED", but…
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Friday
Will be my last 6 month pet assuming all goes well. I'm 3 years out. For 2 months, constant mouth sores, and the side of my neck is always sore along with my throat, I'm not feeling optimistic. I have chills, fatigue, constantly sick. I can't go through this again and I have no support system, just my 11 year old son. Ssc…
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Thanks from a new member
I came across this site a few days ago researching problems with your teeth after radiation. I wish I would have found it sooner. I found out I had tonsillar squamous cell carcinoma stage 1V in Jan. if 2016. I had a tumor at the base of my tongue and it had spread to one of my lymph nodes. I had no signs other than my…
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Post Cancer treatment Problems
Hi Everyone, I'm writing this as a son of my mother that had cancers throat, she been cancer free for about 6 years now. The problem is that more and more my mom are more angry and unreasonable out of no where. she don't trust anyone, paranoid and angry around me and the familes members. She seems to ack normal around…
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SCARED TO SWALLOW
Did a load of laundry today. Also walked the dogs. Other than that, I slept on the sofa. Ten days out of treatment. Trying to take more sips of water but did choke a couple of times. Read somewhere that I should swallow sips of water at least 8 to 10 times a day as exercise for my throat. I had been doing only 2 or 3 times…
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Facial artery musculomucosal flap to oropharyngeal defect
J Plast Reconstr Aesthet Surg. 2013 Oct;66(10):1365-8. doi: 10.1016/j.bjps.2013.05.029. Epub 2013 Jun 10.A novel use of the facial artery based buccinator musculo-mucosal island flap for reconstruction of the oropharynx. Khan K, Hinckley V, Cassell O, Silva P, Winter S, Potter M. Source Head & Neck Unit, Oxford University…
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Boost and more Boost
Hi everyone,Im going in today and have my feeding tube removed.It has a fungus or bacteria build up in it.Im still not eating much but we bought some Boost high calorie on line.I should mention that im 7 months post.What im wondering is can i maintain weight if im able to get enough calories with it.