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Head and Neck Cancer

PET Scan Frustration
Hi Everyone, I've only posted a few times. My husband was dx with BOT HPV+ SCC, Stage 3 in September 2017. Finished 35 rads and 6 cisplatin on 4 Dec. PET was 7 Mar. Met with Medical oncologist on 8 Mar and she said it all looks good. However, they just put the CT results in our online medical records and there is something…
Tongue Flap
My father in law was diagnosed with Head/Neck cancer on December 1. We finally got in to see the oral surgeon on January 9 with 1st surgery on January 25. It was a very long surgery and they could not use the bone in his leg or shoulder to replace the bone in his jaw line, so they had to go with a metal plate. Here we are…
Radiation after surgery- tongue cancer
Hi everyone, My mom was diagnosed with T2N1MZ tongue cancer on 29 janauary! It's been 5 weeks since surgery and she seems to heal well. radiation starts tomorrow. Could you please help me with what you expect ? Doctors say the only side effect would be ulcers. However, the internet says a different story all together.…
Cancer spread to lymph nodes in armpit
Anyone experienced this?
Advice needed for pain during recovery
My husband completed his treatment (35 radiation and 6/7 Cetuximab) for SSC BOT HPV+ on November 21. At week 8 of his recovery he started experiencing sensitivity in his skin on his upper body, including the top of his head. He does not have a rash or anything visible. He’s really tired and cold. He was doing great with…
12 months since starting treatment
Today I celebrated 12 months since I started treatment. As my daughter said today "A year ago, Dad, you had cancer... Now you don't." God willing, she is right and although I've had ups and downs, not once do I regret not having chemo and radiation, or the rotten after effects that seemed to linger on and on. Last week I…
Depression?
So you go to bed with the best intentions for a new day tomorrow, then tomorrow comes and you lay in bed trying to decide if you really feel like getting up or rolling over and after rolling over you get out of bed at 1:00 and face that day full of promise only to realize that you feel like the same slug you did yesterday.…
Radionecrossis of C1
I got the results back from my CT and I have radionecrossis of the C1 vertebrae. My ENT says there is a break in the front, away from the spinal cord and there is probably some infection around it. He seems to be a little bit of a loss of what to do. I am going to see a neurologist, but I think I'm going to my ENT that…
Ideas for food to eat? (
So here I am 7 months post treatment and still no taste. Still only pure salt pure sugar and strangely cranberries. (Literally the only thing that tastes normal) I am honestly losing hope that I will ever get my taste back. It is very depressing. Anyhow, I'm about to get my throat dilated for the 2nd time and it should…
Wife trying to understand husband on Cisplatin and Rad
Hello. My husband started his treatment of Cisplatin and Radiation about a week ago. His chemo is a 4 hour long infusion, every 3 weeks. He had his first round of chemo on the 5th. They told us about the nausea but they didn't really emphasize on the importance of taking them around the clock. He couldn't get a hold of the…
10 weeks post and still can’t eat
It has Been ten weeks since treatments were Completed Larynx T3.Still a lot of bloody mucus and what I call tree bark(scabs) still can’t eat.was just wondering when anybody startrd to eat.Doctor says totally normal but I wonder
Port for Chemo
Just got back from the doctors. When they do chemo they want to install a port in my chest. Is this really necessary, I've never had chemo but what other ways is it administered?? WE are also trying a different chemo, I cant use the regular one cisplatun = hearing loss, I already have poor hearing, The other Erbitux that…
Headaches
My husband was diagnosed with squamous cell carcinoma base of the tongue. It was found when we noticed lymph nodes on each side of his neck contained lumps. After having the PET scan the areas of concern were the tonsils and base of tongue. A tonsillectomy was performed in Dec. 2017 which revealed no cancer in the tonsils.…
Thyroid Function
Just a reminder to all those that are in the early recovery phase to watch for signs of thyroid malfunction. My husband is less than a year out from the end of treatment. At his Cancer Center the protocol is to test thyroid and do chest films 5 months from now unless you have symptoms. He did not feel he was symptomatic…
Just found Throat Cancer(supraglottis)with spread to the neck.
Hi! I am a 59 year old male! I noticed a small mass on the right side of my neck on December 27th 2017 and this mass grew to golf ball size or bigger by january 10th. I saw my regular doctor on Feb 5th 2018 and from there the monster in me was discoverd. The ultra sound showed the mass to be cancer and my doctor and the…
Throat Cancer
Hello All: Looking for some help. My husband 74 diagnosed stage 4 squamous cell carcinoma three years ago. 40 radiation treatments and chem recurrence in March of 2017. Radical tonsilectomy and neck dissection. Healed now but oh my goodness trouble all over the place. Easting becomes more and more of a challenge and dry…
Tonsil cancer.
This is what we have been told "Cancer is contained to his right tonsil (yay!) but he will need surgery (probably week after next), then 3ish weeks to heal, then 7 weeks of radiation and chemo. His type of cancer has an 85-90% cure rate though!" "Basically what they said matters most is that he didn’t get it from smoking,…
Pet Scan
I somehow mistakingly posted my long problem under the heading "Pet scan was good except for one thing". by Dean54. Would everyone please read my story and give me some advice?
ROLL CALL 2017 - UPDATED AUGUST 11, 2017 (CLOSED)
ROLL CALL 2017 5th Updated August 11, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
Pain after radiation to jaw
Hi everyone! I had a mandeblectomy in November for SCC off the mandible and am just into week 3 after rads. My jaw hurt slightly before but now I have a new pain next to the tooth next to the surgery area. It is a low throb then at times becomes a sharp pain for several minutes then goes back to a throb. Also have slight…
Cost of CT Scans & using 3rd party service providers
In this forum we don't seem to discuss the cost of head and neck cancer treatment very often, but it can certainly be a major aspect of the entire diagnosis, treatment and recovery process. I've been self-employed for about 16-years, so I have to maintain my own health insurance. Because I've always been in very good…
Pet Scan
I had a PET scan yesterday and never heard from the doctor. Tomorrow is Biopsy day. IF something else showed up would not they have called? I just look at my report and it says pending until 2/25. Just wonder what the norm is for this. My CT scan doctor called me withing an hour of when it was done, to let me know the bad…
Laryngeal cancer
Hello everyone, my dad has laryngeal cancer and he just started radiation and chemo. About a month ago he started having headaches and one day his lymph nodes swoll up very badly. Now he has extreme headaches. The doctor prescribed him morphine and another doctor prescribed him hycet. Neither seems to get rid of the pain…
were you tired before diagnosis?
Hello, All: I was just told that I have some kind of cancer but we don't know what kind yet. I have a swollen lymph node in my neck so had bloodwork, a CT scan, and an ultrasound. The bloodwork came back normal (so no infections) but the CT scan showed a mass in my tonsil as well as the lymph node being dark inside, which…
oropharyngeal with neck met - any treatment options once non curative no longer option?
Hi all, Is anyone on here in same situation of no active treatment? I am a caregiver to my dear mother who is the most important person in my life. No curative treatment has been offered here in Ireland. We are 1yr post diagnosis which at that stage was stage 3TN SCC oropharyngeal with met to the neck node right side.…
Sinus Cancer
I have been dealing with Esthesioneuroblastoma aka Olfactory Neuroblastoma for the past couple years. I have had three surgeries to remove tumors. I am considering radiation therapy will be in the left maxillary area of my face. I would be interested in hearing from others who have undergone just sinus radiation--not…
Lymphadema
Anyone get a compression garment? I have one, I put it on at night, and in the morning, I look to see where it ended up on the floor... Another one was ordered, insurance say its an experimental thing and wont cover it - funny its listed next to penile implants..
Fever after radiation
We just finished our 3rd week of rad and 1st chemo was first dy 3 weeks ago, ready for 2nd on MOnday. The past couple of days he has spiked a high temp of 101.7, 100.9 and 100.7. They brought him in as outpatient, ran a ton of blood work and a chest scan to see if anything in there...the white count was just a little low…
Post tongue biopsy x 6 days new ulcer over incision!
Hello members, this is my first post, so please bear with me! I have not been diagnosed with a form of cancer at this point, thank you. However, I was sent to an oral surgeon by my dentist about a year ago because I was having these sores on my tongue that weren't going away first I just had one and I went in for a consult…
Dental work pre radiation
Recently diagnosed with HPV base of tongue cancer (Stage 1, I think). Rad Onc at Moffitt Cancer Center told me to see DDS before beginning treatment. Oral health poor, knew I needed extractions prior to cancer. I would like to have dental work prior to beginning radiation (33-35),no chemo, now Rad Onc says just to schedule…

Head and Neck Cancer

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