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Bad news responses
Thanks Matt, Russ and Tommy for responding. I will try to stay positive and I agree my doctor shouldn't of alarmed me like that. He's good at his profession but can be insensitive at times. I will try to stay positive. Lost my voice too for last 3 months. Still trying to find where it went! Lol Had a marvelous singing…
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Odd Sensations at Neck...
Hi All! Trusting to find you doing well in this journey we are on with good thoughts coming your way! I have a question. Have any of you had a sensation of "being choked...or a tight band around your neck post treatment, partial neck resection, max in rads for SSS of tongue, metz leseion around jugular same side . I…
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HPV+ Tonsil cancer- Histopathology report
Hi all I hope and pray that all of you fighting cancer are doing well and will soon be healthier than ever before. I have recently been diagnosed with tonsil cancer. My recent report contains the following information. I am worried. Anybody can help me explain how serious the findings are. My next visit to my doctor is 5…
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Update - PossibLe bad news
Hi H&N Members: I just saw my ENT specialist this past Thursday. He scoped me and said two times "Oh no." Then told me that my epigoltis was too thick disclored and somewhat bloody. Said it wasn't normal. He said might be cancer, radiation, or another problem. So I have to have a biopsy on Halloween day. I know strange…
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under the tongue cancer
my significant other, who we have been together for 20 yrs has just been diagnosed with stage 1, and in a few days we go and see the surgeon.. I am terrified because Randy has liver disease and a bleeding problem to begin with... I am so scared.. Thank you for this board so i can vent and be a help to anyone here xo
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tongue cancer
anybody out there with metastatic tongue cancer? My brother has squamish cell carcenoma, primary site being the tongue. it has now spread to the lungs and other parts of the body after three years of being in remission, he originally had surgery to remove the tumor and then radiation. Now it's back, and we're looking for…
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PET Scan readings - Pre- and Post-treatment
Here are the readings from my pet scans. Kindly let me know how do you find these results. (History: Right tonsil Hpv + cancer with lymph nodes involved) Key excerpts from the report below: 1. Previously noted enlarged right cervical lymph nodes have significantly decreased in size. For reference, right level II…
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Can someone explain immunotherapy?
Hey all, in my continued quest for information for my mom, i'm trying to understand just what immunotherapy is, how it works, what it does, etc. Someone suggested we look at keytruda immunotherapy. i haven't the faintest idea what it is. We do have a consult with the medical oncologist next Tuesday and i will certainly be…
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Hello all! If you have questions about your insurance...
...I may be able to help. First, and most relevant, I have stage 4, HPV+ HNSCC. Been having a lot of fun with it, but haven’t really engaged in any forums about it. Ironically, it was a search for anything new I haven’t tried for the darned dry skin from the Erbitux that brought me here. One of the posts I saw memotioned…
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First Pet san results after treatment.
So i saw my dr today who scoped me for the swelling they suspected in petscan results yesterday. Thanks God the swelling in the voice box was due to radition effect so the dr said it is not to worry about. As for the overall results, the dr said there is an improvement of more than 90% however it was not 100% clear yet.…
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PET scan results - Swelling in Voice box
First post treatment PET Scan results came out today. They say everything looks clear and fine except some swelling in the voice box which might be due to some infection or the radition effect. But they say it must be checked up so They have called me tomorrow for check up. Anybody has this experience? Feeling worried.
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Constant fatigue
It's been 9 yrs. for me since I have dealt with radiation and chemo. However since then, I am so fatigued to this day all I want to do is sleep. I can take a dozen naps and still don't feel refreshed. Is this normal? Is anyone else going through this? If so, what can I do about it? It's making me crazy!!!
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Cancer is very smart
I had a selective neck dissection and as well as The following parts of mouth all on Right side: BOT, Tonsil, glossopharyngealand the right posterolateral pharyngeal wall, plus unexpectedly (when I was openeded up), a largish amout of cancerous cells outside the area with 0.5 cm of SO's saftey margin around the main tumor…
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Swollen and painful lymph nodes 12 weeks after treatment
Hi all. I am 12 weeks post chemoradiation. Diagnosis: scc right tonsil hpv positive cancer with right side neck lymph nodes involvement. Brief history: i had 33 rads with chemo. Treatment ended on july 6th. Right tonsil was removed before xhemo and rads. Felt a significant shrinking in nodes in the first week of rads and…
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Neuropathy WITHOUT chemo?
So it started out as Lhermitte's sign, something familiar if not common to a lot of folks on this board. But since then it's progressed to tingling in the hands and feet, primariily on the left side; peripheral neuropathy. I know that's a thing for some who have had chemo. But I didn't have chemo, I had surgery then 30…
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The C: Section Chronicles - 9-Oct 2018 Update
Very pleased to announce that my recent visit with the oncologist resulted in a further NED (no evidence of disease). There is however a lump on the side of my neck which she says is probably scar tissue from the radiation, but she will keep an eye on it. Next ENT is in December,with a further oncologist clinic in February…
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sore gland
Good morning everyone My husband is 2 wks post treatment--doing very well but has one gland in neck that hurts.Does anyone know if this is normal? Thanks Rita
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My Neck Dissection and results; not what my SO and I was expecting.
Hi, I had a selective Neck dissection to remove about 6 or 7 remaining lymph nodes in the right part of the neck (The rest were destroyed by Radiation in Sep to Nov. 2016), as well as The following parts of mouth all on Right side: BOT, Tonsil, glossopharyngealand the right posterolateral pharyngeal wall, plus unexpectedly…
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Something swollen, what could it be...
It's always something, isn't it? I have something swollen about the size of a pea right under the right side of my chin. Lymph node? But after a radical neck dissection in December along with BOT cancer surgery, I don't HAVE any lymph nodes left in the area, that I'm aware of. So what, pray tell, could it be? Doesn't hurt,…
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Where is the Answer???
The Trifecta-Surgery. Chemotherapy. Radiation. Pick one, pick two, or all three. Identical disease-staging etc. One treatment provider/board recommends one, two or three of the above, and another will recommend something different, most notably not surgery. Why surgery? Delays the known SCC killer-radiation and chemo. Why…
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Just an Update
Hello Everyone! I have not been here in quite a long time. I've been busy with work, shcool and being a wife and mom. :) . I just wanted to share the news that our insurance finally approved a CT scan and the results came back ... NED! My husband is a little over one year cancer free! When I was new here, I always liked…
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anyone know anything about Phrannie
Hi everyone I have been here reading posts for a couple of months.I have read so many by a wonderful lady named Phrannie.She has been so helpfull to so many.I have noticed she hasnt been on for awhile.I am concerned about her.I have read so many of her postings I feel as if I know her. Thank you Rita
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Hondo
Hi everyone. I haven't been here in a few years, I forgot my password and was locked out. Alas I have returned with a new account in hubs name:) I was known as IAmStrong back then, with history of Stage 4 SCC of the tongue, metzed around jugular. So far, 8 yrs cancer free! Came because of latent side effects and good info…
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Clinical trials?
Hello, As I posted in another thread, my husband has recurrent squamous cell cancer that has spread to lymph nodes and they cannot operate. He will start chemo Oct 22. I think we should be looking at clinical trials. Anyone have experience with that? Advice? His med oncologist at Kaiser said he will investigate for him,…
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Elderly Mother Update
Hello all, Wanted to check in and thank everyone who gave advice, support, encouragement when i asked for information for my 83 yr old mother last week. She has given it thought, talked to different people, and has come to the decision to not seek treatment for her throat cancer. She says that treatment would be too hard…
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Sleep apnea
Is sleep apnea a common side effect? I am 13 months out from 35 Rad and 2 Cisplatin treatments. My ENT sent me to a sleep lab for testing. CPAP machine has been recommended. I think I am getting better and not quite ready to admit defeat. If anyone else has had experience with this, I would appreciate any thoughts. Deb
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Blisters
So I've been eating normally for about 2 weeks now with the exception of acidic and fried foods because I just can't tolerate them. I'm doing pretty well, taste is definitely not 100%, but it's a huge improvement over where I was just a few weeks ago. Sometimes when I'm eating or shortly afterwards I have little clear…
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Pain.
Hello All, Has anyone else developed pain to hand and shoulder joints post Chemo/Rad treatment? I am about 2 yrs out of 7 Rads/36 Chemo Txs. I am a gym rat so I think that the more I lift and exercise the better the pain will be relieved. It is not happening. I am just curious if anyone has this pain. If not I guess I am…
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Newbie Head and Neck SCC
New to this group. Looking for information. My husband was diagnosed with SCC in the left tonsil in July 26, 2018. It has metastasized to 2 lymph nodes in his neck. No surgery beyond the surgical bx to locate the primary tumor in the tonsil. Did not obtain clear margins. He began treatment three weeks ago. He will receive…
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Neck dissection and Oral surgery: They break Front teeth
Hi all especially phrannie51, My cancer has recurred and I am going to have a salvage surgery on Tuesday September 25 at Stanford. I cannot trust any oncologist. I saw my SO on Friday 9/21, by chance, and he told me my front teeth look weak and 1 or more may break during the surgery. He did not mention it on 8/20/18 when…