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I AM STARVING!!!!!
I am just in tears over here. I'm hungry, I want to eat, but I can't taste ANYTHING!!! My mouth and throat are fine still and I want to EAT EAT EAT while I can but it's almost nauseating to choke down a mouthful of cardboard flavored nastiness. I know this is just the beginning so I have to get a grip.
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Magic Mouth Wash?
I am curious, how does the MMW feel, I just cannot comprehend how you swallow something that makes your thoart numb, it seems to me that it would be like shutting down your ability to breath and something scary. I swished it in my mouth once after problems with my original chemo treatment but never swallowed it and…
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just curious
I am just curious for the ones who have completed treatment, as to how soon you were able to return to work. I am doing 35 radiation treatments and 3 cycles of Cislplatin on Day1, 22, and 43. I had what they believed was a branchial cleft cyst removed about 6 weeks before starting treatment which was actually a lymph node…
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Any Idea of Recurrence Rate for my Cancer
Im having the typical freak out of "What if this doesnt work" So im tryiing to help ease my mind, and see if anyone knows what the percentage of Recurring cancer after treatments average is. I have/had a T1 Squamous Cell carcinoma that manifested itself in 1 lymph node on the right side of my neck that was removed. I…
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JUST HAD TO SHARE THIS, IT TOUCHED MY HEART
3 years ago Friday, I lost a very special friend and coworker who had fought a brave fight against colon cancer for about years. She always was so positive thru out her battle even though she had been told more than once that she only had months to live but outlived those predictions by years. She always had a smile every…
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mucus mucus???
hi everybody I'm doing ok except for the mucus it keeps making me throw up I'm on my fourth week of radiation and I have chemo next Wednesday.Any body have any ideas I've tried muccinex it doesn't seem to help thank you.
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JUST HAD TO SHARE THIS, IT TOUCHED MY HEART
3 years ago Friday, I lost a very special friend and coworker who had fought a brave fight against colon cancer for about years. She always was so positive thru out her battle even though she had been told more than once that she only had months to live but outlived those predictions by years. She always had a smile every…
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Hi Everyone!
Hi there! Just though i'd say hello to everyone and wish everyone who is suffering from this terrible disease to get well soon. I was in bad shape about 2 1/2 yrs. ago with base of the tongue cancer. I recognize a few names that are still on here. I go regularly for my 3 month follow ups and everything seems to be good so…
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Continous ugh
Hi everyone, I am in my last week of rads, 3 more to go. Yay! I had no mucous so far . Over last 3 days i have developed mucous and along with that a very Persistent cough. I pretty much cough all day and all night. I also cough up blood couple of times. My doc had asked me to try robitassin cough medicine and ativan. I…
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First chemo tomorrow. Scared!
First chemo tomorrow. Scared! I know they will be giving me Aloxi in my IV and are also giving me Emend, Zofran, compazine and Ativan to use as needed. I know there's a good chance I will be fine since I'm doing lower weekly doses and god knows I have every weapon available to help. What I need are some good positive…
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Six-Step Screening: Six Steps to a Thorough Oral Cancer Screening
Hi everyone. I don't know when this group was created but I'm sure glad there is one for H&N. I was dx'ed 14 years ago with stage IV lateral tongue SCC, and no risk factors. If you saw me, you would never know I had a radical neck and reconstruction of 1/3 of tongue. I'm lucky and I know it. I couldn't go on ethically…
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Still hanging in there...
I thought I'd post an update, since I'm still having some struggles but I'm hanging in there as best I can. Some things have gotten better: my neck skin is almost completely healed, and the mucus is definitely slowing down. Other things are about the same: I'm still struggling to keep food down (through the tube) and…
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Hi Everybody just checking in
Hi everybody i know its been a little while since i have checked in but i'm 8 days into radiation and 1 chemo down the chemo was horrible i had to go for fluids yesterday so with that and some steroids i was good to go i have my radiation in the evening around 5 everything is going ok i'm feeling a little better than i did…
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First good PET
Hi Everyone, My radiation onc just called to tell me my PET scan results were very good. All activity was normal, former cancer areas were gone and warm spots were due to the radiation treatments. During my visit next week she would like me to visit with the dietician to see if we could improve my (eating) diet. I thought…
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MU-GARD
Okay, I am 8 treatments done in radiation and one cycle of Cisplatin done 8 days ago. Yesterday the soreness in the mouth and throat hit just overnight. I am guessing more as a side effect of the Cisplatin than the radiation at this point. I had tried the Miles Magic last week as the Oncologist wanted me to start on it,…
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Help from loved ones.....
Hello group, Just a gentle reminder to us all. More than one set of ears are better than one. I know writing things down, to refer back to helps alot too ! Man my filing system is in need of re-sorting ! With what we are all going through, we can't possibly do it alone. Even with my husband standing beside me...I ask for…
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what does your neck feel like???
Hi Everyone, Now I want you to know I searched through the SUPER THREAD before coming here. What exactly does your neck feel like??? I am about 13 weeks post, 35 rad treatments plus Erbitux, lateral juggler dissection (left side). What I am feeling is (no whiskers of course), slight thickening along sides of esophagus and…
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Any news about Chef Daddy and Son Lately?
Hi all: Hadn't seen anything lately on Chef Daddy and son and was just wondering if I had missed anything or if anybody has heard from him. Jan (Basketcase)
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No voice
Hey guys! I finished 30 Rad treatments on Monday of last week. On Tuesday, my voice was gone. I mean....I can get a whisper out, but when I do that I feel like I'm straining. So now, I'm going on 5 days with voice. My throat is not sore although my mouth is still pretty tender and I do have a lot of mucus. Any body else…
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Break it to her gently?
A friend of mine was just diagnosed ( 3 weeks ago ) with tonsil cancer..she has a golf ball size lump on a tonsil. She has chosen to go with chemo and radiation at The James in Columbus Ohio. Because I am recovering from robotic surgery, she seems to think I have all the answers and I don't, so here are the questions, the…
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HAL?
I only come here often and have not been around for a while. I do hope everyone is doing well and fighting this nasty C. I do communicate with some via e-mail on occasion. I was wondering if anyone has information on Hal? Im not noticing any posts by him recently. Does anyone have an update on him?
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Eye sight...
hey everyone, Question....I'm 6 mos out of resection, and 4 mos out of rads. Maybe this is acc nerve invasion issue, maybe not. Had MRI done 3 wks ago to check for brain stem mets, was clear. Am having issues with my right eye just going black no sight...for a few seconds, to 30 secs. Also now within the past few days…
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Pit Bull Sick
I am going crazy in here because my Son told me that my little darling PitBull was having problems at home falling down and running into the walls. My son took her to the doctor and they can’t find anything wrong except old age and maybe some kind of infection. I ask the hospital if I could bring her in here to see me but…
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Things to be aware of after radiation to the neck area
Update on myself..All clear on the Cancer check, the soreness is fibromyalgia, always make sure you are exercising the neck region as well as rubbing the stiff hard muscle region area under your chin, I was told this would soften the tissue and lessen the swelling. I had a thyoid test done, because of the tiredness and…
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take a chance or not???
so i just completed my 2nd round of chemo about 5 hours ago. 35mg cisplatin weekly since the doc said i could tolerate it better than the larger once every 3 wk dose. i get aloxi with the chemo and also take emend. i had no side effects the first go round. the lethargy and headaches and constipation i really think were…
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Question
Dad had a CT scan two weeks ago and everything looked great. The doctor could not feel anything when he felt his neck. Then this morning he woke up and the area under his ear where the cancer was in his lympe node was slightly swollen. He says it does not hurt and you can barely tell. Mom said the other day that his face…
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Update from New Radiologist
Hey all, I just wanted to drop in and say hello before I go in tomorrow morning. I met with my 'new' Radiologist yesterday (after I said no to the first guy) This 'new' Radiologist was know as the best in the area and I wanted him initially from his reputation here in town. Anyway, he took one look at my lesion and…
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Yesterdays Surgery
My surgery for the spot on my tounge went well..heck what do I know I was out like a light...but what the ENT said to me prior was that the sight was small so thats why it didn't show on the PET I had on June 6th and that was a good thing. What he told my friend that went with me while I was in recovery everything looked…
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Question -- Starting to Eat Again
My husband is currently going to a speech therapist for swallowing exercises. He has been told the exercises are making him stronger and he was able to swallow small sips of liquids at his last visit with the ENT doc. They have not said anything to him about eating or drinking again. He is disappointed about this. My…
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Cellulitis and Hearing Zebras
Doug developed swelling on his neck about 2 weeks back - it was on the side of his neck dissection (which was done a little more than a year ago) and ran along the same path as his carotid artery. Lots of possibilities ran through my mind, including an aneurism. He was due to see his chemo guy anyway, so waited another…