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Yesterdays Surgery
My surgery for the spot on my tounge went well..heck what do I know I was out like a light...but what the ENT said to me prior was that the sight was small so thats why it didn't show on the PET I had on June 6th and that was a good thing. What he told my friend that went with me while I was in recovery everything looked…
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Question -- Starting to Eat Again
My husband is currently going to a speech therapist for swallowing exercises. He has been told the exercises are making him stronger and he was able to swallow small sips of liquids at his last visit with the ENT doc. They have not said anything to him about eating or drinking again. He is disappointed about this. My…
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Cellulitis and Hearing Zebras
Doug developed swelling on his neck about 2 weeks back - it was on the side of his neck dissection (which was done a little more than a year ago) and ran along the same path as his carotid artery. Lots of possibilities ran through my mind, including an aneurism. He was due to see his chemo guy anyway, so waited another…
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Getting ready for first operation...
Hello my dear friends. Just wanted to say hello and the share the decisions my family and I made along with the cancer team and surgeons, after Fridays pre-op meeting: The cancer is spreading faster than they thought, and I am now going to need two surgeries. The first one is going to remove the cancer itself from the…
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ONE WEEK DOWN!!!
6 to go :o ) So far, mouth a little dryer and taste going already. Other than that I'm still good!
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Spicy Foods?
Hello Everyone. I am wondering if anyone that has had radiation of the head and neck has the same trouble I do....I can not eat any spicy foods, drink carbonated drinks, things like that. Ever since I have been able to eat solid foods after my 36 radiation treatments, I can not eat anything spicy, black pepper, drink fruit…
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After the biopsy
Hi all, Thanks for all the support I've received thus far about my Mom's recently diagnosed BOT cancer, which has spread to her larynx and at least one node. The biopsy came back positive for squamous cell and due to size and spread it's stage 4. Don't know anything form the pathology report about how the cells looked. A…
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surgery on monday
back after 2 months; laser surgery to remove tumor on the epiglottis coming up next monday and i have a question, how do you possibly control your emotions with this disease? it seems like the UNKNOWN factor is what is kicking my rear. Normally i am the solid rock but i am letting this ordeal work on me way too much; any…
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Breathing.
As I mentioned in another post a few weeks back that I'm having a hard time breathing through my nose. I bought a humidifier, nothing... I bought allergy meds, nothing...I used nasal sprays, nothing. Today I had a visit with my ENT which he looked in my mouth and throat and said I was really red and blistered ( I could of…
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NitaNita
Has anyone heard how NitaNita's surgery went this morning? If so, please post what you know. I believe this is the first time that I've known exactly when another member's surgery was (most of us found the site a little later in our journey than she did) and thus I've been thinking about her and hoping that everything went…
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Halitosis
Ok guys, I feel like I can ask about anything...I mean, there's a thread about oral sex so it's ok to ask about funky breath, right? Before my mouth got really sore I was very diligent about oral care. I brushed 2-3 times a day and flossed at night. I don't have any oral health issues. I visit my dentist every six months…
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surgery on monday
thanks so much for all the replies, i appreciate the advice and will certainly take it to heart; best of luck to each of you.
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Today I Turned 56
Yep, it's my birthday. I wondered last year this time if I would see another year. I've been a lurker but not much of a poster since I joined the forum, as I'm a pretty quiet guy. No one ever seemed to have much to say to me and I just realized today that I never filled out the information about myself and my plight, so…
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The radiation journey
I know there is ton of information on this site on this but i found it took a lot of reading and even after that one is confused. I thought having a simple log where we have precise day by day information will help. We will limit this blog only for problems and known solutions. E.g for each day or week we could try to say…
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Done, Done, Done
Brought home the immortal mask today!!!! Not feeling terrific but SO GLAD it's behind me and hopefully FOREVER!!!!!!!! I endured my little portion but my heart sincerely goes out to the rest of you in treatment and FAR WORSE than I endured!!! You're absolutely miracle workers to survive!!!!!!! Haven't heard the bell from…
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WHO DAT
getting his Mask, Dat ditto1, who ditto1, ya your right Dats who. Yes my dear friends nearly 2 months after finding out about the dreaded mask today was the day. It started with my Eribitux 1st one and then off to get the mask fitted. 1st I give thanks to Jesus for getting me thru the day, but after that I want to thank…
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Mild numbness in face ?? Anybody else??
Hey all ...I've been doing great. Good scan and 2 good scopes after scan...but just curious if anybody else gets or got numbness in and around the facial area. I konw this may sound silly...but it's like a "mild numbness" on my cheeks (both sides) and up my temple.?? Again...I figure it is prob sinus or just more radiation…
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Question
In late Jan early Feb after all treatments completed, I noticed a whitish sore area on the right side of my tounge, at each onco, rad and ent visit I asked if it looked like anything serious, all said no. ENT had me take an antibiotic, thought it might be thrush, nothing changed, then we tried magic mouthwash , again nada,…
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Surgery on Tuesday...
I just wanted to express many Thank you's to all of you that have helped calm my nerves over this last month. I know I can be a little on the paranoid side. I go in Tuesday morning at 6:30 and have surgery at 8:30am. I am still nervous about the surgery. I am hoping he will get good margins without having to take to much…
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Question on lung nodes
Hi everyone, I go back in to cancer center in July. Will be having CT with contrast done then to determine if any changes occuring. Was told after failing to finish rads., and knowing cancer wasn't all resected that may show reoccurrance. (hate the word MAY) Any way trying to stay positive...but trying to find out about…
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This is my bus stop..
..and I'm done too! I came home yesterday night after the doctor removed my brachytherapy implants. Since it's whining week on the board, here's my contribution.. ;) The implants were not too painful and the discomfort was manageable, but somehow I got really tired of the whole thing after days of antibiotics destroying my…
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Oral sex
Ok, so I'm a year out of treatment and all is good. When I was diagnosed I did a lot o research, like many of you I am sure. I found that hpv in the tonsils leading to tonsil cancer is likely caused through oral sex. Well I hate to get to personal but I am a male and I thoroughly enjoy oral sex with my Wife. Problem is…
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Just Checking In 2 weeks of rads done and stating my 3 rd week today
hi everybody i'm done with 2 weeks of radiation and so far i still have most taste buds knock on wood LOL I'm doing pretty good other than that MD Anderson has been real abdnmient about getting me in for fluids 3 days a week before chemo and then after i also have a nurse coming in day after chemo for 5 days of fluids…
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I almost made it 1 year
Well it has been a pretty good last couple of months, I am healing nicely and the botox injections have allowed me to eat with alot less pain. I have been a bit pollyannish about my every 6 week checkups, and despite what I have been told about the odds, I thought I was done with cancer. Tuesday during the scope in my nose…
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Disguising Lidocaine
No, I do not have a pediatric cancer patient but I'm at wits end. Hubby got sick on his first dose of Magic Mouthwash and now will not even try it. It makes him gag. We talked to the doctor today and he prescribed lidocaine only and I'm picking that up in a bit. But he is already indicating he KNOWS it will make him sick.…
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Party time!!!
Got my diploma in hand, I have graduated from Radiation Theragpy...WHOO HOO! I walked out and my whole family was in the waiting room, a little surprise party. When I went to get into the car, there was a huge poster on the back window saying "JUST FINISHED RADIATION", and a string of cans attached to the bumper...LOL. It…
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FATHERS DAY.
This goes out to all my "Friends and Fathers" on the board. HAPPY FATHERS DAY GUYS........... make it special. God bless Tonsil Dad, Dan.
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Antisocial
Is it normal to feel so antisocial in just the first week of treatment? My plan was to be this trooper that lets nothing get me down but yesterday after I came home from rads I just wanted to sleep then started crying in the bathtub. I feel like I should be enjoying my last couple of weeks of feeling somewhat normal. I do…
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Oral Cancer Foundation Prognosis Information
I just stumbled across the following which is contradictory to what I've been told by my doctors and have read elsewhere. Is this accurate? From the Oral Cancer Foundation Website: Prognosis The 5-year survival for all stages of head and neck cancer is 35% to 50% and this is believed to be due, in part, to late…
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Do your exercises....
I think about once a month I'll post this friendly reminder :) . Exersise your tongue and your jaw, 3 times every day during radiation....S-T-R-E-T-C-H those muscles. They never said diddley squat to me about doing exercises, but heard it from other people who had HNC...and I'm glad I did. My jaws started tightening up…