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help with securing peg tube
I had my peg tube and port inserted yesterday. The port seems to be fine, a little sore but really no pain. I had a lot of discomfort from the feeding tube last night but it seems to be getting better today. Of course the fact that I vomited shortly afterwards probably didnt help anything. The home health nurse came last…
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Chimming in for facebook....and prayers needed for few fb friends...
Hi everyone, I am not promoting any specific sites, and as far as fund raising lol (my money and efforts will be for ACS) They do not promote any specific cancer and help us all ! That being said as you all know I have ACC. I have been like a maniac researching til my head hurts....and have found mostly generic info. But…
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Question?
This is just a question, 6 weeks out of rads and doing pretty good, taste improving a little, then disapears, very dry mouth and a sore throat well its not the throat it the back of the mouth before the throat that's really sore but overall not complaining I'm doing well. My question is it seems my nasal passages are…
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Another newbie, hi!
I'm a 24 year old guy with adenoid cystic carcinoma... just finished 30 radiation treatments to my head & neck about 2 weeks ago. These past 2 weeks were the absolute worrrrrrrrrst of my life! So much pain in my mouth, and my nose gets plugged like 24/7 making sleep nearly impossible... and my right eye seems to be going…
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Misunderstanding.....
Hi everyone... Wanted to clarify....I try to say things to help people but always screw it up somehow ! I do NOT have a reciepe for magic mouth wash....good lord...I always says things inside out. I used the liquid lidocaine, mixed with liquid benedryl...because I couldn't use the lidocaine alone (threw it up !) Also could…
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Waited Til The Weekend
To get the sore throat. Ice chips, ice cream, Magic Mineral Broth. Other than that, any suggestions to get us to Monday and an appointment with the rad onc? And hopefully the Magic Mouthwash. Hubby's had a tough time with the treatment which surprised us because he has (read that had) such a high pain threshold. But he got…
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CT follow update
Dad is still all clear. There is one place that shows up, but has not changed in two and half monthes. Dotor not sure if it is scar tissue or the root of the cancer. Since nothing has changed he told dad not chemo now and come back in 3 monthes for another scan. Thank you all for your prayes they seem to always work. Kathy
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Pictures anyone?
I asked my rads techs if I could let my son take pictures tomorrow of me and my buddy (mask)on the table and they said yes. Am I crazy for wanting this momento? My family says I just want more sympathy and they're probably right!! :) Just wondered if any of you did that or wanted to? Will take pics of the tech's too who…
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How You Chose Your Screen Name
While answering a reference to a question in another post, I remembered this thread; "How You Chose Your Screen Name" It definitely brought back some fun memories during some good times with many here. At the same time though, it's a bit sad as so many from that original thread have had a bad go of it since that time. It…
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1st Petscan 2 months post treatment
My husband had his first followup petscan yesterday. We go tomorrow at 9:40 for results. Nervous, but optimistic as are doctors. Please pray for NED, NED, NED! Thank you.
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Online research survey for oral cancer patients and caregivers
To all oral cancer patients and their caregivers: Please take a few minutes to help future oral cancer patients by completing this important survey. Thank you!!! https://mysurvey.moffitt.org/Checkbox/SupportiveCareNeedsinOralCancer.aspx I and Mrs. K did this awhile back, they need more peeps to complete it to help give…
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OK you guys.....5....yes that is FIVE
amifostine and rad treatments left to do!! :) I am excited that the last week is finally here, and that by next week at this time, I'll never have to have either again. I got thru this relatively unscathed, too...I weighed 89 1/2 today at rads, which is only a 3 1/2 lb weight loss from the git go. Thanks to the diligence…
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Homeopathy and natural treatment
Some good reading for anyone interested in Homeopathy and natural treatment. Luc Montagnier, Nobel Prize Winner, Takes Homeopathy Seriously Dr. Luc Montagnier, the French virologist who won the Nobel Prize in 2008 for discovering the AIDS virus, has surprised the scientific community with his strong support for homeopathic…
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A couple of questions for Pat (Longterm survivor or anyone knowledgeable)
I'll ask my onc Dr. Thurs. but I wonder what is causing me to choke so badly on saliva, just about any liquids, if I'm not very careful. I assume it's the swelling to my vocal cords (rads only to vocal cords, not to nodes)/throat? Also my mouth isn't dry since it's not being radiated but my lower throat is so incredibly…
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new to board
i'm a newbie. i'm 72 years old and finished treatment 2 yrs ago. cancer on right tonsel.35 treatments of rad. and 6 chemo treatments.2 months later right neck operated on.have had all good scans.still no taste and only about 40% saliva. was able to take my elk hunting trip to co. last fall and have taken 2 ski trips to co.…
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Surgery has been scheduled and I am freaking out!
So I am scheduled to have my surgery June 19th to have about 1/4in deep and about the legnth of two quarters taken off the left side of my tongue and to have a partial neck disection. I am glad to have it scheduled and know it will finally be taken out of my mouth. However I am really scared they are going to say they…
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Adenoid Cystic Carcinoma, Encouragement needed!!
I'm 27 and was diagnosed with Adenoid Cystic Carcinoma in March. I had surgery to have the tumor removed and also 47 lymph nodes. All the lymph nodes came back clear and the surgeon got clear margins. I just completed #7 of 30 radiation treatments today. I'm just curious to see if there are any survivors of this type of…
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CT skan results not conclusive
Hi Well I finished my radiation for SCC in the tonsil and three lymph nodes in March. I just went back for the CT Skan and was hoping to be cancer free. The tonsil appears to be cancer free, but one of the lymph nodes is 12mm and they do not want it to be more than 10 mm. The doctor said they were pleased with the results,…
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New to this forum, worried
Hi all, Never posted here before but have been reading a lot of helpful posts and encouraging thoughts on this board and hoped I might get some answers and support. My 75-year-old Mom was just diagnosed by an ENT with what he terms stage IV tongue cancer that has invaded her epiglottis and larynx and at least one lymph…
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Protecting the Salivary Glands while on Radiation
I was given Amiphostine 30 minutes prior to each of my 38 radiation treatments I received and indeed it did protected my salivary glands, right more than left since I received most of my radiation in the left side. I have been on remission for 14 months and I don't drink so much water as I did after treatment. I am able to…
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Smoothies that are good for us
Megan had posted that she is having bolthouse farm smoothies and she is feeling better. So when i went to whole foods i picked up some and they are gooood! I can still taste coffee so really like their coffee smoothie for morning. It has about 30 grams of protein in each bottle so i have half bottle 3 hours apart. I also…
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First week past treatments
Sorry I haven't posted this week. I ended up in the hospital again because I couldn't stop throwing up. It turns out it was a combination of the mucus (which I suspected) and the fact that I had been eating so little for so long that my stomach had kind of shut down. They put me on a new anti-nausea medication that is…
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Vomiting due to excess mucus
My husband has had 23 rads as of today. He's having a rough time with lots of mucus in his mouth and throat, which then drains down into his stomach, which then makes him vomit. Nothing seems to help. He's taking zofran for nausea, reglan to help move things through his stomach quicker, and some tussin (generic Musinex) to…
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create a friend list ?
Hi everyone ! I am very computer savy....not ! How do I make or get a friends list started ? I would love to hear from you this way instead of going through all the lists of messages. Not that I won't continue to post if I think I have info for people, or just a goofy thought ! Thanks for your help guys ! Katie
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Teeth Cleaning and X-Rays
Hello all. My Radiologist thought it might be a good idea to go get a thorough teeth cleaning and start using something called 'Fluoride Trays" every evening. Surgery for partial tongue removal and right/left neck dissection is June 21st. Should I not have x-rays done this time around just in case that the pathology on my…
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New Puppy Picture and Checking In
Hi all: Hope this comes thru of Chargee! He's quite a cutie isn't he? Certainly is keeping me busy and he and Sammy are now bff's! Will now be home for quite a while I suspect. Unemployment has run out and I am now going thru the process of possibly becoming a 911 operator. I applied on Jan. 20 and have the interview…
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Results from 1st pet scan
It was not as good as we hoped. But not as bad as it could have been. This is after 5 rounds of cysplatin and 35 radiation treatments for BOT cancer with lymph node involvement and only two months post treatment. Primary tumor shrunk considerably but a small amount remains. Also left side where cancer was found in the…
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What's a good immune system builder...??
Okay ...I'm looking for a good immune system builder and I konw many of you have your opinions and links ....can you share some of those links or products so I can get rid of Ensure and Vita-water ...too expensive, too much sugar and a bit fru-fru for me. Dan (tonsil dad) ...I hear you got some opinions on alternative…
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Lasting medications
Everyone practically knows my story, Stage 4 laynx cancer, i had some screw ups, and they finally pulled my butt threw everything, I am not right, I have HARSH TALKING VOICE, MY OPERA DAYS ARE OVER..my breathing isn't the greatest, but i live day to day without mechanically devices, though my doctor would love to fit with…
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APB on Laralyn.....
Just checking on you...we haven't heard anything since last weekend. Has the nausea abated any? Are you feeling any better at all? p