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Protecting the Salivary Glands while on Radiation
I was given Amiphostine 30 minutes prior to each of my 38 radiation treatments I received and indeed it did protected my salivary glands, right more than left since I received most of my radiation in the left side. I have been on remission for 14 months and I don't drink so much water as I did after treatment. I am able to…
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Smoothies that are good for us
Megan had posted that she is having bolthouse farm smoothies and she is feeling better. So when i went to whole foods i picked up some and they are gooood! I can still taste coffee so really like their coffee smoothie for morning. It has about 30 grams of protein in each bottle so i have half bottle 3 hours apart. I also…
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First week past treatments
Sorry I haven't posted this week. I ended up in the hospital again because I couldn't stop throwing up. It turns out it was a combination of the mucus (which I suspected) and the fact that I had been eating so little for so long that my stomach had kind of shut down. They put me on a new anti-nausea medication that is…
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Vomiting due to excess mucus
My husband has had 23 rads as of today. He's having a rough time with lots of mucus in his mouth and throat, which then drains down into his stomach, which then makes him vomit. Nothing seems to help. He's taking zofran for nausea, reglan to help move things through his stomach quicker, and some tussin (generic Musinex) to…
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create a friend list ?
Hi everyone ! I am very computer savy....not ! How do I make or get a friends list started ? I would love to hear from you this way instead of going through all the lists of messages. Not that I won't continue to post if I think I have info for people, or just a goofy thought ! Thanks for your help guys ! Katie
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Teeth Cleaning and X-Rays
Hello all. My Radiologist thought it might be a good idea to go get a thorough teeth cleaning and start using something called 'Fluoride Trays" every evening. Surgery for partial tongue removal and right/left neck dissection is June 21st. Should I not have x-rays done this time around just in case that the pathology on my…
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New Puppy Picture and Checking In
Hi all: Hope this comes thru of Chargee! He's quite a cutie isn't he? Certainly is keeping me busy and he and Sammy are now bff's! Will now be home for quite a while I suspect. Unemployment has run out and I am now going thru the process of possibly becoming a 911 operator. I applied on Jan. 20 and have the interview…
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Results from 1st pet scan
It was not as good as we hoped. But not as bad as it could have been. This is after 5 rounds of cysplatin and 35 radiation treatments for BOT cancer with lymph node involvement and only two months post treatment. Primary tumor shrunk considerably but a small amount remains. Also left side where cancer was found in the…
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What's a good immune system builder...??
Okay ...I'm looking for a good immune system builder and I konw many of you have your opinions and links ....can you share some of those links or products so I can get rid of Ensure and Vita-water ...too expensive, too much sugar and a bit fru-fru for me. Dan (tonsil dad) ...I hear you got some opinions on alternative…
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Lasting medications
Everyone practically knows my story, Stage 4 laynx cancer, i had some screw ups, and they finally pulled my butt threw everything, I am not right, I have HARSH TALKING VOICE, MY OPERA DAYS ARE OVER..my breathing isn't the greatest, but i live day to day without mechanically devices, though my doctor would love to fit with…
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APB on Laralyn.....
Just checking on you...we haven't heard anything since last weekend. Has the nausea abated any? Are you feeling any better at all? p
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Cancer survivors and care givers....
Hey everyone, Kind of zooming around on different links. Man I have felt alot of the same feelings of frustration and anger at the lack of information and new treatments out there. But cancer no matter what kind it is stinks ! I have had my foot in both worlds so to speak.. was a primary care giver to my Mother for two…
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Where in the World Are You ~
Here's a link that I have posted over the years and update occasionally. It's a Google Map showing where we live. Where in the World Are You I originally started it as a means of support and sharing. A way to find those close to you and to offer support for those that might want to participate. I have met a few survivors…
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Self Dialations
Has anyone heard of self dialations? My doctor is wanting me to try this for my next dialation & i'm not sure how I feel about this. It's supposed to be a tube filled with murcury that I can self dialate with. I'm a laragectomee so there won't be a problem with the airway as I breath through my stoma. If anyone has any…
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AGNOTCSIM
After 3 years since the end of treatment for stage 4 Left Tonsilar Cancer ( in which they told me that I may have 5 months left due to aggresive spreading), I have my results from the 3rd year Pet Scan. It showed that I Ain't Got None Of That Cancer Stuff In Me.....so thank goodness. Larry
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Next Wednesday is the big day
Next Wednesday is the big day. Chemo and rads. Will do the weekly Cisplatin on Wednesday's, hydration sessions on Monday and Friday, rads Monday thru Friday. The duration will be 6weeks. Got fit for my mask today. Couldn't do the long mask. I have obstructive sleep apnea and the mask part around the neck felt like I was…
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Cricopharyngeal spams or incompetent esophagus ?????
These were the two scenarios given to us today by the ENT as to why dad cannot eat 7months post treatment for tonsil and lymph Anyone have any information on this Dr. Said the way to find out is to treat as if it were to see if it works. Treatment for the spasm is Botox injection at the upper Esophaguial sphincter. Any…
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Lips peeling
Hi to all.... Just wondering if anyone's lips peel My dads lips will shed like a snake shedding his skin...only somedays.. It is soo strange. Has anyone experienced this? Thanks Michelle
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Looking for anyone that may live by me...
I was told I should ask if anyone on here may live by or in Phoenix, Az and has gone through or going through SCC on the tongue or neck disection. I am looking for some support from some people :) Thanks!
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Follow up CT
Dad will get the results of his CT tomorrow. He finished treatment for a reoccurance for tongue cancer in March. The doctor gave him a two month break since the CT then was all clear. We will find out what the plan is for the next couple of monthes. just wanted to keep you all updated. Kathy
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NOT AGAIN DITTO
Hopefully not, again a MASK question. And yes I reread the superthread before writing this so redirect me if I missed the answer. I go for the fitting (i guess)tommorrow. I came across a you tube video showing how they bring the Mask Mesh from a warm water tray and lay it over the face. Then they put him in a CT scan to…
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95%!!!
just saw this article last night. unless i'm misunderstanding something, it looks like what i have and the treatment i'm getting is now resulting in a 95% 5 year survival rate! http://www.redjournal.org/article/S0360-3016(11)02863-X/abstract
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Adenoid Cystic Carcinoma
Hey everyone, Was just on a site talking about different cancer centers. HOLY COW ! I know how they feel but also I have learned darn quick that I am in charge of me. My cancer was in my submandiblar gland (saliva) and was told very rare. My options are pretty limited, but I am not giving in to that. I have been…
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Faster feedings using a feeding tube - options?
Hi I have been using my feeding tube for about two weeks almost exclusive. I'm using the gravity bolus method but it just seems to take forever and when my wife makes me something a little too thick it takes even longer. Has anyone heard of ways to move food quicker? I ask this because I eat about 8 or 9 times a day and…
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2nd Pet/CT
I had my second post treatment PET/CT scan today, report will be sent to my onco, they gave me a CD for the rad doc...my ENT gets a copy as well...I know in my heart everything is fine...packing right now to go back east for 10 days to celebrate grandaughters 7th birthday and just enjoy all my family. I will never ever be…
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NEW TO CSN
I am new to the boards so thought I would introduce myself. I have been reading info on here for the past few days and thought it was time to join. I had surgery in April 2012 to have what I had been told was a branchial cleft cyst removed. After a cat scan, ultrasound and needle biopsy which came back benign and meeting…
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my 1st radation treatment done
1st radiation treatment is done and tomorrow morning is chemo at 8 please keep me in your prayers i'm very scared about the chemo.It will be my 1st 3 week cycle.
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Ophthalmologist Visit?
Wondering if any of your ENT docs told you to see an eye doc after radiation treatment. Should we include this as part of the ongoing follow ups? I had double vision when I was daignosed with NPC but now my vision has returned to normal.
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Tumor Bleeding???
have you ever spit up blood from the tumor mine is on my tonsil and evidently there is a lot of blood vessels there so a couple of times a day i'm spitting up blood when i drink ice water it goes away for a while then comes back again.I have called the doctor and they said that its normal but it scares me when it happens.
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20 treatments done! Woo Hoo!
I think my last few posts on here were pretty negative so I thought I'd post something a little more positive. There was a point in my 3rd week of treatment when I thought I really wouldn't be able to finish. I was in so much pain all the time. I couldn't drink anything without MM and I was getting dehydrated because water…