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Looking for a good PET
Everyone Well, it is time to cross the (first, 12 week post, PET scan) bridge, tomorrow morning at 7:30 am. Can I look for NED yet or is too early? Or do I have to wait for the 6 month or 1 year checkup? Of course I had to have it done on exactly the 12 week mark, which is a Friday so I have to wait through the weekend and…
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Let's talk bowels....
I have never been so constipated in my life...ah, but to keep the mystery alive, a little diarrah when I least expect it...or...both, at the same time (sounds impossible, but it's not for me). I keep trying things to eat to help, since I don't trust Colace (not the substance, but the "when" it will suddenly become…
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Found some new PET scan buddies
Everyone, My PET scan was a success at least the mechanics of the procedure (scary part). In addition to taking 1.5 tablets of Lorazepam (which was plenty), I took a page out of the book of phannie51 and did a (virtual) tucking in of each of you in my pockets. It got a little crowded, but with everyone tucked in, I breezed…
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What were your very early symptoms of vocal cord cancer?
Hello, I'm a 27 yo female and was diagnosed almost 10 years ago with the high risk Hpv during a gynological exam. I have read about Hpv increasing risk for oral cancer and it has me terrified. Around Christmas I got laryngitis and after I got better I still couldn't make high pitched sounds. It got a little better over a…
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Peg Tube Feeding
Wow I did not know I could eat so much and so many things through the Peg Tube. I think I am becoming a little pig because I want to keep trying new things. Had my Wife caregiver talk to Denny’s wife and got a lot of ideas. Tonight I had Coffee and biscuits with Avocado all blinded up and down the tube, oh that was soon…
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29 or 30?
Suppose to complete my 30 rad treatments next Friday. The machine broke down today. I have major plans for next weekend, going to beach for a week with family to celebrate the end of treatments and hopefully recovering my life. The question is should I stay behind because the doc says I really need that 30th treatment? I…
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"You've Lost A Lot of Weight"
I will acknowledge up front that it's a nice problem to have and I'm fortunate to have come out of the worst year of my life relatively unscathed. But I'm curious what other people do in this scenario . . . I run into a co-worker/acquaintance who I don't really see that much. They comment "Gosh, you've really lost a lot of…
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Dry Mouth No Saliva
It has been almost 4 months since I went through radiation and chemo for cancer of the larynx. My mouth is still dry and I seem to have no saliva. I have to have a bottle of water with me at all times. Will it get better? Does anyone have any words of wisdom. I saw in the rad book that dry mouth may stay forever.
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Is my pain normal?
I have a lesion(SCC not a tumor) on the left side of my tongue and have surgery on Tuesday. I have never really had pain there unless I ate on that side. However now I am having shooting stabbing pains in my ear and throat now. Can anyone tell me if this sounds normal? I know I can call my Dr but they say if I have…
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There is no such thing as whining......
on this board. Everybody has gone, thru....is going thru...or about to go thru a horrible cure in order to beat cancer. The side effects are enough to make a mountain man shutter, yet here we all are doing it...not everyone has the same side effects, the same duration, or the same depth of misery.....but we are all here to…
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Aloxi and Emend
Great article touting the effectiveness of using Aloxi with Emend for the preventing chemo induced nausea. http://news.cancerconnect.com/aloxi-plus-emend-highly-effective-in-preventing-chemotherapy-induced-nausea-and-vomiting/
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First rad affecting taste???
Could my first rad already be affecting my taste or could it be my allergy attack that's going on? I just peeled and ate an apple and it has no flavor. There's nobody else home to taste it to tell me if it's just the apple. Weird.
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Changing my viewpoint re Amifostine.....
Since I only have today and tomorrow left to get it, I've changed my point of view from one of "have to", to one of a "volunteer"...I'm quite sure that skipping these last two wouldn't undo what the first 33 did, but it helps to know "if I don't want to, I don't have to". Only the dogged stubborness of finishing what I…
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Dry dry extreme dry throat
I know i keep whining about dry throat but it is almost becoming inpossible to handle. It is so dry it almost feels like someone is scratching my throat with a glass in one area on righht side (my salivery gland is remoed from right side). I keep coughing becuase of the dry throat. I have zero mucous, a little mucous will…
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Black Tongue
Well I feel a bit "stupid". I have posted in the past about how my tongue turns black and my GP Doctor didn't seem concerned that I was becoming a Chow (dog breed with a black tongue). Well yesterday I saw my ENT and he told me the name of the condition is "Black Hairy Tongue". This can be caused by several things (dry…
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How did you choose your forum name?
Just curious about peoples' sign in names and what the letters and/or numbers mean. Buzz is actually my husband's nickname and we only use his legal name when necessary. The 99 was added when we used Buzz for a sign-in on another website and Buzz was already taken. Karen
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Two Weeks Down
Five more to go. This week is actually better than last week. The stomach spasms ("I think my body's trying to reject my PEG tube!") and digestive tract problems are all but gone. Still searching for a Magic Mouthwash he can tolerate. His gag reflex is so sensitive to the taste, texture of the swish and swallows that he…
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I did it!!!
Survived my first chemo and rad. Rad server was down in the morning so did chemo first. Really had a good time. Weird. Then I fell asleep during rad. Lol. So far I'm tired and have a slight headache but that could be from not sleeping much last night. So now I must nap!!!
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Off topic prayer....
My husband is heading to Seattle today, for a colonscopy at Virginia Mason. There are two polyps the Dr. here cannot get, so going to a big specialty hospital was advised. Of course I'm hoping beyond hope that they will be able to get those two polyps at Virginia Mason...and this worry will be off our shoulders. He's put…
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6 Weeks Post - Mucous and High Throat Pain
We are new to this CSN/Discussion board and thankful to have found it! My husband diagnosed in Feb. 2012 w Squamous Cell Carcinoma base of Tongue Stage 3. No surgery, but had 6 weeks of chemo and 7 weeks of daily Radiation. He is now 6 weeks post, but he is eating less and says that the mucous is keeping drinks from going…
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Rang the Bell!!!!!!
I had my last Rad treatment this morning. My husband and daughter came with me and met all the wonderful people who have been taking care of me for the past six weeks. My hubby even took pics of me on the table. I think it might have freaked him out a bit. And I got pictures taken with the techs, my nurse and my RO. Some…
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Single digits!
9 more rads, 1 more chemo! Can't wait for this to be over, my poor guy is so tired.
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Nerve Pain?
Good Morning all, I have returned! Quick background/update: My dad was diagnosed with stage 4 tonsil cancer with spread to lymphnodes on one side in February 2011. A little over a year later he's been NED and sees his doctor's every 3 months. Yesterday he went to his general practitioner for a checkup (no cancer docs) and…
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ground glass nodule on lung
on my mom's recent PET scan a ground glass nodule measuring 0.5 cm was dicovered. Doctor said not to worry, we should just watch it. How often nodules like that are malignant? should we be worried? with my mom's history any little thing like this one makes me wonder...any suggestions?
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Pain medication
Are you taking any pain medications? Right now i am taking advil and that seems to be working but my doc thinks it might get bad pretty fast and i should try some narcotics to make sure i can handke it. Earlier she had prescribed oxycodon but when i told her i am prone to nausea, she gave methodone. I do not knkw which one…
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Greg
Hi folks,about 2 weeks ago,I had throat,neck and chest surgery,both my tosils had cancer too.It was squamous cell carcinoma,it took the Dr.6Hrs to dig it all out and the pain is real bad,the left side of my head,neck,throat and chest hurts bad and slightly paralised in mouth.I'am use to pain,I had a liver transplant 1 year…
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STAGE 4B BASE OF TONGUE SQUAMOUS CELL CARCINOMA
My dad was recently diagnosed with Stage 4b base of tongue squamous cell carcinoma. It has spread to his lymph nodes, and he has an 8cm (and growing) mass in the left side of his neck. We also just found out that the mass is leaking and has spread to the tissue in his neck; it looks like the spread is currently contained…
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help with securing peg tube
I had my peg tube and port inserted yesterday. The port seems to be fine, a little sore but really no pain. I had a lot of discomfort from the feeding tube last night but it seems to be getting better today. Of course the fact that I vomited shortly afterwards probably didnt help anything. The home health nurse came last…
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Chimming in for facebook....and prayers needed for few fb friends...
Hi everyone, I am not promoting any specific sites, and as far as fund raising lol (my money and efforts will be for ACS) They do not promote any specific cancer and help us all ! That being said as you all know I have ACC. I have been like a maniac researching til my head hurts....and have found mostly generic info. But…
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Question?
This is just a question, 6 weeks out of rads and doing pretty good, taste improving a little, then disapears, very dry mouth and a sore throat well its not the throat it the back of the mouth before the throat that's really sore but overall not complaining I'm doing well. My question is it seems my nasal passages are…