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First PET scan after radiation
Hi All This isn't for me, but I hoped to tap into the collective knowledge of the folks on here. A guy I have conversed with on a UK cancer forum since my diagnosis (really good guy) has had SCC of the BOT and had rads and chemo. He finished his treatments in March and has just had his first post treatment PET. The scan…
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Throbbing pain in my gum and small piece of bone sticking up
When the feeling started coming back, after my tonsil surgery and radical neck dissection, my gums on that side were naturally sore. But for the last week it has actually been throbbing and I finally started putting orajel on it, which helped, but only for a few minutes. When I put my finger back there it felt like it, my…
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some words of encouragement please peg tube tomorrow morning 6:30am.
hi today I went back to doctor I have grade 3 or 4 musscotispI'm half way through treatment it got very hard in a short amt of time.ut me on fetnol patch for that but because of not keeping weight up they are doing feeding tube placement they said the musscotis would only get worse so they wanted this to be elective I'm…
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Machine for water intake
I remember reading somewhere about a little machine that sprays very little water at some interval in your mouth. Does anyone know about this? Thanks, Sam
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How do I get passed swallowing just liquids?
Can anybody help here? I've been done with treatments since 10 Feb, and currently can only swallow liquids. My speech therapist has cleared me to go beyond liquids to anything I can get down, I just can't get anything down. I have thrush in my mouth that I'm taking Nystatin for. ( I can barely swish and swallow that).…
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Let Freedom Ring
Happy 4th of July
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2 weeks out of treatment
Well I'm only 2 weeks out of treatment for laryngeal CA. I have a PEG which I'm thankful for but would love to be done with! I have to use a continous feed pump because when I used the tube as intended it caused severe vomiting. My burn is starting to heal...boy I wish they'd be more honest about how that was going to…
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Happy 4th of July..
Hello to all my brave soldiers today! I just wanted to wish everyone a safe and wonderful holiday, hopefully you are with some family & friends, loved ones, etc. I also want to make my first, 'I'm kind of scared' comment/ story too, if you don't mind: I live in the Midwest and we have some of the best sweet corn in these…
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I thought I was doing so well...
Tomorrow will be 5 weeks since radiation... about a week ago I was starting to be able to eat lots of different foods with minimal pain. Then (this is the only thing I can think of that changed) it was time to go off my dexamethasone pills, and the past few days my tongue pain has been more excruciating than EVER. It used…
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ATTN: Paintslinger!!
My husband was just diagnosed with hpv+ base of tongue cancer. His, too, was discovered through a bronchial cleft cyst. His, too, was needle biopsied with no signs of cancer. His, too, was removed and found to have a cancerous growth on the inner wall. And then the pet scan which lit up on the left side of the base of…
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Okay ..have to ask
You know those dinner rolls or biscuits you buy at a bakery and they still have that "powdery white residue" on them you can blow or brush off? Well that's what on the back of my tongue, very back. My tongue, throat or mouth in general does not hurt...but I can feel / see a couple of very small bumps on the back of my…
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I would like to say!
Happy 4th of July to ALL of my fellow board freinds and there familys, I will be having the usual Runners up BBQ (I'm from England....we lost ) Even though it hurts to eat I will take the lortab and have myself a steak, I hope that everyone has a wonderful 4th of July weekend and go light some fireworks (my dog hates this…
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Just a tiny bit of info about me~~~
29 years ago today, I met the man who would become my Husband...we lived together 10 years and then married...so 19 years as a married couple. He was and is my "rock" through this whole cancer nightmare, we truly have a for "better or worse" marriage.
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Delayed celebration...finished rads on wed 6/27 :)
My radiation got done on wed and it felt sooo good to ring the bell! I hit it so hard, they could even hear from front of the building :) But things were not good since i came home, basically mucus, dry throat, coughing, nausea. My tomgue is sore too. I had to go for hydration 3 times. My doc says this is normal stuff and…
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Squamous cell carcinoma and acid reflux
I've just started posting on this site today. This site is just what the doctor ordered (pun intended). There are some really wonderful people here who we can all relate to given the situation we have found ourselves in. I'm six months out from my last treatment for HPV positive squamous cell carcinoma of the toungue that…
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Appointment for tests and set up for rads..a little scared
I have appointment for July 10, for tests and whatever else they have to do and I assume they will set up my appointments on that day. I had tonsil cancer and radical neck dissection, all in same surgery. They removed 17 lymph nodes and out of those there were 7 that were cancerous. I'm feeling better every day but now I…
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Neck Dissection
I am almost 1 year out on neck dissection (July 22, 2011). Looks good but suddenly a stabbing pain. I have had a clean PET in April and saw the doctors just a few weeks ago--all good. Just wondering if this is part of the heal. Hot prickly pains in cheek, even though I am still numb from the original surgery Aug. 2010. I…
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Dentures
Today, my first appointment to have dentures made..I admit I'm nervous...by the end of July should have my teeth
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MEC (mucoepidermoid carcinoma)
I'm looking for more info about MEC. My sister was diagnosed with MEC and has to have chemo.
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Four weeks after treatment
Well, yesterday marked four weeks after the end of treatment. For some reason, I've been having trouble staying positive, even though I think things are going well. The mucus is pretty much gone, and I haven't had any problem with nausea since reducing the narcotics. I'm consuming around 1100 calories a day (via PEG),…
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Tingling sensations and leg weakness post treatment
G'day everyone. New here :) My husband is at 8 weeks post radiation/chemo. Had surgery in Late Jan 2012 to remove one tonsil (tumor) sml margin of base tongue and part of wall at back of tonsil plus several lymph nodes in neck. Has a G peg feeding tube. Is trying to eat and can get soft meals down but still has no saliva…
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Going Home
We are selling our house and will be moving home to Daytona Beach next week. I know we should not make major decisions during times of stress but we are. I grew up in the Daytona Beach area and Jim has been there since he was discharged from the Air Force. We also have two children in the area, my mother and two sisters.…
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Neuroendocrine Carcinoma, Small Cell Type (Sinus)
I was originally diagnosed with Esthesioneuroblastoma on 12/15 but now find it was misdiagnosed and I actually have Neuroendocrine Carcinoma, Small Cell Type. I have been told it is even more rare than Esthesio. Has anybody had any experience in this? I am again looking for answers!
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Back home from surgery
Thanks for the well wishes: I had the robotic surgery Monday where they removed my epiglottis and a piece on the back of my tongue the size of a quarter. Supposedly got good margins praise the lord. I am no fan of the feeding tube and I have a ton of mucus. Start speech therapy next week. Thanks for all of yours prayers…
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Finished my last rad treatments today and rang the bell
Today I finished with my last radiation treatments i finished My chemo a couple weeks ago. Over all I feel pretty good I am still dealing with mucous that sometimes make me vomit im using the baking soda mix my docrecommmended ans tussin to keep itu under control the suction machine doesn't seem to help out much at all. I…
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Anyone else with balance problems?
The great majority of the time I'm fine, but I get these "spells"...I feel my ear plug up, the ringing in it muffles, and I get totally off balance....yesterday I literally had to plop on the couch to keep from falling. Then it passes like in 30 to 45 seconds. I don't feel dizzy, just completely off balance. It always on…
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Foolow-Up
Last tues day I had a small , well small is a relative word, section of the left side of my tounge removed as a result of a biopbsy I had earlier in June that showed some SCC cells. Besides the pain, the stitches , everything is going well...I saw my onco this morning , she had the pathology reports all margings…
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mucco epidermoid carcinoma
a family member was recently diagnosed with muccoepidermoid carcinoma high grade. anyone diagnosed with this form of salivary gland cancer? I wanted to know the prognosis and what to expect with the chemo therapy.
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Just diagnosed with SCC
I was just diagnosed with Squamous Cell Carcinoma with unknown primary on June 27, 2012. I noticed that I had a swollen lymph node in the upper right portion of my neck on May 29, 2012 while deployed to Afghanistan. They conducted a CT scan with contrast on the June 7 and the reading came back as "suspicious for cancer". I…
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Round 1 Complete...
Hello to all my brave warriors today! I am finally home from the hospital after my first round of surgeries and wanted to share. :) First things first - The pathology on the tumor removed from my tongue last Thursday came back with clear margins yesterday, very relieved and grateful. Anyway, so I had the tongue removal and…