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Just Checking In 2 weeks of rads done and stating my 3 rd week today
hi everybody i'm done with 2 weeks of radiation and so far i still have most taste buds knock on wood LOL I'm doing pretty good other than that MD Anderson has been real abdnmient about getting me in for fluids 3 days a week before chemo and then after i also have a nurse coming in day after chemo for 5 days of fluids…
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I almost made it 1 year
Well it has been a pretty good last couple of months, I am healing nicely and the botox injections have allowed me to eat with alot less pain. I have been a bit pollyannish about my every 6 week checkups, and despite what I have been told about the odds, I thought I was done with cancer. Tuesday during the scope in my nose…
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Disguising Lidocaine
No, I do not have a pediatric cancer patient but I'm at wits end. Hubby got sick on his first dose of Magic Mouthwash and now will not even try it. It makes him gag. We talked to the doctor today and he prescribed lidocaine only and I'm picking that up in a bit. But he is already indicating he KNOWS it will make him sick.…
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Party time!!!
Got my diploma in hand, I have graduated from Radiation Theragpy...WHOO HOO! I walked out and my whole family was in the waiting room, a little surprise party. When I went to get into the car, there was a huge poster on the back window saying "JUST FINISHED RADIATION", and a string of cans attached to the bumper...LOL. It…
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FATHERS DAY.
This goes out to all my "Friends and Fathers" on the board. HAPPY FATHERS DAY GUYS........... make it special. God bless Tonsil Dad, Dan.
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Antisocial
Is it normal to feel so antisocial in just the first week of treatment? My plan was to be this trooper that lets nothing get me down but yesterday after I came home from rads I just wanted to sleep then started crying in the bathtub. I feel like I should be enjoying my last couple of weeks of feeling somewhat normal. I do…
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Oral Cancer Foundation Prognosis Information
I just stumbled across the following which is contradictory to what I've been told by my doctors and have read elsewhere. Is this accurate? From the Oral Cancer Foundation Website: Prognosis The 5-year survival for all stages of head and neck cancer is 35% to 50% and this is believed to be due, in part, to late…
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Do your exercises....
I think about once a month I'll post this friendly reminder :) . Exersise your tongue and your jaw, 3 times every day during radiation....S-T-R-E-T-C-H those muscles. They never said diddley squat to me about doing exercises, but heard it from other people who had HNC...and I'm glad I did. My jaws started tightening up…
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What's next?
I'm new to these boards and have been reading threads and getting good information and now am at a point in my treatment where I have questions that are not well answered by the professionals. I have SCC, HPV+, primary tumor is on the base of the tongue with involvement of the left cervical lymph nodes, put at stage IVa by…
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Anyone experience major cold sweats?
My husband is a little over two months post treatment and is experience cold sweats on and off usually in the evening before bed. He gets cold and his body breaks out in a cold sweat. There is no fever and otherwise he seems to be doing okay.
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Sleep...help !
Hello all ! I have not been getting alot of sleep as of late. My mind has been working over time. Any suggestions ? Counting sheep, NOT ! I'm already on so many meds, don't want to add another if I can avoid it. Not a fan of warm milk, or herbal teas. I know sleep is a good thing when our bodies are trying to heal, and…
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Finally teeth are working....
Hello everyone, Might sound goofy to some who aren't in this position....but last nite at a wedding reception, I wore my dentures. I was hungry but teeth never worked to eat with. What to do...take 'em out no way. So I tried and it worked....I was so happy ! Maybe I'm finally getting past the lyphedema ! Also…
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The bummer of the day...........
which happened before I went to the last rad...I had my CBC done as I was leaving the Oncologists....White cells, in the toilet...Red cells, in the toilet....Hemaglobin, in the toilet, and Platlets in the toilet. They asked (very seriously) if I felt bad, which I don't. Told me to go to the hospital infusion center both…
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A chance to give back to my caregiver
Hi guys! I don't know if it's allowed to do this, but here it goes! We all know what hell we go through during treatment. We also all know that without our caregivers, many of us wouldn't have made it. I have often wondered how I could ever begin to repay all my husband has done for me and I actually have an opportunity! I…
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Looking for a good PET
Everyone Well, it is time to cross the (first, 12 week post, PET scan) bridge, tomorrow morning at 7:30 am. Can I look for NED yet or is too early? Or do I have to wait for the 6 month or 1 year checkup? Of course I had to have it done on exactly the 12 week mark, which is a Friday so I have to wait through the weekend and…
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Let's talk bowels....
I have never been so constipated in my life...ah, but to keep the mystery alive, a little diarrah when I least expect it...or...both, at the same time (sounds impossible, but it's not for me). I keep trying things to eat to help, since I don't trust Colace (not the substance, but the "when" it will suddenly become…
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Found some new PET scan buddies
Everyone, My PET scan was a success at least the mechanics of the procedure (scary part). In addition to taking 1.5 tablets of Lorazepam (which was plenty), I took a page out of the book of phannie51 and did a (virtual) tucking in of each of you in my pockets. It got a little crowded, but with everyone tucked in, I breezed…
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What were your very early symptoms of vocal cord cancer?
Hello, I'm a 27 yo female and was diagnosed almost 10 years ago with the high risk Hpv during a gynological exam. I have read about Hpv increasing risk for oral cancer and it has me terrified. Around Christmas I got laryngitis and after I got better I still couldn't make high pitched sounds. It got a little better over a…
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Peg Tube Feeding
Wow I did not know I could eat so much and so many things through the Peg Tube. I think I am becoming a little pig because I want to keep trying new things. Had my Wife caregiver talk to Denny’s wife and got a lot of ideas. Tonight I had Coffee and biscuits with Avocado all blinded up and down the tube, oh that was soon…
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29 or 30?
Suppose to complete my 30 rad treatments next Friday. The machine broke down today. I have major plans for next weekend, going to beach for a week with family to celebrate the end of treatments and hopefully recovering my life. The question is should I stay behind because the doc says I really need that 30th treatment? I…
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"You've Lost A Lot of Weight"
I will acknowledge up front that it's a nice problem to have and I'm fortunate to have come out of the worst year of my life relatively unscathed. But I'm curious what other people do in this scenario . . . I run into a co-worker/acquaintance who I don't really see that much. They comment "Gosh, you've really lost a lot of…
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Dry Mouth No Saliva
It has been almost 4 months since I went through radiation and chemo for cancer of the larynx. My mouth is still dry and I seem to have no saliva. I have to have a bottle of water with me at all times. Will it get better? Does anyone have any words of wisdom. I saw in the rad book that dry mouth may stay forever.
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Is my pain normal?
I have a lesion(SCC not a tumor) on the left side of my tongue and have surgery on Tuesday. I have never really had pain there unless I ate on that side. However now I am having shooting stabbing pains in my ear and throat now. Can anyone tell me if this sounds normal? I know I can call my Dr but they say if I have…
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There is no such thing as whining......
on this board. Everybody has gone, thru....is going thru...or about to go thru a horrible cure in order to beat cancer. The side effects are enough to make a mountain man shutter, yet here we all are doing it...not everyone has the same side effects, the same duration, or the same depth of misery.....but we are all here to…
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Aloxi and Emend
Great article touting the effectiveness of using Aloxi with Emend for the preventing chemo induced nausea. http://news.cancerconnect.com/aloxi-plus-emend-highly-effective-in-preventing-chemotherapy-induced-nausea-and-vomiting/
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First rad affecting taste???
Could my first rad already be affecting my taste or could it be my allergy attack that's going on? I just peeled and ate an apple and it has no flavor. There's nobody else home to taste it to tell me if it's just the apple. Weird.
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Changing my viewpoint re Amifostine.....
Since I only have today and tomorrow left to get it, I've changed my point of view from one of "have to", to one of a "volunteer"...I'm quite sure that skipping these last two wouldn't undo what the first 33 did, but it helps to know "if I don't want to, I don't have to". Only the dogged stubborness of finishing what I…
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Dry dry extreme dry throat
I know i keep whining about dry throat but it is almost becoming inpossible to handle. It is so dry it almost feels like someone is scratching my throat with a glass in one area on righht side (my salivery gland is remoed from right side). I keep coughing becuase of the dry throat. I have zero mucous, a little mucous will…
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Black Tongue
Well I feel a bit "stupid". I have posted in the past about how my tongue turns black and my GP Doctor didn't seem concerned that I was becoming a Chow (dog breed with a black tongue). Well yesterday I saw my ENT and he told me the name of the condition is "Black Hairy Tongue". This can be caused by several things (dry…
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How did you choose your forum name?
Just curious about peoples' sign in names and what the letters and/or numbers mean. Buzz is actually my husband's nickname and we only use his legal name when necessary. The 99 was added when we used Buzz for a sign-in on another website and Buzz was already taken. Karen