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surgery on monday
thanks so much for all the replies, i appreciate the advice and will certainly take it to heart; best of luck to each of you.
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Today I Turned 56
Yep, it's my birthday. I wondered last year this time if I would see another year. I've been a lurker but not much of a poster since I joined the forum, as I'm a pretty quiet guy. No one ever seemed to have much to say to me and I just realized today that I never filled out the information about myself and my plight, so…
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The radiation journey
I know there is ton of information on this site on this but i found it took a lot of reading and even after that one is confused. I thought having a simple log where we have precise day by day information will help. We will limit this blog only for problems and known solutions. E.g for each day or week we could try to say…
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Done, Done, Done
Brought home the immortal mask today!!!! Not feeling terrific but SO GLAD it's behind me and hopefully FOREVER!!!!!!!! I endured my little portion but my heart sincerely goes out to the rest of you in treatment and FAR WORSE than I endured!!! You're absolutely miracle workers to survive!!!!!!! Haven't heard the bell from…
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WHO DAT
getting his Mask, Dat ditto1, who ditto1, ya your right Dats who. Yes my dear friends nearly 2 months after finding out about the dreaded mask today was the day. It started with my Eribitux 1st one and then off to get the mask fitted. 1st I give thanks to Jesus for getting me thru the day, but after that I want to thank…
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Mild numbness in face ?? Anybody else??
Hey all ...I've been doing great. Good scan and 2 good scopes after scan...but just curious if anybody else gets or got numbness in and around the facial area. I konw this may sound silly...but it's like a "mild numbness" on my cheeks (both sides) and up my temple.?? Again...I figure it is prob sinus or just more radiation…
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Question
In late Jan early Feb after all treatments completed, I noticed a whitish sore area on the right side of my tounge, at each onco, rad and ent visit I asked if it looked like anything serious, all said no. ENT had me take an antibiotic, thought it might be thrush, nothing changed, then we tried magic mouthwash , again nada,…
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Surgery on Tuesday...
I just wanted to express many Thank you's to all of you that have helped calm my nerves over this last month. I know I can be a little on the paranoid side. I go in Tuesday morning at 6:30 and have surgery at 8:30am. I am still nervous about the surgery. I am hoping he will get good margins without having to take to much…
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Question on lung nodes
Hi everyone, I go back in to cancer center in July. Will be having CT with contrast done then to determine if any changes occuring. Was told after failing to finish rads., and knowing cancer wasn't all resected that may show reoccurrance. (hate the word MAY) Any way trying to stay positive...but trying to find out about…
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This is my bus stop..
..and I'm done too! I came home yesterday night after the doctor removed my brachytherapy implants. Since it's whining week on the board, here's my contribution.. ;) The implants were not too painful and the discomfort was manageable, but somehow I got really tired of the whole thing after days of antibiotics destroying my…
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Oral sex
Ok, so I'm a year out of treatment and all is good. When I was diagnosed I did a lot o research, like many of you I am sure. I found that hpv in the tonsils leading to tonsil cancer is likely caused through oral sex. Well I hate to get to personal but I am a male and I thoroughly enjoy oral sex with my Wife. Problem is…
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Just Checking In 2 weeks of rads done and stating my 3 rd week today
hi everybody i'm done with 2 weeks of radiation and so far i still have most taste buds knock on wood LOL I'm doing pretty good other than that MD Anderson has been real abdnmient about getting me in for fluids 3 days a week before chemo and then after i also have a nurse coming in day after chemo for 5 days of fluids…
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I almost made it 1 year
Well it has been a pretty good last couple of months, I am healing nicely and the botox injections have allowed me to eat with alot less pain. I have been a bit pollyannish about my every 6 week checkups, and despite what I have been told about the odds, I thought I was done with cancer. Tuesday during the scope in my nose…
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Disguising Lidocaine
No, I do not have a pediatric cancer patient but I'm at wits end. Hubby got sick on his first dose of Magic Mouthwash and now will not even try it. It makes him gag. We talked to the doctor today and he prescribed lidocaine only and I'm picking that up in a bit. But he is already indicating he KNOWS it will make him sick.…
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Party time!!!
Got my diploma in hand, I have graduated from Radiation Theragpy...WHOO HOO! I walked out and my whole family was in the waiting room, a little surprise party. When I went to get into the car, there was a huge poster on the back window saying "JUST FINISHED RADIATION", and a string of cans attached to the bumper...LOL. It…
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FATHERS DAY.
This goes out to all my "Friends and Fathers" on the board. HAPPY FATHERS DAY GUYS........... make it special. God bless Tonsil Dad, Dan.
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Antisocial
Is it normal to feel so antisocial in just the first week of treatment? My plan was to be this trooper that lets nothing get me down but yesterday after I came home from rads I just wanted to sleep then started crying in the bathtub. I feel like I should be enjoying my last couple of weeks of feeling somewhat normal. I do…
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Oral Cancer Foundation Prognosis Information
I just stumbled across the following which is contradictory to what I've been told by my doctors and have read elsewhere. Is this accurate? From the Oral Cancer Foundation Website: Prognosis The 5-year survival for all stages of head and neck cancer is 35% to 50% and this is believed to be due, in part, to late…
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Do your exercises....
I think about once a month I'll post this friendly reminder :) . Exersise your tongue and your jaw, 3 times every day during radiation....S-T-R-E-T-C-H those muscles. They never said diddley squat to me about doing exercises, but heard it from other people who had HNC...and I'm glad I did. My jaws started tightening up…
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What's next?
I'm new to these boards and have been reading threads and getting good information and now am at a point in my treatment where I have questions that are not well answered by the professionals. I have SCC, HPV+, primary tumor is on the base of the tongue with involvement of the left cervical lymph nodes, put at stage IVa by…
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Anyone experience major cold sweats?
My husband is a little over two months post treatment and is experience cold sweats on and off usually in the evening before bed. He gets cold and his body breaks out in a cold sweat. There is no fever and otherwise he seems to be doing okay.
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Sleep...help !
Hello all ! I have not been getting alot of sleep as of late. My mind has been working over time. Any suggestions ? Counting sheep, NOT ! I'm already on so many meds, don't want to add another if I can avoid it. Not a fan of warm milk, or herbal teas. I know sleep is a good thing when our bodies are trying to heal, and…
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Finally teeth are working....
Hello everyone, Might sound goofy to some who aren't in this position....but last nite at a wedding reception, I wore my dentures. I was hungry but teeth never worked to eat with. What to do...take 'em out no way. So I tried and it worked....I was so happy ! Maybe I'm finally getting past the lyphedema ! Also…
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The bummer of the day...........
which happened before I went to the last rad...I had my CBC done as I was leaving the Oncologists....White cells, in the toilet...Red cells, in the toilet....Hemaglobin, in the toilet, and Platlets in the toilet. They asked (very seriously) if I felt bad, which I don't. Told me to go to the hospital infusion center both…
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A chance to give back to my caregiver
Hi guys! I don't know if it's allowed to do this, but here it goes! We all know what hell we go through during treatment. We also all know that without our caregivers, many of us wouldn't have made it. I have often wondered how I could ever begin to repay all my husband has done for me and I actually have an opportunity! I…
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Looking for a good PET
Everyone Well, it is time to cross the (first, 12 week post, PET scan) bridge, tomorrow morning at 7:30 am. Can I look for NED yet or is too early? Or do I have to wait for the 6 month or 1 year checkup? Of course I had to have it done on exactly the 12 week mark, which is a Friday so I have to wait through the weekend and…
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Let's talk bowels....
I have never been so constipated in my life...ah, but to keep the mystery alive, a little diarrah when I least expect it...or...both, at the same time (sounds impossible, but it's not for me). I keep trying things to eat to help, since I don't trust Colace (not the substance, but the "when" it will suddenly become…
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Found some new PET scan buddies
Everyone, My PET scan was a success at least the mechanics of the procedure (scary part). In addition to taking 1.5 tablets of Lorazepam (which was plenty), I took a page out of the book of phannie51 and did a (virtual) tucking in of each of you in my pockets. It got a little crowded, but with everyone tucked in, I breezed…
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What were your very early symptoms of vocal cord cancer?
Hello, I'm a 27 yo female and was diagnosed almost 10 years ago with the high risk Hpv during a gynological exam. I have read about Hpv increasing risk for oral cancer and it has me terrified. Around Christmas I got laryngitis and after I got better I still couldn't make high pitched sounds. It got a little better over a…
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Peg Tube Feeding
Wow I did not know I could eat so much and so many things through the Peg Tube. I think I am becoming a little pig because I want to keep trying new things. Had my Wife caregiver talk to Denny’s wife and got a lot of ideas. Tonight I had Coffee and biscuits with Avocado all blinded up and down the tube, oh that was soon…