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Hearing loss and frustration
I'm nearly 8 years out of radiation to my left neck and ear. I was treated for a slow growing cancer that wasn't so bad, except for the fact that it was infiltrating my facial nerves and causing a lot of pain and would've eventually caused paralysis. I have been noticing tinnitus in the left ear for the past couple of…
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starting fourth week of radiation and second cycle of chemo
hi everybody I'm starting my fourth week of radiation and my second chemo cycle my taste is pretty much gone nothing really taste that good anymore my neck a little burned throat a little sore and I'm taking muccinex for the mucous but I'm hanging in there tomorrow is chemo so we will see how that goes thank you for all…
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Skin sensitivity
I finished chemo and radiation in January for a basal cell cancer at the base of my tongue. In February I developed sensitivity on the skin of my arms, chest and upper back. It feels like a sunburn and gets more intense with cold weather. Has anyone had this type of reaction to chemo or radiation?
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Newly diagnosed adenoid cystic carcinoma in submandibular gland
I was just diagnosed with this apparently uncommon cancer. I have not found very much about it online. I would love to hear from anyone familiar with this. I am scheduled for resection of my gland and selective resection of some lymph glands as well. I will be having radiation treatments after surgery but no chemotherapy…
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Cancer Recurrence
Hi there everyone. It has been a while. I see some familiar names but unfortunately a whole lot of new people are dealing with this horrible disease (and its treatment). Buzz (my hubby) finished treatment January 2011 for base of tongue cancer. The cancer is back. He now has 3 tumors. One in the Fossa of Rosenmuller…
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Pet Scan results...Good news!
Hi I had the Pet Scan today and it was NED! No surgery is needed and all looks good for now. I am thrilled. We went to dinner with Marlene, the woman who took me to all my cancer treatments, to celebrate with husbands and sons. We had a great time and I feel relaxed... at least for three more months until I have it again!…
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Like A Fly I'm Back...Update Last Doc Visit, B_12 jump start session
I started by B-12 Last Thursday for the next 5 weeks, first week is going better, The reason I am Writing i was given a new Drug, ask the Doctors for a any new updates pills or strengths, they are continuously advancing the drugs we are using, so don't get stuck on the same old same ole..remember we've gone threw hell and…
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One week+ out and
wondering if I'm on course or if I've possibly made my recovery harder by continuing to eat ordinary food, for the most part. I tried to update my profile and couldn't get into my page by editing to give the updates of my treatments, but I'm thru with my rads only to vocal cords only. I still need liquid hydrocodone and…
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Esophageal Dilitation
Just had procedure #2........Swallow test showed about 1/2cm before procedure.... I could barely choke down mashed potatoes before and am hoping to show improvement this time.......Goal according to my ENT is close to 3cm..(that sure seems like alot) I am dealing with Trismus so my mouth doesn't open very wide.......Gums…
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Leukoplakia... anyone, any insight, appreciated.
My mom was diagnosed with tonsil cancer (I believe T1N2b) which was HPV positive. She had neck dissection, all lymph nodes on right side removed (3 were cancerous, 1 was not encapsulated - the one not encapsulated is one she originally noticed, and it was approx 2.5" at time of removal), had raditation seeds implaned in…
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2 weeks out!
Monday will be 2 weeks since my last Rads. Overall I'm feeling well. I've managed to stop all pain medication other than Tylenol once or twice a day. My mouth is feeling a lot better, no open sores. I'm still very sore under my tongue, but that was where the tumor was so I'm not surprised. I still have not been very brave…
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I AM STARVING!!!!!
I am just in tears over here. I'm hungry, I want to eat, but I can't taste ANYTHING!!! My mouth and throat are fine still and I want to EAT EAT EAT while I can but it's almost nauseating to choke down a mouthful of cardboard flavored nastiness. I know this is just the beginning so I have to get a grip.
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Magic Mouth Wash?
I am curious, how does the MMW feel, I just cannot comprehend how you swallow something that makes your thoart numb, it seems to me that it would be like shutting down your ability to breath and something scary. I swished it in my mouth once after problems with my original chemo treatment but never swallowed it and…
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just curious
I am just curious for the ones who have completed treatment, as to how soon you were able to return to work. I am doing 35 radiation treatments and 3 cycles of Cislplatin on Day1, 22, and 43. I had what they believed was a branchial cleft cyst removed about 6 weeks before starting treatment which was actually a lymph node…
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Any Idea of Recurrence Rate for my Cancer
Im having the typical freak out of "What if this doesnt work" So im tryiing to help ease my mind, and see if anyone knows what the percentage of Recurring cancer after treatments average is. I have/had a T1 Squamous Cell carcinoma that manifested itself in 1 lymph node on the right side of my neck that was removed. I…
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JUST HAD TO SHARE THIS, IT TOUCHED MY HEART
3 years ago Friday, I lost a very special friend and coworker who had fought a brave fight against colon cancer for about years. She always was so positive thru out her battle even though she had been told more than once that she only had months to live but outlived those predictions by years. She always had a smile every…
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mucus mucus???
hi everybody I'm doing ok except for the mucus it keeps making me throw up I'm on my fourth week of radiation and I have chemo next Wednesday.Any body have any ideas I've tried muccinex it doesn't seem to help thank you.
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JUST HAD TO SHARE THIS, IT TOUCHED MY HEART
3 years ago Friday, I lost a very special friend and coworker who had fought a brave fight against colon cancer for about years. She always was so positive thru out her battle even though she had been told more than once that she only had months to live but outlived those predictions by years. She always had a smile every…
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Hi Everyone!
Hi there! Just though i'd say hello to everyone and wish everyone who is suffering from this terrible disease to get well soon. I was in bad shape about 2 1/2 yrs. ago with base of the tongue cancer. I recognize a few names that are still on here. I go regularly for my 3 month follow ups and everything seems to be good so…
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Continous ugh
Hi everyone, I am in my last week of rads, 3 more to go. Yay! I had no mucous so far . Over last 3 days i have developed mucous and along with that a very Persistent cough. I pretty much cough all day and all night. I also cough up blood couple of times. My doc had asked me to try robitassin cough medicine and ativan. I…
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First chemo tomorrow. Scared!
First chemo tomorrow. Scared! I know they will be giving me Aloxi in my IV and are also giving me Emend, Zofran, compazine and Ativan to use as needed. I know there's a good chance I will be fine since I'm doing lower weekly doses and god knows I have every weapon available to help. What I need are some good positive…
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Six-Step Screening: Six Steps to a Thorough Oral Cancer Screening
Hi everyone. I don't know when this group was created but I'm sure glad there is one for H&N. I was dx'ed 14 years ago with stage IV lateral tongue SCC, and no risk factors. If you saw me, you would never know I had a radical neck and reconstruction of 1/3 of tongue. I'm lucky and I know it. I couldn't go on ethically…
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Still hanging in there...
I thought I'd post an update, since I'm still having some struggles but I'm hanging in there as best I can. Some things have gotten better: my neck skin is almost completely healed, and the mucus is definitely slowing down. Other things are about the same: I'm still struggling to keep food down (through the tube) and…
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Hi Everybody just checking in
Hi everybody i know its been a little while since i have checked in but i'm 8 days into radiation and 1 chemo down the chemo was horrible i had to go for fluids yesterday so with that and some steroids i was good to go i have my radiation in the evening around 5 everything is going ok i'm feeling a little better than i did…
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First good PET
Hi Everyone, My radiation onc just called to tell me my PET scan results were very good. All activity was normal, former cancer areas were gone and warm spots were due to the radiation treatments. During my visit next week she would like me to visit with the dietician to see if we could improve my (eating) diet. I thought…
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MU-GARD
Okay, I am 8 treatments done in radiation and one cycle of Cisplatin done 8 days ago. Yesterday the soreness in the mouth and throat hit just overnight. I am guessing more as a side effect of the Cisplatin than the radiation at this point. I had tried the Miles Magic last week as the Oncologist wanted me to start on it,…
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Help from loved ones.....
Hello group, Just a gentle reminder to us all. More than one set of ears are better than one. I know writing things down, to refer back to helps alot too ! Man my filing system is in need of re-sorting ! With what we are all going through, we can't possibly do it alone. Even with my husband standing beside me...I ask for…
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what does your neck feel like???
Hi Everyone, Now I want you to know I searched through the SUPER THREAD before coming here. What exactly does your neck feel like??? I am about 13 weeks post, 35 rad treatments plus Erbitux, lateral juggler dissection (left side). What I am feeling is (no whiskers of course), slight thickening along sides of esophagus and…
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Any news about Chef Daddy and Son Lately?
Hi all: Hadn't seen anything lately on Chef Daddy and son and was just wondering if I had missed anything or if anybody has heard from him. Jan (Basketcase)
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No voice
Hey guys! I finished 30 Rad treatments on Monday of last week. On Tuesday, my voice was gone. I mean....I can get a whisper out, but when I do that I feel like I'm straining. So now, I'm going on 5 days with voice. My throat is not sore although my mouth is still pretty tender and I do have a lot of mucus. Any body else…