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Side effects for chemotherapy & radiation
My mom was diagnosed with oral (right jaw) cancer in Apr'10. After being treated with pre-op chemo sessions, removal of the affected parts (Jun'10) and post-op chemo & radiation (35 sessions/ 20 minutes each), the treatment ended in Sep'10. Now, after 20 months, she has again been diagnosed with cancer on the left side of…
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Dry throat, chocking and throwing up
I thik i have posted this earlier but i forgot if there was any idea i missed to try. I try milk/buttermilk suggested by Phrannie and that definaltely works. Right now I am Drinking few sips of butter milk every 30 mins. Water does not work eiither. If i forget to wake up, i get a very dry choking throat and will end up…
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Speech issues following treatment.
Greetings, CSN! Short time lurker, first time poster. Quick background: SCC of right side of tongue on 1/18/11. Partial glossectomy, no further treatment. Metastasis to right lymph node behind my ear, diagnosed on 2/14/12. Neck dissection on 2/23/12, with 33 rad treatments and 3 Cisplatin starting 4/12/12, done on 5/16/12.…
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Two Year Appointment....NED.
Just had my two year post treatment exam and got an all clear report. Two years ago this past April I was diagnosed with SCC unknown primary after I discovered a swollen lymph node in my left neck. I had a left neck dissection with over 30 lymph nodes removed and the tonsils were removed for good measure. Following…
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Start of 3rd week
This is the start of my 3rd week out of trt. I am able to eat some flavors of yogurt, some hurt! I was able to eat some cream of mushroom soup from progresso. I just strained out the mushrooms.....ouch no chunks please. I tried some chocolate milk which went ok and tried some really creamy retried beans but that I think…
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1 year out of treatment, still exhausted easily.
Hi Everyone I have been a "lurker" here for 18 months. Don't know exactly why i never participated before but now i feel like i am finally getting some perspective on this whole cancer journey. I was diagnosed early Jan 2011 with T2N2Mo StageIV NPC. Did 33 Rads 6 rounds of chemo (3 cisplatin, 3 carbo with taxol and 5FU)at…
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Biotene for Dry Mouth
Thought I would see if anyone has used the Biotene, I have had extreme dry mouth when sleeping. I wake up take a sip of water and back to sleep however Diane bought me the Biotene in both the gargle/mouthwash and a spritzer. Have yet to use it I tend to be slow at trying new products however I seem to remember post where…
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PEG questions
I checked the super thread but didn't see exactly what I'm looking for. First of all, I feel wayyyyy better today after using this for just 2 days. I'm on jevity 1.2. 1. Do you guys actually check for residual? Because that will gross me out. 2. Will the little bit of "back flow" that gets in my tube become rancid and make…
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Slippery Elm for mucus
Buzz has been battling a cough and excessive mucus since his cancer returned. At the suggestion of a PA, he is taking Slippery Elm and it is helping the thin the mucus!!! It comes in a capsule form and a lozenge. I guess there is a tea also. I have been opening the capsules and mixing them with water. I then put this…
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thickening of the cheek tissue and teeth
Lately I have been noticing that my cheeks have gotten thicker on the inside. They come to rest right on the teeth which causes irritation to the mouth lining and sometimes small sores. I assume this is related to the radiation. Just wondering if anyone else has noticed this. I have also noticed that my incisors now rest…
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Speech pathologist appointment
I called for my speech pathologist appointment today, and the first available opening was 7/19... more than two weeks away. Apparently the guy is only in one day a week. Ugh! In the hospital (something like 6 weeks ago now), which was during treatment, I failed on swallowing water but passed for at least pureed foods, so…
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update on peg tube I had put in Tuesday
hi everybody I had my peg tube put in Tuesday what was suppose to be an easy procedure ended up costing me a night in the hospital so I got out the fourth yay also costed me two missed radiation sessions which I'm sure I will make up they just got my plan set up and put me on jevity for the tube which I just got yesterday…
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Taste
Hi everyone it has been 11 months since treatment, and my husband still has no taste, can anyone give me suggestions on how to get it back. Thanks Linda
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wierd smell/taste associated with oral cancers?
Hey Fellow Survivors, This might sound strange, and maybe a tad morbid, but I was curious about this and have yet to see any information about this. My ex-wife's mother died from lung cancer several years ago. For some reason, I can still--even after all these years--remember a particular smell emanating from her when I…
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Radiation Burns on Tongue
I was diagnosed with cancer on my tongue the first of May this year. I went in to have the cancer removed on the 10th of May. They removed the left half of my tongue. They created a flap using skin from my leg. I spent two weeks in the hospital. I recovered for about a month and started Radiation Therapy. The first 5 or so…
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Got To See My Throat
I saw my surgeon last Tuesday and this time he had a monitor up on the wall so I could see my throat while he scoped me. Now I know how much of the base of my tongue he took out. My vocal cords looked okay but I've been hoarse since the second week out of radiation. My symptoms and what we saw didn't match up. My throat…
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Help with lingo
Hello All, Pretty new to this site and was wondering if anyone out there can help with some of the lingo. I keep seeing all of the abbreviations and don't know what most of them mean. I just want to better understand all of the posts and advice. Thanks in advance :-) Billie
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frustrated and needing to vent !
Hello everyone, I received a phone call today from my onologist's nurse. And was told that the pressure issues showing in my optic nerves are not related to my cancer. I asked how he came to that conclusion without doing the specific tests needed. Blood flow can be effected from a number of issues related to my surgery,…
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This is a Fanny Pack???
It's the size of many women's purses....LOL, and weighs 6 or 7 lbs...LOL. I've got it as tight as it goes, and it hangs around my hips like a gunsligers belt, or a very short apron. I was thinking of something more petite, I guess...more work-around-able...I have hang on to it so it doesn't slip right down to my…
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Tinnitus
Anybody have/had tinnitus (ringing in the ear) due to their nasal tumor. I'm not talking about tinnitus due to the treatment but from the tumor itself.
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persistance..sometimes needed
I posted about an issue I had with my oncologist. I was so flabergasted with what they said, I was unable to think clearly. Today I called them back, remarked that I had done a online app., for Mayo. And then I asked the nurse to ask the dr. for the exact TEST or TESTS results the dr. was using to confirm the pressure and…
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Zinc?
Has anyone out there heard anything about some kind of zinc tablets helping to restore our taste buds faster? I read it on some site before I found this site and now I can't find it. Wondering if anyone has tried it or knows exactly which kind of zinc it is?
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CISPLATIN AND HAIR LOSS
I am currently taking 3 rounds of Cisplatin, one round down, day 1 of round two done today. Noticed a large amount of hair loss today at my neck which I am guessing is from the radiation rather than the chemo since it is only on the neck line. One nurse told me I shouldn't lose hair with the Cisplatin and then one today…
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Search csn tricks
Is it possible to search all posts or threads by a user? E.g. Can i see all threads i started? John, general vote is that you might have a answer :) Thanks, Sam
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Thanks for being over weight
Hi: To all cancer patients that has lost a lot of weight and muscles.When I began my treatment in Dec. 2000 I weighted in at 265 lb could bench press over 330 lbs.But when Cancer finished with it's diet plan. I was now only 131lbs, without any muscles. Thanks to my weight and the Lord I survived. Today after 12 years I…
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Vocal Cord injection
history first, 16 years ago diagnosed with SCC in 5 golf ball sized node wrapped around carotid on left side of neck. treatments were 38 radiation treatments concurrent with chemo fallowed by neck dissection. 4 years ago congronicrosis (spelling) with antibiotic and HBO treatments. 3 years ago SCC on tongue small enough to…
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feeding tube
My G tube came out this morning! Only took a second and did not even feel the doctor pull it out. One step closer to the new normal :-)
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Almost 5 weeks out
I'm about to hit the five week milestone after finishing chemo and rads. I think everything is going well and I'm just an impatient person who wants to be back to normal already. :-) I have an appointment with a speech pathologist on 7/13 and I'm trying to both wait it out without going crazy, and to not think about Friday…
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Surgery went well
Well surgery went pretty well on tuesday according to my doctor. It looks like the primary was located on the left side of my tongue, but still waiting on pathology results. Total surgery time was 90 minutes versus the 3-4 hours that the doctor said it would take. The only complications so far is difficulty breathing due…
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Got the PEG today
Get to eat tomorrow!!!! Surgery went fine. I feel ok as long as I'm sitting still but boy when I move I get muscle spasms or gas pains or something. And I cannot wait for these hunger pains to go away! as a side note, GI doc says there is absolutely no damage to my throat from rads yet :o )