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Slippery Elm for mucus
Buzz has been battling a cough and excessive mucus since his cancer returned. At the suggestion of a PA, he is taking Slippery Elm and it is helping the thin the mucus!!! It comes in a capsule form and a lozenge. I guess there is a tea also. I have been opening the capsules and mixing them with water. I then put this…
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thickening of the cheek tissue and teeth
Lately I have been noticing that my cheeks have gotten thicker on the inside. They come to rest right on the teeth which causes irritation to the mouth lining and sometimes small sores. I assume this is related to the radiation. Just wondering if anyone else has noticed this. I have also noticed that my incisors now rest…
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Speech pathologist appointment
I called for my speech pathologist appointment today, and the first available opening was 7/19... more than two weeks away. Apparently the guy is only in one day a week. Ugh! In the hospital (something like 6 weeks ago now), which was during treatment, I failed on swallowing water but passed for at least pureed foods, so…
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update on peg tube I had put in Tuesday
hi everybody I had my peg tube put in Tuesday what was suppose to be an easy procedure ended up costing me a night in the hospital so I got out the fourth yay also costed me two missed radiation sessions which I'm sure I will make up they just got my plan set up and put me on jevity for the tube which I just got yesterday…
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Taste
Hi everyone it has been 11 months since treatment, and my husband still has no taste, can anyone give me suggestions on how to get it back. Thanks Linda
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wierd smell/taste associated with oral cancers?
Hey Fellow Survivors, This might sound strange, and maybe a tad morbid, but I was curious about this and have yet to see any information about this. My ex-wife's mother died from lung cancer several years ago. For some reason, I can still--even after all these years--remember a particular smell emanating from her when I…
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Radiation Burns on Tongue
I was diagnosed with cancer on my tongue the first of May this year. I went in to have the cancer removed on the 10th of May. They removed the left half of my tongue. They created a flap using skin from my leg. I spent two weeks in the hospital. I recovered for about a month and started Radiation Therapy. The first 5 or so…
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Got To See My Throat
I saw my surgeon last Tuesday and this time he had a monitor up on the wall so I could see my throat while he scoped me. Now I know how much of the base of my tongue he took out. My vocal cords looked okay but I've been hoarse since the second week out of radiation. My symptoms and what we saw didn't match up. My throat…
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Help with lingo
Hello All, Pretty new to this site and was wondering if anyone out there can help with some of the lingo. I keep seeing all of the abbreviations and don't know what most of them mean. I just want to better understand all of the posts and advice. Thanks in advance :-) Billie
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frustrated and needing to vent !
Hello everyone, I received a phone call today from my onologist's nurse. And was told that the pressure issues showing in my optic nerves are not related to my cancer. I asked how he came to that conclusion without doing the specific tests needed. Blood flow can be effected from a number of issues related to my surgery,…
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This is a Fanny Pack???
It's the size of many women's purses....LOL, and weighs 6 or 7 lbs...LOL. I've got it as tight as it goes, and it hangs around my hips like a gunsligers belt, or a very short apron. I was thinking of something more petite, I guess...more work-around-able...I have hang on to it so it doesn't slip right down to my…
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Tinnitus
Anybody have/had tinnitus (ringing in the ear) due to their nasal tumor. I'm not talking about tinnitus due to the treatment but from the tumor itself.
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persistance..sometimes needed
I posted about an issue I had with my oncologist. I was so flabergasted with what they said, I was unable to think clearly. Today I called them back, remarked that I had done a online app., for Mayo. And then I asked the nurse to ask the dr. for the exact TEST or TESTS results the dr. was using to confirm the pressure and…
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Zinc?
Has anyone out there heard anything about some kind of zinc tablets helping to restore our taste buds faster? I read it on some site before I found this site and now I can't find it. Wondering if anyone has tried it or knows exactly which kind of zinc it is?
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CISPLATIN AND HAIR LOSS
I am currently taking 3 rounds of Cisplatin, one round down, day 1 of round two done today. Noticed a large amount of hair loss today at my neck which I am guessing is from the radiation rather than the chemo since it is only on the neck line. One nurse told me I shouldn't lose hair with the Cisplatin and then one today…
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Search csn tricks
Is it possible to search all posts or threads by a user? E.g. Can i see all threads i started? John, general vote is that you might have a answer :) Thanks, Sam
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Thanks for being over weight
Hi: To all cancer patients that has lost a lot of weight and muscles.When I began my treatment in Dec. 2000 I weighted in at 265 lb could bench press over 330 lbs.But when Cancer finished with it's diet plan. I was now only 131lbs, without any muscles. Thanks to my weight and the Lord I survived. Today after 12 years I…
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Vocal Cord injection
history first, 16 years ago diagnosed with SCC in 5 golf ball sized node wrapped around carotid on left side of neck. treatments were 38 radiation treatments concurrent with chemo fallowed by neck dissection. 4 years ago congronicrosis (spelling) with antibiotic and HBO treatments. 3 years ago SCC on tongue small enough to…
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feeding tube
My G tube came out this morning! Only took a second and did not even feel the doctor pull it out. One step closer to the new normal :-)
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Almost 5 weeks out
I'm about to hit the five week milestone after finishing chemo and rads. I think everything is going well and I'm just an impatient person who wants to be back to normal already. :-) I have an appointment with a speech pathologist on 7/13 and I'm trying to both wait it out without going crazy, and to not think about Friday…
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Surgery went well
Well surgery went pretty well on tuesday according to my doctor. It looks like the primary was located on the left side of my tongue, but still waiting on pathology results. Total surgery time was 90 minutes versus the 3-4 hours that the doctor said it would take. The only complications so far is difficulty breathing due…
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Got the PEG today
Get to eat tomorrow!!!! Surgery went fine. I feel ok as long as I'm sitting still but boy when I move I get muscle spasms or gas pains or something. And I cannot wait for these hunger pains to go away! as a side note, GI doc says there is absolutely no damage to my throat from rads yet :o )
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First PET scan after radiation
Hi All This isn't for me, but I hoped to tap into the collective knowledge of the folks on here. A guy I have conversed with on a UK cancer forum since my diagnosis (really good guy) has had SCC of the BOT and had rads and chemo. He finished his treatments in March and has just had his first post treatment PET. The scan…
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Throbbing pain in my gum and small piece of bone sticking up
When the feeling started coming back, after my tonsil surgery and radical neck dissection, my gums on that side were naturally sore. But for the last week it has actually been throbbing and I finally started putting orajel on it, which helped, but only for a few minutes. When I put my finger back there it felt like it, my…
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some words of encouragement please peg tube tomorrow morning 6:30am.
hi today I went back to doctor I have grade 3 or 4 musscotispI'm half way through treatment it got very hard in a short amt of time.ut me on fetnol patch for that but because of not keeping weight up they are doing feeding tube placement they said the musscotis would only get worse so they wanted this to be elective I'm…
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Machine for water intake
I remember reading somewhere about a little machine that sprays very little water at some interval in your mouth. Does anyone know about this? Thanks, Sam
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How do I get passed swallowing just liquids?
Can anybody help here? I've been done with treatments since 10 Feb, and currently can only swallow liquids. My speech therapist has cleared me to go beyond liquids to anything I can get down, I just can't get anything down. I have thrush in my mouth that I'm taking Nystatin for. ( I can barely swish and swallow that).…
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Let Freedom Ring
Happy 4th of July
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2 weeks out of treatment
Well I'm only 2 weeks out of treatment for laryngeal CA. I have a PEG which I'm thankful for but would love to be done with! I have to use a continous feed pump because when I used the tube as intended it caused severe vomiting. My burn is starting to heal...boy I wish they'd be more honest about how that was going to…
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Happy 4th of July..
Hello to all my brave soldiers today! I just wanted to wish everyone a safe and wonderful holiday, hopefully you are with some family & friends, loved ones, etc. I also want to make my first, 'I'm kind of scared' comment/ story too, if you don't mind: I live in the Midwest and we have some of the best sweet corn in these…