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squamous cell CA of the base of tongue and lymphnode
My mother recently was diagnosed with squamous cell carcinoma of the base of tongue and lymphnode. We see the radiation doctor and the chemotherapy doctor at the end of this week. The radiation will begin Thursday. We are totally new to any of this. I have read some information online; however, still in the dark about most…
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Daily hydration
My hubby will be beginning chemo treatments some time in the next two weeks along with 5-a-week rads. Our medical oncologist tells us that after (or before) each rad session he will take a short walk down to the chemo area for IV fluids which sounds like an outstanding idea. Have any of you had this done? Is it pretty…
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I stepped back in time about 5 weeks....
I haven't felt this miserable since the 4 or 5th weeks of rads, and I can't put my finger on the reason for it, too many choices. I had the 5FU pump from Tues to Saturday....my face turned a tiny bit pink on Weds, but by Thrus and Friday, it was hot, red, and puffy. I thought maybe I got a little too much sun on Weds, and…
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swallon neck
Hi, I am new to the forum! My husband had cancer on the base of his tongue. Had that removed and a radical neck disection. Now his neck is very swollen and he is really having a hard time with it. We have been to the emergency room twice and dicussed it with his Dr's. He is really having a tough time with this. They say…
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Tests set for the am ....
Hello group ! I go in tomorrow morning for that CTA and lumbar puncture (air test) hoping to get some concrete info to decide on next steps with this adcc. It's only been 6 mo's since this trip started and it feels like a lifetime. Will update in awhile...results can come back soon...lol, or within a week. Prayers and good…
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Has anyone become Tongue Tied or had memory problems
My Husband Bob still hs eating issues probably due to the tongue being tied and he needs surgery on his sinues. He has been Cancer Free over 2 years now but he seems to be declining fast..he had a spider bite Brown Recluse and seemed like he became senile,..then he had a tooth pulled a few weeks ago and it got worse...he…
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Side effects for chemotherapy & radiation
My mom was diagnosed with oral (right jaw) cancer in Apr'10. After being treated with pre-op chemo sessions, removal of the affected parts (Jun'10) and post-op chemo & radiation (35 sessions/ 20 minutes each), the treatment ended in Sep'10. Now, after 20 months, she has again been diagnosed with cancer on the left side of…
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Dry throat, chocking and throwing up
I thik i have posted this earlier but i forgot if there was any idea i missed to try. I try milk/buttermilk suggested by Phrannie and that definaltely works. Right now I am Drinking few sips of butter milk every 30 mins. Water does not work eiither. If i forget to wake up, i get a very dry choking throat and will end up…
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Speech issues following treatment.
Greetings, CSN! Short time lurker, first time poster. Quick background: SCC of right side of tongue on 1/18/11. Partial glossectomy, no further treatment. Metastasis to right lymph node behind my ear, diagnosed on 2/14/12. Neck dissection on 2/23/12, with 33 rad treatments and 3 Cisplatin starting 4/12/12, done on 5/16/12.…
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Two Year Appointment....NED.
Just had my two year post treatment exam and got an all clear report. Two years ago this past April I was diagnosed with SCC unknown primary after I discovered a swollen lymph node in my left neck. I had a left neck dissection with over 30 lymph nodes removed and the tonsils were removed for good measure. Following…
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Start of 3rd week
This is the start of my 3rd week out of trt. I am able to eat some flavors of yogurt, some hurt! I was able to eat some cream of mushroom soup from progresso. I just strained out the mushrooms.....ouch no chunks please. I tried some chocolate milk which went ok and tried some really creamy retried beans but that I think…
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1 year out of treatment, still exhausted easily.
Hi Everyone I have been a "lurker" here for 18 months. Don't know exactly why i never participated before but now i feel like i am finally getting some perspective on this whole cancer journey. I was diagnosed early Jan 2011 with T2N2Mo StageIV NPC. Did 33 Rads 6 rounds of chemo (3 cisplatin, 3 carbo with taxol and 5FU)at…
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Biotene for Dry Mouth
Thought I would see if anyone has used the Biotene, I have had extreme dry mouth when sleeping. I wake up take a sip of water and back to sleep however Diane bought me the Biotene in both the gargle/mouthwash and a spritzer. Have yet to use it I tend to be slow at trying new products however I seem to remember post where…
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PEG questions
I checked the super thread but didn't see exactly what I'm looking for. First of all, I feel wayyyyy better today after using this for just 2 days. I'm on jevity 1.2. 1. Do you guys actually check for residual? Because that will gross me out. 2. Will the little bit of "back flow" that gets in my tube become rancid and make…
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Slippery Elm for mucus
Buzz has been battling a cough and excessive mucus since his cancer returned. At the suggestion of a PA, he is taking Slippery Elm and it is helping the thin the mucus!!! It comes in a capsule form and a lozenge. I guess there is a tea also. I have been opening the capsules and mixing them with water. I then put this…
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thickening of the cheek tissue and teeth
Lately I have been noticing that my cheeks have gotten thicker on the inside. They come to rest right on the teeth which causes irritation to the mouth lining and sometimes small sores. I assume this is related to the radiation. Just wondering if anyone else has noticed this. I have also noticed that my incisors now rest…
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Speech pathologist appointment
I called for my speech pathologist appointment today, and the first available opening was 7/19... more than two weeks away. Apparently the guy is only in one day a week. Ugh! In the hospital (something like 6 weeks ago now), which was during treatment, I failed on swallowing water but passed for at least pureed foods, so…
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update on peg tube I had put in Tuesday
hi everybody I had my peg tube put in Tuesday what was suppose to be an easy procedure ended up costing me a night in the hospital so I got out the fourth yay also costed me two missed radiation sessions which I'm sure I will make up they just got my plan set up and put me on jevity for the tube which I just got yesterday…
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Taste
Hi everyone it has been 11 months since treatment, and my husband still has no taste, can anyone give me suggestions on how to get it back. Thanks Linda
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wierd smell/taste associated with oral cancers?
Hey Fellow Survivors, This might sound strange, and maybe a tad morbid, but I was curious about this and have yet to see any information about this. My ex-wife's mother died from lung cancer several years ago. For some reason, I can still--even after all these years--remember a particular smell emanating from her when I…
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Radiation Burns on Tongue
I was diagnosed with cancer on my tongue the first of May this year. I went in to have the cancer removed on the 10th of May. They removed the left half of my tongue. They created a flap using skin from my leg. I spent two weeks in the hospital. I recovered for about a month and started Radiation Therapy. The first 5 or so…
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Got To See My Throat
I saw my surgeon last Tuesday and this time he had a monitor up on the wall so I could see my throat while he scoped me. Now I know how much of the base of my tongue he took out. My vocal cords looked okay but I've been hoarse since the second week out of radiation. My symptoms and what we saw didn't match up. My throat…
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Help with lingo
Hello All, Pretty new to this site and was wondering if anyone out there can help with some of the lingo. I keep seeing all of the abbreviations and don't know what most of them mean. I just want to better understand all of the posts and advice. Thanks in advance :-) Billie
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frustrated and needing to vent !
Hello everyone, I received a phone call today from my onologist's nurse. And was told that the pressure issues showing in my optic nerves are not related to my cancer. I asked how he came to that conclusion without doing the specific tests needed. Blood flow can be effected from a number of issues related to my surgery,…
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This is a Fanny Pack???
It's the size of many women's purses....LOL, and weighs 6 or 7 lbs...LOL. I've got it as tight as it goes, and it hangs around my hips like a gunsligers belt, or a very short apron. I was thinking of something more petite, I guess...more work-around-able...I have hang on to it so it doesn't slip right down to my…
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Tinnitus
Anybody have/had tinnitus (ringing in the ear) due to their nasal tumor. I'm not talking about tinnitus due to the treatment but from the tumor itself.
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persistance..sometimes needed
I posted about an issue I had with my oncologist. I was so flabergasted with what they said, I was unable to think clearly. Today I called them back, remarked that I had done a online app., for Mayo. And then I asked the nurse to ask the dr. for the exact TEST or TESTS results the dr. was using to confirm the pressure and…
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Zinc?
Has anyone out there heard anything about some kind of zinc tablets helping to restore our taste buds faster? I read it on some site before I found this site and now I can't find it. Wondering if anyone has tried it or knows exactly which kind of zinc it is?
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CISPLATIN AND HAIR LOSS
I am currently taking 3 rounds of Cisplatin, one round down, day 1 of round two done today. Noticed a large amount of hair loss today at my neck which I am guessing is from the radiation rather than the chemo since it is only on the neck line. One nurse told me I shouldn't lose hair with the Cisplatin and then one today…
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Search csn tricks
Is it possible to search all posts or threads by a user? E.g. Can i see all threads i started? John, general vote is that you might have a answer :) Thanks, Sam