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LAST DAY OF CHEMO TODAY!!
First milestone done today, chemo is over. It did kick my butt this time, even thought they put it over 3 days instead of 2. I thinking the having to get up every 2 hours all night to pee is wearing me out. But at least this is over. Tomorrow is just Iv fluids. They put me on break from radiation until at least Monday as…
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Pathology report updated
Hello ! Well finally after 7 months I now know on my histology report. I definately have adcc...and histology showing all 3 tissue types in tumor (cribform, tubular, solid) was told path doc. had quite a time typing me because of this. So what does this mean ? I am definately in what is deemed the middle group for…
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For Pat (longtermsurvivor)
I know this is your expertise, so I took the chance that you would answer this question, please!! I have been on .5 Estradiol pills for probably 8 years or so. Wanted to get off several times but my gyn explained the pros and cons and I stayed on. But throughout this ordeal, I've been so worried that after getting over…
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wake up with bleeding dry mouth
I have been waking up about every hour with mouth pain, dry mouth, and bleeding. Sometimes I get a hour and a half of sleep between. The pain is real sharp. I think I must be sleeping with my mouth open. any sugestions.. I am in my 6th week of Radiation, with 9 more treatments. For pain I have time release morphine and I…
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Anyone here use Nystatin?
I think the thrush is back, and my doctor told me to use Nystatin for it (which I already had). He said if it doesn't clear up in a week, we'll try Diflucan (again). Does anyone have info on how long Nystatin takes to work? As the thrush takes hold, it makes it tough for me to swallow at times... and my speech pathologist…
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hwt
Please read your mail. You're giving me a complex.
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Boost burning my tongue
Well I’m down to 10 more radiation treatments after today. I have blisters in my mouth. The worst is the ones on my tongue. No taste except for the horrible taste always in my mouth. Swallowing is with difficulty, I can eat wieners (Oscar Meyers) and some streamed vegetables (Squash, Carrots and Brussels Sprouts) with…
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Starting my treatments tomorrow morning
Start treatments tomorrow morning, radiation and chemo. what should i expect from 1st chemo treatment.
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Radical neck dissection?
So I saw a post about swelling post surgery and that got me thinking, what is the actual definition of a radical neck dissection? Is it determined by how much tissue they remove or the number of lymph nodes? I had 47 lymph nodes removed from the right side of my neck back at the end of March along with the tumor from my…
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Anticipating 4month PET scan results Thursday
Hi Friends. I have to be honest, I haven't been active on this board since I got my first clean scan back on 3/15. I think I have dealt with all this BS by pretending it wasn't happening. So dysfunctional, I know but I guess it worked! Now I just had another PET scan last Friday 7/06 and will get the results Thursday 7/12.…
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Frequency of changing PEG tube
I did a search and could not find any information on how often the PEG needs to be changed. In May, Buzz had a new PEG inserted. We were told to have it replaced in August. My concern is that now that he is on Hospice and becoming weaker by the day, do I put him through another tube change? I don't know if I will even be…
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SINGLE DIGITS!!!
9 rads to go! Doc also said my tonsil tissue has all of the sudden shrunk significantly!!! Yay!!! (I did have a large portion of the tonsil removed but my tumor was so widespread it would have taken "combat style" surgery to get it all... Docs words)
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First neck massage, what does everyone think
Everyone (you know who you are), Recently my radiation oncologist mentioned my neck was getting a little thick (my words) and that I should hit the rehabilitation center for a neck massage. Well, I had my first visit was today, it was very nice almost put me to sleep. It all seemed so simple, massaging the lymphatic…
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Finished with Rads!
Finished with both radiation and chemo (erbitux) and through the 2 week 'cooking' period and now I'm hoping to start feeling a little better. I have all the classic after effects, no saliva, dry mouth, no sense of taste, skin burns on my neck, sunburn like appearance to my upper chest and shoulders, fatigue and my all time…
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Erbitux "half-life"?
just curious...how long the erbitux inhibitor stays in the body and continues to do what it does. I had eight weekly infusions, the last one on July 3. while still in treatment, had the typical rash on chest and face. but the rash was much better by the time of the final infusion. it was really never painful, just hideous.…
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4 more days of radiation and last chemo was done last week
hi everybody this has been a rough trip but I'm seeing the light at the end of the tunnel I finished my chemo last week and radiation will be finished Thursday and then the journey starts back up hill I've noticed my throat has been extremely sore lately so I have been drinking water and using my feeding tube flushing with…
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7 weeks since surgery and my neck is still swollen
my surgery was 7 weeks ago. should my neck still be swollen?
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Occasional hearing loss?
I have completed my 7 week rad treatment in Sept 2011 and my last Cisplatin and 5FU session in Dec 2011 for stage 4 non-metastasis Nasopharyngeal Carcinoma. I have been experiencing occasional hearing loss in my right ear. I can only hear myself talking. It happens once a month that last for about an hour. This started in…
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praise for the chemo port!
that clever device has saved me from vast amounts of pain, mess, and complication. whoever invented it, genius! better health to everybody, cheers.
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Today is Tues
so its time for me to have another bout of pneumonia - 5th in 18 months and I'm 100% feeding and meds with my g-tube. Has to be something they can do. Just aggrevated and venting - life really is good. Denny
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Change of voice before chemo/rad treatment
Hello everybody! I've beed reading your discussions for a couple of month now - since my Dad was diagnosed, and now I've decided to join you. I apologize in advance for spelling and language because I write you from Europe - country Slovenia (former member of Yugoslavia). In Slovenia there are almost no discussion boards…
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Non smoker 3 days !
Hello everyone ! Darn internet keeps kicking me off ! Storming here a little ! Any ways guys and gals....Kate's a non smoker. Also off pain medication and valium. Yeap thought I was gonna be crazed....but no not even an issue ! 40 yrs....a lifetime addiction for me. Thought I caused my adcc, but have been told no…
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Off topic....it's about my dog........
My MoJo has been steadily going downhill with Degenerative Myelopathy for the last few months, but in the last 3 weeks he's started falling, and he has to really think in order to negotiate two small steps to get up on our deck. Degenerative Myelopathy, for those who have never heard of it, is a disease where a dog loses…
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Just wanted to check in and let you know how things were going
I just wanted to post and let you all know how things were going. I am healing good. I had surgery 3 weeks ago and energy is back and trying to move on with life. I am still on restrictions so have not gone back to work yet. My tongue is still a little sore and actually have a little sore on the tip of my tongue. That's…
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Taste buds...let us track when we all get them
I am 3 weeks and have no sign of any taste yet. Anyone else has any tastte back? Those who are done, could you share your exp with tastte? Is there any specific one that comes back? You simply keep trying to taste things everyday? There are a few of us out from treatment, it would be great to write our expriences as we get…
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wondering about going back to work
I am 7 radiation treatments away from being done, last day will be August 1st. I have my last chemo this coming week, split over 3 days. As it stands right now my family medical leave is up August 20th. They have said I can apply for an extension but it will have to be approved by the vice=president over our dept. I work…
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To thick to spit
was what I ran into last nite. Folks have spoken of a dry heve of plem almost makes you feel like you are choking and not going to get it out. It was my 1st being that thick and concerning. Nothing since then, but I have others describe this dry heve/mucus. Do we deal with it the same way as reqular mucus. Because right…
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PET SCAN
Just letting you all know that I go for my 1st post treatment PET in the morning. Its been 3months since I finished Rads so tomorrow is the day. With the good grace of God, everything will be fine. God bless Tonsil dad, Dan.
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VACATION???
I'm a traveller by nature. I can only go about 6 months without getting the itch to plan a decent vacation. Went to San Francisco once, fell in love with it and want to take my husband there. Question is this... How soon is too soon? I know I should probably make it next year, if I'm being realistic. My treatments are done…
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Checking in
I officially have one chemo and 11 rads left. Still doing pretty good thanks to PEG and daily IV hydration. No mouth sores, sore throat or rad burns. Skin on neck is nice and "tan" but no pain or anything. A little anxious about how the next 4-6 weeks will round out but I need to learn to take things one day at a time. My…