Step by step inch by inch...

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hwt
hwt Member Posts: 2,328 Member
Slowly I turned to see that I'm making progress! Followed up with surgeons this morning. Nineteen hour surgery was 01/31. Fibula taken from leg and jaw reconstructed using fibula and titanium. Told them I had been to hell and back since I last saw them with the rads/chemo. They were pleased, at this stage of recovery with identical surgery, I was in the 90th percentile. He moved my 1st scan up from 08/09 to 07/25. Unfortunately, they won't allow any work on my teeth until November.
About week 5 post rad, I really turned the corner as far as getting my energy back....it feels so good. Looking over my shoulder til the 8 weeks post rad is up.

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  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
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    feeling better
    hwt,

    If you feel as good as your ordeal sounds complicated, then you are one happy and lucky guy. Glad to hear a positive report from anyone taking your bus route. Getting the energy back is great; it is the one item I struggle with. I sleep great and hope I eat (drink) good enough, but to get that energy back would be a blessing.

    Do you want to talk about eating too, me neither.

    Best,

    Matt
  • Laralyn
    Laralyn Member Posts: 532
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    Good for you!
    That's great to hear! Hopefully you'll keep flying through the next couple weeks until your scan!
  • phrannie51
    phrannie51 Member Posts: 4,716
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    Good for you, hwt!!!
    Apt description for sure....climbing this mountain inch by inch. I'm right behind you in finishing radiation....but am still working on the last 2 chemo's...I found out today, that the Cisplatin/5FU pump is on a 4 week cycle, not three (good...more time to recover between them).

    I'm delighted you're talking about the return of some of your energy...I hope I can say the same, or at least notice something different.

    Sending positive thoughts on your scan...(I write all these dates down on my tablet so I don't forget who's doing what and when).

    p
  • hwt
    hwt Member Posts: 2,328 Member
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    CivilMatt said:

    feeling better
    hwt,

    If you feel as good as your ordeal sounds complicated, then you are one happy and lucky guy. Glad to hear a positive report from anyone taking your bus route. Getting the energy back is great; it is the one item I struggle with. I sleep great and hope I eat (drink) good enough, but to get that energy back would be a blessing.

    Do you want to talk about eating too, me neither.

    Best,

    Matt

    Energy
    Matt,
    Wishing I could give you a secret recipe for the energy. Can only tell you I was finally able to get off all pain meds and that seemed to help the most. I take 1 Lorazapan and 1 Advil PM at night to get a sound sleep. I generally drink one Ensure a day and try to include protein in my diet. I really think elimination the pain meds made biggest diff. I will say, when I lacked energy I gave into it and slept allot. I sleep about 10 hours a nite now but naps are getting fewer. Like everything else, good and bad, seems it just happened one day! Hope today is your day.
  • nick770
    nick770 Member Posts: 195
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    Glad you are making
    Glad you are making progress.
  • katenorwood
    katenorwood Member Posts: 1,912
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    Good attitude !
    Hello hwt !
    You have been through so much, and have such an awsome attitude ! I am so humbled at posts like yours....you are a true fighter/survivor ! Warmest thoughts sent out to you, Katie
  • hwt
    hwt Member Posts: 2,328 Member
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    Good attitude !
    Hello hwt !
    You have been through so much, and have such an awsome attitude ! I am so humbled at posts like yours....you are a true fighter/survivor ! Warmest thoughts sent out to you, Katie

    Thank you!
    Thanks to everyone for the good thoughts and prayers. I was stunned at the noticeable change in energy from 1 week to the next. I truly hope the same for each of you. It saddens me to think back 6 weeks to the miserable treatments and to know that so many kind and thoughtful people are having to make this journey.
  • Grandmax4
    Grandmax4 Member Posts: 723
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    hwt said:

    Thank you!
    Thanks to everyone for the good thoughts and prayers. I was stunned at the noticeable change in energy from 1 week to the next. I truly hope the same for each of you. It saddens me to think back 6 weeks to the miserable treatments and to know that so many kind and thoughtful people are having to make this journey.

    wonderful
    news, blessings to you