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LiveStrong Survivorship Plan
I didn't know this existed, but it's a great resource! You input info about yourself, your diagnosis and your treatment, and it generates a custom plan with notes on what and when to check for side effects and other physical effects. I wanted to share it in case it helps anyone else. http://www.livestrongcareplan.org/
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Just a tiny bit about me~~`
Tomorrow,July 13,2012, my Son graduates from the Columbus Ohio Fire Academy...I am so proud of Him and His wife for all they've gone through to make this dream come true. I'm 66 years old, and just finished polishing my toenails and fingernails in " apple green" to match my outfit, oh, and I'm wearing sandels!!! I'm sexy…
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When does only moving forward starts?
After a very tough two weeks after rads were finished, i had started to feel better for last 2-3 days. Everything has turned back since last night, dont know why. Coughing/ hecking is back. No matter what i drinnk (milk, smoothie, butter milk, water), throat feels dry in 10 mins and i start with a dry cough that hurts my…
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Just Checking in 8 more days of radiation!!!! and chemo on Wedndesday
hi everybody i'm just checking in i have 8 more radiation treatments left and i have my last chemo on Wednesday they are doing a smaller dosage on the chemo because i have lost more weight so 10% of my body weight my throat is definitively sore so i'm on a pain patch and was just raised up on the dosage and i have been…
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Hitting the six week mark
Today marks the sixth week since I completed radiation. It feels like a strange milestone because the improvements are so gradual and everything else is so constant that sometimes it feels like nothing is changing. I had my appointment with the speech pathologist today. He cleared me for 12-18 oz of water and 12 oz of…
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Having my Throat scoped
I'm having an NGD done on Monday, and don't really know what to expect. We are doing it because at 5 months post radiation therapy I still can't swallow anything more that little sips of water. Doc plans to send the scope down my esophagus to see what's up and also possibly dilate it to get things started. Can anybody let…
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Transfusion today....
Yesterday I had another CBC, and along with the Thrush, and the mouth sores...I'm more than a little anemic too...ain't this been just a crap week for so many on here!! Anyway, I'm hoping I wake up tomorrow feeling much better....less tired and more able to cope with this darn mouth of mine... p PS...on top of feeling so…
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Anyone have any thought on steroid shots to aid healing?
My Onc said if I'm still experiencing a sore throat/swollen throat after a month, he could give me a steroid shot to aid healing. Has anyone had one? I haven't read every post but I haven't read anything about it, but I may search it out. My profile will tell my DX but I'm a little different, not as severe as most on these…
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Not out of the woods buts did jump for joy !
Hello everyone ! Well all your good vibes got me through those tests ! And no evidence of disease found in spinal fluid ! There is some slight pressure changes...but they will be watching ! Now I go in next Tuesday for another CT/with contrast to check the lungs and resect site. Why they couldn't check everything on Monday…
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I think I have night time dry mouth partially beaten
I think I have a way to beat the night time dry mouth.Had me dentist make me some like mouth guards but really thin. Put dry mouth gel in them and he presto no dry mouth all night and no chewing my cheeks. The ones in my mouth that is LOL Will try it for a while and report back.Tried the liquid first duh
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In The Hospital
Looks like it was a tough weekend for a lot of us. Hubby has two cisplatin chemos and 26 rads under his belt with lots of side effects but hanging in there. Then, he started running a fever Saturday afternoon, getting up to 100.2. We used Tylenol to get it down but if we waited more than 4 hours for a dose, it started…
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Finding Inspiration
Kent's post to Ditto1 about the tongue swelling and some sayings or mantras that helped him was spot on (as usual). Since several of us had/are having a rough time the past few days, thought it might be helpful to post some inspiring phrases that have helped us. Hope they help you. We started with " Fight. Faith.Finish."…
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Tongue swollen this morning
woke up and boom swollen tongue met me. I knew I was starting to sound worse than I had been and the swelling has been reduced for weeks, however since RADS its back heading to RAD doctor now hoping he has an answer/ has anyone who did not have surgery experience a swollen tongue during RADS
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Thoughts or Questions
I saw my radioligist this past tuesday for my regular 3 month check up---as soon as he walked in the room he said Linda what the heck happened...he was referring to my recent episode with a spot on the left side of my tongue that turned out to have scc cells, had surgery on June 19th to remove a small section, and all…
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Sweetblood 22
Missing your posts, and wondering about you. Hope your doing ok , Tonyb.
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Pain in my jawbone is so bad sometimes!
I have been doing well from my tonsil cancer surgery and radical neck dissection, until the last week or so. As the feeling comes back, more pain in another place pops up. My jawbone gets so sore, feel like abscessed tooth, but I have dentures. Doc gave me a round of antibiotics on Tuesday, and told me if it wasn't better…
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Sorry for wasting your time
because, I have an answer from previous post to all my questions and realize its TIME that I must deal with. Yes Im feeling down today and so maybe I just needed to hollar out loud in writing. Rads are taking their toll in just the last 3 treatments. Wow even though I knew it was coming now that its here Im just feeling a…
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Question about TMJ/sinus connection
Has anyone who has been diagnosed with TMJ had sinus problems that resemble post nasal drip that starts when I rise in the morning and goes on 24/7 with the most horrible putrid foul sweet taste? Oncologist said TMJ result of radiation to head/neck for tonsil cancer 11/07 - saw an oral surgeon to explain if that could be…
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coughing up blood
has anyone had a dudden problem with this? we are 6 most post treatment and last night my husband woke up and coughed up a ton of blood. He is going to the ENT this morning but was just wondering if anyone else had experienced this. Thanks in advance for any information!
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Terrible night
One week post surgery and I thought it was going well until last night. I woke up choking with a mouthful of blood. The pain was manageable at times, but the bleeding lasted for about 2 hours. I saw one of my docs this morning and he said everything looked ok. The bleeding was coming from the right side where they did the…
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Step by step inch by inch...
Slowly I turned to see that I'm making progress! Followed up with surgeons this morning. Nineteen hour surgery was 01/31. Fibula taken from leg and jaw reconstructed using fibula and titanium. Told them I had been to hell and back since I last saw them with the rads/chemo. They were pleased, at this stage of recovery with…
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Checking in!
Hi guys! I've finished 5/7 chemo and 18/35 rads so far. Let me tell you, EVERYTHING has improved since I got my PEG. Not sleeping all day long, no sores on my tongue, mouth not quite do dry. I guess nutrition is pretty important. Herbie the lump of death looks to be about 2/3 his original size. And no ill effects from…
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surgery vs radiation/chemo
I haven't posted much but read all the posts religiously. My husband (age 61) was diagnosed with head and neck cancer in September 2011. The primary was his right tonsil (SCC HPV+) so he had his tonsils removed followed by 35 rads and 2 chemo treaments (cisplastin sp??). He was level 3 with some spread to lymph nodes. The…
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2nd Surgery tomorrow..
Hello my fellow warriors! So tomorrow I check in at 6AM to go in for my last (hopefully) surgery. The surgeons will be removing about 40-50 lymph nodes during the neck dissection. At this time, the doctor will be cleaning uo the enges of my tongue to prepare it for reconstruction. They will remove the tissue from my left…
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squamous cell CA of the base of tongue and lymphnode
My mother recently was diagnosed with squamous cell carcinoma of the base of tongue and lymphnode. We see the radiation doctor and the chemotherapy doctor at the end of this week. The radiation will begin Thursday. We are totally new to any of this. I have read some information online; however, still in the dark about most…
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Daily hydration
My hubby will be beginning chemo treatments some time in the next two weeks along with 5-a-week rads. Our medical oncologist tells us that after (or before) each rad session he will take a short walk down to the chemo area for IV fluids which sounds like an outstanding idea. Have any of you had this done? Is it pretty…
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I stepped back in time about 5 weeks....
I haven't felt this miserable since the 4 or 5th weeks of rads, and I can't put my finger on the reason for it, too many choices. I had the 5FU pump from Tues to Saturday....my face turned a tiny bit pink on Weds, but by Thrus and Friday, it was hot, red, and puffy. I thought maybe I got a little too much sun on Weds, and…
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swallon neck
Hi, I am new to the forum! My husband had cancer on the base of his tongue. Had that removed and a radical neck disection. Now his neck is very swollen and he is really having a hard time with it. We have been to the emergency room twice and dicussed it with his Dr's. He is really having a tough time with this. They say…
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Tests set for the am ....
Hello group ! I go in tomorrow morning for that CTA and lumbar puncture (air test) hoping to get some concrete info to decide on next steps with this adcc. It's only been 6 mo's since this trip started and it feels like a lifetime. Will update in awhile...results can come back soon...lol, or within a week. Prayers and good…
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Has anyone become Tongue Tied or had memory problems
My Husband Bob still hs eating issues probably due to the tongue being tied and he needs surgery on his sinues. He has been Cancer Free over 2 years now but he seems to be declining fast..he had a spider bite Brown Recluse and seemed like he became senile,..then he had a tooth pulled a few weeks ago and it got worse...he…