Two Year Appointment....NED.
Two years ago this past April I was diagnosed with SCC unknown primary after I discovered a swollen lymph node in my left neck.
I had a left neck dissection with over 30 lymph nodes removed and the tonsils were removed for good measure.
Following surgery, the only cancer found was in that one lymph node and the decision was made to not do radiation or chemo until a time where a primary could be found.
Two years have passed and after numerous exams, a couple of scares, and plenty of anxiety, I am still cancer free and thanking God.
At first I looked at the unknown primary as something that was lurking and would eventually be revealed. Come to find out some primaries are unknown because they ceased to exist.
Thanks to those who encouraged me over these two years(especially early on).
To anyone reading who may have been recently diagnosed, just know that this is not a death sentence and things may turn out much differently then you initialy expected(for the better).
Next up is a CT scan in the fall and until then I'll continue to live life to the fullest and give God the glory.
Comments
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Victory
Another victory over that nasty predator Cancer! Yeah for you and I do hope that all of your future check ups are good!0 -
Whoo Hoo Joe!!
Great news!! Here's to many more NED's!!
p0 -
yippee for you !phrannie51 said:Whoo Hoo Joe!!
Great news!! Here's to many more NED's!!
p
so happy for you, Joel, and thanks for posting. It is such an inspiration to all of those still in treatment and recovery ! there is hope that things will get better.
CONGRATS on NED.0 -
Yeah!Skiffin16 said:Awesome News Joel....
So glad to hear the good news.......
It's always nice to see the positive reports thrown into the mix.
Best,
John
Great news Joel,, Best three letters in the alphabet
may all your scans be NED.
God bless
Tonsil dad,
Dan.0 -
Great news!hwt said:God is good!
God is good!
0 -
Thank you !
Hello !
It's updates like this that make my trip a little easier to continue ! Very new to this what people call our bus ride. I am so very happy for you ! Continued NEDS forever and a day is my wish for you ! Warmest regards, Katie0 -
happy Joe...Jimbo55 said:Great News Joel!!!
So glad to hear your good news. Chalk another one up for the good guys! Cheers.
Jimbo
That's the kind of posts I like.
I was BOT w/ 1 lymph node...no surgery or platinum chemo..just radiation and Erbitux ...and I love to hear stories like yours.
Thank you for sharing ....
Best,
Tim0 -
nedTim6003 said:happy Joe...
That's the kind of posts I like.
I was BOT w/ 1 lymph node...no surgery or platinum chemo..just radiation and Erbitux ...and I love to hear stories like yours.
Thank you for sharing ....
Best,
Tim
I love ned!0 -
Hey old timer
Joel
I am about 4 months ahead of you heading toward 2.5 years. I too have been NED in all my visits to all the Dr's and I have one coming up in a couple weeks. So glad to hear that an old timer like me is doing so well. like to hear my classmates from 2010 are doing well after graduation.
all the best,
Steve0
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