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GONNA RING THAT BELL TODAY!!!
Last rad today!!! Two weeks off chemo to get blood count up then I do my two makeup doses and maybe an extra for good measure. Throat is slightly sore but 1/2 lortab fixes it. Have a little of the infamous mucus but nothing more than one would get with a sinus infection or something. Praying the trend of mild side effects…
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Frusrated
I'm 6 weeks finished with rads and 8 weeks finished with erbitux on Friday (in 2 days). Still haven't gained any of my weight back. Up until 3 days ago was using g-tube for feedings in addition to eating by mouth. I decided to try and eat more by mouth and less by tube. While some things are still very painful to eat, I've…
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Well I made it, One more Radaition Treatment.
Well I made it, Last more Radaition Treatment on Monday. Now recovering. My tonuge is horrable, It bleeds and full of blisters. My throat is also a mess. It is hard to swallow. My salave is the most horrable tasting stuff. Can anyone give me and idea how long befor I will start to feel better.
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Mucoepidermoid carcinoma (left hard palate, intermediate grade)
Hey everybody I just found out that I have mucoepidermoid carcinoma intermediate grade in the left hard palate of my mouth. I found this out from my oral surgeon. Can any one tell me what I can expect as far as treatment goes?
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tonsil cancer
My husband was diagnosed with tonsil cancer but refuses to go through radiation and chemo because he has heard all of the horror stories behind some of them. I don't think i can bare to sit and watch him die. He is taking Shaklee vitamins and swears the tumor is shrinking in his neck. Unfortunately i am a nurse and i see…
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Need Feedback on Pain Issue Anyone? Thanks :)
Hey all. Tim here :) My last rad was 1/20/12 and I had no surgery or platinum chemo. Only Erbitux. I got off all pain meds about 2 months ago. Had feeding tube removed 1st week of June. Got a very good PET/CT scan May 6, 2012 got a good scope / finger exam on June 9, 2012 got a good scope / finger exam on July 1, 2012 and…
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Just a thought for today
Entire water of the sea can't sink a ship unless it gets inside of the ship. Similarly, negativity of the world can't put you down unless you allow it to get inside of you. Be positive through this journey my friends!
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My father's treatment
Hey everybody! I wasn't present on this forum for the last week since I was on vacation with my family. Well, as some of you know, my father (57 yrs old) was dx with Stage IV SCC Base of tongue with multiple lymph nodes involved. As doctors have said those nodes were bigger problem than the primary cancer itself. Operation…
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Scan time
Jim goes to have his lungs scanned on the 20th and we have to wait a week to get results. So the anxiety begins. To update those new to board, Jim had stage four base of tongue, finished Rads and Chemo in August 2011. 6 months PET showed that cancer gone but nodule in right lung. Three months later numerous nodules and…
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From Chefdaddy
My supporting friends, I just got a link from Sweetblood22 that mentioned the passing of Glenna. She was very special to me as a lot of you were when I was being told I wasn't going to survive after all of the treatments and 14 surgeries. She called me in my hospital room because my good friend Hondo sent out the word that…
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Getting my 5th chemo today...
I'm a little nervous of the 5FU part of it, since last time it produced massive mouth sores, not to mention, my face swelled up and turned bright red oh AND I ended up needing a transfusion....took 3 weeks to recover, and now I'm back here getting ready to do it all over again. Talked to the Oncologist this morning, and…
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Saw the ENT Today
Today was hubby's first appointment with the ENT since his diagnosis. Now that he has finished treatment for his Stage 3 HPV+ tonsil cancer, the ENT gathered all his treatment reports and tests and brought us in for an appointment today. We love our no-nonsense ENT. He is the head of the Head and Neck Cancer Department at…
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Shambles.
What a cluster f@#k, as you all know and thanks for the well wishes and prayers I went for my first PET two weeks ago today and they said I'll have the results the following Monday. Well no phone call came or Tuesday or Wednesday so my wife called my ENT and the said he's on vacation and no one can give me my results as…
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Lung specialist in the a.m.
Hello everyone ! I go in the morning to the doctor who first discovered my acc. I'm not as anxious as the last time I saw him. I am prepared this time with the proper questions on my lungs. I have right around 10 nodes in each upper lung. With the type of cancer I have it is very common to spread to the lungs. So knowing…
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embarrassing recovery moments
can't believe I just did this. started feeding tube process and had unconsciously opened my tube. jumped up to get a new syringe from the kitchen without holding tube upright... that's right, dumped the remainder of my previous feeding in a trail all across the floor. ewwww. add decline in mental faculties to treatment…
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Accupuncture for nerve damage
Hello everyone ! Was suggested to me today to investigate accupuncture as an alternative to meds for nerve damage done due to surgery. Does anyone have any experience with this ? I'm thinking maybe, why not ? Thanks for any imput, Katie
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just checking in
Just checking in haven't been on here for a while. First my computer crapped itself got a real good deal on Amazon with new laptop, then the end of June into July a bad storm hit on the east coast alot of damage to our region, was with out electric for 10 days and I was scarred to death becausae I'm on oxygen 24/7 had a…
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Hearing loss
I'm 9 weeks out of radiation now... and just within the past few weeks the hearing in my right ear has been decreasing steadily. I can barely hear at all out of it now. WHY are these side-effects starting so late?? And has your hearing been affected? This sucks.. I have enough side-effects to deal with I didn't need…
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Radiotherapy experiences after neck dissection - please share
Hi my name is Don and on July 9th I had a direct laryngoscopy and biopsy with frozen section and a left neck dissection with tonsillectomy to remove a mass in my neck and search for a primary. I now have an important decision to make about continuing treatment with radiation. I would like to hear from anyone who has…
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Six months after my last treatment and still having trouble swallowing
Hi everybody! This is my first post here so nice to meet all of you. I was diagnosed with baser of tongue cancer last November. I went through the 35 doses of radiation and 7 chemo sessions. February, March and April were pretty brutal, but I feel 100% again from the shoulders down. My biggest complaint is I still can't…
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Walking the walk talking the talk
Hello everyone, I want to commend you all in your survivorships first of all, each and everyone of you are true fighters and I have been proud to read all of your posts and giggle at your antics. But guys please don't take me wrong in this but....I read a post and felt you packed on a survivor only asking for rad advice.…
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Tx plan
Well we saw the medical-oncologist yesterday and she through us another curve ball,, good thing I'm a 290 hitter! Appears she believes I am young enough (54) and healthy enough for a very aggressive plan. 3 rounds of chemo cocktails (3 drugs) 22 days apart, then 7 weeks of rads concurrently with chemo, guess I better " Get…
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one year out and...
N.E.D. Thanks to all of you, your support and experience was invaluable. Without this forum I would have had a mandibulotomy, and still be recovering. So, I can't tell you enough how grateful I am of the love and caring, you all have shown me.
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Checking In
Still having only light side effects. Mucus in back of throat is a bit worse but not unmanageable. Only 3 mOre rads to go!! Rad Onc Doc said if she can judge by how my body has managed it this far, she doesnt expect my side effects to get much worse. Hope she's right! Feeding tube site is all. I ely healed. No issues…
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Just starting out on this journey and a bit scared
Well, last Friday the ENT doc said I have the big C. WOW! Now what? I am having a CT scan today. The doctor took a needle biopsy on Fri and the results came in, positive, today. They canceled my hospital OR visit for another biopsy tomorrow. That's good news. The doctor said now a board will meet to discuss my treatment.…
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Dry mouth questions
I have a couple of questions about some issues my dad is having. 1. Do any of you notice that airconditiong makes your dry mouth issues worse? 2. Do you also get a dry sore throat when your dry mouth is worse. 3. Do you sometimes sound like you are losing your voice. 4. Did your dry mouth get worse years after treatment.…
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Periodontitus Linked with Risk for HPV+ Head & Neck Cancers
Interesting article just released June 18th in the Articles of Otolaryngology. By Mine Tezal, DDS, PhD, School of Dental Medicine, State University of New York at Buffalo. "A history of periodontitus might be an increased risk for head and neck tumors positive for HPV". I was dx with BOT SCC two years ago with HPV+. The…
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scc of the epiglottis
hello, i have been told stage 1 N0 early stage rdiologists wants to radiate surgeon wants to remove epiglottis; cantdecide which one is least invasive, has anyone been through this? which one has the least side effects and how bad? thanks.
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SETBACKS
I guess I am just having a couple of down days. Origally should have been finishing radiation on the 31st, now won't be done until at least August 3rd if my neck heals enough to start back up on Monday, I don't think it looks hopeful. I have thrush and that doesn't seem to be getting better, been on Nystatin since…
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2 weeks post treatment. When will the pain stop! 35 rads 2 cisplatin chemo. HPV+
Hi I have cancer in my throat but because they couldn't locate exactly where it came from I had radiation from about where the tip of my nose is to just below my neck above my chest. I had radiation 5 days a week for 7 weeks. I also had 2 rounds for Cisplatin Chemo. I was supposed to have 3 but got too sick after the 2nd…