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I am tube ignorant, I think....
Keep in mind, I got the darn thing in April, but never HAD to use it till July. I've ran Coke thru it, and I flush it with warm water....but it's getting slower and slower, till today, it wouldn't work with gravity at all...I had to put the plunger in the syringe. Is this how it works? I mean, everybody starts out being…
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Migraines back...grrrrr !
Hey everyone, I have lived with and worked through this issue all my adult life. Until, I had my surgery for my dx. I thought hmmm was this related ? But never asked. Well 8 months later wap...back again. Could be just another cycle....use to get them cycling at least 6 x's a year. They usually last 5-7 days. On my 4th day…
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Birthdays & Milestones
Today is my 59th birthday, it's hard to believe a year ago today I was having lunch with my daughter and granddaughter who at the time was 6 , and this angel of my heart askes "grammie your going to loose your hair right", and I said yes, she then gets a bit more serious and wants to know if people are going to stare at me…
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Really weird
So all day today and tonight my spit has been almost normal (it's actually in a somewhat liquid form that I can actually spit out) AND my sore throat is about 70% gone. Ive had no pain meds since yesterday afternoon. Is it normal for it to come and go? I did develop a huge sore on my lip overnight though. This whole…
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And then there was 1
Yes tommorrow, 8-10-2012 my final RAD treatment 33 of 33. Wow to say it was a rough road to travel would be a bit of an understatment, but I have to admit (for all the newbies about to go thru it) it was not as bad as I anticipated. Redundant thats a different story. So as I type this my neck is Bright Red, and slightly on…
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Bloating problems inhibiting calorie intake
This is my first post here. I have only been reading until now and appreciate the information being shared. I am a caregiver and very worried that the (week #3) infusion of cisplatin on Tuesday has caused severe bloating in the family member that I am caring for. The bloating has made it difficult to ingest food by mouth…
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Ora Sooth
Has anyone had any experience using Ora Sooth Rice?
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HOW LONG DOES RADIATION KEEP GOING
FEEL LIKE THE ENERGIZER RABBIT- DON'T KNOW IF IT WILL EVER GO AWAY- THEY SAY HAVE PATIENCE- HAD 33 RADIATION TREATMENTS -VOCAL CORD CANCER- JUST WANT MY VOICE BACK
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ENT Visit
My husband went to see his ENT today. He has been using his feeding tube to eat and only sipping water. His ENT and the surgeon that put in the tube both told him today that he needs to start eating by mouth as much as possible no matter how much it hurts. Even if it is one meal a day! So we are going to try mashed…
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Driving
Last night I did something I haven't done since Jan/2011 when I was told I had stage 3 Laryngeal Cancer, I drove my car and had my oxygen at tow. Talking about excited, my hubby went with me, life has gotten better. Wishing everyone a awesome and pain free day. bjw1955
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taste alteration and suggestions
My mom cannot eat anything secondary to the taste alteration. She states everything tastes terrible... Do any of you have any suggestions on what worked for you? Yes, she has her PEG and that is her primary source of nutrition. However, she would love to eat. Thank you for your time! :)
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Doc advice : eat at any cost
I had a appt with my doc today and she said to just start eating whatever i could and not to worry about pain in throat. She said if needed take pain med but keep pushing in eating. I have was eating pureed food okay but when try to eat pieces, my throat was hurting. I could eat but than throat would hurt. She said to take…
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Swallowing trouble?
Have a pretty good sore throat for three days now. It even hurts to swallow water. But here's my quandary... I was swallowing weird because it was hurting so bad, like I anticipated the pain and didn't swallow normally, then I choked a bit once and became afraid of aspirating. Now I'm not drinking at all but I find myself…
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Coca-Cola...seriously...
I was reading through some old posts trying to learn about the mucus. Mine isn't that bad it I wanted to arm myself with knowledge. I found some posts about Coke and I thought no way... But here is what I discovered just now: 1. It really doesn't burn my mouth and throat even though the side of my tongue is raw and my…
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NED for Tim6003 - thank you all for tucking me in!!!
Hey all... MY scan was NED!!!! Thank you all very much for your prayers, thoughts, well wishes... My kids left the power cord to the computer at the clinic (let them use it while I got the news) so computer was dead the next day and got home late (3 hour drive back home).... Worked all day the next day and today when I…
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Mucus Metamorphosis??
It's gone from white to having a little more color. It's not coming from my chest at all. Originates more from the post nasal area. Is some color ok or should I get antibiotics ASAP?
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Driving
Last night I did something I haven't done since Jan/2011 when I was told I had stage 3 Laryngeal Cancer, I drove my car and had my oxygen at tow. Talking about excited, my hubby went with me, life has gotten better. Wishing everyone a awesome and pain free day. bjw1955
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Is this thrush or dead cells
I have white tongue and tried nystatin that did noy help. Doc has given another tablet that i have to melt in my mouth. That seems to haver reduced it a bit. Does thrush hurt? My tongue is not hurting at all. I am wondering if this is thrush or not. I have doc appt in two days so will know more. But my throat hurts and i…
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Lortab vs. OxyContin
Doc switched me from 7.5 lortab to 5 mg OxyContin. Apparently my liver does not like acetaminophen. I'm nervous about the OxyContin. Is it going to make me feel all messed up or will the effects be much the same as the lortab?
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A woman's hair is her crowning glory~~
I know this is petty, compared to all the other side effects, but, my hair has gotten so thin and fragile since my surgery. It has to be the medication they used during surgery because all I'm on now is blood pressure meds which I've take for years. I'm using a three step program now that my beautician…
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Ok, this looks weird!
I got my PEG out last Thursday and now I swear it looks like a second belly button. It also looks as tho even after it heals completely it will look this way. Anyone out there know anything about this? This is going to make baithingsuit time very interesting.....people are going to wonder???? Billie
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5 FU hates me...that's all there is to it!
Even with a 20% cut in the dose...no sooner did I loose the pump and the mouth sores pop up...the only difference this time is I don't bleed when I talk. Back to using my tube (after a whole 6 days reprieve after healing from the last 5 FU). It's hard to keep my weight up with 3 weeks on the tube, and only one week to add…
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Dr wont give PET scan results over the phune
Whoever my husband spoke to in the office said that it is standard procedure and made an appointment for tomorrow, This cant be a good sign. They gave results for the first scan, said evrything looked good and would talk to us on the appontment we already had sceduled. Why wouldnt they do the same this time.
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Flounder ~ Florda Style....
Great day in Tampa Bay...., here's how we do it in Florda; Flounder ~ Florda Style JG
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In Boise tonight 8-5 / Scan tomorrow :)
Have my 6 month CT scan of neck tomorrow 8-6 at 10am Mountain Time ...keep me in your pocket guys :) Thanks! I'm going to try and talk the doc into a "eyes to thighs" ..but he has been pretty stubborn about neck only... we shall see! Best, Tim
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Question about taste
On a lighter note. If I can’t taste, yet everything tastes bad. How do you describe what we are going through to others? I really don’t taste much, but what comes through the taste buds when eating a known item just isn’t there. I feel there must be a better answer then the standard ”I can’t taste”. I do taste, it is just…
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Anyone else had "fat mouth"?
My surgery was different than most but I think the rads/Cisplatin have caused this. I keep thinking it will go away but it hasn't yet. When I eat anything or even drink an Ensure, my mouth seems to swell, primarily the inside of my cheeks. Lasts about 15-30 minutes. Drinking water does not do it. Certainly an annoyance but…
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HBOT Questions - did we make the right decision?
Background My husband (age 61) was diagnosed with Stage 3 tonsil cancer (HPV+) in October of 2011. He had a tonsillecomy followed by 7 weeks of radiation and 2 treatments of chemo. He went through treament well and we thought he was getting better. Then in May he had trouble talking and had pain in his throat. ENT did a…
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Kidney damage after Cisplatin
Has anyone had kidney damage after Cisplatin? Buzz has elevated Creatinine, BUN, and decreased GFR. All that means is his kidneys are showing signs of not functioning fully. At what point does someone with this problem need a renal diet? His oncologist does not seem to look at his labs (unless we ask) although he has blood…
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The Bell
Hello all. "Tuffenuff" just posted about ring the bell. Made me think it would be fun to see where we all rang or will ring our bell. I rang my bell in Torrance CA on June 22, 2012 What about you?