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New painful ugly sore- panic attack
the past 3 days, I've felt like im catching a cold, throat sore aNd ear, more so on the side I did not have cancer on. I had squamous cell carcinoma, base of tongue st 3, spread to 1 lymph. Last onc appt was last week and said I was doing great. since yesterday my tongue is sore and swollen , this morning I went to take a…
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Doctors ??
Wondering what others think of this.... The Doc who put in my PEG tube has decided now he should never had it put in. Reason I had a gastric stomach.. now I have Gastroparesis due to this. He wants to take it from my stomach and have it placed in my lower intestines. Due to my stomach being full of infection and not…
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Knowing when to exhale instead of inhale is so important.
Knowing when to exhale will help with: COPD; Anxiety; being a laryngectomee; or just haveing a bad day and having some depression; and panic attacks. Some of us have forgotten when you should not hold your breath, it only makes it worse. When you are going to sit down take a breath and exhale as you are going down. The…
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Out of Surgery and Recovering
Hi. Thought I'd start a new thread instead of continuing on my older thread. i had my tonsillectomy and neck dissection on 1-31-14. I was told it went very well and the infected tonsil and some lymph nodes from my neck are being looked at for any remaining traces of cancer. Should have results back this week at some point.…
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Me again
hello everyone, i have tried to post and log in more often but it has been a challenge. Not feeling that great today
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Acupuncture...
I've seen a few people mention that they had acupuncture treatments for saliva issues. Some people got it during rads and chemo and some afterwards. I was wanting to know if this helped with the saliva issues or not. If it did help, how many sessions did it take before you started seeing results? Do you have to continue…
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So proud of my husband!
My husband completed his 4 weeks neutron radiation treatment today. He is doing surprisingly well given the circumstances. He did have a low point during the end of third week/beginning of 4th week, when he couldn't eat solid foods anymore. However, he has since discovered the convenience of Boost VHC and is able to sort…
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First signs of movement in my face: SO HAPPY!!!!!
Rather than sharing frustration or concerned, today I want to share pure happiness> When they removed my MEC from the parotid glandin September they had to remove 4 cm of my facial nerve and do a nerve graft; my face has been half paralyzed since than and they could not predict success nor timing for recovery. Yesterday…
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PEG 2 yrs, Not eating ANY foodHelp
Hi, I don't know what to do. I was on here 2 yrs ago when DH was going through chemo/Rad for BOTC HPV+. You all were very helpful. His treatments ended almost 2 yrs ago. All tests are good. but he has no saliva, bad or no taste and says food burns his throat. He is still on the tube and eats NOTHING. He is ok with it but I…
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Liquid Hope
If you are looking for nutrient dense liquid food for your PEG please take a look at this web page. It was mentioned by another person on this site. It should be listed on the Superthread if someone can do that? She also used real food in her tube. functionalformularies.com
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New here- what happens after treatment?
My brother is being treated for stage 4 tonsil cancer with mets to 3 lymph nodes. He's had chemo- citsplatin (sp?) once weekly for 6 weeks and rads 5 days weekly for 6 weeks. With the holidays he will need to do 8 more rads and the last chemo on Monday. He's done really well. Lost some weight but not too alarming compared…
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Burning Burn Tongue After Radiation Please Help
I am 4-1/2 months post chemo and radiation for tongue cancer. I had the cancer excised from the left side of my tongue 16 months ago. T1N3 The problem that I have is a burning and painful tongue. The burning feeling extends from the point of excision on the left, all the way around to the right side of my tongue along the…
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Me again
hello everyone, i have tried to post and log in more often but it has been a challenge. Not feeling that great today
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I rang that BELL !!!!!!
I rang that Bell loudly...even my hubby got to ring it for me. There were tears of joy in all our eyes. And the Doc was so proud of me as he said people who do chemo/rad have a very tough time. So Bell has rung finishing that step, now to see what the scans tell us, if it is NED. I asked my hubby if he wanted to watch one…
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Lymphoma...and trusting doctor
I am 25 years old, male. I was freaking out because I found a 1 centimetre enlarged lymph node behind my ear, its been there for about 4 months. I thought for sure it was cancer/lymphoma. My family doctor told me it was probably nothing to worry about, but would send me to a specialist because I am worried. I went to the…
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Food makes me feel sick
I'm still having problems with feeding. Every time I put anything in my stomach I get dreadful pains with gas and feel sick. I've tried ensure 2 cl, ensure plus and Osmolite. I can digest the first one on an empty stomach but 4 hours later the second one seems to staying my stomach Undigested and my stomach blows up,…
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How to make 3 years feel like 30 years
Hi everyone. Just found out that my npc cancer had mets to my bone after less than a year, so i probably have about 3 years left. Therefore, can you guys provide some suggestion on how to make 3 years feel like 30 and anyone with the same experience share their treatment for npc bone mets. Appreciate it.
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Well...it's ceiling fan time again....UPDATE
I'm kind of patting myself on the back for managing to keep away from the ceiling until Saturday, instead of getting up there 2 weeks early . Anyway....all positive thoughts and prayers are welcome. I have my scan tomorrow at 10:30.....go to the Onc's office on Thursday to get the results. p
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Week 3 + PEG today
checking in today... Husband had his Peg placed today. He's had 10 Rad since 1/30, and 1 Cisplatin. first few days were rough, mostly nausea and fatigue from the chemo. But last week he was feeling much better. Feeling good this week, and this afternoon got the PEG. It was routine, except in recovery where we waited for…
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Questions...
Hello all, I have an issue and would like some of your input or ideas. This Miss Peggy is being a real B*itch sorry for the language. But I can not keep any liquid or food at all in my stomach. I developed a ( Delayed stomach ) or Gastroparesis. I can not stand the taste of any food or drink in my mouth it is so horrible I…
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The most amazing group of people!!
So I have been diagnosed with hpv tonsil cancer and last week started radiation and my first chemo. I am so overwhelmed by this, but Thank God that I found this site. I am in awe of the caring and helpful ness of you all. Actually a couple of days ago I posted(in the wrong place) a bit about myself, but as Bill said I…
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Can throat & Saliva still improve after 5 months ?
Hi there, Wondering if the throat and saliva can still improve 5 months after treatment ? I wrote a post on here not long ago about my tongue condition, seems nobody has ever heard of it, didnt get a response. Unfortunately only 2 % of the population get it and I just happen to be part of that bloody 2 % ! My throat still…
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Caring and sharing
I wanted to share what my younger sister did in honor of myself, our Mama and our brother. I think she did a beautiful job.
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Rough week
This has been one of thr toughest weeks ever, on Monday told I had melanoma on my arm, still waiting for the biopsy results on this, got a call Friday morning at 1:30am from my niece telling me that my brother in England had passed away from stomach cancer then a trip on Friday morning to have my prostate biopsied again,…
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Hypopharygeal/cricopharyngeal stenosis
I've got a date at last to try to open my throat. The 12 February. They are either going through the PEG or through a small laparoscopic incision.they are doing a retrograde dilation in combination with one of the gastroenterologists. I will need if it's successful have follow up OGDs and dilations following the procedure.…
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Still very tired - 6 weeks after radiation treatment . Is it normal?
Hello I am wondering if it is normal to get tired easily 6 weeks post radiation treatment. I actually had more energy during treatment than now. Also, I need to eat every 2 hours to avoid dizziness. I did lose only 2 lbs since the beginning of treatment so it is strange to me that I need to keep eating to maintain my…
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Tounge flap
Here's question I keep wondering about and always forget to ask the doctor.For those of us that had to have part of tounge removed and replaced with a tounge flap has anyone ever asked what would happen if it wasn't done.Would it make our swallowing and speach even worse or being would we just have a smaller tounge...
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Hello Fellow Travelers
I went for a 7 month post checkup yesterday with my rad doc. My question is how often do you guys get scoped and Pet scans post treatment. They want to scope me every three months and I have refused the last two. For one thing it seems excessive and I wonder how much they are doing it so they can bill insurance. Secondly…
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Melanoma Survivor
Hello, everyone, I am new to this blog. For quite some time now, I have wanted to share my story. I cannot find a Melanoma Support Group in my area, so I was directed to this site. I have survived 3 Melanoma boughts: 2001, 2006, and 2013. The first was on my left shoulder; the second on the right cheek of my face; and the…
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Looking for people who have experianced a full laryngectomy surgery.
I had a complete laryngectomy on OCT 20 2014 and am having a hard time coping, I would like to talk to some one who has gone through this. I have many questions and concerns that a Doc with no personal experiance can help me with.