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Finally, NO LEAKAGE
Well, finally they replaced my tube and yesterday was the first day since that I didnt have any wetness or burn. I am so happy!! Now to clear up the damage done to the stomach area.
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possible aspiration???
I am a year out from stage 3 Throat . Starting in Nov I was getting more hoarse and feel like lungs are inflamed or have some liquid hard to define. Since radiation I have had two swallow studies and they both show some dysphagia. Feels like food just stops on the left side same place all the time and then disappears on…
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DiET - Now (rad/Chemo just ended) - and LATER
Our son in Milwaukee just finished the last radiation this week (& final Chemo week before), for Tonsil / lymph . He was told to stay away from certain 'good' foods during treatment, but WHAT NOW? We are all trying to learn what this means and WHAT diet items are better NOW and what are "Verboten". The last radiation was…
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Bloody Nose & spit blood-- after 2 yrs & 2 months - Normal?
Just wondering if anyone has experienced a bloody nose and then spitting of a bit of blood so far after tx (2 yrs & 2 months out)? Kreg had this happen today and little concerned. He doesn't see his ENT for next checkup until February. Last check up was November and all appeared normal with the scope. Any input would be…
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Prayers for LadyLacey please
I recieved an email from Sharon - Ladylacy. Joe is down to 100 ponds and very tired. He is no longer able to do much and has admitted to hospice he is very weal and tired. Please keep Joe and Sharon in your prayers, especially through these holidays which make it extra hard. Debbie
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5 Years
Five years ago today I embarked on a journey that would change my life forever. It was the hardest part of my life but the most defining part to date. At 7:30 AM I slid onto a table where I remained for half a day only to awaken 14 hours later a different person. Some would frown at some of the losses I suffered that day…
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Erbitux question
I am curious if this is still the Erbitux messing with me. If you saw one of my prior postings, you saw the damage done to my face by the Erbitux, still trying to get it healed ( which got worse after the pic was taken ). Anyway.. on Wednesday night, my neck and upper shoulders area started buring and itching. Since then…
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Progress
I completed my 33 rounds of radiation and 7 weeks of chemotherapy on 11/21/14. I had a neck dissection prior to that. This was for tonsil cancer stage 4 that spread to my neck lymph nodes. I lost 65 lbs and was hospitalized for dehydration and this has triggered a very deep depression. I am 52. My first follow up scan was…
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blood in am phlegm
Am curious to know if anyone else has had blood in their phlegm. Seems like just the last couple days my throat is more sore(8 radiation sessions) and in sthe am I have tinges of blood. Am seeing the dr this morning and will ask him, but wanted to hear from you all.
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Nutribullet 900 tube users that blend
OK Im nearly sold on the Nutribullet blender. I've seen one, the Nutribullet 900, It says it blends smoother and has extras. just how smooth does this machine blend, how long does it last using it continuously. The recipes look nutritious. They say to add nuts and seeds do these completely blend or is there pulp. I can see…
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New painful ugly sore- panic attack
the past 3 days, I've felt like im catching a cold, throat sore aNd ear, more so on the side I did not have cancer on. I had squamous cell carcinoma, base of tongue st 3, spread to 1 lymph. Last onc appt was last week and said I was doing great. since yesterday my tongue is sore and swollen , this morning I went to take a…
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Doctors ??
Wondering what others think of this.... The Doc who put in my PEG tube has decided now he should never had it put in. Reason I had a gastric stomach.. now I have Gastroparesis due to this. He wants to take it from my stomach and have it placed in my lower intestines. Due to my stomach being full of infection and not…
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Knowing when to exhale instead of inhale is so important.
Knowing when to exhale will help with: COPD; Anxiety; being a laryngectomee; or just haveing a bad day and having some depression; and panic attacks. Some of us have forgotten when you should not hold your breath, it only makes it worse. When you are going to sit down take a breath and exhale as you are going down. The…
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Out of Surgery and Recovering
Hi. Thought I'd start a new thread instead of continuing on my older thread. i had my tonsillectomy and neck dissection on 1-31-14. I was told it went very well and the infected tonsil and some lymph nodes from my neck are being looked at for any remaining traces of cancer. Should have results back this week at some point.…
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Me again
hello everyone, i have tried to post and log in more often but it has been a challenge. Not feeling that great today
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Acupuncture...
I've seen a few people mention that they had acupuncture treatments for saliva issues. Some people got it during rads and chemo and some afterwards. I was wanting to know if this helped with the saliva issues or not. If it did help, how many sessions did it take before you started seeing results? Do you have to continue…
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So proud of my husband!
My husband completed his 4 weeks neutron radiation treatment today. He is doing surprisingly well given the circumstances. He did have a low point during the end of third week/beginning of 4th week, when he couldn't eat solid foods anymore. However, he has since discovered the convenience of Boost VHC and is able to sort…
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First signs of movement in my face: SO HAPPY!!!!!
Rather than sharing frustration or concerned, today I want to share pure happiness> When they removed my MEC from the parotid glandin September they had to remove 4 cm of my facial nerve and do a nerve graft; my face has been half paralyzed since than and they could not predict success nor timing for recovery. Yesterday…
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PEG 2 yrs, Not eating ANY foodHelp
Hi, I don't know what to do. I was on here 2 yrs ago when DH was going through chemo/Rad for BOTC HPV+. You all were very helpful. His treatments ended almost 2 yrs ago. All tests are good. but he has no saliva, bad or no taste and says food burns his throat. He is still on the tube and eats NOTHING. He is ok with it but I…
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Liquid Hope
If you are looking for nutrient dense liquid food for your PEG please take a look at this web page. It was mentioned by another person on this site. It should be listed on the Superthread if someone can do that? She also used real food in her tube. functionalformularies.com
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New here- what happens after treatment?
My brother is being treated for stage 4 tonsil cancer with mets to 3 lymph nodes. He's had chemo- citsplatin (sp?) once weekly for 6 weeks and rads 5 days weekly for 6 weeks. With the holidays he will need to do 8 more rads and the last chemo on Monday. He's done really well. Lost some weight but not too alarming compared…
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Burning Burn Tongue After Radiation Please Help
I am 4-1/2 months post chemo and radiation for tongue cancer. I had the cancer excised from the left side of my tongue 16 months ago. T1N3 The problem that I have is a burning and painful tongue. The burning feeling extends from the point of excision on the left, all the way around to the right side of my tongue along the…
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Me again
hello everyone, i have tried to post and log in more often but it has been a challenge. Not feeling that great today
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I rang that BELL !!!!!!
I rang that Bell loudly...even my hubby got to ring it for me. There were tears of joy in all our eyes. And the Doc was so proud of me as he said people who do chemo/rad have a very tough time. So Bell has rung finishing that step, now to see what the scans tell us, if it is NED. I asked my hubby if he wanted to watch one…
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Lymphoma...and trusting doctor
I am 25 years old, male. I was freaking out because I found a 1 centimetre enlarged lymph node behind my ear, its been there for about 4 months. I thought for sure it was cancer/lymphoma. My family doctor told me it was probably nothing to worry about, but would send me to a specialist because I am worried. I went to the…
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Food makes me feel sick
I'm still having problems with feeding. Every time I put anything in my stomach I get dreadful pains with gas and feel sick. I've tried ensure 2 cl, ensure plus and Osmolite. I can digest the first one on an empty stomach but 4 hours later the second one seems to staying my stomach Undigested and my stomach blows up,…
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How to make 3 years feel like 30 years
Hi everyone. Just found out that my npc cancer had mets to my bone after less than a year, so i probably have about 3 years left. Therefore, can you guys provide some suggestion on how to make 3 years feel like 30 and anyone with the same experience share their treatment for npc bone mets. Appreciate it.
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Well...it's ceiling fan time again....UPDATE
I'm kind of patting myself on the back for managing to keep away from the ceiling until Saturday, instead of getting up there 2 weeks early . Anyway....all positive thoughts and prayers are welcome. I have my scan tomorrow at 10:30.....go to the Onc's office on Thursday to get the results. p
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Week 3 + PEG today
checking in today... Husband had his Peg placed today. He's had 10 Rad since 1/30, and 1 Cisplatin. first few days were rough, mostly nausea and fatigue from the chemo. But last week he was feeling much better. Feeling good this week, and this afternoon got the PEG. It was routine, except in recovery where we waited for…
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Questions...
Hello all, I have an issue and would like some of your input or ideas. This Miss Peggy is being a real B*itch sorry for the language. But I can not keep any liquid or food at all in my stomach. I developed a ( Delayed stomach ) or Gastroparesis. I can not stand the taste of any food or drink in my mouth it is so horrible I…