Katie

denistd
denistd Member Posts: 597

Have just read a post by Katie on facebook, she needs our encouragement badly, things are too much for her at this point.

 

Comments

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    katie

    How do we contact Katie?

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    i agree Denis, she and her

    i agree Denis, she and her family have had many serious problems and she could use some caring right now.  thank you for doing this.

    dj

  • Hondo
    Hondo Member Posts: 6,636 Member
    Keeping her in prayer

     

    It is hard but sometimes all we can do is too pray asking God to give her strength to keep fighting. Let her know we love her and call on any of us for help or just to unload that is what we are here for.

    Tim

     

  • denistd
    denistd Member Posts: 597

    katie

    How do we contact Katie?

    Katie

    The only way I know is through facebook, I didn't know what to say there, they are in such a terrible period, it is really hard for her, she is always there for the rest of us but I feel helpless when I read her posts, try to post something on facebook if you have a page there.

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    Hondo said:

    Keeping her in prayer

     

    It is hard but sometimes all we can do is too pray asking God to give her strength to keep fighting. Let her know we love her and call on any of us for help or just to unload that is what we are here for.

    Tim

     

    lifting prayers

    Lifting prayers for God's grace to surround Katie and her family as they go through these difficult times.  May they feel the love and care of those here.

    Hugs, Katie!

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    facebook

    Dennis, I'm not so good at facebook.  Please let Katie know we are thinking about her.

  • katenorwood
    katenorwood Member Posts: 1,912
    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

  • wmc
    wmc Member Posts: 1,804

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    Katie so sorry to hear this.

    Don't know why any doctor would say anything like that. As far as your husband my heart goes out to you. I don't know how far it is, but hope this might help. My wife was told she has chronic kidney failure 20m years ago. her numbers keep going up some then down and she is one number from stage 4 but she walks every day [ also has fibrositis and was told she should be in a wheel chair 25 years ago] and that seems to help keep her numbers up. Her doctors can't explain why she is doing this good but she is.  She even rides a bicycle up to five miles a day and on bad days she still does two miles. I don't know if it is fath or just to stubborn or just luck but what ever it is I hope it keeps up. She took care of me after I had my surgery. Never give up hope. You will always be in my prayers, and I know for a fact mine have been answered.

    Remember everyone is here for you and give any support we can. we're open 24/7

    Bill

  • Grandmax4
    Grandmax4 Member Posts: 723

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    katie-bug

    you've been there every step of the way for some of us, and we're here for you. You don't even know how your kindness and advice..has lead me to live a better life. Hoping and praying things will ease up for you and yours...Happy Spring, keep those so-called specialist on their toes Cool

  • MrsBD
    MrsBD Member Posts: 615 Member

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    Katie, I'm so glad you

    Katie, I'm so glad you checked in. I've been praying for your family. It's so disheartening when you have a doctor who is not that good at communicating with compassion.  Stay strong. You have much support from your friends on this site. 

    Beth 

  • tommyodavey
    tommyodavey Member Posts: 726 Member
    MrsBD said:

    Katie, I'm so glad you

    Katie, I'm so glad you checked in. I've been praying for your family. It's so disheartening when you have a doctor who is not that good at communicating with compassion.  Stay strong. You have much support from your friends on this site. 

    Beth 

    Kate

    You have always been here for me and all the rest of us through the years.  Of course it breaks our hearts to know you and yours are suffering through some bad times.

     

    All I can offer is what you've already stated.  Be positive and know inside that it will all work out one way or another.

     

    Tom

  • hwt
    hwt Member Posts: 2,328 Member

    Kate

    You have always been here for me and all the rest of us through the years.  Of course it breaks our hearts to know you and yours are suffering through some bad times.

     

    All I can offer is what you've already stated.  Be positive and know inside that it will all work out one way or another.

     

    Tom

    Kate

    Just so damn unfair. Know that you and Rollie are in my prayers. My husband was by my side every step of my journey and then suffered a stroke last October. He is currently in skilled nursing. I understand what you ar going through and know how difficult it is. Sending hugs your way.

    Candi

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    give up the primary, keep your specialists

    Understand your frustration.  It seems to me our GP just reads the reports from the specialists although he does write the pain scripts for Jim.

    So much to manage.  I understand.

    Just know we are with you.

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    our dear Kate, I keep up with

    our dear Kate, I keep up with you on fb so you know you are always in my thoughts and prayers but want to reconfirm it here!  it is no wonder why you are so tired.  i wish i could give you a day off and do what needs to be done.  you are truly a kind and caring person and I pray the Lord will heal you and Rolie and make your life easier.  God bless you dear friend.

    dj

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    T & P

    Well there she is.  I wish you well Katie and many more new days and good tomorrows.

    Keeping the faith.

    Matt

  • donfoo
    donfoo Member Posts: 1,771 Member

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    fight on

    Hi Katie,

    Thanks for the update on CSN, not everyone is a FB fanboy. I disable account all the time then it seems a few ticks of the tock and the thing has be signed up again. LOL I am thinking of you and Rolie all the time and pray and hope you both find each step on more solid ground.

     

    Don

     

  • katenorwood
    katenorwood Member Posts: 1,912
    wmc said:

    Katie so sorry to hear this.

    Don't know why any doctor would say anything like that. As far as your husband my heart goes out to you. I don't know how far it is, but hope this might help. My wife was told she has chronic kidney failure 20m years ago. her numbers keep going up some then down and she is one number from stage 4 but she walks every day [ also has fibrositis and was told she should be in a wheel chair 25 years ago] and that seems to help keep her numbers up. Her doctors can't explain why she is doing this good but she is.  She even rides a bicycle up to five miles a day and on bad days she still does two miles. I don't know if it is fath or just to stubborn or just luck but what ever it is I hope it keeps up. She took care of me after I had my surgery. Never give up hope. You will always be in my prayers, and I know for a fact mine have been answered.

    Remember everyone is here for you and give any support we can. we're open 24/7

    Bill

    Bill

    My hubbies eGRF was at 6 when he started dialysis.  Anything under 15 is very bad.  Yes this number does bounce around and can for years.  (his adreneal glands - filters of the kidneys stopped working)  If I'm not mistaken his stayed at 20 for over 20 yrs.  (but this number is just a guess...depending on many factors, but one to watch)  We were expecting this, and have tried to stay informed of options along the way.  Still when it's in your face and you're in the midst of the decision making much of what you thought you knew means very little.  His endo. has been wonderful in guiding us through the muck of it all.  We didn't put him on the transplant list years ago for many reasons...most importantly quality of life issues.  I know to many this doesn't make sense.  But knowing this is a last resort, and also a life saving resort we wanted this in our back pocket to use when we landed where he's at today.  Bill much of what you and your wife are walking seems so familiar, for the most part I pray no other couples ever have to walk it.  Thank you for your kind words.  Katie      

  • Greg53
    Greg53 Member Posts: 849
    donfoo said:

    fight on

    Hi Katie,

    Thanks for the update on CSN, not everyone is a FB fanboy. I disable account all the time then it seems a few ticks of the tock and the thing has be signed up again. LOL I am thinking of you and Rolie all the time and pray and hope you both find each step on more solid ground.

     

    Don

     

    Mojo

    Katie,

    Sending positive thoughts and big-time Mojo for you and your family!

    Greg

  • jim and i
    jim and i Member Posts: 1,788 Member

    Thank you

    I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

    Katie, you are in my prayers.

    Katie, you are in my prayers. Lean on Jesus' arms, he will give you strength, even when you are unaware.

    Debbie