Katie

denistd

Have just read a post by Katie on facebook, she needs our encouragement badly, things are too much for her at this point.

 

Noellesmom

katie

How do we contact Katie?

debbiejeanne

i agree Denis, she and her

i agree Denis, she and her family have had many serious problems and she could use some caring right now.  thank you for doing this.

dj

Hondo

Keeping her in prayer

 

It is hard but sometimes all we can do is too pray asking God to give her strength to keep fighting. Let her know we love her and call on any of us for help or just to unload that is what we are here for.

Tim

 

denistd

Noellesmom said:

katie

How do we contact Katie?

Katie

The only way I know is through facebook, I didn't know what to say there, they are in such a terrible period, it is really hard for her, she is always there for the rest of us but I feel helpless when I read her posts, try to post something on facebook if you have a page there.

Noellesmom

Hondo said:

Keeping her in prayer

 

It is hard but sometimes all we can do is too pray asking God to give her strength to keep fighting. Let her know we love her and call on any of us for help or just to unload that is what we are here for.

Tim

 

lifting prayers

Lifting prayers for God's grace to surround Katie and her family as they go through these difficult times.  May they feel the love and care of those here.

Hugs, Katie!

Noellesmom

facebook

Dennis, I'm not so good at facebook.  Please let Katie know we are thinking about her.

katenorwood

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

wmc

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

Katie so sorry to hear this.

Don't know why any doctor would say anything like that. As far as your husband my heart goes out to you. I don't know how far it is, but hope this might help. My wife was told she has chronic kidney failure 20m years ago. her numbers keep going up some then down and she is one number from stage 4 but she walks every day [ also has fibrositis and was told she should be in a wheel chair 25 years ago] and that seems to help keep her numbers up. Her doctors can't explain why she is doing this good but she is.  She even rides a bicycle up to five miles a day and on bad days she still does two miles. I don't know if it is fath or just to stubborn or just luck but what ever it is I hope it keeps up. She took care of me after I had my surgery. Never give up hope. You will always be in my prayers, and I know for a fact mine have been answered.

Remember everyone is here for you and give any support we can. we're open 24/7

Bill

Grandmax4

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

katie-bug

you've been there every step of the way for some of us, and we're here for you. You don't even know how your kindness and advice..has lead me to live a better life. Hoping and praying things will ease up for you and yours...Happy Spring, keep those so-called specialist on their toes 

MrsBD

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

Katie, I'm so glad you

Katie, I'm so glad you checked in. I've been praying for your family. It's so disheartening when you have a doctor who is not that good at communicating with compassion.  Stay strong. You have much support from your friends on this site. 

Beth 

tommyodavey

MrsBD said:

Katie, I'm so glad you

Katie, I'm so glad you checked in. I've been praying for your family. It's so disheartening when you have a doctor who is not that good at communicating with compassion.  Stay strong. You have much support from your friends on this site. 

Beth 

Kate

You have always been here for me and all the rest of us through the years.  Of course it breaks our hearts to know you and yours are suffering through some bad times.

 

All I can offer is what you've already stated.  Be positive and know inside that it will all work out one way or another.

 

Tom

hwt

tommyodavey said:

Kate

You have always been here for me and all the rest of us through the years.  Of course it breaks our hearts to know you and yours are suffering through some bad times.

 

All I can offer is what you've already stated.  Be positive and know inside that it will all work out one way or another.

 

Tom

Kate

Just so damn unfair. Know that you and Rollie are in my prayers. My husband was by my side every step of my journey and then suffered a stroke last October. He is currently in skilled nursing. I understand what you ar going through and know how difficult it is. Sending hugs your way.

Candi

Noellesmom

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

give up the primary, keep your specialists

Understand your frustration.  It seems to me our GP just reads the reports from the specialists although he does write the pain scripts for Jim.

So much to manage.  I understand.

Just know we are with you.

debbiejeanne

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

our dear Kate, I keep up with

our dear Kate, I keep up with you on fb so you know you are always in my thoughts and prayers but want to reconfirm it here!  it is no wonder why you are so tired.  i wish i could give you a day off and do what needs to be done.  you are truly a kind and caring person and I pray the Lord will heal you and Rolie and make your life easier.  God bless you dear friend.

dj

CivilMatt

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

T & P

Well there she is.  I wish you well Katie and many more new days and good tomorrows.

Keeping the faith.

Matt

donfoo

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

fight on

Hi Katie,

Thanks for the update on CSN, not everyone is a FB fanboy. I disable account all the time then it seems a few ticks of the tock and the thing has be signed up again. LOL I am thinking of you and Rolie all the time and pray and hope you both find each step on more solid ground.

 

Don

 

katenorwood

wmc said:

Katie so sorry to hear this.

Don't know why any doctor would say anything like that. As far as your husband my heart goes out to you. I don't know how far it is, but hope this might help. My wife was told she has chronic kidney failure 20m years ago. her numbers keep going up some then down and she is one number from stage 4 but she walks every day [ also has fibrositis and was told she should be in a wheel chair 25 years ago] and that seems to help keep her numbers up. Her doctors can't explain why she is doing this good but she is.  She even rides a bicycle up to five miles a day and on bad days she still does two miles. I don't know if it is fath or just to stubborn or just luck but what ever it is I hope it keeps up. She took care of me after I had my surgery. Never give up hope. You will always be in my prayers, and I know for a fact mine have been answered.

Remember everyone is here for you and give any support we can. we're open 24/7

Bill

Bill

My hubbies eGRF was at 6 when he started dialysis.  Anything under 15 is very bad.  Yes this number does bounce around and can for years.  (his adreneal glands - filters of the kidneys stopped working)  If I'm not mistaken his stayed at 20 for over 20 yrs.  (but this number is just a guess...depending on many factors, but one to watch)  We were expecting this, and have tried to stay informed of options along the way.  Still when it's in your face and you're in the midst of the decision making much of what you thought you knew means very little.  His endo. has been wonderful in guiding us through the muck of it all.  We didn't put him on the transplant list years ago for many reasons...most importantly quality of life issues.  I know to many this doesn't make sense.  But knowing this is a last resort, and also a life saving resort we wanted this in our back pocket to use when we landed where he's at today.  Bill much of what you and your wife are walking seems so familiar, for the most part I pray no other couples ever have to walk it.  Thank you for your kind words.  Katie      

Greg53

donfoo said:

fight on

Hi Katie,

Thanks for the update on CSN, not everyone is a FB fanboy. I disable account all the time then it seems a few ticks of the tock and the thing has be signed up again. LOL I am thinking of you and Rolie all the time and pray and hope you both find each step on more solid ground.

 

Don

 

Mojo

Katie,

Sending positive thoughts and big-time Mojo for you and your family!

Greg

jim and i

katenorwood said:

Thank you

I'm so sorry I don't get on site much, but I think of you all every single day.  Denis was kind enough to remind me of all the support I have here.  I was in to discuss things w/our primary today.  Hmmm, wasn't impressed.  He asked us if we thought we were racing to the grave ?  WTH ?  Seriously, I thought you fool.  I'm having issue with swelling in the paritoid gland, could be many different things.  But of course the first thing that comes to mind is what....yeap the dreaded C-word.  Was told to come back in when the swelling is worse...oh for goodness sakes.  I'll be calling my onc. in the morning.  I thought seriously of dropping all of my specialists, because of my husbands health conditions right now.  (kidney failure)  After this wonderful, insightful appointment today I'm seriously reconsidering that stupid idea.  Life has been very busy, many appointments and meds to keep track of for my Rolie.  Yes, I do feel overwhelmed, stressed and very worn down.  But tomorrow is a new day.  As for all of us, we never ever know what tomorrow will bring.  But I do remember what many of you taught me....have faith and continue to BELIEVE.  Thank you all for your wonderful support during this trying time.  My thoughts and prayers continue for you all.  Hugs sent !  Katie 

Katie, you are in my prayers.

Katie, you are in my prayers. Lean on Jesus' arms, he will give you strength, even when you are unaware.

Debbie