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Hi Y'all
Hi to everyone young and old, I just wanted to let you know I'm still alive and doing extremely well, Dx 2009 Right tonsil cancer, 3 chemo cisplatin and 35 rads. All my tastebuds have now returned, chocolate was the last one to get and saliva is about 70%, I chew sugar free gum everyday I think this helped my sweet buds…
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happy
I'm happy to say I am going from strength to strength since having my blocked bowel sorted. I have been working in the house sorting out cupboards, getting rid of clothes that are too big for me now. Taken about 10 bags of books bits and clothes to cancer charity shop. Today I've been clearing out the shed and back of shed…
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Happy Fathers Day
Happy Father's Day to all the dads in here! Hope you feel the love and support of your family today. praying for healing and good health for all of you today.
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NED!
My husband's had his first PET scan on the 2cnd of this month. NED!!! We were so happy and relieved. The rad onc says that it's the only one he'll have. He said that he'll go in every 3 months for a scope for 2 years, and then every 6 months from 3-5 years. As happy as this news was, the side effects from everything are…
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1 yr still fighting
Hello Hello, it has been awhile since last posting. Must admit the last year is one I would rather not remember. As you see I may look a bit different in the pic. It is funny how bad one can feel yet everyone around you tells you how good u look. I guess my new catagory is survivor at least so far. The after effects of…
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Oregano Oil
Hi Guys , I know I don't post much anymore but I still come here often to see how everyone is doing and see if there is anything I can add to help some of the new comers . I am feeling great just only bothered with dry mouth and throat and not much taste . Still having to fight to not lose anymore weight . My question is :…
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2 year cancer-versary today!
Two years ago today, I finished my treatment and was deemed Cancer free. Two years! I can't believe it has been that long, but sometimes it feels like just yesterday. I owe each of you a huge THANK YOU for the encouragement, love and support shown to me when I was at my lowest points. You all hold a very special place in…
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Chemo Question
Hello all, I am curious about what my Doctor said. Just wanting your opinions on this. I asked him how many chemo treatments I would be having with this new cancer they discovered and he got quiet and then said * When it stops working* but you may need breaks or we may have to try something new later on if it does quit…
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Mucus and Phlem
I have had 4 weeks of radiation and Erbitux so far. The past few days I've been drowning in mucus and phlem. I tried to call the Dr this weekend, no reply. Does anyone now what is going on? Does anyone know any tricks? I was up all night back and forth to the bathroom trying to clear my throught. I feel like I am literaly…
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Wondering about luv4lacrosse...update - RIP Mike
Has anyone had contact with or know how Mike "luv4lacrosse" is doing? His last post - I believe in February - was not as upbeat as I would have hoped. His journey has been very similar to that of my late husband's and I have always been so happy that he has been successfully winning the battles with this damned beast!…
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This is good news to hear...
...and short to read. p http://news.yahoo.com/merck-immunotherapy-appears-effective-head-neck-cancer-study-180653301--finance.html?soc_src=mediacontentsharebuttons
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The good, the bad, the ugly!
I am not sure if this is the bad or the ugly. I have been on palliative chemo since December. March 31st PET didn't show any uptake. Doctor wanted to stop chemo, heck no, it's working. I continued chemo (taxol), had another PET scan Thursday, results yesterday. Glow shows up (all I can think of is an old song, glow worm)!…
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Added A New Dance Partner
Greetngs everyone. I saw my ENT today for the periodic exam. She did the usual poke, prod and scoping procedures. When she was done she told me everything looked great and handed me a collar pin. The pin marks the five year point from the end of treatment. Then she told me that we could now view the cancer as cured. Now…
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New picture
i just changed my picture to show how well I have recovered from the head and neck and small bowel cancer. I have gained a stone in weight in 5 weeks, was 7 St 12oz now I'm almost 9 st. I've been on 2400 calories in 24 hours. Shows things work when you get the correct treatment. for months I blamed my formulas for making…
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NED!!!
I haven't been on here for a while but wanted to check in and share my good news. 3 years ago this week I started my treatment for my cancer. 35 radiation and 3 rounds of Cisplatin. Today I got the results from my Cat Scan that I had done yesterday and it was all clear. NED. Saw the radiation oncologist and medical…
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Recovering and misunderstood
10 months out from chemo and radiation. On the outside everything looks good, but inside things are a mess. I find that friends, family, my therapist all expect more out of me, they just dont get it. Having trouble finding a good primary care physician and dentist. I am alittle down right now.
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Mom sailing along no Valium
Wanted to let you know those prayers are working. Mom now gets he Rads without any meds. She is tired all the time but the mask anxiety is gone. She even allowed a Hospice nurse to come and explain Hospice care to her. Previously she didn't even want that name mentioned. She was under the belief that they gave you enough…
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5 years out
Jim is now five years out from his diagnosis of advanced inoperable hypopharyngeal and base of tongue cancers with lymph node involvement. We want everyone to know that although it was a tough fight, it is a survivable. If you are facing cancer just know you can come out on the other side. Thanks to all for words of wisdom…
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My husband is at peace now
Sadly, my husband, my heart, passed away. I loved him so much and I am heartbroken. I find comfort in knowing he is at pesce but I miss him so much. http://www.legacy.com/obituaries/stltoday/obituary.aspx?n=harry-w-taylor-bud&pid=174882457&fhid=5885
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eating problem...Help!
First let Me say I have finished My radiation and chemo treatments 4 weeks ago....My CAT scan has come back clean and now waiting till August to take My PET scan... I do have a problem....I have a feeding tube and they wont remove it till I take in 80% My calories by mouth...right now I am doing 100% of My intake by My…
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I hate to ask, but...
I need some prayers. I am sick and feeling awful. I know there are much worse issues on this board, but I need a little something. I started with a bit of a clogged ear Sunday. I cannot hear anything out of my ear now, and it hurts so bad. Coughing up crap, yadda yadda yadda. Went to the doc today and got antibiotics and…
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Recurrent NPC neck/jaw/tongue problems
So a brief overview of my story is that i've been battling with NPC since 2011. I was diagnosed when I was 20, and have been fighting it ever since. I have periods of remission, and then recurrences. I am in my second clinical trial, and have been through about 4 different types of chemo and many radiation sessions. My…
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Carboplatin and Taxol w or w/out Erbitux
Hello everyone. It's great to have all of you to learn from and get inspired by. So I was diagnosed with NPC end of 2014 and finished treatment Dec 31 2014 with radiotherapy and cisplatin. Unfortunately I had a I biopsy done last Friday due to a liver lesion. I was told likely mets. I may have bone mets as well but not…
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As promised, an update from the MDA visit
I went to MDA today and met with Dr. Blumenshein. For those who don't know who he is, he's the head of the Head and Neck Oncology Department at MDA. Quite an impressive guy. At any rate, he spent a great deal of time with me and even went off to call my Doc here in Dallas to consult. The end result is while he does have a…
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Parotid tumor--pity party/venting, sorry.
I give up. I have had a lump under my ear for at least 28 years which no one has ever been impressed by. Was told by my dentist is was probably scar tissue after my wisdom tooth on that side was removed. It has not changed or bothered me. I was diagnosed with anal cancer stage 3b in 03/14 and that is in remission, for now…
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Head & Neck Goes To Lungs ,Please Help
I am a survivor of Head & Neck Cancer (Squamous Cell Carcinoma ) but although i still have a battle on many fronts my Cancer has not returned . unfortunately my Brother inlaw was diagnosed with the same cancer and underwent chemo therapy/ Radiation treatments and although that seemed to go well he later ended up with a…
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From hope to despair, Erbitux
I have HPV p16 positive tonsilar cancer with 2 positives nodes. I am 3 weeks into radiation, minor sore throat. Ebitux got delayed 1 week due to insurance. Erbitux was my Dr's second choice. He wanted cisplatin. I was not willing to take the risks of cisplatin. In the two weeks starting Erbitux I have gone from hope to…
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Is anyone still out there ? - NPC
Come on, between us, we can find a way to eliminate or at least counter these side effects.
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post NPC radiation and chemo treatment
I am a 56 asian male and was diagnosed with stage 3 NPC. I finished 35 times of IMRT radiation and 4 times concurrent chemo with rad 2 weeks ago. I was treated in Kuala Lumpur, Malaysia. South East Asia countries oncologists are more familiar with NPC. I am able to eat soft food and fruits now but having lots of mucous…
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RIG tube
Im gonna be highly dependent on my rig for a while, just wondering if anyone has any ideas of the types of stuff i can put through the tube. I dont think 2000 calories will be enough for me