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This is good news to hear...
...and short to read. p http://news.yahoo.com/merck-immunotherapy-appears-effective-head-neck-cancer-study-180653301--finance.html?soc_src=mediacontentsharebuttons
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The good, the bad, the ugly!
I am not sure if this is the bad or the ugly. I have been on palliative chemo since December. March 31st PET didn't show any uptake. Doctor wanted to stop chemo, heck no, it's working. I continued chemo (taxol), had another PET scan Thursday, results yesterday. Glow shows up (all I can think of is an old song, glow worm)!…
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Added A New Dance Partner
Greetngs everyone. I saw my ENT today for the periodic exam. She did the usual poke, prod and scoping procedures. When she was done she told me everything looked great and handed me a collar pin. The pin marks the five year point from the end of treatment. Then she told me that we could now view the cancer as cured. Now…
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New picture
i just changed my picture to show how well I have recovered from the head and neck and small bowel cancer. I have gained a stone in weight in 5 weeks, was 7 St 12oz now I'm almost 9 st. I've been on 2400 calories in 24 hours. Shows things work when you get the correct treatment. for months I blamed my formulas for making…
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NED!!!
I haven't been on here for a while but wanted to check in and share my good news. 3 years ago this week I started my treatment for my cancer. 35 radiation and 3 rounds of Cisplatin. Today I got the results from my Cat Scan that I had done yesterday and it was all clear. NED. Saw the radiation oncologist and medical…
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Recovering and misunderstood
10 months out from chemo and radiation. On the outside everything looks good, but inside things are a mess. I find that friends, family, my therapist all expect more out of me, they just dont get it. Having trouble finding a good primary care physician and dentist. I am alittle down right now.
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Mom sailing along no Valium
Wanted to let you know those prayers are working. Mom now gets he Rads without any meds. She is tired all the time but the mask anxiety is gone. She even allowed a Hospice nurse to come and explain Hospice care to her. Previously she didn't even want that name mentioned. She was under the belief that they gave you enough…
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5 years out
Jim is now five years out from his diagnosis of advanced inoperable hypopharyngeal and base of tongue cancers with lymph node involvement. We want everyone to know that although it was a tough fight, it is a survivable. If you are facing cancer just know you can come out on the other side. Thanks to all for words of wisdom…
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My husband is at peace now
Sadly, my husband, my heart, passed away. I loved him so much and I am heartbroken. I find comfort in knowing he is at pesce but I miss him so much. http://www.legacy.com/obituaries/stltoday/obituary.aspx?n=harry-w-taylor-bud&pid=174882457&fhid=5885
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eating problem...Help!
First let Me say I have finished My radiation and chemo treatments 4 weeks ago....My CAT scan has come back clean and now waiting till August to take My PET scan... I do have a problem....I have a feeding tube and they wont remove it till I take in 80% My calories by mouth...right now I am doing 100% of My intake by My…
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I hate to ask, but...
I need some prayers. I am sick and feeling awful. I know there are much worse issues on this board, but I need a little something. I started with a bit of a clogged ear Sunday. I cannot hear anything out of my ear now, and it hurts so bad. Coughing up crap, yadda yadda yadda. Went to the doc today and got antibiotics and…
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Recurrent NPC neck/jaw/tongue problems
So a brief overview of my story is that i've been battling with NPC since 2011. I was diagnosed when I was 20, and have been fighting it ever since. I have periods of remission, and then recurrences. I am in my second clinical trial, and have been through about 4 different types of chemo and many radiation sessions. My…
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Carboplatin and Taxol w or w/out Erbitux
Hello everyone. It's great to have all of you to learn from and get inspired by. So I was diagnosed with NPC end of 2014 and finished treatment Dec 31 2014 with radiotherapy and cisplatin. Unfortunately I had a I biopsy done last Friday due to a liver lesion. I was told likely mets. I may have bone mets as well but not…
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As promised, an update from the MDA visit
I went to MDA today and met with Dr. Blumenshein. For those who don't know who he is, he's the head of the Head and Neck Oncology Department at MDA. Quite an impressive guy. At any rate, he spent a great deal of time with me and even went off to call my Doc here in Dallas to consult. The end result is while he does have a…
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Parotid tumor--pity party/venting, sorry.
I give up. I have had a lump under my ear for at least 28 years which no one has ever been impressed by. Was told by my dentist is was probably scar tissue after my wisdom tooth on that side was removed. It has not changed or bothered me. I was diagnosed with anal cancer stage 3b in 03/14 and that is in remission, for now…
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Head & Neck Goes To Lungs ,Please Help
I am a survivor of Head & Neck Cancer (Squamous Cell Carcinoma ) but although i still have a battle on many fronts my Cancer has not returned . unfortunately my Brother inlaw was diagnosed with the same cancer and underwent chemo therapy/ Radiation treatments and although that seemed to go well he later ended up with a…
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From hope to despair, Erbitux
I have HPV p16 positive tonsilar cancer with 2 positives nodes. I am 3 weeks into radiation, minor sore throat. Ebitux got delayed 1 week due to insurance. Erbitux was my Dr's second choice. He wanted cisplatin. I was not willing to take the risks of cisplatin. In the two weeks starting Erbitux I have gone from hope to…
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Is anyone still out there ? - NPC
Come on, between us, we can find a way to eliminate or at least counter these side effects.
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post NPC radiation and chemo treatment
I am a 56 asian male and was diagnosed with stage 3 NPC. I finished 35 times of IMRT radiation and 4 times concurrent chemo with rad 2 weeks ago. I was treated in Kuala Lumpur, Malaysia. South East Asia countries oncologists are more familiar with NPC. I am able to eat soft food and fruits now but having lots of mucous…
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RIG tube
Im gonna be highly dependent on my rig for a while, just wondering if anyone has any ideas of the types of stuff i can put through the tube. I dont think 2000 calories will be enough for me
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Life after Cancer treatment
Hi everyone. I appreciate all the welcome notes from members. I haven't been on in a while because I got aspiration pneumonia again. If it happens again I get a J tube and won't be able to eat. I'm doing all sorts of throat exercises, thickening my liquids (yuk), and tucking my chin when swallowing. My swallowing…
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Erbitux rash
I had my first loading dose of Erbitux last tuesday, by saturday morning I was covered including my scalp in the acne type rash. So much on my face seems like I can't even move it. My regimend is going to be 35 radiation treatments with concurrent Erbitux. Personaly, to me, Erbitux is cutaneous toxic. Almost not worth it.…
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Base of tongue Cancer
Hi I was found to have base of tongue cancer last December 2002 and in neck glands had 37 Radiation and 5 cemo treatements last on Feb 5th 2003 have peg tube tube fitted as in end could not eat or drink was very hard have been told Tumer gone am still going to hospitat each month getting MRI in one week 22nd July I still…
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Full recovery and beyond?
hello everyone. I was wondering if anyone here or know of anyone who has fully recovered and healed from cancer after treatment? Able to return to same or better physical health compared to pre-cancer. Or any articles or studies out there that you can share. We all need a little inspiration to know that we can achieve more…
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Nausea side effect
My husband got his first round of cisplatin yesterday. He's nauseated and fatigue.. didn't feel like eating today.. how long is this fatigue and nausea usually last ? Do you have tricks on food intake? Thanks Kathy
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New with the DX. Cisplatin VS Erbitux
I was missdiagnosed back in November with Chronic tonsillitis. Asked the Dr at the time could this be cancer? The response was a confident no. I ran with that. No followup. About a month ago I felt a new lump on my neck. Quickly went to ENT. BX Right tonsilar squamous cell cancer with lymph node cystic mets. I am told it…
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nasopharyngeal cancer treatment complications
Hi, My dad had developed and been treated for nasopharyngeal cancer in 1994 which resurfaced in 1997 and has been successfully treated with chemotherapy and radiation therapy. From the treatments that he had received he developed some tissue scarring in the nose which he has to clean everyday. It seems to be a mixture of…
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Post treatment pain
Hello everyone, I was diagnosed with cancer on my tonsil last December and I finished my treatment nearly 3 months ago (33 radiation and 3 Cisplatin chemo). I was doing just fine until I saw my ENT last week who thought my pains in the tongue, jaw and ear were a bit "worrisome". Needless to say that it was the only thing I…
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Mom's treatment
My mom who is extremely claustrophobic made it through the making of the mask, measurements and the first treatment with two valium each time. She will try one valium tomorrow. Thanks all you prayer warriors, your prayers worked. Debbie
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Tongue cancer with neck dissection but no other treatment
I was wondering if anyone else out there had just a partial glossectomy (about 1/4 of my tongue) and a selective neck dissection. I had a bump removed from my tongue in March, which in spite of biopsies to the contrary, turned out to be cancerous. Then I had to find a pain medication that worked (most narcotics do not work…