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Any ideas on What to Eat?
I'm at the end of week three post treatment. I've been living on milk shakes exclusively for a several weeks now. But I'm starting to see a small but noticeable reduction in the pain in my throat and have started experimenting to see what I can eat. So, in the last couple of days, I find I can eat scrambled eggs, Gerber…
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Air travel post op
Has anyone had to travel back home after their H & N surgery? We are due to return home exactly 14 days post op. I asked my plastic surgeon if flying was okay and he said yes. A nurse friend however thinks the pressure might be a problem for me. They removed 3 test, did gum flap, some bone was removed also, and there is…
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Showtime!
Well, Tuesday is the big day. Danger Will Robinson! The robot goes in for a whack at my left tongue base and lingual tonsil. Also, there will be a partial neck resection on the left side. I am sorry that I have been absent for a while. I have been withdrawing from most everything these days. Richard
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Hello, we are back.
Good Morning, Life for us is taking a wild ride again. My husband was diagnosed with Stage IV Tonsil cancer in 2012, we fought like crazy and thought we had it beat. 3.5 years later we are back. It's small, it's in a bad place to reach, but reachable by surgery, the rest of this story is yet to be told. Other than surgery…
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mucoepidermoid carcinoma
I was recently diagnosed with mucoepidermoid carcinoma of my Parotid Gland. I need to express that tests (MRI with contrast, physical exams, MRI, CT scans) were done and the results of this being cancer were not determined until I had my surgery in Feb 2011. I am at the end of a 7 week radiation treatment and the doctors…
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relapse?
I had the dissection of left adenoids couple months ago and things been going well. Gaining weight and strength. Able to eat adequately, but... suddenly my whole neck is swelling up all around. Not huge swelling but like a single rope of swelling all under my chin from side to side with no pain, but the numbness that came…
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Tongue changes
For those of you who have had tongue surgery, have any of you noticed what appears to be "mold" in the creases of the altered tongue. I think my tongue was folded at some point and there is a crease and it's sort of black. Just wondering about this.
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Unbearable neck cramps
I'm nearly at 4 years in remission but lately I've been having muscle cramps in my neck that will stop any activity that I'm doing. I've had them pretty much all along this ugly ride after radiation but these new ones REALLY suck. I thought the tongue spasms were bad but I could still work while that was going on. It just…
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scc nasal cavity cancer
Hi, I'm new to this site and I've actually had a lot of difficulty finding other people with this disease. Last year, in early spring, my husband developed a bizarre lump on the side of his nose after months of irritation in his nose. He put off going to the doctor until I successfully nagged him into it. At first, it was…
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Dental healing after tongue cancer but no radiation or chemo
I had tongue cancer last March and had 1/4 of my tongue and lymph nodes on the right side of my neck removed. In May, I had two front teeth on the left pulled. Then, in October of 2015, I had the remaining 8 teeth pulled on top. My gums swelled up like crazy on the right side, but not the left, and took nearly two months…
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6 months out
Hello everyone! Hubby is now 6 months out from chemoradiation. When he first started treatments I had asked for some general guideilnes on recovery and his RO said that at 6 months he would be at 90% back to normal. But as many of you have experienced - and as I have feared - this is far from the truth. Eating is still…
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Radiation treatments and thyroid
Ever since I finised my rad treatments back in Sept. I have had issues with my hands and feet getting very cold. It's the worst in the morning but goes on all day if I'm sitting in front of the computer. I thought at first that it was the way may arm was laying on the desk while using the mouse but I dont think that's it.I…
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Searching For Answers
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1 Year Scan
Just a quick request for prayer and good thoughts if you are so inclined. I go for my 1 year scan tomorrow (31st). Sure I am a bit anxious but whatever will be will be. Feel pretty good other than taster, lack of saliva and a bit of Lymphedema. Overall no complaints. I will update you after appointment. (Check in at 8:30am…
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Swallowing Exercises
I posted this for Susan but it's good info for all. Given to me by my Speech/Language Pathologist at Johns Hopkins. If it's not [art of the Superthread, perhaos it can be added. "T" Swallowing Exercises Falsetto Phonation or “Sirening” Make a siren noise from a low pitch to a high pitch. Use a “ng” sound. Hold the pitch…
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Not doing well
Psychologically that is. I don't know what's going on with me. I should be happy that they got all the cancer. I don't feel happy. I feel scared. After two weeks of being home, I smoked a few cigarettes. That makes me feel even worse. I was in the middle of making plans to move to another state when all of this happened.…
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PEG tube removal
My husband had his PEG tube removed last Thursday. The oncologist removed it in her office after calling the surgeon who put the tube in for permission. She just pulled it out. Freaky, right? Both the oncologist and the surgeon said that it would take a few weeks for the "hole" (for lack of a better word) to heal. Right…
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Finishing up radiation, when will side effects get better
Hey, I'm new. Back story, I have (had) intermediate grade Mucoepidermoid Carcenoma of the submanibular gland. I had a lump in my neck for forever that they couldn't figure out what it was on biopsy. ENT decided to remove the cyst or whatever it was. Had the tumor removed back in October, had to be sent to Mayo to get…
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Help please! Brother with tongue cancer
Hello! As with most stories, mine is long- this is part venting (I'm in what I call the 'verbal diarrhea' stage of a crisis) part plea for help about what I need to do to help my brother who has advanced tongue cancer : I am 50 years old and have not seen my mother since 1985 (she was an alcoholic, addict and drug dealer…
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Tony Talmich
I don't know if any of you know about a laryngectomee named Tony Talmich. Tony is a friend of mine on Facebook. He is the drummer in a very good band, the Jersey Boys I believe. The fantastic thing about Tony is that he has learned how to continue singing even though he is a laryngectomee. If you go to youtube and punch in…
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weather and
Does the changing in weather effect anybodys tongue or mouth who had BOT cancer,back in the fall and now in the spring ,i get this felling on the base of my tongue where i had the cancer,Not really pain but a felling,kind of weird feeling
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Surgery is done
Five hours. Came through ok but now I can't swallow well, feels like my tongue is shorter. It's swollen for sure. That's the only thing holding me back from leaving the hospital - my ability to swallow and eat. I've had a little juice and water with a spoon. Please tell me this gets better.
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Food
I've been trying to experiment with what I can manage. It's so discouraging sometimes since I considered myself a foodie before this happened. I love to cook and have always avoided the processed and pre-packaged stuff. Now I can manage a few things that I couldn't before. Cottage cheese with diced (very tiny) melon.…
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Lymph Nodes
Well, they all tested negative.
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Catching a break
Does not seem like my body plans to let me grt a break anytime soon! from pneumonia January, to doctors cancelling surgery date (they couldn't coordinate), one having to be out of town etc, I'm sick again! wondering if it's related to the cancer?? Same pneumonia symptoms,though we caught it early, but I'm on Mucinex,…
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Home from hospital
Came home last night. Tongue is still swollen and misshapen. It feels like it's been burned. It tingles sometimes and it is extremely uncomfortable but I would say the pain is high. I find if I've been talking too much or after I try and "eat" anything, there is discomfort. It is every strange. Saliva pools sometimes and I…
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Post Op Blues
I have to say, I'm very depressed. Hungry all the time, tongue feels like a gnarled piece of flesh. Feels like I have a plastic ear. Can only get so much down and patience is running very, very thin. The visit to remove the drain wasn't much help. How long to get the results from the lymph nodes? Are they gonna make me…
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Side effect of radiotherapy of neck
My dad was diagnosed with T1b Glottic in Mar'15. He under went 33 sessions radiotherapy and was NED till Nov'15, next check up is due in Feb'16. Recently we had gone for his routine heart check up as his bP was high whereas he was having low BP before. His ECG was fine but there was some issue in ECHO so he was recommended…
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swallowing after partial larengectomy
Hi I am new here and writing for my husband who is 62 and need help/info regarding relearning to swallow. My husband had surgery November 24 and had epiglotis removed, reconstruction and neck disection. Dr says went well and all looks good. Had trach and feeding tube inserted. Although the surgery went ok there were…
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update on ron
hello ron just hit 3 years on his original tonsil cancer. he did well thru all his treatments in 2013, hardly any problems. slight mought dryness , mst foods taste somewhat normal to him. gained his weight and energy back. just went for his annual check up in january, did ct of neck, neck was clear but it shouwed the top…