-
acupuncture
Just wanted to throw this out there. I am almost 6 weeks out of treatment. I was looking through the forum when I came upon MrsBD post about acupuncture during her treatment. She mentioned that she used a protocol developed by MD Anderson Cancer Center in Texas. So, I downloaded that protocol and took it to a acupunturist.…
-
advice about surgery
Hi everyone, i am new to this forum. My dad (63 years) was diagnosed with squamous cell carcinoma at the base of his tongue last September. He has never smoked or drunk alcohol in his life. He received 35 sessions of radiation and 6 chemo sessions, which ended in November 2015. CT scan in March 2016 revealed there was…
-
Concerned
Hello, I have never posted anything here before but the information I have learned from this forum has been so helpful to me and I'm very thankful and hope the best for everyone In their recovery. My name is Paul and I was diagnosed with stage 2 (T2,N0,M0) SCC on my vocal cord on 1/21/16. I have currently had 26 of a 29…
-
enlarged right tonsil & swollen lymph node that's been there for months, maybe years...neck & throat
hi, my name is stephanie. i'm 31 years old. my doc noticed a swollen lymph node on the right side of my neck. didn't worry about it and says it's normal and to just watch it if it grows. i went back a few months later for other reasons...i'm always tired and wanted to see if maybe i was low on iron or something else. well…
-
Scanextity
Hi all Here I sit on Sunday evening trying to occupy myself and not think about my next 6 month CT scan tomorrow morning , while I'm 4yrs 4 months out of treatment , I don't think the feeling of this beast coming into my life ever goes away , especially when I read of the brave warriors we've lost , the reoccurrences some…
-
One of those moments
a good moment that is. You know sometimes when something happens and you feel it was not just a coincidence? Well, that happened last Saturday when I went to book the cruise my husband and I had to cancel last summer so he could be treated for stage 4 nasopharyngeal cancer. Luckily we had purchased insurance on the trip so…
-
Soft food ideas
Well I am home recovering from neck disection one week out and bracheytherpy radiation 3 weeks out, having a hard time getting enough calories and protein down. Last year when I went though chemo, surgery and radiation I had a peg tube, this time I don't have one. I have been releying mostly on dairy for my calorie and…
-
Roller Coasters & Old adages that are true..
Good Morning all, We are back home after the long weekend in Philly. I apologize for not logging in and responding over the weekend as I had planned. I forgot my laptop! And not the best at websites on my ipad. Here's what happened around the surgery that didn't take place on Friday. Here's a timeline of what happened so…
-
Sad Announcement
My husband was diagnosed in Dec. 2015. He was determine to be a survisor and fought with all his might. Each time he got chemo, his WBC count went down the following week. He was given Nupergen shots and count rose. He finished his first session he had some kidney complications and ended up in the hospital. Treatmen…
-
Had my surgery on 28th
it was brutal. I'm still having a rough time due to insufficient pain medS. I just wanted you all to know. Still too disoriented to write much.
-
Any ideas on What to Eat?
I'm at the end of week three post treatment. I've been living on milk shakes exclusively for a several weeks now. But I'm starting to see a small but noticeable reduction in the pain in my throat and have started experimenting to see what I can eat. So, in the last couple of days, I find I can eat scrambled eggs, Gerber…
-
Air travel post op
Has anyone had to travel back home after their H & N surgery? We are due to return home exactly 14 days post op. I asked my plastic surgeon if flying was okay and he said yes. A nurse friend however thinks the pressure might be a problem for me. They removed 3 test, did gum flap, some bone was removed also, and there is…
-
Showtime!
Well, Tuesday is the big day. Danger Will Robinson! The robot goes in for a whack at my left tongue base and lingual tonsil. Also, there will be a partial neck resection on the left side. I am sorry that I have been absent for a while. I have been withdrawing from most everything these days. Richard
-
Hello, we are back.
Good Morning, Life for us is taking a wild ride again. My husband was diagnosed with Stage IV Tonsil cancer in 2012, we fought like crazy and thought we had it beat. 3.5 years later we are back. It's small, it's in a bad place to reach, but reachable by surgery, the rest of this story is yet to be told. Other than surgery…
-
mucoepidermoid carcinoma
I was recently diagnosed with mucoepidermoid carcinoma of my Parotid Gland. I need to express that tests (MRI with contrast, physical exams, MRI, CT scans) were done and the results of this being cancer were not determined until I had my surgery in Feb 2011. I am at the end of a 7 week radiation treatment and the doctors…
-
relapse?
I had the dissection of left adenoids couple months ago and things been going well. Gaining weight and strength. Able to eat adequately, but... suddenly my whole neck is swelling up all around. Not huge swelling but like a single rope of swelling all under my chin from side to side with no pain, but the numbness that came…
-
Tongue changes
For those of you who have had tongue surgery, have any of you noticed what appears to be "mold" in the creases of the altered tongue. I think my tongue was folded at some point and there is a crease and it's sort of black. Just wondering about this.
-
Unbearable neck cramps
I'm nearly at 4 years in remission but lately I've been having muscle cramps in my neck that will stop any activity that I'm doing. I've had them pretty much all along this ugly ride after radiation but these new ones REALLY suck. I thought the tongue spasms were bad but I could still work while that was going on. It just…
-
scc nasal cavity cancer
Hi, I'm new to this site and I've actually had a lot of difficulty finding other people with this disease. Last year, in early spring, my husband developed a bizarre lump on the side of his nose after months of irritation in his nose. He put off going to the doctor until I successfully nagged him into it. At first, it was…
-
Dental healing after tongue cancer but no radiation or chemo
I had tongue cancer last March and had 1/4 of my tongue and lymph nodes on the right side of my neck removed. In May, I had two front teeth on the left pulled. Then, in October of 2015, I had the remaining 8 teeth pulled on top. My gums swelled up like crazy on the right side, but not the left, and took nearly two months…
-
6 months out
Hello everyone! Hubby is now 6 months out from chemoradiation. When he first started treatments I had asked for some general guideilnes on recovery and his RO said that at 6 months he would be at 90% back to normal. But as many of you have experienced - and as I have feared - this is far from the truth. Eating is still…
-
Radiation treatments and thyroid
Ever since I finised my rad treatments back in Sept. I have had issues with my hands and feet getting very cold. It's the worst in the morning but goes on all day if I'm sitting in front of the computer. I thought at first that it was the way may arm was laying on the desk while using the mouse but I dont think that's it.I…
-
Searching For Answers
(xx)
-
1 Year Scan
Just a quick request for prayer and good thoughts if you are so inclined. I go for my 1 year scan tomorrow (31st). Sure I am a bit anxious but whatever will be will be. Feel pretty good other than taster, lack of saliva and a bit of Lymphedema. Overall no complaints. I will update you after appointment. (Check in at 8:30am…
-
Swallowing Exercises
I posted this for Susan but it's good info for all. Given to me by my Speech/Language Pathologist at Johns Hopkins. If it's not [art of the Superthread, perhaos it can be added. "T" Swallowing Exercises Falsetto Phonation or “Sirening” Make a siren noise from a low pitch to a high pitch. Use a “ng” sound. Hold the pitch…
-
Not doing well
Psychologically that is. I don't know what's going on with me. I should be happy that they got all the cancer. I don't feel happy. I feel scared. After two weeks of being home, I smoked a few cigarettes. That makes me feel even worse. I was in the middle of making plans to move to another state when all of this happened.…
-
PEG tube removal
My husband had his PEG tube removed last Thursday. The oncologist removed it in her office after calling the surgeon who put the tube in for permission. She just pulled it out. Freaky, right? Both the oncologist and the surgeon said that it would take a few weeks for the "hole" (for lack of a better word) to heal. Right…
-
Finishing up radiation, when will side effects get better
Hey, I'm new. Back story, I have (had) intermediate grade Mucoepidermoid Carcenoma of the submanibular gland. I had a lump in my neck for forever that they couldn't figure out what it was on biopsy. ENT decided to remove the cyst or whatever it was. Had the tumor removed back in October, had to be sent to Mayo to get…
-
Help please! Brother with tongue cancer
Hello! As with most stories, mine is long- this is part venting (I'm in what I call the 'verbal diarrhea' stage of a crisis) part plea for help about what I need to do to help my brother who has advanced tongue cancer : I am 50 years old and have not seen my mother since 1985 (she was an alcoholic, addict and drug dealer…
-
Tony Talmich
I don't know if any of you know about a laryngectomee named Tony Talmich. Tony is a friend of mine on Facebook. He is the drummer in a very good band, the Jersey Boys I believe. The fantastic thing about Tony is that he has learned how to continue singing even though he is a laryngectomee. If you go to youtube and punch in…