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Head and Neck Cancer

Nasophranx Cancer S2/S3
hi everyone! I'm not a cancer survivor yet, but I have high hopes of being one. I'm a male, 32 years old, and my biospy results just confirmed I've a squamious cell nasophranx carcinoma. Currently Stage 2, but I sense hesistancy in the doctor until the PET scan is revealed, hopefully not escalating to stage 3. I've read…
NED Update
Hi, If anyone remembers I had a glowing subpectoral lymph node at my three months scan. Not sure if I posted here but 6 weeks later (two weeks ago) my CT was negative. I really am NED :) I elected to keep my port until my 6 month scan is negative. I guess its kind of a safety thing for me. Still having dry mouth of course.…
Going, going. GONE!
In the vein of "kids, don't try this at home..." my husband finally removed his PEG tube - himself. Note: he is a doctor and kept telling me he could do it and it would be easy. I know KDot (Karen), who is a nurse, also removed hers. Are you guys pioneer men and women or what?! In any case I am thrilled that he finally has…
Freaking Out
Ok, I had a squamous cell tumor removed from my tongue in 2001 and neck dissection, radiation; and a recurrence on neck (other side, tumor removed, neck dissection, chemo and radiation) in 2003. This was supposed to be in my past. Five months ago my dentist identified a new lesion, removed New Years Eve, brachy radiation…
88 Year Old Mother Just Diagnosed with Salivary Gland Cancer
Hi everyone. My mother had a FNA last week and was told the tumor in her salivary gland was malignant. One lymph node as well. We are awaiting the complete strain results which should come in today. We are probably going to make an appointment with Dr. Marshall Ponser at Mt. Sinai in New York. Does anyone hae a doctor at…
Normal?
Someone else just posted about tongue discomfort/pain they are having post surgery. I feel the same way but don't know what "normal" is for the situation. My tongue is driving me absolutely nuts. It's misshapen, irritated and sometimes there is a little "pulling" feeling when I move it a certain way. After surgery, there…
Adding pictures HELP
Could someone please help a tech-deficient individual to post a Profile Picture step-by-step. Need to explain this to me like "Profile Pictures for Dummies". Thank you
Brachytherapy For Base/Posterior of Tongue
Hi! I have just been dx with a base of tongue tumor (posterior in oropharynx:not oral tongue) and was offered the choice of IMRT with "mild chemo" or HDR brachytherapy and I was just wondering if anyone on CSN have received this treatment and how it has impacted your swallowing? This will be my second time going thro…
New to Forum but can't seem to get my messages posted. Any help?
Lets see if this gets posted
Burning Sore Mouth & Tongue Now HBO
its been quite some time since I last posted. I'm back with an update and hoping to find others that can relate to my experience. First, and most importantly, I am now 21 month NED from tongue cancer. What a journey and I'd like to thank everyone for their incredible support. I'm feeling much better, but I continue to have…
I'm So Lost
I don't know if this has anything to do with my tongue cancer. Maybe it does some because at the time I was diagnosed, I was planning a big change in my life. I was planning on moving out of state without my husband. I did make the move finally a week ago tomorrow and I'm finding myself scared, confused and asking myself…
3 years minus 1 month
June 4, 2013 - the last day of treatment. It's been rare days during the past three years when concern about recurrence flitted and danced across the conscious - not all that surprising when one possesses ultimate confidence in the team of doctors, their collective, boundless expertise, and the best treatment plan…
Decaying Teeth and Treatment Options - Insurance Paid 80% Medical
Good Afternoon All..I'm 34 years old now, I was 24 at time of diagnosis... I'm new here, so I'll give a back story...April 2005, I was told I had squamous cell carcinoma non melanoma, it was located in my throat, it was a golf ball size tumor on the right side, the doc went in removed it, sent me home, and a few days later…
Extra cans of Osmolite 1.5
My hubby has long since been off the tube, but we have some leftover Osmolite 1.5 for anyone who is interested. We have 12 cans that expire July 2016 and 24 cans that expire Sept 2016. You can have it no charge, just pay the shipping. I'm not sure how that would work, though. Feel free to message me.
Esthesioneuroblastoma
Hello everybody, I am new to this forum, and I'm writing in behalf of my 23 year old cousin (which is more like a baby brother to me). Nine months ago, after losing sight in both eyes with no previous symptoms he was diagnosed with a very rare type of cancer which occurred in less than 1000 cases from 1924 to date. The…
Brachytherapy for base of tongue cancer
I recently had brachytheraphy for recurrent base of tongue cancer in NYC with Dr. Louis Harrison. Wondering of anyone else has had this treatment. Pretty rough treatment but I am praying this works this time!!!
5 Years and so far, so good.
I was diagnosed with cancer of the Vocal chords in 2011. In fact my ENT orginally said "It's either warts or canncer. And you'd better hope it is Cancer, that we can treat while warts keep coming back. Well it's now 5 years later and my ENT is just about to cut me loose. I only had 34 radiation treatments. No chemo. After…
Done with radiation and weekly chemo. [Stage 2 NPC]
With Stage 2 [T2N0M0] NPC, I'm finally done as of yesterday with 35/35 radiation and 6 chemo (240 mg/m2 total). It's been pretty tough, I started taking painkillers a week ago and have been on them ever since. I do not have a PEG, good in some sense, although a part of me wish I had it around as it would make life a bit…
Scan results tomorrow - UPDATED ALL CLEAR!
This will be our third scan - we are scheduled for them every three months. The CT was done last Friday together with blood work, then we hightailed it out of town to help celebrate an uncle's 90th birthday. That was good because it kept our mind on things other than the scan results. I do feel optimistic about tomorrow,…
Changing jobs after cancer
Good morning all, Now that my life has changed, I was pondering my prospects for future employment should I need it. Having tongue surgery has left me with a noticeable speech impediment. My current job does not require much talking and I work for a solid company, luckily. But there is always the possibility of changing…
Any recommendations for a mucus suction machine?
Hello all, New member here. I am writing in regards to my 75 year old father who was diagnosed with head and neck cancer (tonsil) late last year. He went through the typical course of radiation and erbitux for 8 weeks. His last treatment was the end of February and he seemed to be doing a lot better however a few weeks…
Website post reformatting
Is driving me crazy. Anyone else having problems or is it just my ineptitude?
Lurk no more
Hi - it is unfortunate to have to meet you all this way - I would it rather have been on the street or in a wonderful restaurant somewhere. I have been lurking around reading many words of wisdom for a few weeks, trying different suggestions, reading great blogs (thank you Surfer). My husband has just finished…
3 Year Anniversary
Today is three years since the end of treatment. Interestingly enough, I didn't realize it until my wife brought me my coffee in the mug commemorating it! I guess it's an indication of how far I've come and adapted to the "new normal". Things are good. I have my good days and not so good days but all things considered, I'm…
Member Meet Up
SonjaK and I met at the Head and Neck Cancer Survivorship Reception at our local medical center. We met one man who is an 11 year survivor, heard a speech from a 4 year veteran, and listened to a band whose lead singer got his singing voice back 18 months after finishing his treatment. There was certainly lots of…
This Tongue!!
Since my tongue surgery (tumor removal) I think everything is going ok. I'm eating more things and even took some pills with water the last two day. The only problem I'm having right now is that because of the way my tongue is now, it's misaligned so it's driving me crazy. I can't stop sucking on the right side or biting…
Your lungs can smell odors very much like your nose.
This is more directed to the ones with Having a Laryngectomy, referred to as Larys. As a neck breather we really can't smell, and we can't hold our breath. We also have to swallow much different because we have no larynx where all the muscles that help you swallow hook to. Your lungs can smell odors very much like your…
Lucky to be alive, but still the tears
I've been hesitating to post this because I know many have suffered far more than I am or have suffered, but I don't know where else to turn right now.... I have to go back to MDA to discuss pathology results and have my post op visits. I see they have set an appt with the oncologist. I'm terrified of chemo. I'm terrified…
Sometimes
Sometimes you hear exactly what you need to hear, from out of nowhere. I was leaving Chemo today and was getting on the elevator on the chemo floor when a nice older woman (I'm 67 so....) got on after me. I was feeling pretty down in the dumps after the failure of the PD-1, all the rounds of chemo, all the rads, all the…
Update
Recovering from fall down basememt steps. 6 breaks pelvis and spine , rehab then hospital for double pnemonia. Have had 24/7 at home care . Cutting back now . Walking again. A lot to handle

Head and Neck Cancer

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