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Hello
Hello I was just diagnosed with a mass on the right side of my throat under my tonsil. He actually said it looks like two of them that are touching. I am so scared. I am due for biopsy on Thursday. I'm 37 and I use to smoke years ago but I have been vaping for the last 4 years which obviously is not any better. I guess I…
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more update and question
I am doing a lot better, getting strength back and becoming more active. My neck is still numb from the dissection, scar still very visable. Next ENT appointment on May 10. Have been having a lot of issues with stomach which I suspect are related to the hole they carved into me for the peg tube which has been out about 3…
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Another scan on Monday- UPDATE- CLEAR!!
UPDATE- scan is clear! So happy. Appt with the ENT for follow up on Monday. Thank you for the good thoughts. This will be the second scan since my husband completed treatment for tongue cancer in January. He got the NED at his first scan on February 23rd. My husband is feeling great. Just dealing with limited saliva,…
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Newbie..SCC of nasal cavity
Hello to all.. New to this site. Glad I found this site. I have been diagnosed with Stage 3.. SCC of the nasal cavity with invasion into the ethmoid sinus. Tumor size of a large lemon/tennis ball. Been told this is a rare cancer. Does anyone know anything about this type of cancer? Thanks so much!
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Gall bladder is outta here! and the PEG soon to follow
This should be a snap after the cancer treatment. My husband has been having some pretty significant gall bladder attacks and it's interfering with his ability to eat and put weight back on....so it's coming out. Surgery will be laparoscopic, same day discharge. The hardest part will be getting him to take the sufficient…
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Tongue discomfort
Hi all, Not sure if anbody remembers me but I was around here three years ago with a white patch on the right side of my tongue. Turned out to be leukoplakia with moderate dysplasia (pre-cancer basically) I had the patch excised with laer ablation and was moitored closely for any further issues. July 2015 I was discharged…
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1/2 way there
I read these boards often, but rarely comment as I am going through what most are asking or commenting about. Today is day 20 of 35 rads and round 6 of 7 erbitux treatments. So far, I have begun losing taste, had some issues with rash due to erbitux, and some raw skin issues around neck. I did have a peg put in just in…
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It's a small thing - UPDATE
thanks all for your thoughts and prayers. The MOHS surgery was much simpler than the first time - no skin graft required. I sure hope this is the end of basal cell carcinoma on my nose though. I have a small nose and if they have to keep taking pieces of it there won't be much left! As the doctor was putting the stitches…
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Forum glitch?
Hey everyone! I have been so busy with work, that I jumped online this morning to catch up on my CSN family. I've noticed that in almost all of the threads, the comment areas on certain people are blank. Not sure if there is some kind of glitch or is it just my old computer? There will be a thread with several replies, but…
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7 years out
Around this time in 2009 I started chemo and radiation for stage 3 laryngeal cancer. 7 weeks of IMRT rads and 3 high dose cisplatin infusions. Although I suffered some bad side affects managed to get the whole thing done as scheduled. Tha chemo caused some kidny damage which has not changed over the years and there are no…
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Squamous Cell Carcinoma (SCC) of the Head and Neck Info
I've seen many postings asking for info about SCC. I've been researching the subject for about 3 years now (since my original diagnosis). I have created a personal web page linked to the American Cancer Society home page that contains a lot of helpful web links on this subject at:…
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Your input is greatly appreciated
Recent diagnosis and surgery---your input and help appreciated. It is now 2/22/16 and 14 days post robotic surgery. After approx eight months of mentioning a hard lump in my upper neck, I was finally advised by my Dr to have a CScan.I had no pain and was in good health for a man of 63yrs old. I was diagnosed with Squamous…
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Mask and claustiphobic
Finally some treatment for my mom's fast growing eye cancer. They will radiate her eye for 20-25 days. She goes for her mask mold on the 28th. The problem is, she is off the chart claustiphobic. The Rad Oncologist gave her Valium but I still think she will freak out. To give you an idea of the excess phobic she has: She…
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Returning to work after treatment
i know that every situation is different,as are the types of job you all have/had, but I was wondering how long before you returned to work after your treatments ended. My husband's last treatment was early September and he is going to attempt to return to work tomorrow and I am worried that he's not physically ready for…
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Erbitux
Hi everyone, I have just joined recently. I have stage IV SCC (Supragalottic). T2N2M0. I've been hoarse since September and hoping my voice comes back once the tumor begins to shrink. I am preparing for treatment with 35 rads beginning the first week of January. My oncologist wants to implement cisplatin or erbitux in…
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Recovery from radiation/chemo
I finished 33 radiation treatments and chemo. five weeks ago. I am still on liquids and my mouth is sore although not as bad as it was. I am wondering about when I would enjoy eating again. You are really a social outcast when you don't eat and everything smells so good. Did you feel great when you could eat again?
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Radiation coming soon
Hello. I am new to this site. My name is Jess, I am 27, and a week before I turned 26, I was diagnosed with squamous cell carcinoma of the tongue. I underwent my first surgery on May 8th, 2014. I was declared cancer free in September. In December, I began having pain on my tongue again and after the holidays, I went trough…
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Getting a Port
So my mom has been told by her doctor and all the nurses at the Yale Hospital that she needs a port. She has roaming veins and they keep sticking her multiple times to even find a vein for her weekly blood tests and again for her chemo treatments. They were concerned because she is having trouble eating and are worried she…
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Treatment Plans
Question for people. My mom and I went to her appointment two weeks ago and got things set up for her. They told us she would be going through 30 treatments with 7 chemo treatments which seemed pretty normal. They listed the amount of radiation as 60 gray to her neck and 54 to some other surrounding areas which all seemed…
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Overwhelmed
My husband was diagnosed in November of stage 2 squamous cell carcinoma of the mouth. After scans and 3 doctors weighing in it was decided that radiation only was needed and by the time prep was done radiation started first of the year. I was so proud of my husband, he tolerated radiation much better than most and came…
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Newly diagnosed
Just diagnosed Hi everyone! I was diagnosed 8/10/15 and as of today my treatment plan has been fianalized and set in motion. I have stage 4A cancer of the right tonsil with spread to 1 neck node on the right side, but PET scan shows no where else. So....T2N2aM0 I'm set to start 35 weekly treatments of radiation 5 days a…
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New to this site...currently treating Stage IV NPC
Hello all. I am happy to have found this site...wish I found it two months ago, but better late than never. My husband (age 55) has been diagnosed with Stage IVb nasopharyngeall cancer. There are positive lymph nodes but they are above the clavicle and were in the field of radiation. No mets. HPV positive. We have…
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Pain management - any experience with methadone?
Hi all, We are still in the hospital trying to manage pain, hydration and nutrition. Most of the nausea has decreased and my husband is tolerating a clear Boost (Breeze). The main problem is the acute mucositis brought on by the adjuvant chemo regimen of Cisplatun and 5FU. It has also triggered something called "radiation…
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Caring bridge
I wanted to make folks here aware of a site called Caring Bridge that can be accessed at www.caringbridge.org It allows you to set up a page where you can update friends and family through journal entries. It also has a calendar so people can sign up to bring you meals or come and help if that is something you want to…
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Greetings...
Greetings... Just a flashback from 2014 to present, LOL... As a few of you may, or may not remember that I had the Whipple back in April of 2014... For a pre-cancerous cyst that had a great likelihood of turning into cancer if not whipped soon. So after having the whipple, not fully recovering, having an abscess that…
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Hospice
The time has come my friends, I have been going downhill for the last month and I have decided no more treatments. They sound like they would be making me sick. We need to find out what type of help thay they can give us. I don't want to be home alone, I have had some falls lately. I will stay on as long as I can and my…
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first ned after treatment
Hi all my name is jeff and i had stage 4 bot and lympth node cancer.I went though 39 rad and 6 cemo treatments completed june 20.Just got my results back from the pet scan and blood work,everything is clear.What a battle as i was not able to get a feeding tube put in because my colon was in the way.i realy did not need the…
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I'm not sure if the results so far were worth the effort?
treated for squamaus cell carcinoma of right tonsilNew Finished my last radiation treatment on Sept 21st. Been reading older posts about loss of taste, loss of saliva, and terrible sore throat to gain information on how long these side effects will last. I wanted to start a new post to see newer repsonses from new people.…
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Lhermitte's sign or syndrome.
Radiation treatment is truly the gift that keeps on giving. But it did give me my life back. I'm grateful. It's choose your poison though, death or radiation side affects. Over the last few weeks, at least once or twice a day, an electrical charge runs down my back and legs. Almost buckles my knees. From what I can tell,…
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No appetite and feeling cold 3 years post treatment
I'm three years post treatment from squamo cell cancer of the nasopharynx. My thyroid is being treated. I have never regained an appetite and of course I have very little saliva. As a result, I mostly get my nutrition from liquids. Also, I'm always cold. Freezing! Has anyone else experienced a loss of appetite and feeling…