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Question about Sleep patterns
My husband has finished his first round of chemo. That went well with little nausia. He became dehydrated and went into kidney failure which led to being hospitalized. Of course there was also low white cell count. This is now being controlled. However, it has seemed to affected his slepping pattern. He has troubles…
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Radiation and tube feeding
My husband is finishing his second round of chemo. During his first round he has Cisplatum and it did a great job of shrinking the tumor on the side of his neck. However, his kidney functionwent downhill and he ended up in the hospital for 5 days. His oncologist changed to Carboplatum, whic seems to be doing ok. They are…
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Biopsy?
I had just assumed that the oral surgeon is sending me on to the head and neck cancer specialist for the actual biopsy but I honestly don't know what to expect at the visit coming up on Wednesday. So if anyone has been through this, what was your experience on the first visit. Is he going to biopsy, cut the tumor (on my…
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Surgery
So, tomorrow I go for the scans and the result of the biopsy. I presume that whatever the outcome, surgery will have to be done to remove the tumor for my tongue. Can anyone tell me about that? The tumor is on the side of the tongue and it's about the size of a quarter. Thanks
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1 month out from treatment; scan tomorrow.
Saturday marked 1 month from the last rad day for my husband. He is doing so well, and things are really getting back to normal here. He has his first scan tomorrow, MRI, and we are praying so hard that the results are good. We don't get the results until March 3rd when we meet with the rad onc. My husband feels great,…
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In need of advice
HI everyone: My mom lives in Iran, we have pretty good doctors there, but SCC is a strange cancer since it is not talked about that much. She was diagnosed last summer with T2 SCC she had surgery and Radiation (33 sessions) but in December she had to have another surgery and the doctor said he got 90% of the tumor but a…
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Hi I'm Richard - Just dx'd squamous cell carcinoma Feb 9th
I am 53 and I was diagnosed with squamous cell carcinoma on February 9, 2016. I don't know much more than that as of yet, but I meet with the cancer surgeon on February 29. One lymph node on the left side of my neck is 2.5 cm X 4.5 cm, an the CT scan showed a mild asymmetrical thickening on left base of tongue - possibly a…
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It is not cancer until they say it is
What we hoped would be the last ENT visit turned into something else. There is a mass on Jim's neck which must have a needle biopsy. It is in the same area as the original tumor six years ago. Doctor said it is not a lymph node. There is a lot of scar tissue and radiation damage so I'm praying it is something to do with…
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Hot Dog!
I never thought I would get excited about such a "mundane" thing...but whoopee! my husband actually ate a hot dog while we were on vacation a few days ago. Since we are weaning off the PEG tube and everything has been pretty soft and pureed thus far, this was a big step forward...mentally and physically. Now I'm thinking…
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joined
I am a eight year surviour of HNC. Just found this site, I am researching common long term side effects of erbutux, cystplatin and IMRT radiation.
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It was time for me to join
Hello let me start out by interducing myself. I'm a 40 years old with a wife and 3 kids living in Minnesota. In the middle of May 2015 I was dx with SCC HPV+ of the tonsil with 3 positive lymph nodes. June treament started with 35 radiation tx with 3 Cisplatin. My last treament was AUG 3 2015. Then I had my first pet scan…
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1 Year Since Final Rad - Is this something to celebrate?
Today marks one year since my final of 30 radiation treatments. What a year it has been. It is amazong at how far you come in just a year! Scans in the next month and praying for NED. DX 01/12/2015 - Stage 3 No Nodes HPV+ Tonsil BOT 30 rounds IMRT 7 fields No Surgey or Chemo No tube but did get within hours Could go over a…
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Kent, I must say...
You bare a striking resemblance to 007!!!
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Emotions
As the date of my surgery is approaching, I'm having some anxiety, a little depression, fear, etc. I suppose this is all "normal". The unknowns are the worst. The best case scenario is that it won't be overly invasive where I need reconstruction but just sutures. I'm worried that all this time passing, the cancer is…
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nasopharyngeal cancer side effects post treatment
Hello All, I would like to know if anyone here experience some tuff side effect after chemo and radiation treatment. I was diagnose with NPC in June 2012 Age 37 completed all treatment. Now i experience issues in my neck pain both side and not all the time and i'm use to it now but it been more than 3 weeks i started to…
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a useful checklist
Found this online and thought it was a useful checklist for follow-up from treatment for head and neck cancers. http://dribrook.blogspot.com/p/americancancer-society-key.html Barbara
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Hi again and research news
Dear all, I am back. Sorry for disappearing. I just needed a time away since I was having a hard time moving forward. I have missed the group so I have checked from time to time. We have so many new folks. I wish them the best. All is well with us. Dima just had his round of exams and just saw his ENT. We are going to see…
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Clinical Study-- I need your help and support -please
Has anyone participated in a clinical trial study for treating head and neck cancer or know of anyone who has? Your first hand experience and knowledge will help me tremendously at this very frightening time in my life.Here is an overview of my cancer and what soon will be my next major hurdle. I am an otherwise healthy…
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Well, a new story begins......Final Update
Hi Folks, Those of you that have been around for a while know my history, but a quick recap might be in order. In 2012 I was diagnosed with Sq HPV+ BOT with the lymph nodes on both sides of my neck involved. Went through induction chemo and rads. I had a reoccurrence in 2014 that resulted in a radical neck dissection and…
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acupuncture
Just wanted to throw this out there. I am almost 6 weeks out of treatment. I was looking through the forum when I came upon MrsBD post about acupuncture during her treatment. She mentioned that she used a protocol developed by MD Anderson Cancer Center in Texas. So, I downloaded that protocol and took it to a acupunturist.…
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advice about surgery
Hi everyone, i am new to this forum. My dad (63 years) was diagnosed with squamous cell carcinoma at the base of his tongue last September. He has never smoked or drunk alcohol in his life. He received 35 sessions of radiation and 6 chemo sessions, which ended in November 2015. CT scan in March 2016 revealed there was…
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Concerned
Hello, I have never posted anything here before but the information I have learned from this forum has been so helpful to me and I'm very thankful and hope the best for everyone In their recovery. My name is Paul and I was diagnosed with stage 2 (T2,N0,M0) SCC on my vocal cord on 1/21/16. I have currently had 26 of a 29…
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enlarged right tonsil & swollen lymph node that's been there for months, maybe years...neck & throat
hi, my name is stephanie. i'm 31 years old. my doc noticed a swollen lymph node on the right side of my neck. didn't worry about it and says it's normal and to just watch it if it grows. i went back a few months later for other reasons...i'm always tired and wanted to see if maybe i was low on iron or something else. well…
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Scanextity
Hi all Here I sit on Sunday evening trying to occupy myself and not think about my next 6 month CT scan tomorrow morning , while I'm 4yrs 4 months out of treatment , I don't think the feeling of this beast coming into my life ever goes away , especially when I read of the brave warriors we've lost , the reoccurrences some…
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One of those moments
a good moment that is. You know sometimes when something happens and you feel it was not just a coincidence? Well, that happened last Saturday when I went to book the cruise my husband and I had to cancel last summer so he could be treated for stage 4 nasopharyngeal cancer. Luckily we had purchased insurance on the trip so…
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Soft food ideas
Well I am home recovering from neck disection one week out and bracheytherpy radiation 3 weeks out, having a hard time getting enough calories and protein down. Last year when I went though chemo, surgery and radiation I had a peg tube, this time I don't have one. I have been releying mostly on dairy for my calorie and…
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Roller Coasters & Old adages that are true..
Good Morning all, We are back home after the long weekend in Philly. I apologize for not logging in and responding over the weekend as I had planned. I forgot my laptop! And not the best at websites on my ipad. Here's what happened around the surgery that didn't take place on Friday. Here's a timeline of what happened so…
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Sad Announcement
My husband was diagnosed in Dec. 2015. He was determine to be a survisor and fought with all his might. Each time he got chemo, his WBC count went down the following week. He was given Nupergen shots and count rose. He finished his first session he had some kidney complications and ended up in the hospital. Treatmen…
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Had my surgery on 28th
it was brutal. I'm still having a rough time due to insufficient pain medS. I just wanted you all to know. Still too disoriented to write much.