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weather and
Does the changing in weather effect anybodys tongue or mouth who had BOT cancer,back in the fall and now in the spring ,i get this felling on the base of my tongue where i had the cancer,Not really pain but a felling,kind of weird feeling
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Surgery is done
Five hours. Came through ok but now I can't swallow well, feels like my tongue is shorter. It's swollen for sure. That's the only thing holding me back from leaving the hospital - my ability to swallow and eat. I've had a little juice and water with a spoon. Please tell me this gets better.
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Food
I've been trying to experiment with what I can manage. It's so discouraging sometimes since I considered myself a foodie before this happened. I love to cook and have always avoided the processed and pre-packaged stuff. Now I can manage a few things that I couldn't before. Cottage cheese with diced (very tiny) melon.…
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Lymph Nodes
Well, they all tested negative.
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Catching a break
Does not seem like my body plans to let me grt a break anytime soon! from pneumonia January, to doctors cancelling surgery date (they couldn't coordinate), one having to be out of town etc, I'm sick again! wondering if it's related to the cancer?? Same pneumonia symptoms,though we caught it early, but I'm on Mucinex,…
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Home from hospital
Came home last night. Tongue is still swollen and misshapen. It feels like it's been burned. It tingles sometimes and it is extremely uncomfortable but I would say the pain is high. I find if I've been talking too much or after I try and "eat" anything, there is discomfort. It is every strange. Saliva pools sometimes and I…
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Post Op Blues
I have to say, I'm very depressed. Hungry all the time, tongue feels like a gnarled piece of flesh. Feels like I have a plastic ear. Can only get so much down and patience is running very, very thin. The visit to remove the drain wasn't much help. How long to get the results from the lymph nodes? Are they gonna make me…
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Side effect of radiotherapy of neck
My dad was diagnosed with T1b Glottic in Mar'15. He under went 33 sessions radiotherapy and was NED till Nov'15, next check up is due in Feb'16. Recently we had gone for his routine heart check up as his bP was high whereas he was having low BP before. His ECG was fine but there was some issue in ECHO so he was recommended…
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swallowing after partial larengectomy
Hi I am new here and writing for my husband who is 62 and need help/info regarding relearning to swallow. My husband had surgery November 24 and had epiglotis removed, reconstruction and neck disection. Dr says went well and all looks good. Had trach and feeding tube inserted. Although the surgery went ok there were…
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update on ron
hello ron just hit 3 years on his original tonsil cancer. he did well thru all his treatments in 2013, hardly any problems. slight mought dryness , mst foods taste somewhat normal to him. gained his weight and energy back. just went for his annual check up in january, did ct of neck, neck was clear but it shouwed the top…
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gabapentin
Hello everyone! We are looking for a break away drug to help with the ongoing pain in my lower right jaw 8 months tx. I have been on morphine and most recently, oxycodone, and while they keep the pain tolerable, in no way do I ever see a pain level less than 5. My ENT and pharmacist want to try gabapentin, a drug that…
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HI 3month PET scan today
Hi, Had my 3 month PET today. The results are online and of course I read them. Tomorrow I have appt with RAD ONC, MED ONC and ENT. The good news is my neck did not glow. Not the original Pyriform sinus tumor or the other two cervical lymph nodes. Nothing. I am shocked and very hopeful. There is however a new enlarged…
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So many new names...
I was off the board for a bit while we were out of town and I just can't believe how many new names are on the board. Loveandbelieve, SQLNOLE, Aking, and Jim Willis - welcome to the CSN H&N family. While it makes me sad to see our rolls ever expanding, I'm glad you found our group. I wonder if head and neck cancer is…
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NED
Finally heard those words today and saw them written on the doctor's report also. Husband and I went to see the ENT surgeon today for a follow up. He said my husband looked great. Next scan is on May 2nd with a followup visit on May 9th. I asked the doctor "now what?" He said that we try to go back to our old lives as best…
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SCC - met with Robotic Surgeon today - with a plot twist
This is what we learned today: My goodness it's complicated. The doctor started off by saying that he recommends radiation and chemotherapy. However this doesn't work very well given the fact that I do not have a permanent job and I don't have long-term disability. So we're meeting with the Radiation Oncologist next week…
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Today was my last day of radiation
Got through the chemo and 35 radiation treatments, now on to the healing. It was a little bumpy but thanks to the good folks on here and friends/family made much easier. By reading on here and other places I was able to avoid some of the pitfalls. I had no mouth sores, very little neck burn, I can swallow and feel fairly…
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New to this Board
Hello. My Name is Bruce. I am 61 years old and presently live in central Indiana. Last week I was informed that I have at least stage three throat cancer. I am still waiting on the results of a biopsy and PET scan. I, of course, am a bit nervous as I do not know what to expect in the future with treatment. Spiritually I…
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Hospice survivor
I am new to this board but not new to the bad and unexpected things that seem to find thier way into our lives. Back in 2010 I was placed in hospice with Cirrhosis of the liver and with all doctors giving me no chance, and now it's 2016 and I safely say that doctors dont know everything. Now I am facing a new foe called…
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Erbitux Stage 4
Hello - I usaully post to forum for anal cancer, which is disease I'm coping with. Recently I was put on Erbitux and another chemo drug by my oncologist. Research has shown Erbitux effective in other HPV cancers, not just Head and Neck Cancer. I've done two treatments. I broke out in horrible rash after first treatment.…
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5 months out
It's hard to believe it's been 5 months since my hubby stopped treatment. Not much to report from last month, but he did have another swallowing study at my insistence. It just seemed to me like he is coughing and clearing his throat while eating more than he used to, and then said his chest was congested - so off to the…
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Here we go then...
Today was my tenth day on the rad rack after a dose of chemo on day one and so far no nasties except taste all but gone. Unti now I have avoided forums as felt I would take each stage on this journey as they come but fear has gotten the better of me so hope I can find a few on line soul mates to share this ordeal.....Luv M
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My mother passed away
My mother passed away on January 5th, 2016. I was with her while she passed. My sister had gotten to spend time with her two days prior and dad had gotten to say goodbye the night before. She was truly a fighter and was determined to beat the cancer even up to two days prior to her passing. She was told at Thanksgiving she…
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Insurance Issues
I was just wondering if any of you have had co-pay or deductible problems with your treatments. I've got pretty good insurance but I'm pretty sure I can't afford and up front payment for this surgery. My deductible is $2200 and there is no way I can afford that. I can just about afford to pay the premiums montly as I'm on…
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Cardiac Clearance
So, my heart is "strong" and I'm cleared for surgery. However, the cardiologist doesn't want me to use the nicotine patch. Makes sense since nicotine causes blood vessels to constrict and I've already had a heart attack and a stroke. When I was in the hospital after the stroke, they put a patch on me. The cardiologist says…
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Six years...... If I can do it so can you
Went to see my throat surgeon the end of last week for my six year checkup, as usual he had two students with him one from Canada and the other from Japan. He scoped me for all to see including my wife (except me because the screen was over my head) and had me mutter all the sounds. Matt, I know what you’re…
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ROLLCALL 2016 - CLOSED 3.1.16 (SEE UPDATE)
ROLL CALL 2016 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll (name, town, state, dx) or Check-In whenever you see…
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MEC and headaches post surgery
I was diagnosed in 2014 with MEC of the minor salivary glands (low grade). I had two surgeries-one with involved margins and one where they removed a portion of my hard palate and had clear margins. All follow-up exams have been ok-my dentist now keeps an eye on my palate, as he is the one that originally found the cancer.…
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Meeting Mr. NED!
I went this past Tuesday to Johns Hopkins to meet with my Rad Onc. Scope, poke and prod time. All is well! He was thrilled at the healing of my throat and the questionairre about eating puts me at about 90% back to normal. So NED again! I see my Med Onc and Speech Pathologist in a few weeks and I fully expect all will be…
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Return to work or disability
Now that my husband is out a ways and recovering we are discovering how hard it is for him to get back to work. How does anyone do it? For him, the fatigue is pretty severe and we're still transitioning to solid foods, so getting adequate nutrtion and hydration takes a lot of time during our day. He is considering early…
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Hospital again
Finally home again but spent nearly another week in hospital. Went via ambulance and it was the first time they "ran hot" so I was worried. Turned out to be pneumonia and free air in abdomen. They think my vomiting caused a small tear allowing the free air. Small and repaired on own. Am better now. Saw surgeon yesterday…