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the road ahead
New here. Colonoscopy and diagosis last week.. 3 cm growth in rectum. Still reeling! MRI for staging and seeing rad. onc in the next few days. Gastroenterologist performing scope mentioned chemo and rad to be expected in management of condition going forward. Crazy life-changing experience.. (what an understatement!)…
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maintnance chemo
Have not been on in awhile, seems like i am chasing treatments. Anyway, after 11 of 12 sessions with oxy/pump with leucovorin/erbitux my two liver mets shrank by mm's, as did the aortacaval lymph, the lung spots ( never testd) just hang around.....since i can't keep up the twice a month drive i will do maintenance here in…
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Can Chemo/Radiation cause arthritis
Hello everyone I'm a survivor of colorectal cancer and now in remission -1 year now. My question is this; has anyone besides myself experienced arthritis after treatments of radiation and chemo?
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Can rectal cancer return after 20 years?
Hi Hi. I am very worried about my dad. He has been cancer free after rectal cancer in 1998, after which he had a permanent colostomy. He has become very sick in the past 5-7 years with loss of feeling in his legs and back pain. He also has a permanent incurable infection from a fistula. He is very weak, and exhausted all…
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Confession
Okay, I'm going to talk about something that might sound very weird or might alienate me from some members. I did speak about it to one and he was very accepting but I've told very few people about this. And it's kind of bothering me a lot. My husband and daughter do know but my closest friend is a Jehovah's Witness and…
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Anyone know anything about mets to the sacrum?
A couple of years ago my partner was diagnosed with rectal cancer. He went through the chemo and radiation, the surgery, and then the follow-up chemo. All signs pointed to his being NED, except for a nagging lower back pain that kept getting worse. We recently discovered that my partner's cancer bypassed the lymph nodes,…
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Thinking of B17 Apricot Kernel seeds
I had just read about this Apricot Kernel seeds B17 are excellent for us who suffers on cancer under chemo. Don't know much about it but I had just ordered a bag of it today, and mine is well try it since it is considered a vitamin. Had anyone heard of it at all?
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Colon perforation
Has anyone experienced a colon perforation (hole) in their colon probably due to the Avastin, if so how was it treated? any help appreciated.
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Hello All
I'm Patty. I posted some replies on the existing threads but thought I'd drop by a hello to formally introduce myself. First of all, I wanted to thank this forum as this has provided me with some hope and answers to questions that I sometimes forget to ask to my onco. I've come to a realization to stay away from…
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Repeat Offender - Different Organ
I visited this site last week in my determined quest to self-educate regarding rectal cancer. After reading some posts I decided that it would be beneficial for me to join the list. When I attempted to do so it indicated that I was already a member. Apparently I joined in 2012 when I was freaking out during my third year…
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Taken off of Avastin
Little worried, husbands scan showed possible blood clot and he now has to take blood thinner meds. Because of this the Dr has removed Avastin from his chemo treatment (Folfori). Dr. said he is between a rock and a hard place and has no choice. Has anyone else been thru this and what has the outcome been? He has just…
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Weird Liver Stuff and Minor CEA Question = Panic
Panic for me anyway. Not sure my doctors are worried but I am. I had my 3 year CT scan in June, where a 9 mm hypervascular lesion was noted which could be a hemangioma, but they couldn't rule out metastasis. My onc sent me for an MRI which was SUPPOSED to give us a definitive answer, but did not. Apparently the lesion is…
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neoadjuvant chemoradiotherapy
I was looking around in Dr Google for info on weither neoadjuvant chemoradiotherapy is effective at downstaging rectal cancer. It seems while one paper may say it does another may say it does not. This is my first post so be gentle please. I was wondering if anyone else has had this treatment and what was their results if…
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New Member and a Question
Hello everyone, I joined this site a few days ago and I have read some of the topics. You guys are so inspiring and brave to talk about personal battles and being there for one another. They found a malignant tumor in my sigmoid colon during my colonoscopy about 2 weeks ago. The tumor actually obstructed the camera scope…
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how reliable are PET Scans?
I got the results of my PET and it showes 2 large masses in my liver. When we did a biopsy of one of the masses it came back benign, but the pet showes 2 large masses. I originally had 4-5 large masses in my liver, so is it possible to have some that are benign and some that are cancerous? what is the likely hood that…
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Partial Tumor Abortion?
Everyone: This is somewhat gross, but then again, so is cancer. I am two weeks into chemo and radiation for a rectal tumor. Earlier today I passed a large tissue during a bowel movement. It clearly was not feces. Is this common? Should I be concerned or is this proof positive that the Xeloda and gamma rays are having a…
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Sedation for colonoscopy
Hi everyone. I have posted my story before but wanted to mention it again to see if there is anyone else who has inputl. I was diagnosed with stage 1 colon cancer in September 2016. I had 23 lymph nodes removed and all of them were clear, and I also had a CT in March that was good. In addition, so far all my bloodwork has…
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PET/CT done ✅ on Tuesday
I'm on Xeloda and Avastin, 5th round I had a PET/CT done on Tuesday. He emailed me yesterday and indicated "good news" The PET/CT revealed some minor regression of the tumor in the rectal region. No signs of distant spread seen. Everything looks good. Wanted to let you know right away as your f/u with me is not for another…
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No appetite...what to do?
Pulled the pump out yesterday, got Neulasta injected. Now, guess what? I have soury stomach and no appetite for food!! What do you do when this happened to you? Any suggestion is appreciated. God bless us all Eisset
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Affirmation and positive thoughts
I've decided that not only am I praying every night- which I always did- and asking for help- which I don't usually do, I usually just ask for help for others like everyone on here or am thankful-, but I'm going to tell myself every day at least once that I'm going to beat this and tell my body to fight it off. I've been…
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T2 rectal tumor
I've gone through many tests in the last 30 days, and now am waiting for surgery, my surgeon uses the DaVinci Robotic machine to aid in surgery. I have a lot of anxiety, no lymph node involvement, one more test to make sure all is still a confirmed T2 and not a T1, but same outcome is surgery since the tumor is considered…
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Phlegm as a chemo or cancer symptom? HELP!
Hi everbody. My father (70) has stage IV colon cancer with liver metastasis. He was operated on April, they removed part of his colon and has a colostomy bag, and now he is on his 3rd chemo round. He is on Xeloda and Capecitabine pills. He also takes IP6 Inositol, Cannabis oil, A lot of multivits, etc.. Its now been I week…
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Diagnosis Change
Another constant is change, even in cancer. According to one doctor I've got Rectal Cancer and the other is holding to Colon. At first I thought I might have two tumors but that was cleared up as it being long enough to bridge the intersection of the sigmoid colon and rectum. The next surprise came with the biopsy.…
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Happiness Is CEA Drop
Last CEA test was a small uptick of about 10%. Still below being high, but the only uptick other than (a) chemo killing things and CEA going up before dropping and (b) lung met growing after chemo, following the decline in CEA for a bit following end of chemo. Today was 10% drop off of last CEA. So the uptick last time may…
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Taking back 3 weeks
I got a call this morning from the scheduler to set up my next CT scan for late August. I had already spoken to my oncologist and told her I wanted to wait until after the 15th of September. She said 3 weeks wouldn't be life or death. This isn't a treatment scan. It is my 4 month "is everythig still ok" scan. So when they…
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Rolled a 3
I got the official word today. The endoscopic ultrasound was done and it's stage 3 and sits right at the border of the rectum and colon. 30 mm long and 23mm wide. The doctor said since it penetrated a level of tissue in the colon that it got upgraded (As though it's a good thing). Pictures were included, as if I really…
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Been a while
I haven't been on here in forever. I was diagnosed in 2008, and have been cancer free for about 8 yrs now. I do have significant damage to my nerves systemically. I now have been diagnosed with Parkinsonism which they believe is induced by oxaliplatium.
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Infusion was cancelled
Yep, my Folfox infusion has been cancelled yesterday due to the gout on my right foot! My oncologist prescribed the prednisone 20mg. Then infusion will follow on next Friday. Oh gosh!!
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Chemo Sux
After 11 years battling this mess, you would think that my body would be accustomed to the chemo by now but nope. It seems like each new episode with chemo is affecting my body more and more. I wonder how long it will be before I cannot tolerate it at all. I had almost forgot how crappy this stuff makes me feel but…
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Stage IV still in treatment
Hi all, I'm curious to find hear about stage IV survivors---still in treatment--- and how long you have been fighting the beast? Have you been doing treatment the whole time? Have you had breaks?