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New here and so very confused.
hi my name is ginger. I’m 42. This journey started in july even though it should’ve started like 8 years ago when I found out I was severely anemic. This past July I was having low right pain and back pain. The outpatient er did a ct scan and said i had diverticulitis and a mass or abscess and possible spots on liver. My…
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Dealing with a fistula
I'm new here and hoping to find someone who has had a similar experience and possibly some suggestions. My 54 year old husband was diagnosed with stage IV colon cancer in early August. It's very advanced. He had a colonstomy and exploratory surgery with biopsies right away. Of course, he's had CAT & PET scans. There is a…
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Hello old friends and new
I've been super busy. Reorganizing at work has been crazy and stressfu. New grand baby girl on April 9. New grand son on October 4th. Life is wonderful and stress is something I wish would simply leave me alone. And now its time for scans and CEA test. My last tests were in June. I've been NED since December 2014. I'm…
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Wife stage 4 colon cancer to liver
Wife was diagnosed with stage 4 colon cancer to the liver sept 28,2017. Oct 6 she was given 2-3 months if chemo doesn’t work. Been a rough road so far but she Got blood work done yesterday and started her 2 nd chemo treatment and found out her tumour markers are going down, is this good? Sounds like it. She’s only 36 and…
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It has begun.
Hello All, my mother of 66 years old went for a colonscopy last Friday after having blood in her stool. The doc found two tumours in her colon. One aprocimately 4cm in diameter and the other one is smaller. She has been sent for CT scan and blood work to get a better picture of the situation. Results from the biopsy are…
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New Here Husband Stage IIIb
Hello Everyone! I am new here. My husband was diagnosed last month with colorectal cancer. His tumor was in the rectum and the sigmoid colon. He has already had colon resection surgery and met with the oncologist. He is stage IIIb, lymphs were negative but he had 4 tumor deposits. His tumor was 4a. He also had perineural…
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Rectal cancer stage 4 with mets in liver and lungs - feeling lost, need help and advise
Dear all, i'd really need some help and advise. My mother (turned 70 last month, the most energetic, kind and full of life person I know) was diagnosed with rectal cancer in Feb17, while she was going through stroke rehab (! all of a sudden and out of nowhere she suffered a severe stroke after New Years). She started, in…
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Wheatgrass juice
Has anyone benefitted from wheatgrass juice? Thanks for feedback.
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Two articles
www.eurekalert.org/pub_12696-gut-microbiome-may-make-chemo-drug-toxic-to-patients.php www.eurekalert.org/pub_releases/2017-11/sonm-nsf110217.php Also, www.medicalnewstoday.com/articles/319959.php
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3rd treatment today adding back Avastin
i am nervous, the dr is insistent that the irinotecan caused the severe pain and diarrhea on day 7-11 of disconnect. I am hoping she is right since his blood pressure is down so they added it (Avastin) back. The plan was one more treatment, then a scan but he had one in the ER so they think the ins won't agree. So he will…
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Getting Fit
I think I've posted about this before but with my carppy memory I'm not sure. Please indulge me if I have. I spent almost 4 hours with my horse yesterday. I was and am exhausted, which is not a surprise. What is a surprise is that I'm sore. My muscles hurt. I can barely lift my left arm. This is lack of conditioning, not…
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Manifest Call
I know we have two members (NHMIKE and DARCHER) scheduled soon for surgery, but I don't know when. Guys, if you will, what are your scheduled dates and times? Let us know so we can think about you and pray for you. Believe me, it makes a difference when you know that others, who have fought and are fighting this fight, are…
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ivf or pregnancy after chemo?
I realize this is a very ambitious of me. but i have finally just got done with chemo and im expecting good results with my blood work and scans. My husband i would love to have a child together as this was the plan before i found out about the cancer. I realize i must wait a certain while after chemo to ensure my eggs…
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27 years old with stage 3 colon cancer
Let me start by saying I'm a mother of 3 beautiful children! That's my motivation to keep fighting through this pain every day until it's over! It all started with sharp abdominal pains at work in 2015. I been to 6 doctors and 2 hospitals. I've been told that I was constipated and that I had gastritis. I changed my diet…
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Bowel Movement Program by Annette Bisanz
I was diagnosed with rectum cancer back in June of 2009 and went through chemo,radiation and then surgery. After six months I had reversal surgery (three weeks ago). I am feeling pretty good except that I feel like I need to have a bowel movement 24/7. My doctor put me on a high fiber diet but it was not really helping. I…
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Had my first infusion yesterday.
So I had my first infusion yesterday at UT Southwestern and all went smooth. I had a private infusion room with a recliner and TV plus 2 guest chairs. In the hall at the snack station they had coffee, hot chocolate and snacks. I was very comfortable. Boy does it hurt to touch cold stuff. It turned cold in my area so the…
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surgery for stage 4 with liver, lung mets
I am wanting surgery but two oncologists just say no, not with mets in liver, lungs, and possible aortacaval lymph nodes.....just in a six week break from 5fu but still go for erbitux....back in hometown, after undergoing 12 sessios in LA, ten with oxyaliplatin, that was dropped...couldn't keep up the drive twice a month…
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10 the Folfox 5FU tomorrow
Hi All, Been a while since my last posting. Tomorrow I will be receiving my 10th of 12 Folfox 5FU treatments, for my Stage 3 C Colon Cancer. Met with oncology doctor this morning. Based upon the information shared with the doctor about side effects from treatment #9, it was decided to lower the Oxi by 35%. I have been very…
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Looking Ahead
I am five days past my rectal resection surgery and slowly, but steadily, regaining my mojo. Instead of focusing, dissecting, analyzing, fixating on the present, and some of its unpleasantries, I prefer to look ahead to the next event in this cancer challenge - mop up chemo. My oncologist told me that he recommends six…
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6 Year Lifeaversary
Since this is my asurvivor anniversary I thought I would share some thoughts. 6 years ago today I was diagnosed with stage 3 colon cancer. I heard the words "you have cancer" for the first time. I have "survived" 6 years. My life has been changed forever by those 3 words. Unfortunately I heard "your cancer is back" 26…
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bad side effects of fu
Hello guys. I understand im pretty new here and have been out. The last couple treataments really has sorry for language kicked my ****. I had super bad handburning last time unable to walk or touch anything so doc took out a med. This treatment, same thing ;( Doc basically said to take as many oxyocodones as I can without…
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CEA - please be honest
my husband has been in remission from stage 3b rectal for a little over a year. His cea in April was 1.6. Got results that it’s now 44.4. His CT is not until Wednesday. I know I should stay off the internet, but I can find no instances where a level that high was not cancer. I am sad and scared, but ready to fight…
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Popping in to say HI!
It's been a very long time since I have logged in! My husband now is almost 7 years out from rectal cancer diagnoses and is still NED. This was such a great sounding board for me as a care taker and just wanted to say hello and thank you to all of those that helped us through those tedious couple of years. It can be beat!!
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Experience with Neulasta?
Anyone have experience with Neulasta? After seven rounds of FOLFOX and Avastin, my white blood cell counts are down to 3.7/ul (normal range for female is 3.8 - 10.8/ul). So I am getting my first treatment with Neulasta today. Kat
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Side-effetcs of chemo question
My 28 year old boyfriend is currently undergoing chemo treatment for what was a diagnosis of stage 3b colorectal cancer. He is almost done, and has undergone radiation, 3 surgeries, and several phases of chemo in the past 8 months. He also went through a 3 month period where he could not eat or drink anything without…
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Port removal is getting nearer, but...
Yep, my schedule on port removal is getting closer, but my neuropathy hasn't gone away yet. My toes and fingers are numbed. Have you had/have this problem at all? If so, what did you do to get them back to normal. My oncologist told me the nerve cells die while on chemo. But after the last session, nerve cells go back to…
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Does your colon tumour show in the CT scan?
Hello everyone - I have CRC with mets to my liver. I was initially diagnosed because my ultrasound and then the CT showed lesions in my liver - had liver biopsy, and was told it was adenocarcinoma. I then had a colonoscopy which confirmed tumour in colon. None of my CT scans report about the colon tumour. Just wondering if…
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Rectal Cancer with skip metastasis
Is there anyone out there that has had colorectal cancer with no regional cancer in Lymph nodes but cancer is non regional nodes such as the iliac chain? It is called skip metastasis as there is no cancer in any nodes near the primary tumor in the colon or rectum
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Melatonin and useless nutritionist
my husband is at his first chemo, they asked what supplements I was giving him and immediately I knew the nutrionist was going to get testy. She told him not to take vitamin C, COQ10 and melatonin 2 days before until two days after chemo. Every single study I have read says melatonin helps reduce side effects and makes the…
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port removal
I am trying to find out how a port is removed that goes to the main artery in the neck?Is it a doctor visit or hospital?If hospital how long do you have to stay after it is removed?I have been colon cancer free for 4 years but afraid to get port removed from the artery.How do they seal the artery up so a person doesn't…